RE: Hey look what the Iowa CF foundation sent me!!

[Guest guest]

Thanks for sending this! I probably would have missed it as I have not

been on the CFF website in a while. I just found a great DHA/EPA

supplement. I have been taking fish oil for awhile now but I hate the

smell, taste and fish burps. I have also been looking for something

that the kids will not mind taking. The website is www.coromega.com and

they will send you a free sample. My kids loved it and you will

absolutely not taste or smell the fish oil. The other nice thing is

there is no sugar or junk added (at least not that I can tell). I found

a place here in town that sells it too so I don't have to order it

online only. The only thing I can't find is an amount that is

appropriate for kids...does anyone know? Anyway, I was just excited to

find this product, then to hear there is research (CF specific)

supporting it.

Mom to Ellie 14mo wCF and Jack 3yrs noCF

Hey look what the Iowa CF foundation sent me!!

The February 5 issue of The New England Journal of Medicine (NEJM)

reports

on the results of a Cystic Fibrosis Foundation-supported study that

confirms

that people with cystic fibrosis (CF) have an imbalance of fatty acids.

These findings may lead to new specialized therapies for people with CF.

You may remember hearing about similar research in 1999, which showed

that

CF mice had low levels of arachidonic acid (AA) and high levels of

docosahexaenoic (DHA) acid. The research published in the NEJM provides

further confirmation of this imbalance in humans, and also links it with

the

defective CFTR protein. This is significant because, before now, CF

researchers were not able to link the fatty-acid imbalance to CFTR.

It must be cautioned that this research is still in the very early

stages

and no studies have yet shown that supplementing DHA would be beneficial

for

people with CF. The CF Foundation will continue to fund DHA research and

will move it forward cautiously and expeditiously. For more information,

please refer to CF Foundation's Web site at

http://www.cff.org/content.cfm?contentID=502.

Hamilton

Associate Executive Director

Cystic Fibrosis Foundation

1025 Ashworth Road #512

West Des Moines, IA 50265

Phone:

Website: www.cff.org