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It seems like this was about the same time our daughter had similar issues with

her starband helmet (she's now 3 months in and almost at our optimal results).

I know it is extremely frustrating and the multiple visits are agonizing - but

keep going back until you are satisfied with the fit. I agree that you know

best. We ultimately did talk to another Othotist in the practice and I don't

think it helped much - the only thing that helped was to keep going back until

satisfied. They also added padding (which had a spongy feel - less slip to the

bottom of the neckline - which seemed to help with the rotation. Another idea

is maybe it's time for some measurements - with the starband you can get new

scan to see the improvement (not sure with Hanger). Just suggestiong that maybe

the measurements will be helpful - because they take out some of the

subjectivity and show progress or lack of progress. Hang in there!!!

>

> Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt

like it doesn't fit right since day one. We have been back to the orthotist on

five occasions. Three were for scheduled visits and two were because we felt

like the helmet was pushing to hard on this ears and eye. Every time we visit

she tells us that the helmet is right, but that it is rotating and she just has

to add another pad to stop the rotation. There are now 4 locations that have

pads in this helmet and we are concerned that it is not working correctly.

>

> The most frustrating part is that she is the only person to talk to and she

keeps saying that it is not pushing on his eye or ears, when we can clearly see

that it is. I have attached pictures to find out if anyone agrees or disagrees

with us. I don't know if we need to go to a new facility or just trust this

person. She says that she is the number 2 person in all of Hanger to do the

volume of helmets that she does. Also now it looks like the front pad is

pushing in on his eye and he is getting a bulge over his left ear. You can see

in the pictures that it is the left eye that is getting pulled on.

>

> Any help or advice would be appreciated.

>

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The helmet looks like it DOES NOT fit your son correctly. It appears to

be pushing his left ear forward, possibly deforming it. The left side

of his face looks almost bruised. I am surprised that there aren't any

red spots there. My son wore a DOC Band, and they don't use padding at

all. The band fit him correctly from the start. It concerns me

whenever I hear about orthos adding padding. I feel as though the fit

must not be great in the first place if additional foam and or padding

keeps being added. How can a band be effective if it keeps getting

modified with additional padding or foam? It seems more like guess

work, altering the original custom fit, made from the scan or cast of a

baby's head. I would switch orthos, as I don't feel that you are in the

best hands with your current one. I'm not even sure if your son's band

can ever be adjusted to fit right. You may need to insist that it be

remade, free of charge. Have you noticed any improvement in your son's

head shape during the 7 weeks he's been in the helmet? Do you have a

Cranial Technologies anywhere near you?

>

> Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have

felt like it doesn't fit right since day one. We have been back to the

orthotist on five occasions. Three were for scheduled visits and two

were because we felt like the helmet was pushing to hard on this ears

and eye. Every time we visit she tells us that the helmet is right, but

that it is rotating and she just has to add another pad to stop the

rotation. There are now 4 locations that have pads in this helmet and

we are concerned that it is not working correctly.

>

> The most frustrating part is that she is the only person to talk to

and she keeps saying that it is not pushing on his eye or ears, when we

can clearly see that it is. I have attached pictures to find out if

anyone agrees or disagrees with us. I don't know if we need to go to a

new facility or just trust this person. She says that she is the number

2 person in all of Hanger to do the volume of helmets that she does.

Also now it looks like the front pad is pushing in on his eye and he is

getting a bulge over his left ear. You can see in the pictures that it

is the left eye that is getting pulled on.

>

> Any help or advice would be appreciated.

>

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It is a little hard to comment on the fit of the Connor's helmet, because I 've

never dealt with a Hanger helmet. I have to agree though, it looks like it

doesn't fit well. At least the way it pushes on your child's ears looks bad to

me! Does the helmet make his ears stick out like that full time when it is on?

I hope parents who actually used a Hanger helmet can provide more insight.

>

> Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt

like it doesn't fit right since day one. We have been back to the orthotist on

five occasions. Three were for scheduled visits and two were because we felt

like the helmet was pushing to hard on this ears and eye. Every time we visit

she tells us that the helmet is right, but that it is rotating and she just has

to add another pad to stop the rotation. There are now 4 locations that have

pads in this helmet and we are concerned that it is not working correctly.

>

> The most frustrating part is that she is the only person to talk to and she

keeps saying that it is not pushing on his eye or ears, when we can clearly see

that it is. I have attached pictures to find out if anyone agrees or disagrees

with us. I don't know if we need to go to a new facility or just trust this

person. She says that she is the number 2 person in all of Hanger to do the

volume of helmets that she does. Also now it looks like the front pad is

pushing in on his eye and he is getting a bulge over his left ear. You can see

in the pictures that it is the left eye that is getting pulled on.

>

> Any help or advice would be appreciated.

>

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,

It is frustrating when the experts are telling you the opposite of what your gut

is telling you. I think you should seriously consider taking Connor somewhere

else for a band fitting.

I went down this exact road with Hangar in 2006 with my daughter. They insisted

that the band was a good fit, but I could see it obviously wasn't, with the

bright red marks it left at various spots on her head. They implemented the

same fixes for her... inserting additional padding... which only made the fit

worse. At one point the helmet was causing so much pressure that she started

vomiting before we even got home from the fitting. I wanted to rip the band off

and throw it out the car window. I was MAD that they obviously weren't

qualified to fit these bands. If their scan is so accurate then why does the

band need padding in the first place? isn't it supposed to be customized to the

scan?

After 3 or so months of worrying and questioning, I was fed up. I took Allie to

Dallas to Cranial Technologies and can I just say the experience there was

awesome by comparison. Wow, these people really know their stuff. The docBand

was a perfect fit from day one, and we never had an issue with any of the

adjustments. Allie was already 13 months by the time she received her DocBand,

and we knew the results would have been better had we started earlier, but we

did the best we could with the time we had. In the end we were very pleased

with the results.

I wish you all the best with whatever you decide, but as a parent you really

have to trust your instincts when it comes to your child!

>

> Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt

like it doesn't fit right since day one. We have been back to the orthotist on

five occasions. Three were for scheduled visits and two were because we felt

like the helmet was pushing to hard on this ears and eye. Every time we visit

she tells us that the helmet is right, but that it is rotating and she just has

to add another pad to stop the rotation. There are now 4 locations that have

pads in this helmet and we are concerned that it is not working correctly.

>

> The most frustrating part is that she is the only person to talk to and she

keeps saying that it is not pushing on his eye or ears, when we can clearly see

that it is. I have attached pictures to find out if anyone agrees or disagrees

with us. I don't know if we need to go to a new facility or just trust this

person. She says that she is the number 2 person in all of Hanger to do the

volume of helmets that she does. Also now it looks like the front pad is

pushing in on his eye and he is getting a bulge over his left ear. You can see

in the pictures that it is the left eye that is getting pulled on.

>

> Any help or advice would be appreciated.

>

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The pictures you posted remind me so much of another little boy “ â€. His mom (Holly) was active on this board about a year ago or so and first got him fitted with a Starband and the band was pushing on her son’s ear the same way it does on yours. It was also not sitting properly on his head. She ended up driving a long distance to Cranial Tech and got him fitted for a DOC band instead and the difference was like night and day.

I understand that driving to a CT location might not be an option for you but I’d demand the band to be remade now. The padding that was added is ridiculous, in my opinion and an ill-fitting band can cause damage if left on for too long.

If CT is not an option in your area, check and see if you have a STARband location. If the Hanger place doesn’t want to make a new helmet for free, then I’d ask for a refund.

Good luck,

Leila,

Maysa, 2 yo, DOC band Grad 5.26.09www.mymaysa.wordpress.com

From: DomsMom <danabrin@...>Subject: Re: Frustrated....Plagiocephaly Date: Monday, May 10, 2010, 4:35 PM

The helmet looks like it DOES NOT fit your son correctly. It appears tobe pushing his left ear forward, possibly deforming it. The left sideof his face looks almost bruised. I am surprised that there aren't anyred spots there. My son wore a DOC Band, and they don't use padding atall. The band fit him correctly from the start. It concerns mewhenever I hear about orthos adding padding. I feel as though the fit must not be great in the first place if additional foam and or paddingkeeps being added. How can a band be effective if it keeps gettingmodified with additional padding or foam? It seems more like guesswork, altering the original custom fit, made from the scan or cast of ababy's head. I would switch orthos, as I don't feel that you are in thebest hands with your current one. I'm not even sure if your son's bandcan ever be adjusted to fit right. You may need to insist that it beremade, free of

charge. Have you noticed any improvement in your son'shead shape during the 7 weeks he's been in the helmet? Do you have aCranial Technologies anywhere near you?>> Our son Connor was fitted for a Hanger helmet 7 weeks ago and we havefelt like it doesn't fit right since day one. We have been back to theorthotist on five occasions. Three were for scheduled visits and twowere because we felt like the helmet was pushing to hard on this earsand eye. Every time we visit she tells us that the helmet is right, butthat it is rotating and she just has to add another pad to stop therotation. There are now 4 locations that have pads in this helmet andwe are

concerned that it is not working correctly.>> The most frustrating part is that she is the only person to talk toand she keeps saying that it is not pushing on his eye or ears, when wecan clearly see that it is. I have attached pictures to find out ifanyone agrees or disagrees with us. I don't know if we need to go to anew facility or just trust this person. She says that she is the number2 person in all of Hanger to do the volume of helmets that she does. Also now it looks like the front pad is pushing in on his eye and he isgetting a bulge over his left ear. You can see in the pictures that itis the left eye that is getting pulled on.>> Any help or advice would be appreciated.>

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I'm sorry, I just can't get over the padding that they added. For God's sake,

if that was effective we could all go buy bike helmets and glue in some felt and

we would save ourselves a lot of hassel and money. That is just too much.

>

> Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt

like it doesn't fit right since day one. We have been back to the orthotist on

five occasions. Three were for scheduled visits and two were because we felt

like the helmet was pushing to hard on this ears and eye. Every time we visit

she tells us that the helmet is right, but that it is rotating and she just has

to add another pad to stop the rotation. There are now 4 locations that have

pads in this helmet and we are concerned that it is not working correctly.

>

> The most frustrating part is that she is the only person to talk to and she

keeps saying that it is not pushing on his eye or ears, when we can clearly see

that it is. I have attached pictures to find out if anyone agrees or disagrees

with us. I don't know if we need to go to a new facility or just trust this

person. She says that she is the number 2 person in all of Hanger to do the

volume of helmets that she does. Also now it looks like the front pad is

pushing in on his eye and he is getting a bulge over his left ear. You can see

in the pictures that it is the left eye that is getting pulled on.

>

> Any help or advice would be appreciated.

>

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Thank you everyone for your comments. We have an appt for 8 am tomorrow to meet

with them and find out measurements. We now have a full head of steam going

into this meeting knowing that we are not the only ones who think that it is not

working correctly. We are going to see if they will make a new band or refund

our money so that we can someplace else.

We are in San , TX and we had decided that we would go with the Doc band

in Austin before we started. Then we met with the Neuro Surgeon and she was

totally against the Doc band. She felt there was no reason to drive 2 hours

every other week when there are " as good solutions here in San . " When I

brought up that I had heard that it used a little different technology and could

work faster, she replied " according to them. That is just good marketing for

you. " So we listened to her and went with Hanger here in town.

I will be letting her know about this as well!!

> >

> > Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt

like it doesn't fit right since day one. We have been back to the orthotist on

five occasions. Three were for scheduled visits and two were because we felt

like the helmet was pushing to hard on this ears and eye. Every time we visit

she tells us that the helmet is right, but that it is rotating and she just has

to add another pad to stop the rotation. There are now 4 locations that have

pads in this helmet and we are concerned that it is not working correctly.

> >

> > The most frustrating part is that she is the only person to talk to and she

keeps saying that it is not pushing on his eye or ears, when we can clearly see

that it is. I have attached pictures to find out if anyone agrees or disagrees

with us. I don't know if we need to go to a new facility or just trust this

person. She says that she is the number 2 person in all of Hanger to do the

volume of helmets that she does. Also now it looks like the front pad is

pushing in on his eye and he is getting a bulge over his left ear. You can see

in the pictures that it is the left eye that is getting pulled on.

> >

> > Any help or advice would be appreciated.

> >

>

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Then

we met with the Neuro Surgeon and she was

totally against the Doc band. She felt there was no reason to drive 2 hours

every other week when there are " as good solutions here in San . " When I

brought up that I had heard that it used a little different technology and could

work faster, she replied " according to them. That is just good marketing for

you. " So we listened to her and went with Hanger here in town.

>

>

Another great recommendation from a Neurosurgeon;( Obviously using her own

erroneous logic to make a recommendation that she clearly has no experience,

knowledge, or business making!

What bothers me about these particular professionals is that they clearly aren't

up to date on their plagio and brachy education. They tend to downplay the

severity of the condition and are notoriously anti-banding. Now we have one

that is, " totally against the DOC Band. " My advice to anyone new, would be to

avoid seeing a neurosurgeon unless synostosis is suspected. Otherwise, I would

head directly to Cranial Tech. If that isn't an option for you, I would

research for an ortho who is actually qualified to fit bands.

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,

If you do end up going somewhere else, consider that drive to Austin time well-spent. My son graduated from his DOC band in December and was treated at the Austin Cranial Tech location. We had a great experience...loved the team there and were extremely pleased with the results. We give them a huge thumbs-up!!

Jill

Cade's mom (16 months, DOC Band grad 12/09)

Austin TX

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,

When I was starting the band process I was told as well that all bands work the

same....After trying a local helmet for about 6 months we switched to Doc Band.

I actually liked our first ortho and we never had terrible fit issues, but for

whatever reason it just didn't fix my child's head. Now we fly to Chicago every

two weeks and I am so much happier with my baby's head and with the Doc Band.

The biggest regret I have is that I stayed with the first ortho for as long as I

did. There was progress, so I just kept on waiting for the head to start looking

normal. It never happened:( I just want to add that I didn't ' quit' our firt

band, it was our ortho who was ready to be done with us and we are on our 2nd

Doc Band now.

Good Luck with everything!

Then we

met with the Neuro Surgeon and she was

> totally against the Doc band. She felt there was no reason to drive 2 hours

> every other week when there are " as good solutions here in San . " When

I

> brought up that I had heard that it used a little different technology and

could

> work faster, she replied " according to them. That is just good marketing for

> you. " So we listened to her and went with Hanger here in town.

> >

> >

> Another great recommendation from a Neurosurgeon;( Obviously using her own

erroneous logic to make a recommendation that she clearly has no experience,

knowledge, or business making!

>

> What bothers me about these particular professionals is that they clearly

aren't up to date on their plagio and brachy education. They tend to downplay

the severity of the condition and are notoriously anti-banding. Now we have one

that is, " totally against the DOC Band. " My advice to anyone new, would be to

avoid seeing a neurosurgeon unless synostosis is suspected. Otherwise, I would

head directly to Cranial Tech. If that isn't an option for you, I would

research for an ortho who is actually qualified to fit bands.

>

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My son had a Hanger helmet and never had any padding added to the helmet, it fit

well from the beginning. The fit of your sons helmet does NOT LOOK RIGHT to

me. I could see if they just added a tiny but of foam to help stop some

movement, but the amount of padding they had to add is rediculous. Of course I

am an not an expert and do not know yours sons condition, however I would advise

trying to get the helmet REMADE. Especially after 7 weeks!! he certainly

should have " grown into " any roatation by now and not needed any padding. Its

unfortunate if that is the only orthotist there, I might consider going to a

different place at this point if they dont make a new helemt and/or if the new

on does not fit perfectly fine from the beginning! best of luck!

le

11 mos

Hanger grad

>

> Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt

like it doesn't fit right since day one. We have been back to the orthotist on

five occasions. Three were for scheduled visits and two were because we felt

like the helmet was pushing to hard on this ears and eye. Every time we visit

she tells us that the helmet is right, but that it is rotating and she just has

to add another pad to stop the rotation. There are now 4 locations that have

pads in this helmet and we are concerned that it is not working correctly.

>

> The most frustrating part is that she is the only person to talk to and she

keeps saying that it is not pushing on his eye or ears, when we can clearly see

that it is. I have attached pictures to find out if anyone agrees or disagrees

with us. I don't know if we need to go to a new facility or just trust this

person. She says that she is the number 2 person in all of Hanger to do the

volume of helmets that she does. Also now it looks like the front pad is

pushing in on his eye and he is getting a bulge over his left ear. You can see

in the pictures that it is the left eye that is getting pulled on.

>

> Any help or advice would be appreciated.

>

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  • 5 months later...

I am having the same problem with rotation of the helmet and adding pads. My

son has had growth and has been in the helmet for 3 months but still the helmet

rotates and I feel it just doesn't fit right but the orhtodist says differently

and now he is saying we will probably need a new helmet because he will soon

outgrow it (but then why does it still rotate??). Just wondering if you stayed

with Hanger and did you wind up getting a new helmet?

> >

> > Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt

like it doesn't fit right since day one. We have been back to the orthotist on

five occasions. Three were for scheduled visits and two were because we felt

like the helmet was pushing to hard on this ears and eye. Every time we visit

she tells us that the helmet is right, but that it is rotating and she just has

to add another pad to stop the rotation. There are now 4 locations that have

pads in this helmet and we are concerned that it is not working correctly.

> >

> > The most frustrating part is that she is the only person to talk to and she

keeps saying that it is not pushing on his eye or ears, when we can clearly see

that it is. I have attached pictures to find out if anyone agrees or disagrees

with us. I don't know if we need to go to a new facility or just trust this

person. She says that she is the number 2 person in all of Hanger to do the

volume of helmets that she does. Also now it looks like the front pad is

pushing in on his eye and he is getting a bulge over his left ear. You can see

in the pictures that it is the left eye that is getting pulled on.

> >

> > Any help or advice would be appreciated.

> >

>

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My Hanger helemt was very loose At the check up appt they finally put a bunch of padding in the back. It still is in the way of one eye but not the other. Doesn't seemto bother her but it bothers me and he made no mention of it. I am worried the padding will make a ledge in the back of her head.kimFrom: laurasucha <laurasucha@...>Plagiocephaly Sent: Tue, November 9, 2010 9:04:27 PMSubject: Re: Frustrated....

I am having the same problem with rotation of the helmet and adding pads. My son has had growth and has been in the helmet for 3 months but still the helmet rotates and I feel it just doesn't fit right but the orhtodist says differently and now he is saying we will probably need a new helmet because he will soon outgrow it (but then why does it still rotate??). Just wondering if you stayed with Hanger and did you wind up getting a new helmet?

> >

> > Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt like it doesn't fit right since day one. We have been back to the orthotist on five occasions. Three were for scheduled visits and two were because we felt like the helmet was pushing to hard on this ears and eye. Every time we visit she tells us that the helmet is right, but that it is rotating and she just has to add another pad to stop the rotation. There are now 4 locations that have pads in this helmet and we are concerned that it is not working correctly.

> >

> > The most frustrating part is that she is the only person to talk to and she keeps saying that it is not pushing on his eye or ears, when we can clearly see that it is. I have attached pictures to find out if anyone agrees or disagrees with us. I don't know if we need to go to a new facility or just trust this person. She says that she is the number 2 person in all of Hanger to do the volume of helmets that she does. Also now it looks like the front pad is pushing in on his eye and he is getting a bulge over his left ear. You can see in the pictures that it is the left eye that is getting pulled on.

> >

> > Any help or advice would be appreciated.

> >

>

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We are in Dallas, but our clinician () still travels to the Austin CT every

other week I believe. I would recommend her without reservation 100%. She is

great with the babies, great with bands, is very professional, and seems very

genuine and caring with her patients. We have been with her for 7 months now,

and my 11 month old loves going to see her. He is nothing but smiles while at

CT.

>

> ,

> If you do end up going somewhere else, consider that drive to Austin time

well-spent. My son graduated from his DOC band in December and was treated at

the Austin Cranial Tech location. We had a great experience...loved the team

there and were extremely pleased with the results. We give them a huge

thumbs-up!!

> Jill

> Cade's mom (16 months, DOC Band grad 12/09)

> Austin TX

>

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hi, my son got a Hanger helmet last week, too. and I'm also concerned with his

fitting. the front pad pushes on his left eyes, espeically when he lifts his

head. he doesn't seem to be bothered, but it just doesn't feel right. I'd like

to see the photos of Connor's helmet, but don't know how to locate your attached

photos? (i'm new to this group..).

thanks!

>

> Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt

like it doesn't fit right since day one. We have been back to the orthotist on

five occasions. Three were for scheduled visits and two were because we felt

like the helmet was pushing to hard on this ears and eye. Every time we visit

she tells us that the helmet is right, but that it is rotating and she just has

to add another pad to stop the rotation. There are now 4 locations that have

pads in this helmet and we are concerned that it is not working correctly.

>

> The most frustrating part is that she is the only person to talk to and she

keeps saying that it is not pushing on his eye or ears, when we can clearly see

that it is. I have attached pictures to find out if anyone agrees or disagrees

with us. I don't know if we need to go to a new facility or just trust this

person. She says that she is the number 2 person in all of Hanger to do the

volume of helmets that she does. Also now it looks like the front pad is

pushing in on his eye and he is getting a bulge over his left ear. You can see

in the pictures that it is the left eye that is getting pulled on.

>

> Any help or advice would be appreciated.

>

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Hello,

My daughter is about two weeks into her Hanger helmet. On the day of her original fitting my wife and I did not know what to expect or what to look for as far as correct fitting goes. The next day we started her treatment and realized that pressure was being applied to her left eye as well. I knew the that was wrong but I gave it a couple hours to see if it was rubbing any other places. When we took it off there was a big red spot on her forhead and a rawspot on her cheek. I called back the next day to schedule a refitting and the man that fits the helmets was out of town for a week. We have since had a refitting and everything seems fine but we have had the helmet for two weeks and are still in the first few days of treatment because of "fitting problems". I have heard that it takes a while to get all the bugs worked out, but I understand your frustration. I had to be very aggressive about the changes I wanted made to the helmet to get the result I was looking for. They did not want to cut the opening for her face in the front any larger even though it was easy to see it was bunching up the skin around her eye. Sometimes you have to remind people who is writing the checks and who is providing the service. I made it very clear to the people at Hanger that "I am not a helmet expert and I am not a baby head expert, but I am a concerned dad that is trying to do what is best for my little girl and I dont think it would be best to round out the back of her head if it was going to mess up her eye." That seamed to get there attention and lead to the most informative conversation I have had with them since the first visit. I always try to be polite to people and thats usually the best way to get things done, but sometimes you have to be (assertive) to help them realize they are no better than you are. Do the best you can to figure out the changes that need to be made to the helmet (in your opinion) and tell the Hanger guy. If he does not agree ask for a reason and talk about it. The guy at my Hanger seamed to know what he was talking about, but remember they dont have the same investment in this helmet as you do. Not only the money, but also the end result that will effect our kids the rest of there life.

Good Luck

Edited by Moderator

Nov 16, 2010 02:04:40 PM, Plagiocephaly wrote:

hi, my son got a Hanger helmet last week, too. and I'm also concerned with his fitting. the front pad pushes on his left eyes, espeically when he lifts his head. he doesn't seem to be bothered, but it just doesn't feel right. I'd like to see the photos of Connor's helmet, but don't know how to locate your attached photos? (i'm new to this group..). thanks!>> Our son Connor was fitted for a Hanger helmet 7 weeks ago and we have felt like it doesn't fit right since day one. We have been back to the orthotist on five occasions. Three were for scheduled visits and two were because we felt like the helmet was pushing to hard on this ears and eye. Every time we visit she tells us that the helmet is right, but that it is rotating and she just has to add another pad to stop the rotation. There are now 4 locations that have pads in this helmet and we are concerned that it is not working correctly. > > The most frustrating part is that she is the only person to talk to and she keeps saying that it is not pushing on his eye or ears, when we can clearly see that it is. I have attached pictures to find out if anyone agrees or disagrees with us. I don't know if we need to go to a new facility or just trust this person. She says that she is the number 2 person in all of Hanger to do the volume of helmets that she does. Also now it looks like the front pad is pushing in on his eye and he is getting a bulge over his left ear. You can see in the pictures that it is the left eye that is getting pulled on.> > Any help or advice would be appreciated.>

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