Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Hi Gale, 's health definitly improved after she was diagnosed. It's funny because she has all of the textbook symptoms et none of her doctors said ANYTHING. It wasn't until we moved to San Diego and I had to take her to the doctor that somene finally noticed. Now, she is gaining weight, not coughing as much and does not get as sick. She has yet ( knock on wood) to be hospitalized and although I HATED the fact that I had to hear the news, I am now grateful because her quality of life has improved so much. It was so hard on her. I mean, for those who were diagnosed as babies, this will always be a part of their lives. Wher as with , it was a MAJOR interruption and it took alot to get her to the point of accepting this disease and we are still learing how to live with it. Ok, enough talking. I haven't posted in awhile so I guess I am making up for lost time Cheers, e Quote Link to comment Share on other sites More sharing options...
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