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CF testing

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Hello,

Thank you for your reply. It is comforting to know that there are

people out there who care. My son's name is . He hit some

button on the keyboard which resulted in my post getting sent before

I typed out the question.

The test that they did was the sweat chloride test. He tested

negative. But, I still have this nagging feeling that he might very

well have CF.

I have never heard of a CF center. What is this? We live in

central Illinois, and the test was done at one of the hospitals.

Thank you so much for replying and praying,

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, Where in central Il do you live? I grew up in central Il and was just

wondering. Which hospital did you use? I know St. Louis will have CF center.

Debbie

Re: CF testing

Hello,

Thank you for your reply. It is comforting to know that there are

people out there who care. My son's name is . He hit some

button on the keyboard which resulted in my post getting sent before

I typed out the question.

The test that they did was the sweat chloride test. He tested

negative. But, I still have this nagging feeling that he might very

well have CF.

I have never heard of a CF center. What is this? We live in

central Illinois, and the test was done at one of the hospitals.

Thank you so much for replying and praying,

-------------------------------------------

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be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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  • 1 month later...
Guest guest

Hi,

Well, it's done (or nearly done). I saw my gastro guy this morning- a man I

adore. I wasn't sure how he'd react to my getting sweat tested and to further

DNA analysis. He agreed with both! So, I've already been to Quest to have the cf

DNA analysis done and they are looking into whether I need to go to Yale for the

sweat test or if I can go to a local hospital. He already said one of the local

hospitals (my favorite, actually) doesn't have a large enough pediatric section

so he disqualified it right off the bat. However, he thinks the other local

hospital might be ok for it. They're making some calls and then will let me

know. So, within the next few weeks I'll know, for sure, if I'm just a carrier

or if there's a 2nd mutation somewhere.

Love,

Jill

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