Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 Dear Betsy. I may become unpopular with you by gently suggesting that you may have to detox your body. In my experience, those most toxic respond to ozone air purifiers in a very negative way, with strong and almost immediate detox reactions. With starting at very low concentrations and slowly building up over time, many people have experienced greater tolerance and some positive health benefits from ozone air purifiers. The ozone will de-chemicalize your home in time and eventually make it a better place to be. I would't throw it out just yet. Set it to a lower concentration if possible, or only run it a few minutes at a time. As for detox, the master cleanse is a good one and there's a great support group for it at: mastercleanse/?yguid=163590970 Best of luck with your decision. Cheers, > Dear group can someone recommend an extremely good air filtration machine? I > had to quit my job due to the filtration in my school room. I am better at > home , coughing not so severe now that the weather is warmer. I think the heat > coming through the vents was making me quite ill I bought an I Q air multligas > gGC series, unfortunately it did not help. I just bought an aqua air ozone > machine to run whileI Iam in the room. I am very uncomfortable even those people > say the ultra violet light type is safe. My gut says not so. Dr. Philpott told > me years ago do not breath it in so I will return this unit. The other I am > stuck with anyway I certaily would appreciate someone recommending a machine for > extremely chemically sensitive people. Fondly, Betsy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 I would consider an Aranizer! Best wishes and much love, Ken Ken Gullan Institute for Research Integration (IRI), San Diego, CA 92106-2424 IRI is a 501C(3) non-profit corporation established to help children with developmental difficulties. To contact me off-list use kengullan@... or call 619-222-1104 please advise Dear group can someone recommend an extremely good air filtration machine? I had to quit my job due to the filtration in my school room. I am better at home , coughing not so severe now that the weather is warmer. I think the heat coming through the vents was making me quite ill I bought an I Q air multligas gGC series, unfortunately it did not help. I just bought an aqua air ozone machine to run whileI Iam in the room. I am very uncomfortable even those people say the ultra violet light type is safe. My gut says not so. Dr. Philpott told me years ago do not breath it in so I will return this unit. The other I am stuck with anyway I certaily would appreciate someone recommending a machine for extremely chemically sensitive people. Fondly, Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 Your sister has been dealing with RA for a very long time. It is not easy to live with, and so no one really knows unless they have stepped in her shoes. With RA, it is not uncommon for people to take a lot of medications. Along with RA, there is depression, its hard coping, and so sometimes you get at a point, you just want to be left alone. You get tired of doctors, and I know that is probably hard for you to understand. But, its frustrating to go to the doctors, take meds all your life, and don't really get any better. That is kind of strange the doctor at the hospital would give her the same meds she OD on. You might let her know about the RA group. We help each other through good and bad times. We have great moderators, so it might help her to talk with others in her condition. All you can really do is be supportive, and learn more about RA. Tawny > My sister has RA. She is 50 and has had it since the age of 16. She > has had ups and downs with RA. She got to the point about 20 years > ago that she would never try to do or go to PT. She just won't. All > she wanted and still wants are pills.... > > This past week she went to a Dr. in a small town because she was > having back pain. She told them she had pulled a muscle and was in > horrible pain. They gave her a shot of demoral. Gave her four > prescriptions and called for a driver to take her home..... > > Within 2 days she was hullicanating and really out of her head. We > brought her to the hospital and they called it an overdose. Within > 36 hours the Dr. that gave her these meds saw her in the hospital- > told her he would release her and gave her the same > prescriptions. ??? > > We are worried about her. She already takes about 15- 20 other RA > meds, sleeping pills and who knows what else. She is furious that we > are questioning her meds and what is going on with her..... She > thinks we are being mean.. > > HELP- what do we do? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 Whew, tough call.... I think you do the hardest thing if you love someone, stay on them, make sure you make it clear that you are only worried about thier safety. See about asking to go to the Dr with her one time. Tell the dr your concerned in fromt of her and say I just want to understand. I fear for my sister, please make me feel at ease, or help me to understand. It might even be true that he doesnt know of all her meds if she is seeing several docs. Just my opinion, Cortnee jeanraelily <jeanraelily@...> wrote: My sister has RA. She is 50 and has had it since the age of 16. She has had ups and downs with RA. She got to the point about 20 years ago that she would never try to do or go to PT. She just won't. All she wanted and still wants are pills.... This past week she went to a Dr. in a small town because she was having back pain. She told them she had pulled a muscle and was in horrible pain. They gave her a shot of demoral. Gave her four prescriptions and called for a driver to take her home..... Within 2 days she was hullicanating and really out of her head. We brought her to the hospital and they called it an overdose. Within 36 hours the Dr. that gave her these meds saw her in the hospital- told her he would release her and gave her the same prescriptions. ??? We are worried about her. She already takes about 15- 20 other RA meds, sleeping pills and who knows what else. She is furious that we are questioning her meds and what is going on with her..... She thinks we are being mean.. HELP- what do we do? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2008 Report Share Posted September 11, 2008 > > my search for a good cal/mag liq vit keeps turning up with soybean oil and fructose in the ingredients, can someone please advise me of a good > brand / company for these, please? Hi there. What is your name please? Can't you take tablets or capsules? I found most liquid cal/mag contains things one shouldn't have. There are also cal/mag powders, depending upon what country you live in. Online try Gillam's website. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Dr Furman and Fellow CLLers: I finished 6 cycles of FCR on April 3. My post-Rx labs & CT scan are due next week. I have two questions- 1. I am on Acyclovir & Mepron since 3rd cycle - my Oncologist wants me to take it till October 09. Is that the usual practice? 2. I continue to have upper body itching, joints & muscle stiffness. Do these symptoms ever get better? Thank you very much Purnima Diagnosed CLL in 2002 at age 45, W & W till 9/2008 First Rx FCR 9/08 till 4/09 at age 52- total 6 cycles at 4-8 wks intervals A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 There are no set rules regarding how long someone should be on prophylaxis. My belief is that there are few downsides to taking them, and a great deal of benefit. I typically use them for at least six months, but often up to 12 months after fludarabine based chemotherapy, with the issue being other prior therapies, etc. Hopefully the muscle aches, etc will improve with time. Rick Furman > > > ? Dr Furman and Fellow CLLers: > > I finished 6 cycles of FCR on April 3.? My post-Rx labs & CT scan are due next week. > > I have two questions- > > 1.? I am on Acyclovir & Mepron since 3rd cycle - my Oncologist wants me to take it till October 09.? Is that the usual practice? > > 2.? I continue to have upper body itching, joints & muscle stiffness.? Do these symptoms ever get better? > > Thank you very much > > > > > > Purnima > Diagnosed CLL in 2002 at age 45, W & W till 9/2008 > First Rx FCR 9/08 till 4/09 at age 52- total 6 cycles at 4-8 wks intervals > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Thank you all for your informative comments. It has been very helpful to know that all I am going thru' is part of my treatment, & prophylaxis is much needed. Purnima Re: Please advise There are no set rules regarding how long someone should be on prophylaxis. My belief is that there are few downsides to taking them, and a great deal of benefit. I typically use them for at least six months, but often up to 12 months after fludarabine based chemotherapy, with the issue being other prior therapies, etc. Hopefully the muscle aches, etc will improve with time. Rick Furman > > > ? Dr Furman and Fellow CLLers: > > I finished 6 cycles of FCR on April 3.? My post-Rx labs & CT scan are due next week. > > I have two questions- > > 1.? I am on Acyclovir & Mepron since 3rd cycle - my Oncologist wants me to take it till October 09.? Is that the usual practice? > > 2.? I continue to have upper body itching, joints & muscle stiffness.? Do these symptoms ever get better? > > Thank you very much > > > > > > Purnima > Diagnosed CLL in 2002 at age 45, W & W till 9/2008 > First Rx FCR 9/08 till 4/09 at age 52- total 6 cycles at 4-8 wks intervals > Shop Inspiron, Studio and XPS Laptops at Dell.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Hi All, My DD got evaluated today for her plagio. Her CVA is 12.6 and CVAI is 9.1. Her orthotist said, It would take 3 to 5 mo for correction as she belongs to class 4(Don't know what class4 is). She will be 5 months old by that appt. Do you guys think We should get a second opinion abt it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2010 Report Share Posted May 27, 2010 Sounds like you had a starscan because they use the CVAI number. The also use a severity system based upon a scale of 1 to 5 that incorporates a lot of other numbers besides those that you mentioned (symmetry ratios, for example). So, a 4 out of 5 would be considered moderate to severe. I think that most orthos would recommend a band, but if it would help you to accept this, then you could go ahead and get the second opinion. I'm guessing that at your daughter's age, it would be closer to 3 months than 5 months. My coworker's son was 5.5 months when banded at 15 mm and he graduated from his STARband in 12 weeks after getting down to 4 mm. And, two of those weeks were part time wear. Please advise Hi All,My DD got evaluated today for her plagio. Her CVA is 12.6 and CVAI is 9.1. Her orthotist said, It would take 3 to 5 mo for correction as she belongs to class 4(Don't know what class4 is). She will be 5 months old by that appt. Do you guys think We should get a second opinion abt it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2010 Report Share Posted May 28, 2010 Hi , Thanks for the reply.The orthotist we are seeing is on Orthoamerica's web site( Hines - park nicollet). Other than that I don't know much info about him. While talking he said he banded more than 500 kids. Do you see the results faster in doc band than star band? -Sammy From: christineashok <christineashok@...>Plagiocephaly Sent: Thu, May 27, 2010 7:12:01 AMSubject: Re: Please advise I would go ahead and band. Our specialist recommended banding above 10mm of asymmetry, which I think is pretty reasonable. However I would get a second opinion about the orthotist ;-) I just mean that if you have several options check out who you are working with and decide accordingly. The ortho can make a difference. One with experience in banding is important. Please keep us updated on your daughter.-christinesydney, 4 yrs, starband grad>> Hi All,> > My DD got evaluated today for her plagio. Her CVA is 12.6 and CVAI is 9.1. Her orthotist said, It would take 3 to 5 mo for correction as she belongs to class 4(Don't know what class4 is). She will be 5 months old by that appt. Do you guys think We should get a second opinion abt it?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2010 Report Share Posted May 28, 2010 My understanding is that the DOC Band is usually the fastest, but babies are more likely to need two bands because they grow out of them faster. That can be very expensive. I'm sure that Cranial Tech could make an educated guess about whether your daughter would need two bands if you were interested in trying them. I wouldn't worry too much about the time frame though. I think once your daughter is in the band, you will find that she gets used to it quickly. Most parents have been pleasantly surprised by how little their children are bothered by their bands. It won't be as much of a problem as you are imagining. Of course, if you want to check out the other orthotists in your area, there's no harm in that. I would have done the same if I had others in my area. > > Hi , > > Thanks for the reply. We will definetly band her. But, what I am concerned is he was stressing on 5 months time frame(I know it totally depends on her growth rate). Is star band takes more time than other bands? > > -Sammy > > > > > ________________________________ > From: <melanie.watson@...> > Plagiocephaly > Sent: Thu, May 27, 2010 6:53:13 AM > Subject: Re: Please advise > >  > Sounds like you had a starscan because they use the CVAI number. The also use a severity system based upon a scale of 1 to 5 that incorporates a lot of other numbers besides those that you mentioned (symmetry ratios, for example). So, a 4 out of 5 would be considered moderate to severe. >  > I think that most orthos would recommend a band, but if it would help you to accept this, then you could go ahead and get the second opinion. I'm guessing that at your daughter's age, it would be closer to 3 months than 5 months. My coworker's son was 5.5 months when banded at 15 mm and he graduated from his STARband in 12 weeks after getting down to 4 mm. And, two of those weeks were part time wear. >  > > > Please advise > >  > Hi All, > > My DD got evaluated today for her plagio. Her CVA is 12.6 and CVAI is 9.1. Her orthotist said, It would take 3 to 5 mo for correction as she belongs to class 4(Don't know what class4 is). She will be 5 months old by that appt. Do you guys think We should get a second opinion abt it? > Quote Link to comment Share on other sites More sharing options...
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