Re: Re: Jack's check-up/

[Guest guest]

This is informative and encouraging. I am now 66, was born 2.5 months

premature, and weighed 2.5 lbs. with meconium ileus--in 1937. Somehow

I came through it, so did my mother! I have bee on ursodial since 1987, had the

same problem with reflux, and had it solved first by Prilosec and

then by Aciphex (also a proton-pump inhibitor), and so far, so good! May your

son far outlive my age! Love, n

Re: Jack's check-up

Glad his appt went well. A chronic cough can be caused by reflux

which is common in Cf kids. My son was put on Zantac (now on

Prilosec) to help with the reflux and to help him absorb the enzymes

better. My son also has liver problems AND had meconium ileus (he

has surgery for it and was 11 weeks premature). My son has been on

Ursodiol for his liver since birth and is still on it. It has worked

great for us so far!

mom to Ashton almost 3 wcf

> Jack had a wonderful visit to clinic. Jack is six months and we

were

> told two months ago that he had liver disease. He has been on

> medication for this since birth. Well this month his liver enzymes

> are WAY down, even low in the normal range. What a blessing!!! He

was

> born with meconium illeus, so his liver might have just starting

> working correctly since all of his problems at birth.

>

> He also had his first infant PFT yesterday. He has had a cough

since

> birth and his doctor is having a hard time figuring out why.

Anyway,

> his PFT's were outstanding, so there is no mucus build-up in his

> lungs. He also is not growing any bacteria. Now his doctor think

his

> cough is related to inflammation in his lungs, so we can treat it

> with steroids.

>

> We were really worried about him, with the chronic cough and liver

> problems, now it is looking like his a lot healthier than we

thought!!

>

> Sharon, mom to Sophia, 2 and Jack, 6 months both with cf

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