Kim

[Guest guest]

No I am trying to get a job at the DDC in the Endoscopy Unit. I

have worked at MUSC ever since I graduated from nursing school there

10 years ago. The last 5 years or so I have worked with the ORs but

formally resigned my position last July. It will be 12 weeks since

my surgey next week and I am looking forward to getting my life back

in order. I am feeling so much better.

Today I took a long walk with my dogs, for over an hour, and threw

the frisbee and ball around for them, it was great. I am thinking

about going back to the gym too. I need to take it slow tho, I have

had 3 major panc surgeries in the 11 months. A shpincteroplasty

October of 03, a Beger in March of 04 then the Total with auto islet

cell transplant last November. So I think it may take a little

longer then most to get my strength back completely. Some say it

takes over a year for your body to recoup after a total.

The DDC is an excellent group I would love to have an opportunity to

work there. All I am asking for is an interview. Well we'll see.

When will you be coming down to see them? How are you feeling? Do

you see Cotton or Hawes? If you come down maybe we can meet.

Well keep your fingers crossed for me about the job. I think I

would be perfect for it. I have the expereince, used to recover

ERCP pts, then did pre op prep, and of course my personal

experience. I think it would be best to keep my personal history to

myself. But I do have the understanding of how the pts feel.

Keep in touch and let me know how it is going with you. I hope your

feeling better tho.

Warmly,

>

> Did you work in the DDC? If so, when were you there...I might

have

> met you and not even known it! :0)--Kim S.

[Guest guest]

i am in texas......there is pre-k and head start, head start is for low income

families, but it is for those who make less than 55,000 a year, so yeah we

qualified, adn there are 8 classes of 19 and a waiting list of 42...i am on the

policy council which is only for head start and we hire.fire, spend the money

(it is totally government funded) anything that has to do with it we do, adn

believe me if i get nowhere with the school i will take it to the meeting

thursday, and tehn to the school board next monday and if THAT don't work, i

will write a letter to the paper.....then we will see...........with that being

said, it is a totally government funded program, and days aren;t supposed to

matter, which is what i was told when i signed her up last march, but they will

get the money regardless, and i am always up there volunteering because they

have to have so many hours of volunters so i do my share so i know most of the

rules for the pp[rogram, she goes just like regular school, 5

days a week, 740 through 245..........i called in to work and said i would be

late because the more i think about it the madder i get so i am getting this

taken care of tomorrow

kimc wrote:

> Hi ,

What state do you live in? You said the Kyla was in pre-k, right? I

have a non-rss son who is in pre-k this year too. I live in Florida,

and this is the first year they are implementing the voluntary

universal pre-k program. I have to say the state was not organized

at ll in planning for this, and there aren't enough spaces for all 4

year olds. 's school sent home a letter at he beginning of

the year that states he cannot miss more than 26 days this year or

else he will be ineligible for the VPK program. Since he is in a

private preschool, I am sure they do not know about nor write IEPs.

Granted, doesn't need one, but Kyla most likely will need

one once she gets into kindergarten (providing that she is not

attending preschool in your school district now). If she doesn't

qualify for an IEP, she should at least qualify for a 504 plan. If

she is in a private preschool now, I think that is why you are

getting the runaround. Do you pay for preschool? Here in FL, the

voluntary pre-k program is free to all families regardless of income

for 3 hours per day. If you have a similar program in your state,

they will not get paid by the state if your child is absent more than

the specified number of times allowed. And, unfortunately, I doubt

it matters to them whether or not your child has a disability or a

medical cause, because they would say the program is voluntary.

goes full-time to school, so I pay the difference between

what the state pays & the regular full-time tuition. However, if he

were absent more than 26 days, he would no longer be eligible for

VPK, and I would have to pay for those 3 hours per day too. If this

is the reason you are having the problem in preschool, I doubt very

much you will face the same issues when Kyla attends kindergarten.

Does Kyla qualify for any types of therapy in your school district

(speech, occupational, or physical?). , my RSS son, went to a

special needs preschool for free & received all of his therapies

there through part H (I think this is now called something else in

FL). There was a nurse on staff, and it was never questioned when he

was absent for illnesses. Having an IEP qualified him for this type

of school as well as being considered medically fragile. Again, I am

not sure how this is handled in your state, but it might be something

worth looking into if you think Kyla would qualify.

Kim C.

> OKAY KYLA WOKE UP WITH PINK EYE AGAIN THIS MORNING THIS TIME HER EYE

> LOOKS LIKE IT HAS A POPPED BLOOD VESSEL IN IT, THIS WILL MAKE 5

> ROUNDS OF PINK EYE IN A LITTLE OVER A MONTH....SHE IS ALMOST OVER HER

> STREP THROAT, SO I KNOW WHAT YOU ARE GOING THROUGH........SHE IS

> COUGHING PRETTY BAD AND HAS A HORRIBLE GREEN NOSE, I AM WASHING HER

> HAIR IN THE MORNING INSTEAD OF AT NIGHT EVEN IF I PUT HER HAIR IN A

> PONYTAIL IT STILL SEEMS TO FALL AND GET STUCK ALL OVER HER FACE.....

>

> NOW THE SCHOOL, THEY MAKE ME SICK!!! I HAVE ASKED A FEW TIMES FOR AN

> ARD MEETING FOR HER, KNOWING SHE WILL BE MISSING SCHOOL A

> LOT......THEY REFUSED BECAUSE THEY HAVE NEVER HEARD OF RSS AND SAY IT

> IS NOT BAD, AFTER I GAVE THEM THE STUFF FROM MAGIC AND ECT THEY STILL

> REFUSED.....I KEPT KYLA HOME LAST MONDAY FROM FEVER, SHE WENT TO

> SCHOOL TUES WEDNES AND THURS...PICKED HER UP FROM SCHOOL AT NOON

> THURSDAY BECAUSE SHE WAS THROWING UP...SHE NEVER THREW UP HERE, BUT

> WOKE UP FRIDAY WITH A 103.6 SO I TOOK HER TO WORK WITH ME (I WORK AT

> A DAYCARE) AND SHE STAYED WITH ME IN MY CLASS, I HAVE 4 YEAR OLDS

> ANYWAY....

> THE SCHOOL LEFT A MESSAGE AT MY HOUSE FRIDAY.....GET THIS, THEY WANT

> A DOCTORS NOTE FOR EVERY DAY SHE HAS MISSED BECAUSE SHE HAS MISSED 14

> DAYS SO FAR, AND DON'T UNDERSTAND WHY........THEY HAVE DOCTORS NOTES

> FOR 8 OF THOSE DAYS, AND LIKE ALL YOU KNOW IF IT IS VIRAL THERE IS

> NOTHING THAT CAN BE DONE AND I REFUSE TO GO TO THE DOCTOR 3-4 TIMES A

> WEEK KNOWING IT IS THE SAME THING I WENT FOR TWO DAYS BEFORE BUT SHE

> CAN'T GO TO SCHOOL BORNING UP, AND EVEN MY HUBBY COMPLAINED FRIDAY

> ABOUT ME KEEPING HER SINCE SHE WAS " JUST RUNNING A FEVER " EXCUSE ME,

> 103ISH WHEN I HAVE TO WORK, I WOULD RATHER KEEP HER WITH ME THAN SEND

> HER TO SCHOOL AND HAVE THE NURSE CALL ME AT WORK AN HOUR LATER TO

> COME GET HER. AM I WRONG FOR DOING THIS OR WAS THAT SMART TO KEEP

> HER? I HAVE TO WORK MONDAY BUT I AM GOING TO THE SCHOOL TUESDAY TO

> GET THIS STRAIGHT........I KNOW A LITTLE BOY WIT HCYSTIC FIBROSIS

> THAT THEY DID THE SAME THING TO, HE JUST STARTED 3 WEEKS AGO BECAUSE

> EVERY WEEK SHE TRIED TO GET HIM IN AND IT WAS " HE NEEDS THIS SHOT, OR

> HE NEEDS A DIETICIAN TO TALK WITH US, OR WE NEED HIS MEDICAL RECORDS,

> THEN THEY HAVE NO ROOM FOR HIM " SO I HATE THIS SCHOOL SYSTEM

> ANYWAY....

> NOW MY SON TURNED 2 YESTERDAY, AND I AM TAKING HIM AND KYLA TO THE

> DOCTOR TUESDAY MORNING TO GET SHOTS, SHE IS GETTING A FLU SHOT IF SHE

> IS NOT SICK TO GET IT, ADN IF SHE GETS IT SHE WILL STAY HOME THAT DAY

> TOO BECAUSE (I HAVE NEVER GOT ONE) BUT WAS TOLD THOSE HURT!! CAN'T

> SEND HER TO SCHOOL SORE, SO I WILL GET A DOCTORS NOTE, AND NOT TO

> SAY I CAN'T CALL HER DOCTOR AND GET A NOTE FOR THOSE DAYS SHE WAS

> SICK BECUASE MY DOCTOR IS AWESOME THEY DON'T WRITE PRESCRIPTIONS OVER

> THE PHONE ANYMORE IT IS AGAINGST POLICY, BUT SHE BREAKS THE RULES

> SOMETIMES FOR ME, AND WHEN I TAKE KYLA IN LIKE LAST WEEK FOR STREP

> AND JONATHAN WAS FINE, SHE SAID IF HE GOT IT CALL HER DIRECT LINE AND

> SHE WOULD GET HIM MEDS TOO, SO I CAN GET NOTES FOR HER, BUT IT IS THE

> POINT THAT I TOLD THE SCHOOL FROM DAY ONE SHE WAS SICK AND NOW THEY

> ARE REALIZING IT ALMOST 3 MONTHS LATER??ANY ADVICE?? SORRY SO LONG

> AND VENTING, I HAVE JUST HAD IT~~ THANKS, STEPHANIE

>

[Guest guest]

Thanks for explaining about the brace to me. I think Jack will soon

get fed up with wearing one if he has to . You and your son have done

very well to put up with it all that time but I guess you just get on

with it when you have to. We will have to wait and see, I still

haven't heard if we have managed to get an appointment for Friday or

not regarding this. I'm certain I will be in touch again in the near

future.

Thanks

Judy.