Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Hi everyone, It's Kathleen from Texas. I am back... I had convinced myself that I didn't have RP, stopped my pred, refused to take MTX, and quit seeing my doctor. Needless to say, I have an apptment on Wednesday as I am feeling terrible. My chest hurts, my ears hurt, my throat hurts,... Blah Blah Blah. I am so tired of feeling bad and I guess I thought I could make it go away by wishing it so... I probably went into remission and then blew it by dropping everything that would have kept me there. STUPID!!!! I was reading in bed last night, bumped my glasses against my nose and it hurt so bad I cried... So much for denial! Anyway, I am hoping that everyone is well and nothing terrible happened while I was away. I am seriously considering a trip to the Mayo, mainly to convince myself that I really do have RP. I guess I still am doubting (wishing...). Anyway, I do have a question. Do any of you have trouble with hair loss? I know that MTX causes hair loss, but I haven't taken that. My hairdresser said that my hair is very thin and not all well. I stopped taking the pred in June, after tapering -- not cold turkey. Could that be affecting me in Sept./Oct.? It's like the hair shaft itself has thinned. I also am having scalp pain and the little sores seem to be coming back. Any comments, advice? Kathleen Quote Link to comment Share on other sites More sharing options...
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