Re: Re: Gentamicin Side Effects - Ototoxicity/ANNA

[Guest guest]

Good post; we all enjoyed and benefitted from that one! Love, n

Re: Gentamicin Side Effects - Ototoxicity

Hi There! Welcome to the best place on cyberspace! Sorry to hear

about Lyn's problem. Question: Is she taking Magnesium? If she is

not, she should...All those antibiotics, bronchodilators, deplete

Magnesium in our bodies. If you have time scan through some of the

posts and look for Kim Payne's posts, they are very informative and

well worth reading... She is our Magnesium Queen and we are very

honor to have her on board. There was one not too long ago that was

excellent. I will try to repost it. I believe Lyn will benefit from

chelated Magnesium.

Again welcome,

mom of LUisa 10 wcf, Venanzio 7 nocf and Pepe 4 nocf

> Hello-

>

> I just joined this group hoping to find information about this

> topic. My daughter is 18; she was just diagnosed with bilateral

> vestibular damage after using gentamicin for the first time.

> Needless to say, we are devastated.

>

> Lyn's hearing is fine, but she cannot safely drive, snowboard, walk

> some days (never in darkness), drive her motorcycle, dance.... All

> of the things that made her life bearable have been taken away.

>

> Does anyone have any experience with this? I have questions such

> as : Could more gentamicin take away her hearing as well? Is

there

> therapy available? How often should she have had her levels

checked?

> Could just this one course have done this, or is it a cumulative

> effect after years of tobra (with no problems)?

>

> The ironic thing is that she has not been this healthy (cough-wise)

> in a long time; gentamicin is what she needed to clear up her lung

> infection.

>

> We live in a remote area of Michigan. There is no one else with cf

> within 100 miles or more, so we often feel quite alone. I have

been

> strong through the past 18 years, handling liver disease and

> diabetes, but this is just too much. Every time I see her

motorcycle

> (her 18th birthday gift) sitting in the garage, I think of her huge

> smile as she would climb on, headed for happiness and the feeling

of

> freedom.... My heart hurts.

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