had enough of this

[Guest guest]

I have had enough of Cf. Eilish has a wet cough back. She has been of

IV's 2 days only and wham its here. I truly think its coming from her

sinuses. It starts the same way, husky voice then the cough. When I

heard it last night I felt like screaming. I just don't know what else

to do. 4 weeks of IV's in 9 weeks is heaps and the minute it

********stops its back. I am so angry. I don't know who to be angry

with so I am angry with the disease.

Any suggestions for sinuses? rang the cf centre and they said to

put her on Augmentin. I am not wanting to do this. Although I

absolutely trust her Dr. I feel she doesn't need more antibiotics she

needs something to thin down the mucus to move it. So I have given her

inhaled Ventolin to break it up.

I've also spray saline up her nose. At this stage I am open for

suggestions. said on Monday he will ring them back (I have had

enough) and tell them to do something. Pulmozyme is not on the

government listing her so the hsp. has to pay $1000.00 per month for it.

They give it out sparingly. But is on the war path for at least a

trial of it.

Sorry about the moaning but I have had it . Well better go 'bash' her

now. She's lucky I love her so much LOL!

(Australia)