Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Marie pia called me this morning. As of this morning Coralie is in the hospital and they have taken her off of her Imuran, 100mg (been on 6 months) and the metho, 12mg ( been on for 3 months) She is only on 10mg of pred.. She is flaring in her nose, ribs, neck and has vasculitus in her legs and stomach. They are saying because she is 15 that it might be a teenage thing and she is causing it herself. She has been diagnosed with RP since the age of 2 and 2 of her brothers also have it. Marie pia is 200 miles from the hospital she is in and works so she can only go to see her every other day. She can never get to talk to the professors. I emailed Dr. Buckner and Dr. Trentham today to see if they would be interested in calling or emailing the drs over there or Marie pia. I don't speak French, so it is difficult for me to do much good. If anyone does speak or write French, please send Marie pia any encouraging words. Sandy I told her to ask about the Cytoxon and Remicade but she said the professors over there didn't say much. Thank you all for keeping her in your thoughts and prayers. She is one wonderful lady and has put up with so much. She is SOOO tired right now, she could use our encouraging words. Her e mail is gayraudmichel@... Thank you in advance Quote Link to comment Share on other sites More sharing options...
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