Re: CHAT:s appt. & my dad

[Guest guest]

Jodie,

I am glad you guys got the lift for . I hope it helps

him. I hope the scoliosis doesn't get any worse. It is reassuring

that they are prepared to keep an eye on him. It sounds like you

guys really lucked out with the Shriner's. Were they nice? I have

heard that they are great.

Boy, I hope your dad will be okay. Keep us updated on him. When you

find out about the MRI and why they had to do it, let us know. That

is interesting. Sounds like it is pretty rough right now. Call if

you need to just talk or ANYTHING! Okay. I am here for you and you

know that. How is your mom handling all this?

Jodi R.

>

> hi all!!!

> i wasnt sure if i needed to write chat so i just did. first,

> christopher's appt went well today at shriners (after the traffic

> back up on 95 from an accident!! we were luckly only 15min. late)

> they made him an insert for his left shoe, his leg is still 1cm

> shorter than the right (so there has been no change there). they

> will keep an eye on it and said that when he is 14yrs we will

> discuss whether to do something to the growth plate in his right

leg

> to slow the growth in that one so his left leg may catch up some,

> making the difference less. they also did a spinal x-ray and he

> does have some slight scoliosis starting (the curve is only 8

> degrees, but scoliosis) they dont believe it is from the leg

length

> discrepency because it is curving to the right and not to the

left.

> we have to go back in 4 months and they will do another xray in the

> same position (this one was lying down or they may switch

altogether

> to a sitting x-ray) they will keep and eye on it. if it begins to

> become more of a curve they will then look into putting him into a

> brace at a young age to hlpe prevent it from getting real bad (it

> runs in my mom's side of the family, she has it as well besides it

> being a RSS characteristic). so thats where we are with that. i

> will share all of that with dr h next wed. at our appt.

>

>

> now my dad, thanks for all your emails, phone calls, thoughts and

> prayers. sorry if i dont respond to each one. he had 2 more

> seizures last night and then 2 more this morning that were

> significate. he has also had several small ones throught the day.

> he has now needed to have a cath. put in since he has lost all

> control of his bladder. they have him sedated somewhat because he

> can feel when they are coming on and stays somewhat alert through

> out it (this of course makes him very upset so they are trying to

> keep him calm) i was going to go to the hospital after i got home

> from shriners but he is sleeping because of the sedation and doesnt

> know you are there right now (my brother was there and told my mom

> this when she called the ICU nurses station for an update) they

are

> taking him for an MRI of his whole body (not sure why at this

point,

> may be checking to see if his prostate cancer has spread, my mom

was

> told that could also be causing the seizures if it spread to his

> brain) so that is where we are at right now. i will be going to

> the hospital tomorrow with my mom after christopher's class trip, i

> was going to go tonight after we held soccer practice (terry & I

are

> the coaches) but i dont have anyone to stay with the kids and i

> wanted terry to come so i didnt have to go by myself. like i said

> he is sedated anyway so it is probably better that i wait.

>

> sorry this is so long and please keep us in your prayers!!

>

> Jodie C

>

[Guest guest]

Jodie C,

I am glad to hear that 's appointment went so well.

As for your dad, please know that we are thinking of you. If there is

anything you need, please let me know.

Judith, Steve, (RSS) and (non RSS) 5 1/2 year old twins