Re: Does it really cost that much?

[Guest guest]

Hi,

My endo gave me a list of possible side effects and noted that

headache was one. However she said it was usually GhD kids taht get

them...

megan, mom to Emerence

>

> I'm watching the 20/20 story on kids who take HGH.

> They said it costs about $30,000 a year. Is that true?

> I " m freaking out here! We are going through the

> Shriners for other problems.. and have genitic testing

> next month... If the Shriners discover has

> RSS... is the HGH covered through them? I know I " m

> full of questions... kinda panicy.

>

> Do your kids have these bad headaches they were

> talking about on TV? Oh.. so much to learn.

>

>

>

>

>

> __________________________________

> Yahoo! FareChase: Search multiple travel sites in one click.

> http://farechase.yahoo.com

>

[Guest guest]

Hi ,

Yes it does cost alot, but hopefully insurance, gov't or even the

drug companies will help out. We got that big scare a month ago when

we were getting our endo apt set up ... the receptionist or secretary

said that it cost $20,000-$40,000 Canadian and that insurance won't

cover it unless it is for " dwarfism " ... my husband almost flipped a

noodle and shortly after that we found this site and will hopefully

work through it. We haven't started yet and haven't yet gotten the

results from the testing. HOpefully next week.

There are ways ... which I'm sure more people will respond to.

Interesting show that brought up more questions for us too ... and

those kids were growth hormone deficient.

Dawna

>

> I'm watching the 20/20 story on kids who take HGH.

> They said it costs about $30,000 a year. Is that true?

> I " m freaking out here! We are going through the

> Shriners for other problems.. and have genitic testing

> next month... If the Shriners discover has

> RSS... is the HGH covered through them? I know I " m

> full of questions... kinda panicy.

>

> Do your kids have these bad headaches they were

> talking about on TV? Oh.. so much to learn.

>

>

>

>

>

> __________________________________

> Yahoo! FareChase: Search multiple travel sites in one click.

> http://farechase.yahoo.com

>

[Guest guest]

Hi ,

My son is on growth hormone. We use a pen device just like one

of the ones shown on 20/20. His growth hormone comes in 3

vials of 5.8g each. I asked the growth hormone company and

they told me each vial costs $300. So our cost is about $1000 a

month.

If for some reason you can't afford it, some of the growth

hormone providers will give it for free for a short period of time.

Ask your pediatric endo for assistance in obtaining growth

hormone , if it is not covered by insurance.

I think 20/20 used some old numbers or the retail price if you

bought it directly from them without the benefit of insurance or a

prescription drug benefit.

I hope others can share what their costs are.

I hope this helps.

Ken M

>

> I'm watching the 20/20 story on kids who take HGH.

> They said it costs about $30,000 a year. Is that true?

> I " m freaking out here! We are going through the

> Shriners for other problems.. and have genitic testing

> next month... If the Shriners discover has

> RSS... is the HGH covered through them? I know I " m

> full of questions... kinda panicy.

>

> Do your kids have these bad headaches they were

> talking about on TV? Oh.. so much to learn.

>

>

>

>

>

> __________________________________

> Yahoo! FareChase: Search multiple travel sites in one click.

> http://farechase.yahoo.com

>

[Guest guest]

Hi

I just finished watching that as well.

I have never heard of any of our kids getting those head aches. But I do know it

was explained to me as a possible side affect.

For us? The cost is 32,000.00 a year. But then again that's Canadian bucks!! LOL

We use 1600.00 every 18 days. Lucky for me, a HUGE lucky for me, my insurance

(work insurance) pays 100% of that.

I'm not sure what to make of that piece on 20/20. I think they just wanted to

stir the controversy (again) that we parents are pushing our kids to become

things they are not and it's up to us to teach them to be happy as they are and

stop trying to improve, improve, improve. Of course they didn't spend much time

on the boy (notice he was GHD) the girl meanwhile didn't have a diagnosis given

on the show, and they spent way more time on her. They did not discuss, AT ALL,

the long lasting OTHER benefits of GH for GHD kids.

Ah the media always has to put their spin on it eh?

Deb

Does it really cost that much?

I'm watching the 20/20 story on kids who take HGH.

They said it costs about $30,000 a year. Is that true?

I " m freaking out here! We are going through the

Shriners for other problems.. and have genitic testing

next month... If the Shriners discover has

RSS... is the HGH covered through them? I know I " m

full of questions... kinda panicy.

Do your kids have these bad headaches they were

talking about on TV? Oh.. so much to learn.

__________________________________

Yahoo! FareChase: Search multiple travel sites in one click.

http://farechase.yahoo.com

[Guest guest]

hi christine!!

yes that is how much it costs but usually the insurance company will

pay a big prtion of it. or you can also go through the drug company's

patient asst. pogram for help.

christopher has been on it since jan. and has never complained of

headaches.

jodie c

[Guest guest]

My daughter Vittoria does get the bad head aches she will be 6 in December and

has been able to tell us that her head hurts since she was 2. We are going to

have an MRI done on Dec 2. To make sure everything is ok.

Does it really cost that much?

I'm watching the 20/20 story on kids who take HGH.

They said it costs about $30,000 a year. Is that true?

I " m freaking out here! We are going through the

Shriners for other problems.. and have genitic testing

next month... If the Shriners discover has

RSS... is the HGH covered through them? I know I " m

full of questions... kinda panicy.

Do your kids have these bad headaches they were

talking about on TV? Oh.. so much to learn.

__________________________________

Yahoo! FareChase: Search multiple travel sites in one click.

http://farechase.yahoo.com