Autumn home from hospital...again..also, eating advice???????????????

November 2, 2005

Hi everyone. I hope all is well with everyone. Autumn came home

from the hospital sunday, I hvae not been able to post earlier. SHe

is doing better adn is occationally now taking a little bit of

food...a few bites a day at most, but will not drink anything except

some of a morning bottle. I suppliment her with tube feedings

through her ng tube and it is helping her body recover and gain

strength, today she is acting well. I give her 4 feeds a day,

sometimes only 3 if she takes her morning bottle well. Her last one

is around 8 at night and she takes her morning bottle aroung 8 in the

morning then I give her 4 hours or so to eat/drink lunch etc ( she

normally does after her morning bottle) but by 12 or 1230 she has

still not eaten or had anything to drink so I give a 6 oz bolus of

peptamen jr. She seems to have a really hard time regaining any

interest in food and never wants to drink anything, which of course

is why she was given the ng tube last week, but I just don't know

what it was about that cold that did this to her. She is getting the

tube removed on monday, the day she gets her g-tube. I need to

somehow get her to want to eat....maybe the ng tube bothers her but

the thing is she is still acting the same about food as seh did

before her hospital stay. I also just can't believe she wants

nothing to drink..especially in teh mornings when she usually wants

something after her bottle. Not only doesnt' she want it but she

will scream and if a cup is given to her, seh will throw it in

anger. I guess I just have to reteach her to eat??? What is going

on.. I can't believe htis is just from a cold. MAybe once she gets

her g-tube and recovers she will show more interest. like I

mentioned, I give her the last bolus at 8 pm and she has 12 hours for

hunger or thirst in the morning, then she drinks a little bottle and

refuses anything by lunchtime still...she is not full from peptamin

at that time... that is her normal routine. Any advice? We have

backtracked a year with her.

Thanks.

mom to AUtumn RSS 21.5 mos, Summer, Ocean, Skye

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