Guest guest Posted October 30, 2005 Report Share Posted October 30, 2005 hi all, in my letter to 20/20 that i sent on GHT and how it has helped Eva, i pointed out not only that i interpreted it to be slightly lopsided. not showing as much about the boy being GHd, but how it medically was necceasary for Eva's dwarfism and proper development of her brain and other vital organ's. including that she would never hit puberty. OK that might have it's upside. lol. jk. i also told him about her RSS, and it's description. i included the RSS website and MAGIC webite too. almost forgot Human growth foundation also. i put in pics of Eva before GH and then 6 mos. later. then put in pictures from this month with her little brother. i started by thanking him for doing the piece and showing the kids giving themselves injections using the pen like she has. we have had some problem getting her to use other spots other than her legs. so i think this will help her. also that it showed that she was'nt alone. i thanked him twice for that. once from Eva. i hope no one thought that i blasted him for his piece being sensationalistic journalism. hopefully with everyone writing him he will maybe do a follow up piece on RSS. and that is what we want so we can bring awareness to our children's situation and then in turn it will put pressure on the insurance companies to pay for the GHT without hassle. did anybody else's kids watch the piece. so if you did'nt see the piece in urge you to go to abcnewsgo.com/20/20. and read the transcipt of the show for 10-28. then respond to Stossel. you can e-mail him direct, that's what i did. who knows if he even opens it himself. but maybe after his assistant keeps on getting deluged by our e-mails he will get a clue. let's keep it up. our kids are specail and God gave them to us for a purpose , so maybe this is it. who knows. Donna Eva's mommy s --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
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