Yep it cost that much/let's write 20/20

[Guest guest]

Hi all,

i just finished writing Mr. Stossel a e-mail thru ABCnews.com. about his one

sided view. told him i noticed he did'nt point out how the body has to have it

to develop the insides and get them to function properly. i noticed also that he

barely mentioned the boy had GHd. my girl Eva has GHd and drawfism along with

RSS. yes, she has had headaches but not alot. her sugar problems have gotten

better also.

about the cost. yes ours is around $1300 a vial. but we haven't hit the high

dosages yet. our insurance picks up most of it. And Children's Special Health

Care Services gets the rest. But the deductible is usally met by Febuary because

of the medicine.

if we all got together and e-mailed him maybe he would do a more positive story

on GHT. maybe i'm being Don Quiote here and fighting windmills. But, maybe it

would help raise awareness about RSS and help our fight with the stupid

insurance companys. just a thought.

well good night y'all,

donna, Eva's mommy

---------------------------------

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

Donna - well, I just wrote a message to Mr. Stossel too. Great

idea. Hope all is well with you at home.

- H

>

> Hi all,

> i just finished writing Mr. Stossel a e-mail thru ABCnews.com.

about his one sided view. told him i noticed he did'nt point out

how the body has to have it to develop the insides and get them to

function properly. i noticed also that he barely mentioned the boy

had GHd. my girl Eva has GHd and drawfism along with RSS. yes, she

has had headaches but not alot. her sugar problems have gotten

better also.

> about the cost. yes ours is around $1300 a vial. but we haven't

hit the high dosages yet. our insurance picks up most of it. And

Children's Special Health Care Services gets the rest. But the

deductible is usally met by Febuary because of the medicine.

> if we all got together and e-mailed him maybe he would do a more

positive story on GHT. maybe i'm being Don Quiote here and fighting

windmills. But, maybe it would help raise awareness about RSS and

help our fight with the stupid insurance companys. just a thought.

>

>

> well good night y'all,

> donna, Eva's mommy

>

>

>

> ---------------------------------

> Yahoo! FareChase - Search multiple travel sites in one click.

>

>

[Guest guest]

h,

thank you! let's keep it up.

donna

---------------------------------

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

Donna - your welcome! Gosh, I thought it was a fabulous idea you

had - and besides, it's the little things that make all the

difference, eh?

Nice talking with you <grin>.

- H

>

> h,

> thank you! let's keep it up.

> donna

>

>

> ---------------------------------

> Yahoo! FareChase - Search multiple travel sites in one click.

>

>