Re: Abby Update & Question

[Guest guest]

If Abby is growing at a good catch-up rate, then the dose should

remain the same. It is usually increased if the growth velocity falls

off or if the child gains a good amount of weight. It's great that

Abby is doing so well on the dose that she is taking right now. My

guess would be that at the next visit, the doctor will increase the

dose.

Jodi Z

[Guest guest]

Sherri - I'm not well versed with GH yet - but, wanted to

congratulate Abby on her growth! I'm sure that makes you very

happy. Have a great day!

- H

>

> Abby had her appointment with her endo and is doing great. She

gained

> 1.5 inches in 5 months. Her doctor said she still doesn't have

Abby at

> the full recommended dose of GH, she's been easing it up every 4

months

> or so. She said she's going to keep Abby at her current dose for

now

> and consider again at the next visit. The doctor, who really

doesn't

> know anything about RSS, said she had read a study that said large

> amounts at an early age really don't make a difference in the long

run

> (or something along those lines!).

>

> Does anyone have any information on this? I'm fine with leaving

Abby

> where she's at because she's really moving up above the curve she

was

> growing on before and we have problems getting her to eat enough

to

> keep up with her height, but I don't want to miss any opportunity

we

> have while she's at a young age.

>

> Sherri D. - Mom to 7 year old twins - Abby (RSS) and Sam (nonRSS)

>

[Guest guest]

Thanks, Jodi. It's so tough trying to balance what the " right " thing

is. Since our doctor doesn't seem to know anything about RSS I rely

heavily on this listserv for all the information I can get. As long

as there is no reason I need to put pressure on the doctor to change

the prescription, I'm thrilled with leaving it as is and with Abby's

growth progress.

Sherri

>

> If Abby is growing at a good catch-up rate, then the dose should

> remain the same. It is usually increased if the growth velocity

falls

> off or if the child gains a good amount of weight. It's great that

> Abby is doing so well on the dose that she is taking right now. My

> guess would be that at the next visit, the doctor will increase the

> dose.

>

> Jodi Z

>

[Guest guest]

Thanks, Jodi. It's so tough trying to balance what the " right " thing

is. Since our doctor doesn't seem to know anything about RSS I rely

heavily on this listserv for all the information I can get. As long

as there is no reason I need to put pressure on the doctor to change

the prescription, I'm thrilled with leaving it as is and with Abby's

growth progress.

Sherri

>

> If Abby is growing at a good catch-up rate, then the dose should

> remain the same. It is usually increased if the growth velocity

falls

> off or if the child gains a good amount of weight. It's great that

> Abby is doing so well on the dose that she is taking right now. My

> guess would be that at the next visit, the doctor will increase the

> dose.

>

> Jodi Z

>

[Guest guest]

Thanks, yes, I'm thrilled with Abby's growth. It was so hard to make

the decision to do GH, but now that we're going down that road I love

to plot Abby's progress and watching her move up and over the curve

she was on!

Sherri

> >

> > Abby had her appointment with her endo and is doing great. She

> gained

> > 1.5 inches in 5 months. Her doctor said she still doesn't have

> Abby at

> > the full recommended dose of GH, she's been easing it up every 4

> months

> > or so. She said she's going to keep Abby at her current dose for

> now

> > and consider again at the next visit. The doctor, who really

> doesn't

> > know anything about RSS, said she had read a study that said

large

> > amounts at an early age really don't make a difference in the

long

> run

> > (or something along those lines!).

> >

> > Does anyone have any information on this? I'm fine with leaving

> Abby

> > where she's at because she's really moving up above the curve she

> was

> > growing on before and we have problems getting her to eat enough

> to

> > keep up with her height, but I don't want to miss any opportunity

> we

> > have while she's at a young age.

> >

> > Sherri D. - Mom to 7 year old twins - Abby (RSS) and Sam (nonRSS)

> >

>