Re: Hypoglysemic??and RSS

[Guest guest]

MissyAnne,

If is spilling ketones in the morning, even at just a trace,

then you may have to consider upping his pump feedings at night.

Wait - does he get pump feedings at night? If not, then you will have

to start. Any ketones at all are not good. If he gets even a little

cold it could put him in the hospital because he has nothing to fall

back on, as you mentioned.

Jodi Z

[Guest guest]

I wish I had a good answer for you. I'm learning lot's

myself. I've had reactive hypoglycemia all my life - I used to

faint when I was younger. But, sometimes its hard to gauge where

you child is at. As you have probably read - however, ketones are a

serious matter. And, I'm sure someone here will hopefully pipe in

and give you some great deteail about the seriousness of ketones in

the urine. All I know is that ketones are not good and whenever I

see them - I plan on calling the doc (especially considering what we

just went through). I haven't helped much here - but, maybe we

can " learn together " . Best of luck

- H

I

>

> Hi everyone!

> Quick question? I'm new to all of this RSS stuff, and even though

I

> thought I was pretty informed on Hypoglysemia, I feel I'm not

now. I

> have had many hypo spells in my life, even hospitalized. So when

my

> son started having signs at age 3, I began testing his

> bgl. It was then that I was able to tell his Dr. that his levels

> were ranging from 41 to 220. His edocrin. said that his basically

> didn't have any " reserve " therefore his body couldn't properly

> regulate his sugar. However dismissed us after that point. THis

was

> a contributing factor to having the g-tube put in last year, and I

> can tell a difference, for sure.

> Recently I have been hearing you guys talk about ketones? So I

went

> and got some of the strips to check Chris' urine. He isn't

currently

> sick or anything, but he is showing a trace of ketone. What does

> this mean? Does this mean that he is buring his fat? becaruse he

> dosen't have any to spare! hahaha Any info that can be passed my

way

> would be much appreciated!

> Also what is the deal with the cornstarch?

> I also have a 2.5 year old that is non RSS and is thriving,

however

> is showing classic signs of hypo as well? However his levels seem

to

> be at a different range, higher? so what are your suggestions? My

> experience has been that either your doctor buys into Hypo or

> doesn't? and I'm not feeling the " love " from our doc's here!

It's

> pretty hard to push high caloric foods that are good for hypo.

> especcially with a picky, texture challenged kid!

> Thanks for listening!

> MissyAnne (Priv.listed as melissa or missy, but there are several

of

> us so I wwent with this! I'm the one in California!)

> (son age 4.5 -RSS, G-tube, fundo)

>