Guest guest Posted October 30, 2005 Report Share Posted October 30, 2005 Donna - that's awesome! Sounds like we all know what we would have liked to hear from his original segment! Again Donna - great idea - How is Eva by the way? - H > > hi all, > in my letter to 20/20 that i sent on GHT and how it has helped Eva, i pointed out not only that i interpreted it to be slightly lopsided. not showing as much about the boy being GHd, but how it medically was necceasary for Eva's dwarfism and proper development of her brain and other vital organ's. including that she would never hit puberty. OK that might have it's upside. lol. jk. i also told him about her RSS, and it's description. i included the RSS website and MAGIC webite too. almost forgot Human growth foundation also. > i put in pics of Eva before GH and then 6 mos. later. then put in pictures from this month with her little brother. > i started by thanking him for doing the piece and showing the kids giving themselves injections using the pen like she has. we have had some problem getting her to use other spots other than her legs. so i think this will help her. also that it showed that she was'nt alone. i thanked him twice for that. once from Eva. > i hope no one thought that i blasted him for his piece being sensationalistic journalism. > hopefully with everyone writing him he will maybe do a follow up piece on RSS. and that is what we want so we can bring awareness to our children's situation and then in turn it will put pressure on the insurance companies to pay for the GHT without hassle. > did anybody else's kids watch the piece. > so if you did'nt see the piece in urge you to go to abcnewsgo.com/20/20. and read the transcipt of the show for 10-28. then respond to Stossel. you can e-mail him direct, that's what i did. who knows if he even opens it himself. but maybe after his assistant keeps on getting deluged by our e-mails he will get a clue. > let's keep it up. our kids are specail and God gave them to us for a purpose , so maybe this is it. > who knows. > > Donna > Eva's mommy > > s > > > --------------------------------- > Yahoo! FareChase - Search multiple travel sites in one click. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 I videotaped the show. I too was shocked at 's " one- sidedness. " I truly believe that every family has to make their own decision re any treatment. But he kept saying " what is wrong with being short? " as if these kids that are on GHT are " supposed to be short. " Does that mean that a child who is diabetic is supposed to be that way? And a child who has difficulty hearing shouldn't get hearing aids because God made him that way? I absolutely agree that children who are short but are at a height normal for their parents will be fine. But medically, kids who are GHD or GH insufficient, we have a lot of other medical issues to be dealing with than just height, in the decision to use GH. Anyway, enough venting. Jenn > > > > hi all, > > in my letter to 20/20 that i sent on GHT and how it has helped > Eva, i pointed out not only that i interpreted it to be slightly > lopsided. not showing as much about the boy being GHd, but how it > medically was necceasary for Eva's dwarfism and proper development > of her brain and other vital organ's. including that she would > never hit puberty. OK that might have it's upside. lol. jk. i also > told him about her RSS, and it's description. i included the RSS > website and MAGIC webite too. almost forgot Human growth foundation > also. > > i put in pics of Eva before GH and then 6 mos. later. then put in > pictures from this month with her little brother. > > i started by thanking him for doing the piece and showing the kids > giving themselves injections using the pen like she has. we have > had some problem getting her to use other spots other than her > legs. so i think this will help her. also that it showed that she > was'nt alone. i thanked him twice for that. once from Eva. > > i hope no one thought that i blasted him for his piece being > sensationalistic journalism. > > hopefully with everyone writing him he will maybe do a follow up > piece on RSS. and that is what we want so we can bring awareness to > our children's situation and then in turn it will put pressure on > the insurance companies to pay for the GHT without > hassle. > > did anybody else's kids watch the piece. > > so if you did'nt see the piece in urge you to go to > abcnewsgo.com/20/20. and read the transcipt of the show for 10- 28. > then respond to Stossel. you can e-mail him direct, that's > what i did. who knows if he even opens it himself. but maybe after > his assistant keeps on getting deluged by our e-mails he will get a > clue. > > let's keep it up. our kids are specail and God gave them to us > for a purpose , so maybe this is it. > > who knows. > > > > Donna > > Eva's mommy > > > > s > > > > > > --------------------------------- > > Yahoo! FareChase - Search multiple travel sites in one click. > > > > Quote Link to comment Share on other sites More sharing options...
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