Re: Question about kidney issues

[Guest guest]

Sheryl - well, your physician could have used a little more common

sense in telling you that it may be a tumor! Oh Geez. First, I

wouldn't go down that road until you get better details from the CT

Scan. I know from my recent experiences with Ian - they thought his

deudonum was narrow after an X-Ray (that's the part that connects

the stomach to the intestines which more often than not results in

surgery) - so they then did an Ultra Sound and the results were

inconclusive and then found NOTHING after having a CT Scan.

I haven't heard much about anything related to RSS children and

issues with kidneys - maybe someone will have some thoughts about

that. Please try not to worry until you have had all the tests

necessary. I know that's easier said than done and I totally

understand where you are coming from. I'm sorry you have to go

through this. We hope you will keep us posted on her results. We

are here for you!

Hugs

- H

>

> Hey all,

>

> This is going to be a quick post since I am on my way to bed....

>

> Dalia had her second pelvic ultrasound this week to check her

> kidneys in the process of getting ready for GH. First they

> confirmed that her left kidney is a pelvic kidney and that it is

not

> really any big deal (just no contact sports - oh well, no

> football). But, then they saw something in the area that her

kidney

> should be and thought perhaps it was her intestines or stomach

> filling in the open area. The endo called today to say that they

> want to do a CT scan to take a further look since the ultrasound

was

> not conclusive. He said it could be her stomach or maybe even a

> benign tumor (these were just a couple of examples he mentioned).

> He did say not to worry too much, but that is like telling me not

to

> breathe too much - kwim??

>

> I am just so worried about her and can't stop thinking about what

> might be wrong. Does anyone else have experience with this and

have

> any positive thoughts??

>

> Thanks,

> Sheryl (Dalia, 23 months, 19 lbs 9 oz, 31 in, RSS and Hanna, 3

> months, non-RSS)

>

> btw, Dalia started walking full time last week!! - YAY

>