Re: A quick update before final exam

[Guest guest]

Hi ,

also used to snore horribly. We did a sleep apnea test at home

and then had a partial adnoidectomy and partial tonsillectomy. Due to

the high palate that a lot of " our " kids have, a full removal is not

always the best thing as it will allow too much air flow. In effect,

they simply shaved down the adnoids and tonsils on . It worked

wonders. He does not snore at all now.

Of course, being in NY we were able to use an ENT that had worked with

DR H and other RSS kids before which made it all easier.

Good luck with your final,

Judith, Steve, (RSS) and (non RSS) 5 1/2 year old twins

[Guest guest]

,

I don't have any wisdom for you about the snoring thing. First thing

that came to my mind was an ENT should probably take a look at his

tonsils and adenoids, but I don't know that for sure. I am sure

someone else that knows will respond to you.

I just wanted to say hi and tell you that it is great to hear from

you again. Sounds like Connor is doing very well on the tube and

GH. That is awesome. How old is he again? It also sounds like you

are very busy with school. What is your field of work going to be

when you are done? I saw you said you would be switching fields.

I hope things continue to go so well for you and hope to see you at

next year's convention! )

Jodi R.

>

> Hello to all!

>

> I've been a hermit of late due to a clinical Pastoral Education

> class I've been taking through the University of Virginia. It's

> been intense and time consuming, but I will be finished on Tuesday

> of next week.

>

> Connor is doing great! He's gaining weight and growing with the g-

> tube and ght combo. Presently I'm at war with my pharmacy group

> becuase they want to limit where we can get Connor's drug. The

> place that we get it from can bill our insurance and Medicaid to

> cover the hefty co-pay. Of course, the new pharmacy can't. So, we

> are dueling by fax and phone.

>

> I have one concern to bring up about Connor. He snores like a

> charging Rhino. Even when his head is elevated, he snores. Is

this

> due to the shape of the RSS child's mouth or is it the

> adenoid/tonsil issue. I haven't observed any apnea with Connor but

> I'm wondering if this is something I need to pursue. What is the

> rational for removing the Adnoids and tonsils in the RSS child?

>

> I promise after finals I will returns all the " getting to know you "

> emails that were sent my way. I'm not being anti-social, I'm just

> trying to get my graduate credit so I can move into a different

work

> field.

>

> Grace and Peace to all,

>

>

> Mom to Graham 8 ADD; Cameron 5; Connor RSS Kyphosis G-Tube and

> Nutropin A.Q. Present wt 28 lbs. 35 inches tall and growing!!!

>