Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 ekali08 wrote: > Hallo! > This is my first time chatting about RSS , so i have so much to talk >to , that i have to put everything in order! > >I was wondering about 2006 convention of Magic Foundation,if its worth >it to go there all the way from Greece (Europe) and also to ask if any >other people from Greece have ever attended such a convention in the >previous years? It would be such a great help for me to be able to >communicate with them . > >My doughter Arianna is 10 years old and she just started Growth Hormone >Therapy.I was trying for the last three years to give her the GH therapy >but there were barriers all over , so we found our way out a month ago. >I m so glad she started this therapy- hoping that it will give her >extra height and mass weigth - but on the other hand very worried about >the side effects although i 've read over and over again that there are >not any. > >Thank you for listening and i'll be very glad to communicate with >whoever is interested ! > >Ada > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Hi Ada, Welcome to oyr group. I hope we can answer your questions. I have been thinking about your question on whether it is worthwhile for you to attend the convention from Greece. There is no simple answer. It depends. First it depends on how well your daughter is doing and on whether or not any of the presentations can help you. That is one thing to consider. The other is will it be woth your while to meet with about 100 other families who have children with RSS, some are infants and some are almost grown. I would think it might be beneficial to for you to come to at least one convention and meet with as many families as you can. There are some side affects to growth hormone but they seem rare. They are mostly joint pain and/or headaches. In either case you should stop using the growth hormone until you can get to see a doctor. I hope this helps make a decision about coming to Chicago or not. Please feel free to ask us anything. Someone usually has an opinion. Ken M > > Hallo! > This is my first time chatting about RSS , so i have so much to talk > to , that i have to put everything in order! > > I was wondering about 2006 convention of Magic Foundation,if its worth > it to go there all the way from Greece (Europe) and also to ask if any > other people from Greece have ever attended such a convention in the > previous years? It would be such a great help for me to be able to > communicate with them . > > My doughter Arianna is 10 years old and she just started Growth Hormone > Therapy.I was trying for the last three years to give her the GH therapy > but there were barriers all over , so we found our way out a month ago. > I m so glad she started this therapy- hoping that it will give her > extra height and mass weigth - but on the other hand very worried about > the side effects although i 've read over and over again that there are > not any. > > Thank you for listening and i'll be very glad to communicate with > whoever is interested ! > > Ada > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Hello, Ada. I am new to this site as well. My 15 mo. old son was diagnosed in November. We live in a very small town in the state of New York in the United States. I can't be of much help to you, unfortunately, since this is all new to me. I am hoping to attend the convention in July as well. Finances will be our issue. I left my job after my son, Brockton, was born in August of 2004. I have an 18 yr. old daughter as well and she is very healthy. Actually, my children are on absolute opposite ends of the spectrum! She battles obesity, unfortunately. I KNOW that runs in the family as we have a long line of over weight people, including myself. When was your daughter diagnosed with RSS? I'm always interested in hearing other peoples stories. It gives me insight and understanding. The nearest decent hospital is 2 hrs. away from us and they don't have any Dr.'s that know much about RSS. I'm hoping to get in to see Dr. Harbison as soon as the results from Brocktons growth hormone tests come back in about a week. What a time they had trying to draw his blood yesterday! Brockton was a MESS. His skin is so thin that they tore it with the needle in one hand and blew the vein. They had to do his other little hand after that and were quite successful with that one, thank God. I wish I could be of more help to you but I know that there of plenty of people on this site that are, in my opinion, more helpful than alot of the Dr.'s. Good luck to you and your family! Jeanie ekali08 wrote: Hallo! This is my first time chatting about RSS , so i have so much to talk to , that i have to put everything in order! I was wondering about 2006 convention of Magic Foundation,if its worth it to go there all the way from Greece (Europe) and also to ask if any other people from Greece have ever attended such a convention in the previous years? It would be such a great help for me to be able to communicate with them . My doughter Arianna is 10 years old and she just started Growth Hormone Therapy.I was trying for the last three years to give her the GH therapy but there were barriers all over , so we found our way out a month ago. I m so glad she started this therapy- hoping that it will give her extra height and mass weigth - but on the other hand very worried about the side effects although i 've read over and over again that there are not any. Thank you for listening and i'll be very glad to communicate with whoever is interested ! Ada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Hello, Ada. I am new to this site as well. My 15 mo. old son was diagnosed in November. We live in a very small town in the state of New York in the United States. I can't be of much help to you, unfortunately, since this is all new to me. I am hoping to attend the convention in July as well. Finances will be our issue. I left my job after my son, Brockton, was born in August of 2004. I have an 18 yr. old daughter as well and she is very healthy. Actually, my children are on absolute opposite ends of the spectrum! She battles obesity, unfortunately. I KNOW that runs in the family as we have a long line of over weight people, including myself. When was your daughter diagnosed with RSS? I'm always interested in hearing other peoples stories. It gives me insight and understanding. The nearest decent hospital is 2 hrs. away from us and they don't have any Dr.'s that know much about RSS. I'm hoping to get in to see Dr. Harbison as soon as the results from Brocktons growth hormone tests come back in about a week. What a time they had trying to draw his blood yesterday! Brockton was a MESS. His skin is so thin that they tore it with the needle in one hand and blew the vein. They had to do his other little hand after that and were quite successful with that one, thank God. I wish I could be of more help to you but I know that there of plenty of people on this site that are, in my opinion, more helpful than alot of the Dr.'s. Good luck to you and your family! Jeanie ekali08 wrote: Hallo! This is my first time chatting about RSS , so i have so much to talk to , that i have to put everything in order! I was wondering about 2006 convention of Magic Foundation,if its worth it to go there all the way from Greece (Europe) and also to ask if any other people from Greece have ever attended such a convention in the previous years? It would be such a great help for me to be able to communicate with them . My doughter Arianna is 10 years old and she just started Growth Hormone Therapy.I was trying for the last three years to give her the GH therapy but there were barriers all over , so we found our way out a month ago. I m so glad she started this therapy- hoping that it will give her extra height and mass weigth - but on the other hand very worried about the side effects although i 've read over and over again that there are not any. Thank you for listening and i'll be very glad to communicate with whoever is interested ! Ada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Jeanie, Are you in upstate NY? Where are you? The only places in upstate I can relate to are Penn Yan and Tuxedo NY which is just over the NJ border. Did you get the results yet from Brockton's test? B and Kelli Jeanie Kinnicutt wrote: Hello, Ada. I am new to this site as well. My 15 mo. old son was diagnosed in November. We live in a very small town in the state of New York in the United States. I can't be of much help to you, unfortunately, since this is all new to me. I am hoping to attend the convention in July as well. Finances will be our issue. I left my job after my son, Brockton, was born in August of 2004. I have an 18 yr. old daughter as well and she is very healthy. Actually, my children are on absolute opposite ends of the spectrum! She battles obesity, unfortunately. I KNOW that runs in the family as we have a long line of over weight people, including myself. When was your daughter diagnosed with RSS? I'm always interested in hearing other peoples stories. It gives me insight and understanding. The nearest decent hospital is 2 hrs. away from us and they don't have any Dr.'s that know much about RSS. I'm hoping to get in to see Dr. Harbison as soon as the results from Brocktons growth hormone tests come back in about a week. What a time they had trying to draw his blood yesterday! Brockton was a MESS. His skin is so thin that they tore it with the needle in one hand and blew the vein. They had to do his other little hand after that and were quite successful with that one, thank God. I wish I could be of more help to you but I know that there of plenty of people on this site that are, in my opinion, more helpful than alot of the Dr.'s. Good luck to you and your family! Jeanie ekali08 wrote: Hallo! This is my first time chatting about RSS , so i have so much to talk to , that i have to put everything in order! I was wondering about 2006 convention of Magic Foundation,if its worth it to go there all the way from Greece (Europe) and also to ask if any other people from Greece have ever attended such a convention in the previous years? It would be such a great help for me to be able to communicate with them . My doughter Arianna is 10 years old and she just started Growth Hormone Therapy.I was trying for the last three years to give her the GH therapy but there were barriers all over , so we found our way out a month ago. I m so glad she started this therapy- hoping that it will give her extra height and mass weigth - but on the other hand very worried about the side effects although i 've read over and over again that there are not any. Thank you for listening and i'll be very glad to communicate with whoever is interested ! Ada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Hi Ada. We got the results for the GH tests back but not the Chromozome tests. The GH tests came back normal. We are located on the Pennsylvania border.....about 2 hours Southeast of Buffalo, NY. South of Penn Yan as well, actually. We live in Wellsville, NY. I've never heard of Tuxedo. LOL (I don't get out much.) We are 2 and a half hours West of Binghamton, NY. How is Arianna doing? I trust that your holidays are happy. Do you celebrate Christmas in Greece? What do you do for New Years? Great to hear from you again. Jeanie Briggs wrote: Jeanie, Are you in upstate NY? Where are you? The only places in upstate I can relate to are Penn Yan and Tuxedo NY which is just over the NJ border. Did you get the results yet from Brockton's test? B and Kelli Jeanie Kinnicutt wrote: Hello, Ada. I am new to this site as well. My 15 mo. old son was diagnosed in November. We live in a very small town in the state of New York in the United States. I can't be of much help to you, unfortunately, since this is all new to me. I am hoping to attend the convention in July as well. Finances will be our issue. I left my job after my son, Brockton, was born in August of 2004. I have an 18 yr. old daughter as well and she is very healthy. Actually, my children are on absolute opposite ends of the spectrum! She battles obesity, unfortunately. I KNOW that runs in the family as we have a long line of over weight people, including myself. When was your daughter diagnosed with RSS? I'm always interested in hearing other peoples stories. It gives me insight and understanding. The nearest decent hospital is 2 hrs. away from us and they don't have any Dr.'s that know much about RSS. I'm hoping to get in to see Dr. Harbison as soon as the results from Brocktons growth hormone tests come back in about a week. What a time they had trying to draw his blood yesterday! Brockton was a MESS. His skin is so thin that they tore it with the needle in one hand and blew the vein. They had to do his other little hand after that and were quite successful with that one, thank God. I wish I could be of more help to you but I know that there of plenty of people on this site that are, in my opinion, more helpful than alot of the Dr.'s. Good luck to you and your family! Jeanie ekali08 wrote: Hallo! This is my first time chatting about RSS , so i have so much to talk to , that i have to put everything in order! I was wondering about 2006 convention of Magic Foundation,if its worth it to go there all the way from Greece (Europe) and also to ask if any other people from Greece have ever attended such a convention in the previous years? It would be such a great help for me to be able to communicate with them . My doughter Arianna is 10 years old and she just started Growth Hormone Therapy.I was trying for the last three years to give her the GH therapy but there were barriers all over , so we found our way out a month ago. I m so glad she started this therapy- hoping that it will give her extra height and mass weigth - but on the other hand very worried about the side effects although i 've read over and over again that there are not any. Thank you for listening and i'll be very glad to communicate with whoever is interested ! Ada Quote Link to comment Share on other sites More sharing options...
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