Re: Re: question regarding meds and O2

[Guest guest]

,

I also had stomach pain the first time I took NAC in 2007. I stopped taking it for that reason in fact.

On the advice of my pulmonologist I've recently started taking it again and so far I've had no problems. I do take it on a full stomach and no difficulty as of yet and it's been nearly a month.

I should say the first time I was taking it I was also on prednisone which may have contributed to the problem. I've been off the pred for almost 3 years though so if that was the problem, it can't bother me anymore.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sat, December 19, 2009 2:33:07 PMSubject: Re: Re: question regarding meds and O2

I've been on NAC since about July, and I've been having a lot of stomach pain, maybe that's the reason. Does any one else have this problem?

Pat

From: Verizon Email <bofus6 (AT) verizon (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sat, December 19, 2009 1:27:21 PMSubject: Re: Re: question regarding meds and O2

Sometimes a post does get overlooked.. .

I was on NAC only one time. Back when I was first dx. It was great for the cough and the mucous but after awhile I noticed really bad stomach pain. I stopped taking it and haven't had problems with stomach or coughing since.

Do be sure and take it with food. I used the caps. Purchased at www.puritansales. com. Best price and lots of us here purchase there.

Sorry Terry, didn't see your post.

From: Beverley Joy

Sent: Saturday, December 19, 2009 9:54 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Re: question regarding meds and O2

I didn't see anyone answer this one so I'll try. For me it keeps down the mucous and coughing. I like it. I seem to be sensitive to medications and I'm on a lot of them. I don't seem to have a problem with NAC.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Bruce <brucemoreland@ gmail.com>Subject: Re: question regarding meds and O2To: Breathe-Support@ yahoogroups. comDate: Wednesday, December 16, 2009, 1:42 PM

My saturations very greatly at different times. But, a typical situationI could sit at 2 lpm and 96%. If I walked around the house slowly at 2lpm I would drop to around 90%. If I tried to do anything like unloadthe dishwasher or put laundry in then they would drop quickly to around85%. So, I'd turn up to 3 lpm for light activity and stay around 90-92%or for heavier activity to 4 lpm.Your saturations will drop when you do activity. How much depends on theperson. But, if I tried to do the activities I mentioned above withoutoxygen, my saturations would quickly drop into the 70's and if Icontinued then lower. Therefore, I don't do it without adequate oxygen.There are some things that I can't get enough oxygen period so justcan't do. If I were to try to lift a very heavy item or push one acrossthe floor, my saturations would drop below 90% even if I was on 6 lpm.> >> >> > From: Jerry Brown jerryb888@ .> > Subject: question regarding meds and O2> > To: Breathe-Support@ yahoogroups. com> > Date: Monday, December 14, 2009, 2:47 AM> >> >> > Â> >> >> >> >> >> >> >> >> > ,> > Â> > Only if your O2 blood level is well above the 90% mark while at rest> or engaged in lite activity should you consider not using

supplemental> O2, and even then discuss that with your pulmonologist. Besides the> possible harm to your heart due to an increased load as it tries topump> oxygen throughout your body, you would certainly feel more tiredÂand> much sooner in the day, as your recovery time fromexertion> would be greater.> > Â> > That being said, almost 4 years ago, I was able to loose 50 pounds> through exercise and good eating habits, and the benefit was that Iwas> able to get off O2 for the time being. But I never shyed away fromusing> O2 if I needed it for getting in relly good shape. Using the O2 meter> constantly as I exercised, I could work out with confidence. If during> exercise you find your O2 level dropping below 90%, adjust the O2upward> and keep going. Our need for oxygen varies with activity, and thus our> O2

supplementation needs will vary. The more you can stay active, the> better your chances for needing less O2 supplementation. But in themean> time, I strongly suggest staying the course.> > Â> > As for Cellcept, I don't take it, but you may be having some> side-effects which may include anxiety, tiredness, upset stomach, or> headache. These side effects may increase with dosage, but doÂ> consult with your pulmonoligist first before taking the cold turkey> route on meds. Unfortunately treatment for pf is limited, but Â> hopefully one day soon, we'll have better options So hang inthere> and do all you can for yourself, if and until that day comes. Â> > Jerry/Mississippi/ 54/IPF/dx April 05> > Â> > Â> >> >> > Who believes that hard times help us appreciate the good times even>

more.> >>

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9..0.717 / Virus Database: 270.14.113/2573 - Release Date: 12/17/09 23:35:00

[Guest guest]

Besides its mucus dissolving agent to help break up thick mucus, NAC is a powerful antioxidant. It helps boost the immune system. A clinical trial found that when combined with prednisone and azathioprine, NAC improved lung function in people with IPF.

C_53_Familial IPF_5/09, Washington

HOPE doesn't disappoint!

From: Bruce <brucemoreland@ gmail.com>Subject: Re: question regarding meds and O2To: Breathe-Support@ yahoogroups. comDate: Wednesday, December 16, 2009, 1:42 PM

My saturations very greatly at different times. But, a typical situationI could sit at 2 lpm and 96%. If I walked around the house slowly at 2lpm I would drop to around 90%. If I tried to do anything like unloadthe dishwasher or put laundry in then they would drop quickly to around85%. So, I'd turn up to 3 lpm for light activity and stay around 90-92%or for heavier activity to 4 lpm.Your saturations will drop when you do activity. How much depends on theperson. But, if I tried to do the activities I mentioned above withoutoxygen, my saturations would quickly drop into the 70's and if Icontinued then lower. Therefore, I don't do it without adequate oxygen.There are some things that I can't get enough oxygen period so justcan't do. If I were to try to lift a very heavy item or push one acrossthe floor, my saturations would drop below 90% even if I was on 6 lpm.> >> >> > From: Jerry Brown jerryb888@ .> > Subject: question regarding meds and O2> > To: Breathe-Support@ yahoogroups. com> > Date: Monday, December 14, 2009, 2:47 AM> >> >> > Â> >> >> >> >> >> >> >> >> > ,> > Â> > Only if your O2 blood level is well above the 90% mark while at rest> or engaged in lite activity should you consider not using

supplemental> O2, and even then discuss that with your pulmonologist. Besides the> possible harm to your heart due to an increased load as it tries topump> oxygen throughout your body, you would certainly feel more tiredÂand> much sooner in the day, as your recovery time fromexertion> would be greater.> > Â> > That being said, almost 4 years ago, I was able to loose 50 pounds> through exercise and good eating habits, and the benefit was that Iwas> able to get off O2 for the time being. But I never shyed away fromusing> O2 if I needed it for getting in relly good shape. Using the O2 meter> constantly as I exercised, I could work out with confidence. If during> exercise you find your O2 level dropping below 90%, adjust the O2upward> and keep going. Our need for oxygen varies with activity, and thus our> O2

supplementation needs will vary. The more you can stay active, the> better your chances for needing less O2 supplementation. But in themean> time, I strongly suggest staying the course.> > Â> > As for Cellcept, I don't take it, but you may be having some> side-effects which may include anxiety, tiredness, upset stomach, or> headache. These side effects may increase with dosage, but doÂ> consult with your pulmonoligist first before taking the cold turkey> route on meds. Unfortunately treatment for pf is limited, but Â> hopefully one day soon, we'll have better options So hang inthere> and do all you can for yourself, if and until that day comes. Â> > Jerry/Mississippi/ 54/IPF/dx April 05> > Â> > Â> >> >> > Who believes that hard times help us appreciate the good times even>

more.> >>

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.717 / Virus Database: 270.14.113/2573 - Release Date: 12/17/09 23:35:00