RE: Me too- I wanna cry

[Guest guest]

Could you list out what exactly you are eating? When did you add new foods to

the recent list before you started feeling not all that great? Dairy based

products, and vegetables from the nightshade family (tomatos and eggplant are

examples), could be a cause for joint pains even if they are legal foods, for

each of us reacts differently to the legal foods, with our own specific

situations. Were you able to tolerate these before?

Any spices you may have added? Any readymade product you think is legal but the

list of ingredients has something hidden or has been overlooked by you - it

happened to another list member. Sometimes the manufacturers we are used to

buying products of, change the ingredients and we may not notice it in time.

Just something to think about.

Suneeti (Crohns, SCD 2000)

[Guest guest]

Hi Suneeti,

I have not introduced new foods and I avoid the nighshades. I think this came on

from my lifestyle this summer- less time in the kitchen, traveling a lot, and

grieving over my Dad. I was not as careful with my vitamins and medication as I

usually was, but stayed strictly legal on SCD.

A big part of this is emotional too. When I was first diagnosed with mild UC I

had the common experience of unsupportive doctors and it was all downright

cruel. This board meant the world to me- to know I was not alone or crazy. And

the fear- this could all resolve quickly with a few days on intro, but it is

scary.

Thanks,

PJ

>

>

> Could you list out what exactly you are eating? When did you add new foods to

the recent list before you started feeling not all that great? Dairy based

products, and vegetables from the nightshade family (tomatos and eggplant are

examples), could be a cause for joint pains even if they are legal foods, for

each of us reacts differently to the legal foods, with our own specific

situations. Were you able to tolerate these before?

> Any spices you may have added? Any readymade product you think is legal but

the list of ingredients has something hidden or has been overlooked by you - it

happened to another list member. Sometimes the manufacturers we are used to

buying products of, change the ingredients and we may not notice it in time.

> Just something to think about.

> Suneeti (Crohns, SCD 2000)

>

[Guest guest]

Oh dear! I am so sorry about your father. It is always very difficult to lose a

loved one.

Be good to yourself and slow down. You are very right, emotional distress can

affect us a lot in many ways, our physical state being one of them.

I am sure the intro diet will help you alongwith the meds you are taking. You

can always add back more foods that you tolerate well, maybe sooner this time

around than when you first started the diet.

Suneeti (Crohns, SCD 2000)

[Guest guest]

PJSo sorry to hear you are feeling so miserable. If you haven't already, try taking epsom salt baths or making the coconut oil and epsom salt 'lotion' -- might even try putting it directly on the joints that are aching. I can't remember if you had yeast issues, but it sounds like you might, especially as long as you have been on SCD. If the yeast went dormant, they might be 'testing the waters' again and then dying off because you are being such an inhospitable host. Hang tough and baby yourself a bit. Sounds like a good time for cheesy romance books/movies, soaky baths, and some major down time if you can sneak some in.AmeliaTo: BTVC-SCD Sent: Fri, September 10, 2010 5:31:09 PMSubject: Me too- I wanna cry

I also have been felling cruddy the past few days: joint pain, a little looser BM's. I've gone back to easier to digest foods. I did not cheat, but have been under a lot of stress. Now I have notice a little B in my stools- at the end. I could almost tell it was going to happen by the way I was feeling emotionally.

I started SCD April 2009. Could use some advice/moral support from the veterans here. I am still on sulfasalazine/LDN and will go up on the dose a bit.

PJ

[Guest guest]

Hi PJ,

I’m so sorry to hear that you are feeling poorly. I think symptoms

are exacerbated by stress. Stress was always a trigger for me – my Crohn’s

symptoms would come roaring back, which would stress me further!

I hope you can find some sort of stress reducer – maybe soak

your body or just your feet in Epsom salt bath. Maybe take anti-inflammatory

for the joint pain, I think someone mentioned bromelain between meals, perhaps

turmeric or ginger would help.

I hope you feel better soon.

Carol

CD 22 yrs SCD 5 yrs

From: BTVC-SCD

[mailto:BTVC-SCD ] On Behalf Of smdsmom2008

I also have been felling cruddy the past few

days: joint pain, a little looser BM's. I've gone back to easier to digest

foods. I did not cheat, but have been under a lot of stress. Now I have notice

a little B in my stools- at the end. I could almost tell it was going to happen

by the way I was feeling emotionally.

I started SCD April 2009. Could use some advice/moral support from the veterans

here. I am still on sulfasalazine/LDN and will go up on the dose a bit.

[Guest guest]

What usually helps me move beyond the panic mode is to really focus on the present and not let fear take me into the past or what might be in the future. Trying easier foods sounds like a great idea.

I find that the arrival of spring and fall, almost independent of stress, can trigger some level of flaring.

Take care!

From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of smdsmom2008

I also have been felling cruddy the past few days: joint pain, a little looser BM's. I've gone back to easier to digest foods. I did not cheat, but have been under a lot of stress. Now I have notice a little B in my stools- at the end. I could almost tell it was going to happen by the way I was feeling emotionally. I started SCD April 2009. Could use some advice/moral support from the veterans here. I am still on sulfasalazine/LDN and will go up on the dose a bit.

[Guest guest]

Any chance you are battling Allergies or a cold right now? I live in Missouri

and since being diagnosed in 2007, it seems I am at my sickest during the spring

and ESPECIALLY the fall months (Aug/Sept) being the worst. I know I am allergic

to Mold and that is high right now in my area, and I now know allergies are an

auto-immune reaction as well, so it seems to bear, just as Elaine mentioned it,

that a flare can coincide with the immune system battling other things like

allergens or cold/flu. On top of that, I'm at the 6mo mark so the cards have

been stacked against me. I know its hard during times like this when feeling so

poorly to get up off the tush and cook delicious foods like jello and

applesauce, but it really does help. Just wanted to share my experience with

the crowd that is in a flare at the moment and know that we are all here

supporting one another...THIS TOO SHALL PASS! I am so lucky to have found this

diet and group. You all help me know that I am not in this alone and that it

does and will get better.

-Dana UC since 2007

SCD since 03/2010

>

> I also have been felling cruddy the past few days: joint pain, a little

looser BM's. I've gone back to easier to digest foods. I did not cheat, but have

been under a lot of stress. Now I have notice a little B in my stools- at the

end. I could almost tell it was going to happen by the way I was feeling

emotionally.

>

> I started SCD April 2009. Could use some advice/moral support from the

veterans here. I am still on sulfasalazine/LDN and will go up on the dose a bit.

>

> PJ

>

[Guest guest]

I flare in the fall too. And my now-retired family doc thought it was

because of the increased mold in the air (all the dead leaves and

wetness give mold lots of lovely places to grow apparently).

fiona

>

>

>

> Any chance you are battling Allergies or a cold right now? I live in Missouri

and since being diagnosed in 2007, it seems I am at my sickest during the spring

and ESPECIALLY the fall months (Aug/Sept) being the worst. I know I am allergic

to Mold and that is high right now in my area, and I now know allergies are an

auto-immune reaction as well, so it seems to bear, just as Elaine mentioned it,

that a flare can coincide with the immune system battling other things like

allergens or cold/flu. On top of that, I'm at the 6mo mark so the cards have

been stacked against me. I know its hard during times like this when feeling so

poorly to get up off the tush and cook delicious foods like jello and

applesauce, but it really does help. Just wanted to share my experience with the

crowd that is in a flare at the moment and know that we are all here supporting

one another...THIS TOO SHALL PASS! I am so lucky to have found this diet and

group. You all help me know that I am not in this alone and that it does and

will get better.

>

> -Dana UC since 2007

> SCD since 03/2010

>

[Guest guest]

Hi PJ,

I'm not a veteran, but I just want to give you moral support. You're so great

about sticking with the diet and offering good advice, so it's a given that you

should get it back!

I don't have any advice for you, but I've heard from so many people that stress

can exacerbate things, so hopefully you can find some good ways to destress. I'm

sorry to hear about your father, as I'm sure that's really difficult to deal

with.

Hope you feel better soon!

Amber

>

> I also have been felling cruddy the past few days: joint pain, a little

looser BM's. I've gone back to easier to digest foods. I did not cheat, but have

been under a lot of stress. Now I have notice a little B in my stools- at the

end. I could almost tell it was going to happen by the way I was feeling

emotionally.

>

> I started SCD April 2009. Could use some advice/moral support from the

veterans here. I am still on sulfasalazine/LDN and will go up on the dose a bit.

>

> PJ

>

[Guest guest]

Hi Pj. I'm sorry you are having such a rough time. I was diagnosed with UC in

2007 and was in remission until early this year. I got laid off from my job and

the stress was too much and I flared. I have only been on the diet for 3 weeks

and am feeling much better and more hopeful now. I know what you mean when you

say you got no doctor support when you were first diagnosed. I had the same

experience. It's so nice to know that we are not alone in this. I hope you feel

better soon.

Don

>

> I also have been felling cruddy the past few days: joint pain, a little

looser BM's. I've gone back to easier to digest foods. I did not cheat, but have

been under a lot of stress. Now I have notice a little B in my stools- at the

end. I could almost tell it was going to happen by the way I was feeling

emotionally.

>

> I started SCD April 2009. Could use some advice/moral support from the

veterans here. I am still on sulfasalazine/LDN and will go up on the dose a bit.

>

> PJ

>

[Guest guest]

I really don't understand why so many doctors are not more sympathetic. If you

decide to be a GI doc- then you already know you will have patients with IBD.

One would think that they would understand.

PJ

> >

> > I also have been felling cruddy the past few days: joint pain, a little

looser BM's. I've gone back to easier to digest foods. I did not cheat, but have

been under a lot of stress. Now I have notice a little B in my stools- at the

end. I could almost tell it was going to happen by the way I was feeling

emotionally.

> >

> > I started SCD April 2009. Could use some advice/moral support from the

veterans here. I am still on sulfasalazine/LDN and will go up on the dose a bit.

> >

> > PJ

> >

>

[Guest guest]

PJ-

I also flared this year with some stress. I just realized it's been 2 years SCD for me!

Don't get too upset about it--you will find that you will recuperate quicker because you know what you are doing now. I did recuperate and only went back on my Lialda for a week.

I have stopped my LDN only because I felt I had more C with it. It was interesting to read about the post with reducing the dose or doing it every other day. I am a big advocate of taking meds every other day--I think half the studies don't always apply to women--who are petite, and some of the doses of meds are arrived at serendipitously.

It sounds like you are more upset with yourself for not taking as good care of yourself as you had been--totally understandable with the passing of your father and your grieving. You are doing a great job! Your exercise class sounds great--also try to get out in the sun a little to keep from getting SAD.

Do you eat the yogurt? I find when I up my intake of the yogurt, I do better. I bought my sister a yogurt maker, and even though she is not SCD, she recently had some GERD and finds she no longer has to take her meds due to daily SCD yogurt consumption.

Re: GI docs who are unsupportive and not compassionate--I find this is a problem in general with the medical profession--it is hard for them to think outside of the box. It will only change with backlash and protest from us, the consumers. We need to speak up and let our practitioners know we are not pleased with their services. It's the only way they might grow.

Take care,

Terry

[Guest guest]

Hi Terry,

Re It was interesting to read about the post with

reducing the dose or doing it every other day. I am a big advocate of taking

meds every other day--I think half the studies don't always apply to women--who

are petite, and some of the doses of meds are arrived at serendipitously.

I agree, and let’s bear in mind all the trials/studies

that have been done have all been on small scale ie very few people for a

matter of weeks. Whilst my GP has looked into this, from his perspective working

in the medical profession, this doesn’t tell him anything. I do see

where he’s coming from. Several in the medical profession *want*

to prescribe LDN, but until they’re given the green light ie FDA approved,

some are very concerned about losing their licences for a while. This is

precisely why I do look up to Dr Ian Zagon who discovered LDN back in the 80’s

and continuing to research it. This also explains why we do need to help

the medical profession by getting large scale trials done and by this I mean

800 people for 2 years – then perhaps we will learn something. Till

then, all we can do is try this out for ourselves but I would encourage anyone

to not go higher than 3mg and after a while maybe taper down to 2mg. But

who knows? Just speaking from my personal experience.

Personally I look forward to re-starting LDN at 2mg every other

day. Having just come off prednisone and LDN – I have had better

days. Just a shame about my platelets! But, it could also be the

sulfasalazine that has caused this, it’s a well known fact that

sulfasalazine does this too – my GP is trying to work this out so at the

moment it’s a process of elimination.

Thanks,

Jayne Crocker

www.LDNNow.com

Important! Please sign our LDN petition to the

European Parliament by clicking here

tel: +44 (0) 7877 492 669

Dr Steele MBE, talking about LDN

LDNNow are a political/pressure group of individuals dedicated

to getting Low Dose Naltrexone (LDN) accepted into modern medicine and trialled

for the myriad of uses it shows benefit for.

..

From: BTVC-SCD

[mailto:BTVC-SCD ] On Behalf Of Terry Rumas

Sent: 11 September 2010 01:53

To: BTVC-SCD

Subject: Re: Me too- I wanna cry

PJ-

I also flared this year with some stress. I just realized

it's been 2 years SCD for me!

Don't get too upset about it--you will find that you will

recuperate quicker because you know what you are doing now. I did recuperate

and only went back on my Lialda for a week.

I have stopped my LDN only because I felt I had more C with

it. It was interesting to read about the post with reducing the dose or

doing it every other day. I am a big advocate of taking meds every other day--I

think half the studies don't always apply to women--who are petite, and some of

the doses of meds are arrived at serendipitously.

It sounds like you are more upset with yourself for not

taking as good care of yourself as you had been--totally understandable

with the passing of your father and your grieving. You are doing a great

job! Your exercise class sounds great--also try to get out in the sun a little

to keep from getting SAD.

Do you eat the yogurt? I find when I up my intake of the

yogurt, I do better. I bought my sister a yogurt maker, and even though she is

not SCD, she recently had some GERD and finds she no longer has to take her

meds due to daily SCD yogurt consumption.

Re: GI docs who are unsupportive and not

compassionate--I find this is a problem in general with the medical

profession--it is hard for them to think outside of the box. It will only change

with backlash and protest from us, the consumers. We need to speak up and let

our practitioners know we are not pleased with their services. It's the only

way they might grow.

Take care,

Terry

[Guest guest]

At 04:40 PM 9/10/2010, you wrote:

>> I also have been

felling cruddy the past few days: joint pain, a little looser BM's. I've

gone back to easier to digest foods. I did not cheat, but have been under

a lot of stress. Now I have notice a little B in my stools- at the end. I

could almost tell it was going to happen by the way I was feeling

emotionally.

>> I started SCD April 2009. Could use some advice/moral support

from the veterans here. I am still on sulfasalazine/LDN and will go up on

the dose a bit.

Hey, PJ,

It takes time to get fully stable. That's one reason Elaine recommend

staying strict for at least one year after all symptoms were gone.

Funny thing. I ended up with some symptoms in 2005 from the stress of

Katrina.... and the fact that I ended up eating out a bunch after we got

home, because our power kept going off, but once that stabilized, and I

could cook at home regularly, by staying strict again, the symptoms

resolved within a few months. During Gustav, in 2008, admittedly

not QUITE as stressful as Katrina, I didn't have any symptoms.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle