not gaining weight

[Guest guest]

Kim,

This is just my opinion but I'd call them and make them see him NOW. It

sounds like he's reached his platue ( or however you spell it) and he may need

help getting over that hump. What laxative are you using? I know Most RSS kids

benefit very well from Miralax. Madison takes that and it's awesome.

Chrissy

[Guest guest]

Hi Kim,

Is he eating?

My son Noah didn't gain very fast either ... he weighed just under 20

lbs for more than 6 mos with no gains ... we just put him on

Periactin to stimulate his appetite and he gained 7 ounces in 4 weeks.

Dawna

Matt 13, 11, 8 and Noah 3 RSS

>

> my son brayden in 22months and maybe 15 pounds, we have never seen

him

> gain over 15 1/2 pounds, he's been roughly the same weight for at

least

> 6 months now. in early dec he had tubes placed in his ears, so we

have

> no infections,thank god. we also have him on a laxitive to deal

with a

> constipation issue, however none of this seems to have helped with

his

> appetite. we have an app with his new gi and new nutritionist in

early

> march and im trying to decide if we can wait that long. getting

very

> nervous about his weight, what do you think?

> Kim concerned mom of Aislynn-10,-6, and Brayden-22mRSS

>

[Guest guest]

> >

> > my son brayden in 22months and maybe 15 pounds, we have never

seen

> him

> > gain over 15 1/2 pounds, he's been roughly the same weight for at

> least

> > 6 months now. in early dec he had tubes placed in his ears, so we

> have

> > no infections,thank god. we also have him on a laxitive to deal

> with a

> > constipation issue, however none of this seems to have helped

with

> his

> > appetite. we have an app with his new gi and new nutritionist in

> early

> > march and im trying to decide if we can wait that long. getting

> very

> > nervous about his weight, what do you think?

> > Kim concerned mom of Aislynn-10,-6, and Brayden-22mRSS

> >

>

[Guest guest]

>this is all very helpful, he is on miralax,just not sure if im over

reacting or not. maybe i can aleast schedule a weight check with his

primary and see what she thinks. when we saw his gi in nov a feeding

tube was mentioned, but we wanted to deal with the tubes in his ears

and the miralax first to see if that got us anywhere.

> Kim,

> This is just my opinion but I'd call them and make them see him NOW.

It

> sounds like he's reached his platue ( or however you spell it) and he

may need

> help getting over that hump. What laxative are you using? I know Most

RSS kids

> benefit very well from Miralax. Madison takes that and it's awesome.

> Chrissy

>

>

>

[Guest guest]

Hi Kim,

Brayden's weight is concerning, especially if he hasn't gained weight

in the time period you specified. Is he on an appetite stimulant

like Periactin? How much does he actually eat? I think waiting

until March may not be a good idea, but you should keep a food diary

of everything Brayden eats for a period of at least a week to show to

the doctor and/or nutritionist. They can help you calculate the

amount of calories Brayden is actually taking in. When was the last

time he saw the pediatrician? Was he concerned? I am not trying to

scare you, but my son who is now 12 was probably one of the smallest

RSS babies. I keep detailed records, and at 22 months, he was only

13 lbs. This was with a g-tube on continuous feeds (no food

orally). However, 6 months prior to 22 months (age 16 months), he

was 10.5 lbs, so he was gaining steadily. He hit 15 lbs. at age 2.

I think you should call the GI and nutritionist to see if you can get

in sooner. If not, maybe schedule an appointment with the

pediatrician in the meantime and get his input.

Kim C. (mom to )

> Subject: not gaining weight

>

> my son brayden in 22months and maybe 15 pounds, we have never seen him

> gain over 15 1/2 pounds, he's been roughly the same weight for at

> least

> 6 months now. in early dec he had tubes placed in his ears, so we have

> no infections,thank god. we also have him on a laxitive to deal with a

> constipation issue, however none of this seems to have helped with his

> appetite. we have an app with his new gi and new nutritionist in early

> march and im trying to decide if we can wait that long. getting very

> nervous about his weight, what do you think?

> Kim concerned mom of Aislynn-10,-6, and Brayden-22mRSS

[Guest guest]

Kim - I concur with Chrissy. Miralax worked wonders for Ian - and it

has no taste so they don't even know they are taking it.

- H

>

> Kim,

> This is just my opinion but I'd call them and make them see him

NOW. It

> sounds like he's reached his platue ( or however you spell it) and

he may need

> help getting over that hump. What laxative are you using? I know

Most RSS kids

> benefit very well from Miralax. Madison takes that and it's

awesome.

> Chrissy

>

>

>

[Guest guest]

Hi,

I just wanted to chime in here about Periactin...I think it is more

of a gradual thing for most kids and they need to be on it for the

long term...also, the dosage needs to be correct based on their

weight. I know that Dr. H. prescribed a higher dose for Dalia than

her regular GI did, so it may be worth looking into that..

Sheryl (mom to Dalia, 2, RSS and Hanna, 5 mos, non-RSS)

> > >

> > > my son brayden in 22months and maybe 15 pounds, we have never

> seen

> > him

> > > gain over 15 1/2 pounds, he's been roughly the same weight for

at

> > least

> > > 6 months now. in early dec he had tubes placed in his ears, so

we

> > have

> > > no infections,thank god. we also have him on a laxitive to

deal

> > with a

> > > constipation issue, however none of this seems to have helped

> with

> > his

> > > appetite. we have an app with his new gi and new nutritionist

in

> > early

> > > march and im trying to decide if we can wait that long.

getting

> > very

> > > nervous about his weight, what do you think?

> > > Kim concerned mom of Aislynn-10,-6, and Brayden-22mRSS

> > >

> >

>

[Guest guest]

Kim,

I see most people who have responded to your concern about Brayden

have agreed that you should not wait until March to do anything.

There was one other thing I thought of that could be affecting his

appetite and weight gain. Does he have reflux? Even if you think he

doesn't, he could have silent reflux, causing him not to want to

eat. I have 2 other kids besides (RSS). All 3 of my kids

have or have had reflux and all are poor eaters & weigh practically

nothing. had bad reflux when he was younger, but had a

fundoplication when his g-tube was inserted to stop the reflux.

, my non-RSS 5 year old, has silent reflux. He has had this

since he was born. He presents no symptoms now other than having

vocal nodules (a hoarse voice), but when he was a baby, he had a lot

of pain from it & refused to eat sometimes. He still eats

practically nothing & weighs only 35 lbs. I also have a 22-month old

girl who had severe reflux until just past her first birthday. She

doesn't seem to suffer too much anymore, but still doesn't eat so

great. She weighs 21.5 lbs., so she is also on the small side for a

normal 22-month old. All my kids are on meds for reflux. A GI can

prescribe some mild reflux meds such as Zantac to see if it makes a

difference in Brayden's appetite before doing extensive testing to

see if reflux is part of the culprit. Zantac never helped any of my

kids, but it does help some who have reflux. My kids are on stronger

meds for reflux - proton pump inhibitors. When you take Brayden to

the GI, I'd inquire about the possibility of reflux contributing to

his problem. It is very prevalent in many of our RSS kids.

Kim C.