Re: 6MP Help?

[Guest guest]

My only advice is to make sure blood counts are monitored regularly, I cannot

stress this enough. Not to scare you, but I almost died because of a doctor

that did not monitor my blood and ignored the visible warning symptoms.

Joe

>

> We have been SCD for 16 months, but my little guy is still having problems.

Crohns. Has anyone tried 6MP? his doc wants to put him on it as he has become

steroid dependent and entocort and pentassa are of minimal help. I am freaking

>

> Thanks for the help,

>

>

>

[Guest guest]

my sister will not try SCD but she has been on 6MP since June of 08 and has been in remission the whole time.. She is very pleased with it up to this point..

To: BTVC-SCD Sent: Thu, September 9, 2010 4:30:44 PMSubject: 6MP Help?

We have been SCD for 16 months, but my little guy is still having problems. Crohns. Has anyone tried 6MP? his doc wants to put him on it as he has become steroid dependent and entocort and pentassa are of minimal help. I am freaking Thanks for the help,

[Guest guest]

OH YES.. I agree with Joe.. My sister has blood work done on a regular basis as well....

To: BTVC-SCD Sent: Thu, September 9, 2010 6:57:51 PMSubject: Re: 6MP Help?

My only advice is to make sure blood counts are monitored regularly, I cannot stress this enough. Not to scare you, but I almost died because of a doctor that did not monitor my blood and ignored the visible warning symptoms.Joe>> We have been SCD for 16 months, but my little guy is still having problems. Crohns. Has anyone tried 6MP? his doc wants to put him on it as he has become steroid dependent and entocort and pentassa are of minimal help. I am freaking > > Thanks for the help,> > >

[Guest guest]

Yes, I agree with getting blood work. I just got mine back and hadnt had them done in a while. Everything was good except my iron was way low...I mean way low. Taking iron now.

Steve

To: BTVC-SCD Sent: Thu, September 9, 2010 9:11:30 PMSubject: Re: Re: 6MP Help?

OH YES.. I agree with Joe.. My sister has blood work done on a regular basis as well....

To: BTVC-SCD Sent: Thu, September 9, 2010 6:57:51 PMSubject: Re: 6MP Help?

My only advice is to make sure blood counts are monitored regularly, I cannot stress this enough. Not to scare you, but I almost died because of a doctor that did not monitor my blood and ignored the visible warning symptoms.Joe>> We have been SCD for 16 months, but my little guy is still having problems. Crohns. Has anyone tried 6MP? his doc wants to put him on it as he has become steroid dependent and entocort and pentassa are of minimal help. I am freaking > > Thanks for the help,> > >

[Guest guest]

I am on 6-mp, which helped for about a year and a half. I find it MUCH better

than steroids. I started having problems again recently and the doctor wanted to

up my dose. Instead, I am trying the SCD diet and finding it helps, although I

will continue taking my meds right now. (I've only been doing SCD for 3 weeks.)

I have virtually no side effects from 6-mp, it's been the best thing for me

after the various enemas stopped working. Problem is that it takes between 6

weeks and 6 months to become effective.

[Guest guest]

I took 6MP for 9 years successfully. It allowed me to taper off of the

prednisone. When I started SCD, my blood counts went WAY WAY down and I had to

be yanked off of the 6MP. (I assume the change in diet changed the way the drug

worked in my body in some way), but I had no problems getting off of it.

It was a great drug for me. I had regular bloodwork done and had no problems til

the end, and that was fine.

Best,

Crohn's

>

> We have been SCD for 16 months, but my little guy is still having problems.

Crohns. Has anyone tried 6MP? his doc wants to put him on it as he has become

steroid dependent and entocort and pentassa are of minimal help. I am freaking

>

> Thanks for the help,

>

>

>

[Guest guest]

I was put on 6MP as a way to ween me off of prednisone. It didn't do a bloody

thing and I was stuck on it AND prednisone for 11 years! I didn't suffer any

side effects. I did have a slight problem with my liver starting to go toxic as

they were trying to figure out just the right dose for me (ended up being 1 and

1/4 tab - weird measurement, eh?) so the suggestions to make sure your doc is

checking your blood frequently enough is a really good one. I also learned that

if I started to have pain just under my right rib cage then I should call the

doc or go to the ER b/c it could be my liver going toxic. Oh...AND I found out

after being on it for years that it increases your risk of lymphoma! Lialda

(time release mesalamine) helped me ween of prednisone but I have UC so I'm not

sure if it would be as useful with Chrohn's. I guess it would depends on where

the problem area was.

Stacey

>

> We have been SCD for 16 months, but my little guy is still having problems.

Crohns. Has anyone tried 6MP? his doc wants to put him on it as he has become

steroid dependent and entocort and pentassa are of minimal help. I am freaking

>

> Thanks for the help,

>

>

>

[Guest guest]

Hi ,

How is your son? I take 6-MP.

I was severely ill back in 2000 (I was 29) when I first got sick with CD. I

lived in the hospital and had to be fed through a central line for a long time

and it was all so scary.

Anyway...I was on prednisone, remicaid, 6-MP, etc, etc for a year.

I followed the SCD religiously. The SCD and the 6-MP have allowed me to not need

the steroids.

I know that everyone reacts differently to medications but I can tell you that I

am very thankful for the 6-MP. For me, the 6-MP works and it does well with my

body (no significant side effects).

**give the SCD time too. it sounds like your son has had a tough time. it took a

solid year of SCD + pred + 6-MP for my body to heal enough that i could taper

off pred.

Wishing you the best,

CD 2000

6-MP

SCD

>

> We have been SCD for 16 months, but my little guy is still having problems.

Crohns. Has anyone tried 6MP? his doc wants to put him on it as he has become

steroid dependent and entocort and pentassa are of minimal help. I am freaking

>

> Thanks for the help,

>

>

>