Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 OMG, . I was just sitting here complaining to my best friend about this headache I have and now, after reading your email, I think I'll call her back and apologize for being such a POOP! Thanks for making me realize that things could be so much worse! LOL I truly hope that Ian gets better quickly. We'll say an extra prayer for him tonight. Jeanie advocate22003 wrote: FYI - Today was a set-back. Ian developed a bacterial infection (probably started at the hospital). I looked at his wound / G-tube site this morning and noticed not only puss but, his skin had actually opened up/ripped and there was a hole larger than the size of a pea next to his G-tube sight - almost the size of a dime actually. Okay – I have to admit – I've handled all of this very well – but, I pretty much freaked out. I called the doc and they didn't even tell me to take my time getting there – they told me to come in immediately. So, we rushed to the Hospital this morning – they cleaned the site (I was in the other room bawling my eyes out in a nurses lap while he screamed blue bloody murder at the top of his lungs – a blood curdling scream – it was horrible). He is now on antibiotics and I have to clean the site not 2 times a day now – but, 3 times a day. Let's just say it's not easy looking at it. I get queasy just thinking about it. We have to go back to the hospital tomorrow so they can look at it again to make sure it hasn't gotten worse over night. They told me to keep an eye out for formula or blood coming through the hole. Nice eh? I'm okay though. Tomorrow is a new day. My dh is back from being out of town since Friday. I'm exhausted. - H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 I'm so sorry to hear about Ian, sounds scary! I really hope I can handle this as well as you have! I'll do anything to get rid of the ng though, since Dasia had the flu for about 4 days, it was always coming out, and putting it back in a kid with the flu is TOO horrible, it wouldn't even work. She would stay in a constant gag with her face full of pressure and turning blue, like she was really choking, and her throat would be too tight to get through. I couldn't do it, and since she wasn't keeping enough down to really use it anyway, I had to leave it out for 2 days. She's doing much better now, back to regular feedings. She lost another 9oz though. Before I would have lost my mind over that, but now it just shows that we're doing the right thing, and I can see the light at the end of the tunnel. I hope Ian heals VERY fast! We're pulling for him! advocate22003 wrote: FYI - Today was a set-back. Ian developed a bacterial infection (probably started at the hospital). I looked at his wound / G-tube site this morning and noticed not only puss but, his skin had actually opened up/ripped and there was a hole larger than the size of a pea next to his G-tube sight - almost the size of a dime actually. Okay – I have to admit – I've handled all of this very well – but, I pretty much freaked out. I called the doc and they didn't even tell me to take my time getting there – they told me to come in immediately. So, we rushed to the Hospital this morning – they cleaned the site (I was in the other room bawling my eyes out in a nurses lap while he screamed blue bloody murder at the top of his lungs – a blood curdling scream – it was horrible). He is now on antibiotics and I have to clean the site not 2 times a day now – but, 3 times a day. Let's just say it's not easy looking at it. I get queasy just thinking about it. We have to go back to the hospital tomorrow so they can look at it again to make sure it hasn't gotten worse over night. They told me to keep an eye out for formula or blood coming through the hole. Nice eh? I'm okay though. Tomorrow is a new day. My dh is back from being out of town since Friday. I'm exhausted. - H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 hey h!! i am so sorry to hear that!! poor little guy!! ((HUGS)) to you both!! let me know how he is doing!! jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 H, Hang in there. You can do this. I know you can and how strong you are for children. You did the right thing by freaking out behind the scenes - not letting Ian see you. I did this with and her whole visit with her surgery. I always stand strong and calm when I'm in front of her and if I need to break down I don't let her see it. I hope Ian is feeling better today. Please give me a big hug - but don't squeeze too hard. I'm still praying for him and your family. B and Kelli --- advocate22003 wrote: > FYI - Today was a set-back. Ian developed a > bacterial infection > (probably started at the hospital). I looked at his > wound / G-tube > site this morning and noticed not only puss but, his > skin had actually > opened up/ripped and there was a hole larger than > the size of a pea > next to his G-tube sight - almost the size of a dime > actually. Okay – > I have to admit – I've handled all of this very well > – but, I pretty > much freaked out. I called the doc and they didn't > even tell me to > take my time getting there – they told me to come in > immediately. So, > we rushed to the Hospital this morning – they > cleaned the site (I was > in the other room bawling my eyes out in a nurses > lap while he > screamed blue bloody murder at the top of his lungs > – a blood curdling > scream – it was horrible). He is now on antibiotics > and I have to > clean the site not 2 times a day now – but, 3 times > a day. Let's just > say it's not easy looking at it. I get queasy just > thinking about > it. We have to go back to the hospital tomorrow so > they can look at > it again to make sure it hasn't gotten worse over > night. They told me > to keep an eye out for formula or blood coming > through the hole. Nice > eh? > > I'm okay though. Tomorrow is a new day. My dh is > back from being out > of town since Friday. > > I'm exhausted. > > - H > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 OMG- WOW what aday i hope it goes well from here on out. poor guy in my thought cara mom to jacob advocate22003 wrote: FYI - Today was a set-back. Ian developed a bacterial infection (probably started at the hospital). I looked at his wound / G-tube site this morning and noticed not only puss but, his skin had actually opened up/ripped and there was a hole larger than the size of a pea next to his G-tube sight - almost the size of a dime actually. Okay – I have to admit – I've handled all of this very well – but, I pretty much freaked out. I called the doc and they didn't even tell me to take my time getting there – they told me to come in immediately. So, we rushed to the Hospital this morning – they cleaned the site (I was in the other room bawling my eyes out in a nurses lap while he screamed blue bloody murder at the top of his lungs – a blood curdling scream – it was horrible). He is now on antibiotics and I have to clean the site not 2 times a day now – but, 3 times a day. Let's just say it's not easy looking at it. I get queasy just thinking about it. We have to go back to the hospital tomorrow so they can look at it again to make sure it hasn't gotten worse over night. They told me to keep an eye out for formula or blood coming through the hole. Nice eh? I'm okay though. Tomorrow is a new day. My dh is back from being out of town since Friday. I'm exhausted. - H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Jeanie - thank you. Things could be worse here too. Things could always be worse. But, I have been so fortunate through all this with all the support I've had here and at home from neighbors and friends - it's been overwhelming. And, Jeanie - it's okay to complain - if your head feels like it's going to fall off (like some headaches do) you have a right to complain! LOL Take Care. - H > FYI - Today was a set-back. Ian developed a bacterial infection > (probably started at the hospital). I looked at his wound / G- tube > site this morning and noticed not only puss but, his skin had actually > opened up/ripped and there was a hole larger than the size of a pea > next to his G-tube sight - almost the size of a dime actually. Okay – > I have to admit – I've handled all of this very well – but, I pretty > much freaked out. I called the doc and they didn't even tell me to > take my time getting there – they told me to come in immediately. So, > we rushed to the Hospital this morning – they cleaned the site (I was > in the other room bawling my eyes out in a nurses lap while he > screamed blue bloody murder at the top of his lungs – a blood curdling > scream – it was horrible). He is now on antibiotics and I have to > clean the site not 2 times a day now – but, 3 times a day. Let's just > say it's not easy looking at it. I get queasy just thinking about > it. We have to go back to the hospital tomorrow so they can look at > it again to make sure it hasn't gotten worse over night. They told me > to keep an eye out for formula or blood coming through the hole. Nice > eh? > > I'm okay though. Tomorrow is a new day. My dh is back from being out > of town since Friday. > > I'm exhausted. > > - H > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Jodie - thanks! It was nice to hear your voice this morning. Sorry we didn't " connect " as usual - a little tense around here lately! LOL You are doing such a great job with . I'm so glad you are on top of it all. Hugs to you. Talk to you soon. - H > > hey h!! > i am so sorry to hear that!! poor little guy!! ((HUGS)) to you > both!! let me know how he is doing!! > > jodie c > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 - thank you so much. You are handleing it fantastically well! You should be so proud of yourself. I had some workers here working on my dishwasher this morning and one of the guys asked me - how do you do it? I replied " you just do " . And, you know what? I've heard that from so many parents and individuals with people who have many medical issues to deal with and I never understood what they meant until now! You just do it - and you are doing it and we all are doing it. We were all chosen because we are the best we can be for these children. - what I have learned thus far is that there is no additional stress with the g-tube (except Ian's would issues) - because we already knew how to deal with the pump, the amount for feedings, times, etc - it was actually just like usual since we had the ng tube for 3 weeks. So, I know you will find it just fine. My best to you. Please keep me posted on Dasia. Did you postpone the surgery?? - H > FYI - Today was a set-back. Ian developed a bacterial infection > (probably started at the hospital). I looked at his wound / G- tube > site this morning and noticed not only puss but, his skin had actually > opened up/ripped and there was a hole larger than the size of a pea > next to his G-tube sight - almost the size of a dime actually. Okay – > I have to admit – I've handled all of this very well – but, I pretty > much freaked out. I called the doc and they didn't even tell me to > take my time getting there – they told me to come in immediately. So, > we rushed to the Hospital this morning – they cleaned the site (I was > in the other room bawling my eyes out in a nurses lap while he > screamed blue bloody murder at the top of his lungs – a blood curdling > scream – it was horrible). He is now on antibiotics and I have to > clean the site not 2 times a day now – but, 3 times a day. Let's just > say it's not easy looking at it. I get queasy just thinking about > it. We have to go back to the hospital tomorrow so they can look at > it again to make sure it hasn't gotten worse over night. They told me > to keep an eye out for formula or blood coming through the hole. Nice > eh? > > I'm okay though. Tomorrow is a new day. My dh is back from being out > of town since Friday. > > I'm exhausted. > > - H > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Cara - thanks. I appreciate your thoughts. - H > FYI - Today was a set-back. Ian developed a bacterial infection > (probably started at the hospital). I looked at his wound / G- tube > site this morning and noticed not only puss but, his skin had actually > opened up/ripped and there was a hole larger than the size of a pea > next to his G-tube sight - almost the size of a dime actually. Okay – > I have to admit – I've handled all of this very well – but, I pretty > much freaked out. I called the doc and they didn't even tell me to > take my time getting there – they told me to come in immediately. So, > we rushed to the Hospital this morning – they cleaned the site (I was > in the other room bawling my eyes out in a nurses lap while he > screamed blue bloody murder at the top of his lungs – a blood curdling > scream – it was horrible). He is now on antibiotics and I have to > clean the site not 2 times a day now – but, 3 times a day. Let's just > say it's not easy looking at it. I get queasy just thinking about > it. We have to go back to the hospital tomorrow so they can look at > it again to make sure it hasn't gotten worse over night. They told me > to keep an eye out for formula or blood coming through the hole. Nice > eh? > > I'm okay though. Tomorrow is a new day. My dh is back from being out > of town since Friday. > > I'm exhausted. > > - H > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 - oh you are so sweet. Thank you. Maybe I'm too strong. That's why I keep getting all these cold sores on my mouth because I'm holding it all in. Maybe I was a clown in another life! LOL Maybe I just know laughing helps - or maybe I'm just weird! LOL I was just laughing with my 4 yr old. He wanted a jelly sandwich for dinner. He's asked me at least 10 times. I finally just picked him up and tickled him and yelled " I WANT A JELLY SANDWICH NOW or I " M GOING TO EAT A DOOR! " He laughed so hard it was great. Okay - off to make the jelly sandwich. (Can you tell I'm not concerned with their eating habits right now? Somethings got to give!) LOL Thanks for the hugs. Ian's on a feed on the couch watching Bob the Builder. Can WE FIX IT? YES WE CAN! Love, H > > > FYI - Today was a set-back. Ian developed a > > bacterial infection > > (probably started at the hospital). I looked at his > > wound / G-tube > > site this morning and noticed not only puss but, his > > skin had actually > > opened up/ripped and there was a hole larger than > > the size of a pea > > next to his G-tube sight - almost the size of a dime > > actually. Okay – > > I have to admit – I've handled all of this very well > > – but, I pretty > > much freaked out. I called the doc and they didn't > > even tell me to > > take my time getting there – they told me to come in > > immediately. So, > > we rushed to the Hospital this morning – they > > cleaned the site (I was > > in the other room bawling my eyes out in a nurses > > lap while he > > screamed blue bloody murder at the top of his lungs > > – a blood curdling > > scream – it was horrible). He is now on antibiotics > > and I have to > > clean the site not 2 times a day now – but, 3 times > > a day. Let's just > > say it's not easy looking at it. I get queasy just > > thinking about > > it. We have to go back to the hospital tomorrow so > > they can look at > > it again to make sure it hasn't gotten worse over > > night. They told me > > to keep an eye out for formula or blood coming > > through the hole. Nice > > eh? > > > > I'm okay though. Tomorrow is a new day. My dh is > > back from being out > > of town since Friday. > > > > I'm exhausted. > > > > - H > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 H- You are really doing a great job! As parents we all do our best, but sometimes we just need a little reminder that our best is ALWAYS good! I'm glad Ian isn't getting worse and hope he gets better really soon!!! WE CAN FIX IT!! Dayna PS At least a jelly sandwich has enough sugar to provide artificial euphoria, if even for a limited time. . . maybe you should have one too!!! PPS Does that fit in a tube. . . .. :-) _____ From: RSS-Support [mailto:RSS-Support ] On Behalf Of Briggs Sent: Tuesday, January 24, 2006 8:49 AM To: RSS-Support Subject: Re: Ian Update/Set-Back H, Hang in there. You can do this. I know you can and how strong you are for children. You did the right thing by freaking out behind the scenes - not letting Ian see you. I did this with and her whole visit with her surgery. I always stand strong and calm when I'm in front of her and if I need to break down I don't let her see it. I hope Ian is feeling better today. Please give me a big hug - but don't squeeze too hard. I'm still praying for him and your family. B and Kelli --- advocate22003 wrote: > FYI - Today was a set-back. Ian developed a > bacterial infection > (probably started at the hospital). I looked at his > wound / G-tube > site this morning and noticed not only puss but, his > skin had actually > opened up/ripped and there was a hole larger than > the size of a pea > next to his G-tube sight - almost the size of a dime > actually. Okay - > I have to admit - I've handled all of this very well > - but, I pretty > much freaked out. I called the doc and they didn't > even tell me to > take my time getting there - they told me to come in > immediately. So, > we rushed to the Hospital this morning - they > cleaned the site (I was > in the other room bawling my eyes out in a nurses > lap while he > screamed blue bloody murder at the top of his lungs > - a blood curdling > scream - it was horrible). He is now on antibiotics > and I have to > clean the site not 2 times a day now - but, 3 times > a day. Let's just > say it's not easy looking at it. I get queasy just > thinking about > it. We have to go back to the hospital tomorrow so > they can look at > it again to make sure it hasn't gotten worse over > night. They told me > to keep an eye out for formula or blood coming > through the hole. Nice > eh? > > I'm okay though. Tomorrow is a new day. My dh is > back from being out > of town since Friday. > > I'm exhausted. > > - H > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 > PS At least a jelly sandwich has enough sugar to provide artificial > euphoria, if even for a limited time. . . maybe you should have one too!!! > > Dayna, M & Ms work wonders, as well. And so do the new Kissables by Hershey. Trust me. I'm an expert. Jodi Z > > PPS Does that fit in a tube. . . .. :-) > > > > _____ > > From: RSS-Support [mailto:RSS- Support ] On > Behalf Of Briggs > Sent: Tuesday, January 24, 2006 8:49 AM > To: RSS-Support > Subject: Re: Ian Update/Set-Back > > > > H, > > Hang in there. You can do this. I know you can and > how strong you are for children. You did the right > thing by freaking out behind the scenes - not letting > Ian see you. I did this with and her whole > visit with her surgery. I always stand strong and > calm when I'm in front of her and if I need to break > down I don't let her see it. > > I hope Ian is feeling better today. Please give me a > big hug - but don't squeeze too hard. I'm still > praying for him and your family. > > B > and Kelli > > --- advocate22003 <earleyboys3@v...> wrote: > > > FYI - Today was a set-back. Ian developed a > > bacterial infection > > (probably started at the hospital). I looked at his > > wound / G-tube > > site this morning and noticed not only puss but, his > > skin had actually > > opened up/ripped and there was a hole larger than > > the size of a pea > > next to his G-tube sight - almost the size of a dime > > actually. Okay - > > I have to admit - I've handled all of this very well > > - but, I pretty > > much freaked out. I called the doc and they didn't > > even tell me to > > take my time getting there - they told me to come in > > immediately. So, > > we rushed to the Hospital this morning - they > > cleaned the site (I was > > in the other room bawling my eyes out in a nurses > > lap while he > > screamed blue bloody murder at the top of his lungs > > - a blood curdling > > scream - it was horrible). He is now on antibiotics > > and I have to > > clean the site not 2 times a day now - but, 3 times > > a day. Let's just > > say it's not easy looking at it. I get queasy just > > thinking about > > it. We have to go back to the hospital tomorrow so > > they can look at > > it again to make sure it hasn't gotten worse over > > night. They told me > > to keep an eye out for formula or blood coming > > through the hole. Nice > > eh? > > > > I'm okay though. Tomorrow is a new day. My dh is > > back from being out > > of town since Friday. > > > > I'm exhausted. > > > > - H > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Jodi - I personally like cheese puffs. LOL - H > > > > > FYI - Today was a set-back. Ian developed a > > > bacterial infection > > > (probably started at the hospital). I looked at his > > > wound / G-tube > > > site this morning and noticed not only puss but, his > > > skin had actually > > > opened up/ripped and there was a hole larger than > > > the size of a pea > > > next to his G-tube sight - almost the size of a dime > > > actually. Okay - > > > I have to admit - I've handled all of this very well > > > - but, I pretty > > > much freaked out. I called the doc and they didn't > > > even tell me to > > > take my time getting there - they told me to come in > > > immediately. So, > > > we rushed to the Hospital this morning - they > > > cleaned the site (I was > > > in the other room bawling my eyes out in a nurses > > > lap while he > > > screamed blue bloody murder at the top of his lungs > > > - a blood curdling > > > scream - it was horrible). He is now on antibiotics > > > and I have to > > > clean the site not 2 times a day now - but, 3 times > > > a day. Let's just > > > say it's not easy looking at it. I get queasy just > > > thinking about > > > it. We have to go back to the hospital tomorrow so > > > they can look at > > > it again to make sure it hasn't gotten worse over > > > night. They told me > > > to keep an eye out for formula or blood coming > > > through the hole. Nice > > > eh? > > > > > > I'm okay though. Tomorrow is a new day. My dh is > > > back from being out > > > of town since Friday. > > > > > > I'm exhausted. > > > > > > - H > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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