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Re: kylas test results

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- wait!!!! Please don't go!!! I so don't want you to be

dissappointed in our group. We may not be the best at responding -

but, can I offer some thoughts on that point? I know sometimes I

don't always respond to everyone because I don't feel like I always

have the best advice or thoughts - so, although I can't speak for

anyone else - I'm sure there may be others here that feel the same

way. I know when it comes to GH, giving shots, and some other things -

I'm not very well versed and am unable to help. I'm so sorry you are

unhappy and if there were anything I could do to change your feelings -

I would try in a heartbeat. Please know that we all care for you and

Kyla and I certainly wish I had more answers for you. You know, since

I'm still learning - I unfortunately don't always have great advice -

but, with the results - I'd be happy to talk to you through it more.

Please feel free to respond privately and share your feelings.

It can be so overwhelming and frustrating everything we go through

(trust me - I'm going through it now! LOL) but, that's why we are

here. My best to you. Please don't give up on us.

- H

>

> hi, this is my last post........kyla had her endoscopy today in

dallas

> and the doctor found NOTHING.....for those 2 or 3 of you who know me

> some, thanks for your prayers, but i think i won't post anymore

because

> when some of you post you get everyone on her responding and i get

one

> or two, so this is it for me...........thanks stephanie

>

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Hey . Sorry to see that you are upset about not getting

responses to your posts. Please don't take it personally though.

There have been times my posts have gone unresponded to, also. It is

hard not to take it personally, I know. But, please don't leave the

group. People will respond. There may not have been anything anyone

could add to your recent posts, and, some of us have just been so

darn busy. I haven't had a chance to be on here much at all. and if

I had, I responded to the ones I had a chance to read. For me, I

like to read them all and in order and respond if I can. Even though

we have known that has RSS for a couple of years now, I am

still learning as I go. I can't seem to absorb the matters that

aren't affecting , therefore, can't give any advice on those

topics. Like, I never had the time or energy to learn about insulin

resistance, now I find out has that and I have to go and do my

research and figure out what this means for him and how can I fix

it. I could never respond to anyone dealing with that, because I

didn't even know waht it really meant! So, some of us just aren't up

to speed on everything here. We all feel for each other though, that

is for sure. And, that includes you. I know you have been going

through a lot with Kyla, and I have been keeping an eye out for your

updates, but like I said, I haven't even been on here much. I haven't

even gotten to your original post you are talking about that didn't

get much response. But, just know that even if we don't always

respond to you, that doesn't mean we aren't reading your updates and

that we don't care. Because we all do. This is not easy stuff to

deal with. It is so hard to know about everything that is going on

with our kids. And, that is even more reason for you to stay with

this group. You will continue to learn here. I am so sorry you are

feeling bad. But, please stay with the group.

Jodi R.

's mom

>

> hi, this is my last post........kyla had her endoscopy today in

dallas

> and the doctor found NOTHING.....for those 2 or 3 of you who know

me

> some, thanks for your prayers, but i think i won't post anymore

because

> when some of you post you get everyone on her responding and i get

one

> or two, so this is it for me...........thanks stephanie

>

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