Colin had his Endo check and no GH for now

[Guest guest]

Colin is an unusual RSS case as he is 5 years old, 50th %ile for

height and his bone age is advanced anywhere from 1 year - 2 years

past his chronological age (his right hand which is larger is more

advanced). Colin is not showing any signs of adrenarche so his Endo

doesn't feel GH is necessary for him at this point and doesn't want to

mess with what is working. He didn't seem too concerned about the

advanced bone age, although I must say it still worries me. I would

love to get Dr. H's opinion, but I'm not sure it warrants a visit to

NY right now. I've tried emailing her with no success and she used to

answer all of my previous emails. We had a visit last May and she

failed to follow up on her action items so I'm not sure what to do

next as far as getting in touch with her. Any suggestions would be

appreciated. I just want to cover my bases and make sure we are doing

the best for Colin.

Thanks,

Colin (RSS, gtube) and Hayden - 5 year twins

Grant - 2 years

[Guest guest]

- I wish I had some answers for you re: the bone age - I just

don't have a clue at this point since I haven't experienced that '

just yet ' anyway. You know though - Ian seems to be doing " okay "

in the height chart as well (5%) - obviously that's not 50th - but,

I understand where you feel things may be a little different. You

know, they probably wouldn't approve GH (from what my doc said to

me) because of his height percentile - as you probably already

know. As far as the bone age - Ian has always only been about 6-9

months behind - so, I don't have any answers for you. Wish I did

though. Keep us posted. Maybe your geneticist could shine some

light on the bone age scenario? Just a thought.

- H

>

> Colin is an unusual RSS case as he is 5 years old, 50th %ile for

> height and his bone age is advanced anywhere from 1 year - 2 years

> past his chronological age (his right hand which is larger is more

> advanced). Colin is not showing any signs of adrenarche so his

Endo

> doesn't feel GH is necessary for him at this point and doesn't

want to

> mess with what is working. He didn't seem too concerned about the

> advanced bone age, although I must say it still worries me. I

would

> love to get Dr. H's opinion, but I'm not sure it warrants a visit

to

> NY right now. I've tried emailing her with no success and she used

to

> answer all of my previous emails. We had a visit last May and she

> failed to follow up on her action items so I'm not sure what to do

> next as far as getting in touch with her. Any suggestions would be

> appreciated. I just want to cover my bases and make sure we are

doing

> the best for Colin.

>

> Thanks,

>

> Colin (RSS, gtube) and Hayden - 5 year twins

> Grant - 2 years

>