Re: torticollis linked with mouth structure problems?

[Guest guest]

I believe it can be linked to muscle tone in the face/mouth, which makes it

difficult to form the " o " shape. I did not breast feed my son, so I don't know

about the latching and I really don't remember issues with eating solids, but he

did have a delay in speech that our ST related to the tort and low muscle tone

in his face. He could not make his mouth move to make certain letter sounds

(like the " o " but also could not touch his tongue to the roof of his mouth to

make other sounds), but after a year of speech he is totally fine now.

Plagio and brachy itself can contribute to jaw issues. I have seen skulls of

babies with significant plagio/brachy and the jaw will shift forward and over in

whatever direction the bottom of the skull is pushed. So for instance, a baby

with right plagio, can have a cross bite where their jaw is pushed to left and

possibly forward. And a baby with brachy can have an underbite, where their

lower jaw is pushed more forward than the upper.

So I think it's a combination of everything, including inuterine positioning.

It's hard to say which is the main culprit. Add in that your sister's son had

similar issues, and it could just be chalked up to genetics. I wish there was a

clearer answer to it all.

Jake-3 (DOCBand Grad 9/08)

>

> Hi folks,

>

> I wanted to ask if anyone had ever heard of torticollis having any root causes

with mouth/jaw structure problems (not the neck).

>

> In addition to her torticollis, I just wonder if any of my daughter's issues

below are linked to mouth/jaw structure: unsuccessful latch, doesn't open her

mouth in an open " O " shape when feeding solids.

>

> The thought occurred to me today when thinking about my 3 year old nephew who

has mouth structure problems that affect his speech. Could it be possible that

my sister and I both possess some weird genetic trait that screws up our kids'

mouth structures? A big assumption, but just curious if anyone had ever heard

of any research linking torticollis (or these other issues) with mouth structure

problems.

>

> I emailed our pediatrician, cranio-plastics specialist, physical therapist,

and lactation consultant, but my guess is that none of them will have anything

useful to propose. If there is a link, or even potential link, I'd like to find

as many preventive measures as possible to avoid further developmental delays.

>

> Thanks,

>

>

> Mom to Lena, 8 months old

> Hanger band, Sacramento, CA (9 weeks)

>

[Guest guest]

I'm not quite sure what mouth structure problems you are talking about. But I

will say for us... my dd has tort and Plagio. I believe her tort is caused by

her asymmetrical skull base - It can be seen in her numerous MRI's. It shows up

as one side of her face is smaller, her smile bigger on one side and her jaw was

slanted when she was younger.

Now that she is almost 4 it is not as noticeable - but the head tilt is still

there... and it really can't be fixed. I have yet to find a dr who would do

surgery on her atlanto-axial junction... nor would I want to if it's just

cosmetic.

You can view some MRIs here.

http://www.caringbridge.org/visit/luli/photos

Just a thought!

>

> Hi folks,

>

> I wanted to ask if anyone had ever heard of torticollis having any root causes

with mouth/jaw structure problems (not the neck).

>

> In addition to her torticollis, I just wonder if any of my daughter's issues

below are linked to mouth/jaw structure: unsuccessful latch, doesn't open her

mouth in an open " O " shape when feeding solids.

>

> The thought occurred to me today when thinking about my 3 year old nephew who

has mouth structure problems that affect his speech. Could it be possible that

my sister and I both possess some weird genetic trait that screws up our kids'

mouth structures? A big assumption, but just curious if anyone had ever heard

of any research linking torticollis (or these other issues) with mouth structure

problems.

>

> I emailed our pediatrician, cranio-plastics specialist, physical therapist,

and lactation consultant, but my guess is that none of them will have anything

useful to propose. If there is a link, or even potential link, I'd like to find

as many preventive measures as possible to avoid further developmental delays.

>

> Thanks,

>

>

> Mom to Lena, 8 months old

> Hanger band, Sacramento, CA (9 weeks)

>

[Guest guest]

So, is that actually your daughter? What surgery did she have?

Re: torticollis linked with mouth structure problems?

I'm not quite sure what mouth structure problems you are talking about. But I will say for us... my dd has tort and Plagio. I believe her tort is caused by her asymmetrical skull base - It can be seen in her numerous MRI's. It shows up as one side of her face is smaller, her smile bigger on one side and her jaw was slanted when she was younger.Now that she is almost 4 it is not as noticeable - but the head tilt is still there... and it really can't be fixed. I have yet to find a dr who would do surgery on her atlanto-axial junction... nor would I want to if it's just cosmetic.You can view some MRIs here.http://www.caringbridge.org/visit/luli/photosJust a thought!>> Hi folks,> > I wanted to ask if anyone had ever heard of torticollis having any root causes with mouth/jaw structure problems (not the neck). > > In addition to her torticollis, I just wonder if any of my daughter's issues below are linked to mouth/jaw structure: unsuccessful latch, doesn't open her mouth in an open "O" shape when feeding solids. > > The thought occurred to me today when thinking about my 3 year old nephew who has mouth structure problems that affect his speech. Could it be possible that my sister and I both possess some weird genetic trait that screws up our kids' mouth structures? A big assumption, but just curious if anyone had ever heard of any research linking torticollis (or these other issues) with mouth structure problems. > > I emailed our pediatrician, cranio-plastics specialist, physical therapist, and lactation consultant, but my guess is that none of them will have anything useful to propose. If there is a link, or even potential link, I'd like to find as many preventive measures as possible to avoid further developmental delays.> > Thanks,> > > Mom to Lena, 8 months old> Hanger band, Sacramento, CA (9 weeks)>