Re: Re:lots of stomach problems

[Guest guest]

Tina

if you are allergic to dairy, stop eating all dairy products, read labels, lots of things are made with dairy products that you wouldn't expect

i find lactaid milk and lactaid pills help me -- that's because of lactose intolerance

other dairy products don't bother me

many years ago i stopped eating onions, cause gas

recently i stopped eating broccolli and cauliflower, cause gas

my vegetable diet has become very limited

now i am wondering if i need to stop eating garlic, it's in the same family as onions

you need to figure out which foods cause the bloating, and stop eating them

everyone is different, so what works for me might not work for you

you can probably find lists of foods that cause bloating on the internet

start eliminating them and see if that helps

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re:lots of stomach problemsTo: Breathe-Support Date: Wednesday, January 6, 2010, 9:49 AM

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@

yahoo.com Thanks Tina

[Guest guest]

Tina,I don't have bloating but I too have not felt right since I had my biopsy. I wish I never had it done. I even had a lung collapse from it.To: Breathe-Support Sent: Wed, January 6, 2010 9:49:39 AMSubject:

Re:lots of stomach problems

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness of

breath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks Tina

[Guest guest]

Hello Tina, I'm not the knowledgeable one here but I wonder if you are taking Prednisone? It can cause bloating.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho

What a long signature but for a wonderful groupSubject: Re:lots of stomach problemsTo: Breathe-Support Date: Wednesday, January 6, 2010, 6:49 AM

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness of

breath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks Tina

[Guest guest]

there are a lot of gluten free procucts coming on the market all of the time

one of the local super markets has a whole section of gluten free products

they tell me that some people even have to wear gluten free make-up

my pulmonary recommended probiotic yogurt, since i am not a fan of yogurt, i do without it

many products will tell you if the product is made with wheat, so you know to avoid it

going to the supermarket takes for ever reading all of the labels

low salt, low carbs, etc

once we find the right product we stick with it

my friends grandchildren have celiac and it is talked about on lots of talk shows and in magazine articles

so i have become more aware of it

sometimes i wonder if i should be tested

the people who test positive say they do well once they change their diets

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re:lots of stomach problemsTo: Breathe-Support Date: Wednesday, January 6, 2010, 12:30 PM

Hi Tina,I'm also lactose intolerant and have a small hiatal hernia. I used to use Lactaid pills just before I ate any dairy foods. Walgreens makes a generic one that works great. Lactaid also makes lactose free milk, cottage cheese and ice cream in three flavors, vanilla, chocolate, and butter pecan (yummy). I now use a probiotic that does the same thing. You must consult your doc before you start any of these supplements, however.A large percentage of people with lactose intolerance are also gluten intolerant. That means no wheat and some other grain products. The gluten causes the little hairlike digestive organs in the intestine to not function. (think covered with kindergarten glue). Therefore you do not digest your food completely causing gas and nausea. This condition is called celiac disease. You can stop eating wheat and the other grains to see if your stomach improves. It is not an easy diet to follow until you learn of all of the

other products available as substitutes for wheat. If you want to know for sure if you are wheat intolerant there is a test. You must take the test before you stop eating wheat or you will show as a negative even if you are intolerant. I have been diagnosed with IBS but having controlled my lactose intolerance and gluten intolerance I would say I'm cured. I believe that doing that has helped minimize my acid reflux which we all know is at least an irritant and/or a cause of lung diseases. Hopefully this helps.Terre, IPF, 6-08, FL>> Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different

doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have shortness of> breath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of

my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ ... Thanks Tina>

[Guest guest]

i had gas issues way before prednisone

never noticed a change in gas issues since prednisone

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re:lots of stomach problemsTo: Breathe-Support Date: Wednesday, January 6, 2010, 1:43 PM

Hello Tina, I'm not the knowledgeable one here but I wonder if you are taking Prednisone? It can cause bloating.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes, Sjogren's, Fibromyalgia IdahoWhat a long signature but for a wonderful group

From: Tina Cole <tinadanner55@ yahoo.com>Subject: Re:lots of stomach problemsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, January 6, 2010, 6:49 AM

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks

Tina

[Guest guest]

Don't know if you use it, but MiraLax causes bloating, too.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #21 - Miracles

Consider what a great forest is set ablaze by a small spark. ( 3:5)

To: Breathe-Support Sent: Wed, January 6, 2010 1:43:19 PMSubject: Re: Re:lots of stomach problems

Hello Tina, I'm not the knowledgeable one here but I wonder if you are taking Prednisone? It can cause bloating.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes, Sjogren's, Fibromyalgia IdahoWhat a long signature but for a wonderful group

From: Tina Cole <tinadanner55@ yahoo.com>Subject: Re:lots of stomach problemsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, January 6, 2010, 6:49 AM

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks

Tina

[Guest guest]

don't use, don't even know what it is used for, but thanks for the info

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re:lots of stomach problemsTo: Breathe-Support Date: Wednesday, January 6, 2010, 3:03 PM

Don't know if you use it, but MiraLax causes bloating, too.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #21 - Miracles

Consider what a great forest is set ablaze by a small spark. ( 3:5)

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wed, January 6, 2010 1:43:19 PMSubject: Re: Re:lots of stomach problems

Hello Tina, I'm not the knowledgeable one here but I wonder if you are taking Prednisone? It can cause bloating.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes, Sjogren's, Fibromyalgia IdahoWhat a long signature but for a wonderful group

From: Tina Cole <tinadanner55@ yahoo.com>Subject: Re:lots of stomach problemsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, January 6, 2010, 6:49 AM

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks

Tina

[Guest guest]

She didn't say what medications she is on and Prednisone sure bloats me. That's why I asked.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho

What a long signature but for a wonderful group

From: Tina Cole <tinadanner55@ yahoo.com>Subject: Re:lots of stomach problemsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, January 6, 2010, 6:49 AM

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks

Tina

[Guest guest]

MiraLax causes more than bloating for me. Incontinence. I stay away from it but I seem to be sensitive to most everything.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho

What a long signature but for a wonderful group

From: Tina Cole <tinadanner55@ yahoo.com>Subject: Re:lots of stomach problemsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, January 6, 2010, 6:49 AM

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks

Tina

[Guest guest]

interesting how meds affect us in different ways

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re:lots of stomach problemsTo: Breathe-Support Date: Wednesday, January 6, 2010, 5:21 PM

She didn't say what medications she is on and Prednisone sure bloats me. That's why I asked.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes, Sjogren's, Fibromyalgia IdahoWhat a long signature but for a wonderful group

From: Tina Cole <tinadanner55@ yahoo.com>Subject: Re:lots of stomach problemsTo: Breathe-Support@ yahoogroups. comDate: Wednesday, January 6, 2010, 6:49 AM

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks

Tina

[Guest guest]

hey there Tina I had my biopsy in July, and I feel the same way. I most definitely am not the same since. I feel that my shortness of breath is worse. Also have pains in my side constant. Nope I wouldn't do it again either. And I too have the bloating feeling too. Was on Prednisone for 3 months and went off, had gained 15 lbs., thought I was loosing it but really I'm not. Started Imuran on Oct 21, maybe that is what is causing bloating. Wishing you the best. I guess we just all of stick together and keep asking each other questions. I know I have found out more here then from any of my doctors. THANK GOD FOR ALL OF MY AIR FAMILY!!!!!!!!!!!!! Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Wed, January 6, 2010 8:49:39 AMSubject: Re:lots of stomach problems

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness of

breath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks Tina

[Guest guest]

Hi michelle, I also have constant pain in my side.And i definitely now have shortness of breath.I was not short of breath before the biopsy.The only meds I'm on is prevacid and i take ativan.I go through spells of depression i have a lot of anxiety and trouble sleeping.I also have sleep apnea, which I'm supposed to use my machine but i don't .Can't sleep with it.

Thanks for writing me back.

To: Breathe-Support Sent: Wed, January 6, 2010 7:21:14 PMSubject: Re: Re:lots of stomach problems

hey there Tina I had my biopsy in July, and I feel the same way. I most definitely am not the same since. I feel that my shortness of breath is worse. Also have pains in my side constant. Nope I wouldn't do it again either. And I too have the bloating feeling too. Was on Prednisone for 3 months and went off, had gained 15 lbs., thought I was loosing it but really I'm not. Started Imuran on Oct 21, maybe that is what is causing bloating. Wishing you the best. I guess we just all of stick together and keep asking each other questions. I know I have found out more here then from any of my doctors. THANK GOD FOR ALL OF MY AIR FAMILY!!!!!! !!!!!!!

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Tina Cole <tinadanner55@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wed, January 6, 2010 8:49:39 AMSubject: Re:lots of stomach problems

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks

Tina

[Guest guest]

Tina

a lot of people in this group have sleep apnea and they periodically discuss the different types of machines or masks they use that they find the most comfortable

they also say that once they can successfully use the machine or mask, they sleep much better

hopefully they will respond and give you some suggestions

i do not have sleep apnea so i can't help you except to say that you might want to try out different kinds of masks

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re:lots of stomach problemsTo: Breathe-Support Date: Wednesday, January 6, 2010, 9:22 PM

Hi michelle, I also have constant pain in my side.And i definitely now have shortness of breath.I was not short of breath before the biopsy.The only meds I'm on is prevacid and i take ativan.I go through spells of depression i have a lot of anxiety and trouble sleeping.I also have sleep apnea, which I'm supposed to use my machine but i don't .Can't sleep with it.

Thanks for writing me back.

From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wed, January 6, 2010 7:21:14 PMSubject: Re: Re:lots of stomach problems

hey there Tina I had my biopsy in July, and I feel the same way. I most definitely am not the same since. I feel that my shortness of breath is worse. Also have pains in my side constant. Nope I wouldn't do it again either. And I too have the bloating feeling too. Was on Prednisone for 3 months and went off, had gained 15 lbs., thought I was loosing it but really I'm not. Started Imuran on Oct 21, maybe that is what is causing bloating. Wishing you the best. I guess we just all of stick together and keep asking each other questions. I know I have found out more here then from any of my doctors. THANK GOD FOR ALL OF MY AIR FAMILY!!!!!! !!!!!!!

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Tina Cole <tinadanner55@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wed, January 6, 2010 8:49:39 AMSubject: Re:lots of stomach problems

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@

yahoo.com Thanks Tina

[Guest guest]

Mike

good luck with getting your disabilty

there is someone else in this group who goes to VA hospitals

the VA has been good to my ex who has a different disease, they help out with meds and equipment

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re:lots of stomach problemsTo: Breathe-Support Date: Wednesday, January 6, 2010, 9:33 PM

Tina I very much know how you feel I was told I have IPF the Tuesday before Thanksgiving. I looked at my xrays and knew i had lung damage and I knew I something was wrong 6 months ago. I had a cat scan and do not need a lung biopsy I think they are not good. I have the same problem with eating I try to eat high Carbs like a half a baked potato and a small corn on the Cob. Also 1 light beer in the evening helps my stomach but I am not on any Meds. I try to eat two meals a day with some meat. I go to the VA on the 26. I hope I get diabilty. NAVY VIETNAM VET.Lets make awareness of IPFMY SUPPORT AND PRAYERS GO WITH YOUMIKE BLAZER> > > From: Tina Cole <tinadanner55@ yahoo.com>> Subject: Re:lots of stomach problems> To: Breathe-Support@ yahoogroups. com> Date: Wednesday, January 6, 2010, 6:49 AM> > >  > > Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help

me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have> shortness of> breath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive

had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com             Thanks> Tina>

[Guest guest]

Tina and ,I am so glad I am not alone in this.. As I said my biopsy has caused alot of problems for me. I too have a bigger problem with shortness of breath. After my lung collapse I had to have another tube put in and after 4 days they took the suction off and it collapsed again and I had to have another smaller tube put in. I have not felt good since all of this. I understand what you are going through.To: Breathe-Support Sent: Wed, January 6, 2010 9:22:33 PMSubject: Re: Re:lots of stomach problems

Hi michelle, I also have constant pain in my side.And i definitely now have shortness of breath.I was not short of breath before the biopsy.The only meds I'm on is prevacid and i take ativan.I go through spells of depression i have a lot of anxiety and trouble sleeping.I also have sleep apnea, which I'm supposed to use my machine but i don't .Can't sleep with it.

Thanks for writing me back.

From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wed, January 6, 2010 7:21:14 PMSubject: Re: Re:lots of stomach problems

hey there Tina I had my biopsy in July, and I feel the same way. I most definitely am not the same since. I feel that my shortness of breath is worse. Also have pains in my side constant. Nope I wouldn't do it again either. And I too have the bloating feeling too. Was on Prednisone for 3 months and went off, had gained 15 lbs., thought I was loosing it but really I'm not. Started Imuran on Oct 21, maybe that is what is causing bloating. Wishing you the best. I guess we just all of stick together and keep asking each other questions. I know I have found out more here then from any of my doctors. THANK GOD FOR ALL OF MY AIR FAMILY!!!!!! !!!!!!!

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Tina Cole <tinadanner55@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wed, January 6, 2010 8:49:39 AMSubject: Re:lots of stomach problems

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks

Tina

[Guest guest]

Tina, and ,

I was wondering what kind of biopsy you all had that you have been having such problems.....was it the VATS biopsy or the open lung? The doctor at U of Chicago said we will discuss that when I return in Feb......I think I am getting worried again.

Patti Indianapolis IPF 2007

[Guest guest]

I think there are alot of us there that have the same problem. Some days I use a heating pad, and somedays I use ice. sometimes it works sometimes it doesn't Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Thu, January 7, 2010 8:01:36 AMSubject: Re: Re:lots of stomach problems

Tina and ,I am so glad I am not alone in this.. As I said my biopsy has caused alot of problems for me. I too have a bigger problem with shortness of breath. After my lung collapse I had to have another tube put in and after 4 days they took the suction off and it collapsed again and I had to have another smaller tube put in.. I have not felt good since all of this. I understand what you are going through.From: Tina Cole <tinadanner55@ yahoo.com>To:

Breathe-Support@ yahoogroups. comSent: Wed, January 6, 2010 9:22:33 PMSubject: Re: Re:lots of stomach problems

Hi michelle, I also have constant pain in my side.And i definitely now have shortness of breath.I was not short of breath before the biopsy.The only meds I'm on is prevacid and i take ativan.I go through spells of depression i have a lot of anxiety and trouble sleeping..I also have sleep apnea, which I'm supposed to use my machine but i don't ..Can't sleep with it.

Thanks for writing me back.

From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wed, January 6, 2010 7:21:14 PMSubject: Re: Re:lots of stomach problems

hey there Tina I had my biopsy in July, and I feel the same way. I most definitely am not the same since. I feel that my shortness of breath is worse. Also have pains in my side constant. Nope I wouldn't do it again either. And I too have the bloating feeling too. Was on Prednisone for 3 months and went off, had gained 15 lbs., thought I was loosing it but really I'm not. Started Imuran on Oct 21, maybe that is what is causing bloating. Wishing you the best. I guess we just all of stick together and keep asking each other questions. I know I have found out more here then from any of my doctors. THANK GOD FOR ALL OF MY AIR FAMILY!!!!!! !!!!!!!

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Tina Cole <tinadanner55@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wed, January 6, 2010 8:49:39 AMSubject: Re:lots of stomach problems

Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have

shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it ..Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks

Tina

[Guest guest]

Ok I thought mine was open lung. I have 3 cuts on my back all about 2" long, one for upper lobe, one for lower lobe, and one where the chest tube was. Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To:

Breathe-Support Sent: Thu, January 7, 2010 12:18:36 PMSubject: Re: Re:lots of stomach problems

Tina, and ,

I was wondering what kind of biopsy you all had that you have been having such problems.... .was it the VATS biopsy or the open lung? The doctor at U of Chicago said we will discuss that when I return in Feb......I think I am getting worried again.

Patti Indianapolis IPF 2007

[Guest guest]

,

What you are describing is a VATS. I have those and then a much longer incision also because though they started out doing a VATS, they ended up doing the faster though more invasive OLB because I was not behaving myself under anesthesia. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thu, January 7, 2010 6:06:42 PMSubject: Re: Re:lots of stomach problems

Ok I thought mine was open lung. I have 3 cuts on my back all about 2" long, one for upper lobe, one for lower lobe, and one where the chest tube was.

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 12:18:36 PMSubject: Re: Re:lots of stomach problems

Tina, and ,

I was wondering what kind of biopsy you all had that you have been having such problems.... .was it the VATS biopsy or the open lung? The doctor at U of Chicago said we will discuss that when I return in Feb......I think I am getting worried again.

Patti Indianapolis IPF 2007

[Guest guest]

Thanks for the info, all they ever said was that I needed a lung biopsy and thats what I had, Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Thu, January 7, 2010 6:23:41 PMSubject: Re:lots of stomach problems

That is VATS.

>

> Ok I thought mine was open lung. I have 3 cuts on my back all about

2" long, one for upper lobe, one for lower lobe, and one where the chest

tube was.

>

> Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

>

>

>

>

>

> ____________ _________ _________ __

> From: Patti napa73@...

> To: Breathe-Support@ yahoogroups. com

> Sent: Thu, January 7, 2010 12:18:36 PM

> Subject: Re: Re:lots of stomach problems

>

>

> Tina, and ,

>

> I was wondering what kind of biopsy you all had that

> you have been having such problems.... .was it the VATS biopsy or the

open

> lung? The doctor at U of Chicago said we will discuss that when I

return

> in Feb......I think I am getting worried again.

>

> Patti Indianapolis IPF

> 2007

>

[Guest guest]

Thanks for the info, guess I didn't really know what it was called Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Thu, January 7, 2010

6:55:23 PMSubject: Re: Re:lots of stomach problems

,

What you are describing is a VATS. I have those and then a much longer incision also because though they started out doing a VATS, they ended up doing the faster though more invasive OLB because I was not behaving myself under anesthesia. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:06:42 PMSubject: Re: Re:lots of stomach problems

Ok I thought mine was open lung. I have 3 cuts on my back all about 2" long, one for upper lobe, one for lower lobe, and one where the chest tube was.

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 12:18:36 PMSubject: Re: Re:lots of stomach problems

Tina, and ,

I was wondering what kind of biopsy you all had that you have been having such problems.... .was it the VATS biopsy or the open lung? The doctor at U of Chicago said we will discuss that when I return in Feb......I think I am getting worried again.

Patti Indianapolis IPF 2007

[Guest guest]

I had a open lung biospy

To: Breathe-Support Sent: Thu, January 7, 2010 7:42:32 PMSubject: Re: Re:lots of stomach problems

Thanks for the info, guess I didn't really know what it was called

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:55:23 PMSubject: Re: Re:lots of stomach problems

,

What you are describing is a VATS. I have those and then a much longer incision also because though they started out doing a VATS, they ended up doing the faster though more invasive OLB because I was not behaving myself under anesthesia. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:06:42 PMSubject: Re: Re:lots of stomach problems

Ok I thought mine was open lung. I have 3 cuts on my back all about 2" long, one for upper lobe, one for lower lobe, and one where the chest tube was.

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 12:18:36 PMSubject: Re: Re:lots of stomach problems

Tina, and ,

I was wondering what kind of biopsy you all had that you have been having such problems.... .was it the VATS biopsy or the open lung? The doctor at U of Chicago said we will discuss that when I return in Feb......I think I am getting worried again.

Patti Indianapolis IPF 2007

[Guest guest]

so will someone explain what the open lung biopsy is. Do they cut you way open or wht Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Thu, January 7, 2010 8:29:12 PMSubject: Re: Re:lots of stomach problems

I had a open lung biospy

From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 7:42:32 PMSubject: Re: Re:lots of stomach problems

Thanks for the info, guess I didn't really know what it was called

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:55:23 PMSubject: Re: Re:lots of stomach problems

,

What you are describing is a VATS. I have those and then a much longer incision also because though they started out doing a VATS, they ended up doing the faster though more invasive OLB because I was not behaving myself under anesthesia. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:06:42 PMSubject: Re: Re:lots of stomach problems

Ok I thought mine was open lung. I have 3 cuts on my back all about 2" long, one for upper lobe, one for lower lobe, and one where the chest tube was.

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 12:18:36 PMSubject: Re: Re:lots of stomach problems

Tina, and ,

I was wondering what kind of biopsy you all had that you have been having such problems.... .was it the VATS biopsy or the open lung? The doctor at U of Chicago said we will discuss that when I return in Feb......I think I am getting worried again.

Patti Indianapolis IPF 2007

[Guest guest]

,

An open lung biopsy is just that. The surgeon makes the incision over the area of lung that he wishes to take a sample from, takes his sample and closes the incision leaving a chest tube in place to allow for drainage of fluids and to prevent lung collapse. The chest tube is usually removed in a couple of days.

I think the size of the incision can vary. Mine is under my right breast and the scar is almost 6 inches long. They weren't being dainty when they did mine, they were in a hurry because I was so unstable. I think most olb incisions are somewhat shorter than mine.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thu, January 7, 2010 9:41:18 PMSubject: Re: Re:lots of stomach problems

so will someone explain what the open lung biopsy is. Do they cut you way open or wht

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Tina Cole <tinadanner55@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 8:29:12 PMSubject: Re: Re:lots of stomach problems

I had a open lung biospy

From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 7:42:32 PMSubject: Re: Re:lots of stomach problems

Thanks for the info, guess I didn't really know what it was called

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:55:23 PMSubject: Re: Re:lots of stomach problems

,

What you are describing is a VATS. I have those and then a much longer incision also because though they started out doing a VATS, they ended up doing the faster though more invasive OLB because I was not behaving myself under anesthesia. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:06:42 PMSubject: Re: Re:lots of stomach problems

Ok I thought mine was open lung. I have 3 cuts on my back all about 2" long, one for upper lobe, one for lower lobe, and one where the chest tube was.

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 12:18:36 PMSubject: Re: Re:lots of stomach problems

Tina, and ,

I was wondering what kind of biopsy you all had that you have been having such problems.... .was it the VATS biopsy or the open lung? The doctor at U of Chicago said we will discuss that when I return in Feb......I think I am getting worried again.

Patti Indianapolis IPF 2007

[Guest guest]

The reason for me saying i would never do it again (open lung biopsy)is because i was not sick at all before it . I had no symptoms at all i felt fine.Now I'm always sick.I told my doctor i would have never done it knowing it would make me fill this way.I know my doctor said we needed to know what was going on with my lungs.I didn't know anything was wrong with me .I was having problems with my neck and needed to have some surgery.Before i could have that done had to have chest x-ray.That's when this all started.All I'm saying is i was working doing my thing didn't know i was even sick i got sick after the biopsy.Maybe i was on the edge of getting sick i don't know .Everybodys in a different situation we all have to make decisions good or bad .And really if i had to do

it all over again would i .Probably would don't like how i fill but oh well its done.I wish everyone the best. This was just my experience.

Tina

To: Breathe-Support Sent: Thu, January 7, 2010 12:35:56 PMSubject: Re:lots of stomach problems

PattiPeople have many different experiences with VATS. Some have absolutely no problems. Some have extensive problems. In the middle are those who spend three or four days in the hospital, go home, do fine, but do have some residual pain for a period of time. The problem is some doctors make it seem like nothing. I think thats because as Thoracic surgery goes its a relatively simple procedure. If you compare it to open heart surgery it is minor. But, it is a very invasive procedure. When they go in and start taking pieces of my organs it's a significant surgery to me. And for many it does have some residual pain.As to measuring any worsening in PFT's as a result, thats really hard to do. First, there is obviously some short term impact because of any pain one might be experiencing. Second, over any period of longer time, who is to know what otherwise might have been experienced. So, I encourage people to read all sides.

But the key to me is understanding why you're doing it and what you're going to do with the information gathered. I knew that for me. In my case if I had UIP/IPF then I wasn't going to take meds. If I had NSIP then I would have taken some. So, as a result of knowing exactly what I wanted to find out and how I'd use the information, I consider mine worthwhile. Now, was it easy and simple? No. I had various issues, some that only I would have incurred related to anesthesia. Others typical, related to the site pain. But, I am glad I had the VATS. The doctors needed that information to feel any certainty on what I have. I have used that information to guide my treatment choices. I did come to this forum and read before I had mine. There were several at that time vocal in opposing them, some who had had one and some who hadn't. But there were others who had them and recommended them. I sorted through it all to figure out what was right for me. Right

now the forum has just seen several who say they wish they hadn't. But let me assure you that the mood of reactions toward it comes and goes and during another period of time you might see a predominance of those who are glad they had it or thought there was nothing to it. The truth lies in all the responses and somewhere between the views to both extremes. >> Tina, and ,> > I was wondering what kind of biopsy you all had that you have been having such problems.... .was it the VATS biopsy or the open lung? The doctor at U of Chicago said we will discuss that when I return in Feb......I think I am getting worried again.> > Patti Indianapolis IPF

2007>