Re: GH question for RSS adult females

[Guest guest]

,

I am not an RSS adult but I am 's mom and I can tell you that we always

thought that we wouldn't do growth hormone because it was easier that she was a

girl. Dr. H, of course, has told us that if her test results show she is gh

deficient we have no choice. It was at that time that I knew comfortably in my

heart that we would have to do this and be okay. Aside fromt hat was

telling us last weekend that the kids in her class tell her she is small and

have small feet and that it hurts her feelings and she doesn't like it. I have

always taught that it's ok to be small, that God has made us all

different ways. She has always accepted that but now that she is in K and kids

are her age and saying this it is bothering her and breaks my heart that there

is nothing I can do to protect her from that until we start the gh.

B

and Kelli

anderkat3 wrote:

HI. I am curious with the opinions of RSS adult females. I have one

RSS daughter and one SGA possible RSS daughter. The question of

whether or not to use GH has come up, and we are leaning one way and I

would just like your opinions and personal feelings on it...such as if

you could go back and gain some height in childhood...would you? This

is solely a height question...I would appreciate any feedback. You can

e-mail me privately at anderkat3@...

thanks!

mom to Autumn 24 mos RSS, Summer 6.5 mos SGA, Ocean 3.5 yrs,

Skye 7.5 yrs

[Guest guest]

That hurts - kids can be so unkind!!! Just to let you know that I

have had several kids already go through school and RSS / growth

hormones aside, it's a battlefield of kid vs kid. Our RSS child is

our youngest and he, ironically, is the one who has complained the

least about what other kids have said to him. I am a firm believer

that kids can be nasty little buggers to each other and pick on

anything they see as 'deficient du jour.' Our eldest was

unbelievably sensitive to what others said or what he perceived they

said and was always upset, no matter what tools we gave him to

conquer being 'picked on' or teased. Unfortunately for RSS kids

there can be the obvious things that people make note of and make

comment on. All we can do is love them through it and give them the

gift of understanding that they are OK despite what others may have

to say.

Good Luck - Don't you sometimes wish you could go to school with

them? Charlene

> HI. I am curious with the opinions of RSS adult females. I

have one

> RSS daughter and one SGA possible RSS daughter. The question of

> whether or not to use GH has come up, and we are leaning one way

and I

> would just like your opinions and personal feelings on it...such

as if

> you could go back and gain some height in childhood...would you?

This

> is solely a height question...I would appreciate any feedback. You

can

> e-mail me privately at anderkat3@y...

>

>

> thanks!

>

> mom to Autumn 24 mos RSS, Summer 6.5 mos SGA, Ocean 3.5

yrs,

> Skye 7.5 yrs

>

>

>

>

>

>

[Guest guest]

I think we all make our decisions for our kids based on what we think is best at

the time we make the decisions. Hindsight is always (as they say) 20/20 and I

struggle with not beating myself up for things I did or didn't do in Adam's

childhood on a daily basis (sometimes on an HOURLY basis LOL)

That being said, I shall share a lesson I have learned the hard way.

Adam is on GH. His predicted height without GH treatment was 4'7 " and given his

father is 6' and his mom is 5'10 " that was just too small and especially for a

boy.

But back when I was making the decision, tough as it was, one of the things I

didn't give thought to was Adam's emotional response. He was totally fine with

being small back then, he was just so strong and so independent I would have bet

my life back then that no one was going to ever get one over on that kid and

certainly taunts of being small would only get the taunter a verbal slew of

obscenities back from my son!!! LOL I figured he was set and solid in " who he

was " .

I was wrong. Dead wrong. Now as a young teenager at the age of 13 all those

taunts have destroyed my son. He is unsure of himself, hates school and is

clinically depressed and on medication.

That being said, I am sure many of our kids will grow and mature and continue to

be just fine in their own skin. I only share that story because it demonstrates

such an extreme about face in Adam's self esteem that it indicates to me that I

was so wrong to just assume he would always " be OK " with being small.

It doesn't change any of my treatment decisions, he started the GH as early as I

was allowed to make the decision, I only share that story as one who has 'been

there done that' and may help someone else in their decision making endeavours.

Deb

Re: GH question for RSS adult females

,

I am not an RSS adult but I am 's mom and I can tell you that we

always thought that we wouldn't do growth hormone because it was easier that she

was a girl. Dr. H, of course, has told us that if her test results show she is

gh deficient we have no choice. It was at that time that I knew comfortably in

my heart that we would have to do this and be okay. Aside fromt hat was

telling us last weekend that the kids in her class tell her she is small and

have small feet and that it hurts her feelings and she doesn't like it. I have

always taught that it's ok to be small, that God has made us all

different ways. She has always accepted that but now that she is in K and kids

are her age and saying this it is bothering her and breaks my heart that there

is nothing I can do to protect her from that until we start the gh.

B

and Kelli

anderkat3 wrote:

HI. I am curious with the opinions of RSS adult females. I have one

RSS daughter and one SGA possible RSS daughter. The question of

whether or not to use GH has come up, and we are leaning one way and I

would just like your opinions and personal feelings on it...such as if

you could go back and gain some height in childhood...would you? This

is solely a height question...I would appreciate any feedback. You can

e-mail me privately at anderkat3@...

thanks!

mom to Autumn 24 mos RSS, Summer 6.5 mos SGA, Ocean 3.5 yrs,

Skye 7.5 yrs

[Guest guest]

Hi Deb,

I totally understand that for a man to be shorter than normal is harder in

society, i hope that maybe some of the rss adult men may be able to give you

their view point on the list , if not i'l try and ask them for their thoughts

and get back to you.

hugs, parents of rss kids have 1 of the hardest jobs ever and taking

responsiblility for their childs whole future is really hard but you all do a

great job

Deb wrote:

I think we all make our decisions for our kids based on what we think is best

at the time we make the decisions. Hindsight is always (as they say) 20/20 and I

struggle with not beating myself up for things I did or didn't do in Adam's

childhood on a daily basis (sometimes on an HOURLY basis LOL)

That being said, I shall share a lesson I have learned the hard way.

Adam is on GH. His predicted height without GH treatment was 4'7 " and given his

father is 6' and his mom is 5'10 " that was just too small and especially for a

boy.

But back when I was making the decision, tough as it was, one of the things I

didn't give thought to was Adam's emotional response. He was totally fine with

being small back then, he was just so strong and so independent I would have bet

my life back then that no one was going to ever get one over on that kid and

certainly taunts of being small would only get the taunter a verbal slew of

obscenities back from my son!!! LOL I figured he was set and solid in " who he

was " .

I was wrong. Dead wrong. Now as a young teenager at the age of 13 all those

taunts have destroyed my son. He is unsure of himself, hates school and is

clinically depressed and on medication.

That being said, I am sure many of our kids will grow and mature and continue to

be just fine in their own skin. I only share that story because it demonstrates

such an extreme about face in Adam's self esteem that it indicates to me that I

was so wrong to just assume he would always " be OK " with being small.

It doesn't change any of my treatment decisions, he started the GH as early as I

was allowed to make the decision, I only share that story as one who has 'been

there done that' and may help someone else in their decision making endeavours.

Deb

Re: GH question for RSS adult females

,

I am not an RSS adult but I am 's mom and I can tell you that we

always thought that we wouldn't do growth hormone because it was easier that she

was a girl. Dr. H, of course, has told us that if her test results show she is

gh deficient we have no choice. It was at that time that I knew comfortably in

my heart that we would have to do this and be okay. Aside fromt hat was

telling us last weekend that the kids in her class tell her she is small and

have small feet and that it hurts her feelings and she doesn't like it. I have

always taught that it's ok to be small, that God has made us all

different ways. She has always accepted that but now that she is in K and kids

are her age and saying this it is bothering her and breaks my heart that there

is nothing I can do to protect her from that until we start the gh.

B

and Kelli

anderkat3 wrote:

HI. I am curious with the opinions of RSS adult females. I have one

RSS daughter and one SGA possible RSS daughter. The question of

whether or not to use GH has come up, and we are leaning one way and I

would just like your opinions and personal feelings on it...such as if

you could go back and gain some height in childhood...would you? This

is solely a height question...I would appreciate any feedback. You can

e-mail me privately at anderkat3@...

thanks!

mom to Autumn 24 mos RSS, Summer 6.5 mos SGA, Ocean 3.5 yrs,

Skye 7.5 yrs

[Guest guest]

Thanks Kim and I do hope you understand no disrespect was intended by that post.

It seems that more opportunities and information on treatment are available to

us now than the parents of RSS-adults had. That being said, I would never find

fault with anyone who decided to let nature take it's course and not treat with

GH. There is a huge part of me that wished I had the confidence and the general

" know how " to instill that in my son and choose that route!

That was the whole point of my message, there are just so many different things

to consider, it can be extremely overwhelming.

I would be interested in a male view point, at least a male who might have some

strategies of coping that I could instill in my son because right now, he

doesn't cope.

Thanks for your thoughts, it's really appreciated.

Deb

Re: GH question for RSS adult females

,

I am not an RSS adult but I am 's mom and I can tell you that we

always thought that we wouldn't do growth hormone because it was easier that she

was a girl. Dr. H, of course, has told us that if her test results show she is

gh deficient we have no choice. It was at that time that I knew comfortably in

my heart that we would have to do this and be okay. Aside fromt hat was

telling us last weekend that the kids in her class tell her she is small and

have small feet and that it hurts her feelings and she doesn't like it. I have

always taught that it's ok to be small, that God has made us all

different ways. She has always accepted that but now that she is in K and kids

are her age and saying this it is bothering her and breaks my heart that there

is nothing I can do to protect her from that until we start the gh.

B

and Kelli

anderkat3 wrote:

HI. I am curious with the opinions of RSS adult females. I have one

RSS daughter and one SGA possible RSS daughter. The question of

whether or not to use GH has come up, and we are leaning one way and I

would just like your opinions and personal feelings on it...such as if

you could go back and gain some height in childhood...would you? This

is solely a height question...I would appreciate any feedback. You can

e-mail me privately at anderkat3@...

thanks!

mom to Autumn 24 mos RSS, Summer 6.5 mos SGA, Ocean 3.5 yrs,

Skye 7.5 yrs

[Guest guest]

Kim,

I totally understand why your mom and doctor did not use gh for you 20

years ago. At that time, as you pointed out, gh was made from human

cadavers and it turns out that it was often a fatal thing - a virus

hid in the people's brains and did not show until up to 20 years

later. Gh in those days was very dangerous.

Today, however, gh is synthetic and much safer. It is used not only

for height, but for stabilizing blood sugar and increasing muscle

tone. It also increases appetite in some people. I think that if you

were a little girl now, the decision may have been different.

But I have met you in Chicago and I think you are a wonderful person.

I knew that even before I met you! Height just did not seem to

matter.

Jodi Z

[Guest guest]

Hi ,

Gosh, it's so hard to say what I wish my parents would have done --

they made the best decision available to them at the time. Being short

is part of who I am now, period. Being taller would certainly make

some things easier... but there are occasionally benefits to being

tiny as well...

That being said and knowing what I know now, as well as where medicine

stands now, if I were to have my own RSS child, I do think I'd give

him/her GH.

Dunno if that helps, but it's one more perspective. Good luck with the

decision!

-Ana (28, RSS, 4'8 " )

[Guest guest]

Hi. THanks. We also have an interesting issue with GH here.

Because my oldest son is also tracking below the charts in height for

unknown causes (his IGF1 was jsut on the border of the lowest) and

they are tracking him for possible GH issues and even if the doc says

it is normal after further tests, then we are still being offered GH

for him due to idiopathic short stature. Then I am offered it for

Autumn and her RSS, then comes Summer in Autumn's path of SGA poss

RSS, so it seems to be all 3 or none. I know my older son just this

morning was telling me how everyone is bigger than him except his

friend and it's true even though he is the old side of the class

(August birthday 7.5 yrs in first grade) He has a friend 9

mosyounger a little shorter than him but he has CF and some other

med issues. His mom and I think it is so great having the boys such

similar sizes play together. they get along well and are in the same

class so it helps some.

Katheirne

> HI. I am curious with the opinions of RSS adult females. I have

one

> RSS daughter and one SGA possible RSS daughter. The question of

> whether or not to use GH has come up, and we are leaning one way

and I

> would just like your opinions and personal feelings on it...such as

if

> you could go back and gain some height in childhood...would you?

This

> is solely a height question...I would appreciate any feedback. You

can

> e-mail me privately at anderkat3@y...

>

>

> thanks!

>

> mom to Autumn 24 mos RSS, Summer 6.5 mos SGA, Ocean 3.5

yrs,

> Skye 7.5 yrs

>

>

>

>

>

>

[Guest guest]

Ana, thanks for sharing! It's great to hear an adult perspective on

this subject.

>

> Hi ,

>

> Gosh, it's so hard to say what I wish my parents would have done --

> they made the best decision available to them at the time. Being

short

> is part of who I am now, period. Being taller would certainly make

> some things easier... but there are occasionally benefits to being

> tiny as well...

>

> That being said and knowing what I know now, as well as where

medicine

> stands now, if I were to have my own RSS child, I do think I'd give

> him/her GH.

>

> Dunno if that helps, but it's one more perspective. Good luck with

the

> decision!

>

> -Ana (28, RSS, 4'8 " )

>