Re: The Saga leading up to the worm!

[Guest guest]

WOW!!! and thanks for sharing - HOPE this is your breakthrough!!will certainly

be asking GI for further testing - JUST IN CASE!!! do they only come from raw

fish and different countries - I know nothing about this

eileen

>

> So, as usual there is a bit of background. I will try and be brief <grin>

>

> So last winter I was in Israel- that seems to be the jump start when I started

to feel unwell.

> There was a lot of family stress (there actually has been loads of family

stress in this past year in general)

> So that plays a huge part as I don't do well with pressure, overwhelm, stress

yaddy yadda yadda and the list goes on and on.

>

> I took quite a beating for a couple of days while in Israel (I think I was

glutened a few times in my in-laws kitchen) I don't do well with gluten at all.

> Rashes, extreme belly pain- the whole nine yards really.

>

> I get home from Israel and in general I am ok- loads better than I had been in

years but still not as great as I was before the trip.

> So I started doing more mind/body work and IV's just to get some extra

support. I also continued with acupuncture.

>

> But after a few weeks I started getting really bad joint issues. I have had

some bad joint stuff associated with the CD in the past to the point I could not

move or walk-

> This was different though also different that having Long term Lyme btw (I

know my health saga is ridiculous) anyway.. even with needing to go do surgery

for surgical hernia- that I keep putting off- I decided to start LDN. My

reaction to LDN takes me a longer to properly respond to pain meds. Which was a

challenge to say the least after colon surgery last year.

> That next day all of my joint and body issues were gone! I have stayed on LDN

since but recently had to stop as I feel that it was accumulating and stressing

my liver. I have since learned some tell tail signs for -my- body and have done

some research about it and have spoken to various docs.. I can go into that

more as well but I will leave the deets for a different time as it is hard

holding a thread. LOL.

>

> One morning I wake up and have a BM and I see these weird off white-ish

canellini bean looking things in my stool- and I am like " what is g-ds name is

that? "

> I am familiar with Liver/GB congestion and this was nothing of the sort. So,

I was like " I wonder if I have Parasites? "

>

> I go to my doc, I do a regular Quest stool test and that comes up as showing

an extremely esoteric over-growth of " Aeronomas Hydrophila "

> My medical team perplexed as this is one of those bacteria that most

physicians read in a text book- anyway I was given a round of Cipro, that very

next day in the BM I have those bean looking things again!

> The toilet is full of them. Only recently I learned that these buggers are

liver flukes and rumen flukes.

>

> I did about 6 rounds of Cipro over the next few months. As I would feel great

after the Cipro and then plummet- which was all too familiar of a story for me

because I had gone through this for years w CDiff.

>

> Truthfully, I slacked.. I should of gone to my other doc to have more

extensive testing- but I have been busy with so many other things.. and it is

wonderful to be doing art work again.

> So like one day I am fine and the next week I am bad..

>

> Anyway, I went to get a rectal swab as my situation deteriorated fast and I

started to feel extremely unwell. I started to have very bloody stool which is

Atypical and super rare for me. My blood counts got abysmal.. My blood work

was terrible!like pre-diet terrible!

>

> The only place I have severe active CD inflammation is in my rectum. This has

gotten so much better on the diet- that it doesn't bother me too much- like stop

my life so I don't really care what docs tell me.

> I was starting to get worried and pondered going to the GI which I am not

thrilled with plus I am due for a scope.. anyway in the meantime I went super

basic on the diet AND nothing absolutely nothing helped. NOTHING!

> The rectal swab came back showing I had rampant overgrowth of E Hystolitica

and E Coli in cyst form. I was given a 10 day course of Tindamax (bursts

parasitic cysts)

> During those 10 days I felt awful! Herx hell. After those 10 days I felt

wonderful! During those 10 days I had " scale looking things " or like " sesame

seed hull " looking things like " empty sesame seeds " in my BM's.. I do not eat

sesame seeds or nuts.

>

> My acupuncturist told me during the whole Tindamax course that parasites are

not the issue but worms. I guess in TCM they make a distinction between

parasites and worms?

> So he had me eat a handful of pumpkin seeds (made into butter) daily for 15

days- pumpkin seeds are a natural de-worm and my acu wants me to eat a handful

made into butter 5 days out of every month going fwd. After the 15 days he gave

me a chinese herbal prep.

> Both the pumpkin seeds gave me terrible D and the herb totally knocked me out

(like how I was in the begining days of the diet) just completely bed ridden and

I could not eat at all.

> When I could start eating I put everything in the blender. 3 days after the

herb (I only took one capsule- the herb is illegal btw) I have a BM and I see

this bizzare thing in the toilet..

> So I get up and I look in the toilet and I cannot believe my eyes.. I get

weak in the knees and utterly nauseous.. From what I can actually see- it's at

least 10 " -12 " - this rope looking thing or like a vein on top of loose stool. It

had a reddish hue. It had a tail. I was so out of sorts about this that I did

not take it out of the toilet and put it in a jar in alcohol which was a

-complete- lapse in judgment- it's just I was in such a state of shock and

bewilderment.. anyway..

>

> I still think maybe I am crazy? Maybe I am just seeing all this stuff?

> Anyway, I read that even if the mature worm gets out of the body the eggs can

still be present. Cloves help the body rid of the eggs so I have been drinking

and using cloves and have been going through die off hell.

>

> Now all of these flukes are coming out.

>

> I am seeing a specialist on Monday. I need to go on de-worm prescription meds

and then I am thinking of doing a Hulda like protocol perhaps with

pre-medicating myself so I can withstand it.

> I am also going to buy the zapper.

>

> My docs think these worms have been in me long term and perhaps LDN brought it

to the " surface " .. My right Upper Quadrant has been acting up so much and then

feels amazingly better which can be typical for this type of thing..

>

> I am thinking of maybe doing a modified liver flush (I don't want to end up in

the hospital) and then restarting LDN.

> My acu is worried about liver stress right now.

>

> LDN brought the Lyme and Co to the Surface, did some other nifty stuff and now

possibly this.

>

> This may be -the- thing to get me better!

> I am in a state of shock the past week to be honest and it will be interesting

to hear what the specialist says on Monday.

>

> I find this all fascinating that it has happened right when my Savta passed..

It's as if she is watching over me and threatening all of these buggers. I am

not the most spiritual person.. but I feel she is protecting me.

>

> Jodi

>

[Guest guest]

I seriously have chills up my spine reading that. You are one tough cookie

Jodi!!! Good luck- I hope you get those things the heck out of you!

-Joanna

[Guest guest]

Wow Jodi, that is insane! Those things have definitely been in there long term. They don't just get in, multiply like crazy and then start showing up in stool. I really hope you continue to see them come out and get rid of it. I hope so much that you will feel after all this. I'm excited for you!

Sounds like what you are doing is working so I wouldn't suggest anything different. Interesting about the pumpkin seeds. It's pumpkin season and I'll be eating seeds more soon, I'll be checking for any die off!

Kathttp://scdkat.com

 

So, as usual there is a bit of background. I will try and be brief <grin>

So last winter I was in Israel- that seems to be the jump start when I started to feel unwell.

There was a lot of family stress (there actually has been loads of family stress in this past year in general)

So that plays a huge part as I don't do well with pressure, overwhelm, stress yaddy yadda yadda and the list goes on and on.

I took quite a beating for a couple of days while in Israel (I think I was glutened a few times in my in-laws kitchen) I don't do well with gluten at all.

Rashes, extreme belly pain- the whole nine yards really.

I get home from Israel and in general I am ok- loads better than I had been in years but still not as great as I was before the trip.

So I started doing more mind/body work and IV's just to get some extra support. I also continued with acupuncture.

But after a few weeks I started getting really bad joint issues. I have had some bad joint stuff associated with the CD in the past to the point I could not move or walk-

This was different though also different that having Long term Lyme btw (I know my health saga is ridiculous) anyway.. even with needing to go do surgery for surgical hernia- that I keep putting off- I decided to start LDN. My reaction to LDN takes me a longer to properly respond to pain meds. Which was a challenge to say the least after colon surgery last year.

That next day all of my joint and body issues were gone! I have stayed on LDN since but recently had to stop as I feel that it was accumulating and stressing my liver. I have since learned some tell tail signs for -my- body and have done some research about it and have spoken to various docs.. I can go into that more as well but I will leave the deets for a different time as it is hard holding a thread. LOL.

One morning I wake up and have a BM and I see these weird off white-ish canellini bean looking things in my stool- and I am like " what is g-ds name is that? "

I am familiar with Liver/GB congestion and this was nothing of the sort. So, I was like " I wonder if I have Parasites? "

I go to my doc, I do a regular Quest stool test and that comes up as showing an extremely esoteric over-growth of " Aeronomas Hydrophila "

My medical team perplexed as this is one of those bacteria that most physicians read in a text book- anyway I was given a round of Cipro, that very next day in the BM I have those bean looking things again!

The toilet is full of them. Only recently I learned that these buggers are liver flukes and rumen flukes.

I did about 6 rounds of Cipro over the next few months. As I would feel great after the Cipro and then plummet- which was all too familiar of a story for me because I had gone through this for years w CDiff.

Truthfully, I slacked.. I should of gone to my other doc to have more extensive testing- but I have been busy with so many other things.. and it is wonderful to be doing art work again.

So like one day I am fine and the next week I am bad..

Anyway, I went to get a rectal swab as my situation deteriorated fast and I started to feel extremely unwell. I started to have very bloody stool which is Atypical and super rare for me. My blood counts got abysmal.. My blood work was terrible!like pre-diet terrible!

The only place I have severe active CD inflammation is in my rectum. This has gotten so much better on the diet- that it doesn't bother me too much- like stop my life so I don't really care what docs tell me.

I was starting to get worried and pondered going to the GI which I am not thrilled with plus I am due for a scope.. anyway in the meantime I went super basic on the diet AND nothing absolutely nothing helped. NOTHING!

The rectal swab came back showing I had rampant overgrowth of E Hystolitica and E Coli in cyst form. I was given a 10 day course of Tindamax (bursts parasitic cysts)

During those 10 days I felt awful! Herx hell. After those 10 days I felt wonderful! During those 10 days I had " scale looking things " or like " sesame seed hull " looking things like " empty sesame seeds " in my BM's.. I do not eat sesame seeds or nuts.

My acupuncturist told me during the whole Tindamax course that parasites are not the issue but worms. I guess in TCM they make a distinction between parasites and worms?

So he had me eat a handful of pumpkin seeds (made into butter) daily for 15 days- pumpkin seeds are a natural de-worm and my acu wants me to eat a handful made into butter 5 days out of every month going fwd. After the 15 days he gave me a chinese herbal prep.

Both the pumpkin seeds gave me terrible D and the herb totally knocked me out (like how I was in the begining days of the diet) just completely bed ridden and I could not eat at all.

When I could start eating I put everything in the blender. 3 days after the herb (I only took one capsule- the herb is illegal btw) I have a BM and I see this bizzare thing in the toilet..

So I get up and I look in the toilet and I cannot believe my eyes.. I get weak in the knees and utterly nauseous.. From what I can actually see- it's at least 10 " -12 " - this rope looking thing or like a vein on top of loose stool. It had a reddish hue. It had a tail. I was so out of sorts about this that I did not take it out of the toilet and put it in a jar in alcohol which was a -complete- lapse in judgment- it's just I was in such a state of shock and bewilderment.. anyway..

I still think maybe I am crazy? Maybe I am just seeing all this stuff?

Anyway, I read that even if the mature worm gets out of the body the eggs can still be present. Cloves help the body rid of the eggs so I have been drinking and using cloves and have been going through die off hell.

Now all of these flukes are coming out.

I am seeing a specialist on Monday. I need to go on de-worm prescription meds and then I am thinking of doing a Hulda like protocol perhaps with pre-medicating myself so I can withstand it.

I am also going to buy the zapper.

My docs think these worms have been in me long term and perhaps LDN brought it to the " surface " .. My right Upper Quadrant has been acting up so much and then feels amazingly better which can be typical for this type of thing..

I am thinking of maybe doing a modified liver flush (I don't want to end up in the hospital) and then restarting LDN.

My acu is worried about liver stress right now.

LDN brought the Lyme and Co to the Surface, did some other nifty stuff and now possibly this.

This may be -the- thing to get me better!

I am in a state of shock the past week to be honest and it will be interesting to hear what the specialist says on Monday.

I find this all fascinating that it has happened right when my Savta passed.. It's as if she is watching over me and threatening all of these buggers. I am not the most spiritual person.. but I feel she is protecting me.

Jodi

[Guest guest]

Wow, Jodi - that's insane.

Well at least it's all coming out.

For the liver maybe take some European high quality ALA as support.

Mara

> So, as usual there is a bit of background. I will try and be brief <grin>

>

>

> My docs think these worms have been in me long term and perhaps LDN brought it

to the " surface " .. My right Upper Quadrant has been acting up so much and then

feels amazingly better which can be typical for this type of thing..

>

> I am thinking of maybe doing a modified liver flush (I don't want to end up in

the hospital) and then restarting LDN.

> My acu is worried about liver stress right now.

>

> LDN brought the Lyme and Co to the Surface, did some other nifty stuff and now

possibly this.

>

> This may be -the- thing to get me better!

> I am in a state of shock the past week to be honest and it will be interesting

to hear what the specialist says on Monday.

>

> I find this all fascinating that it has happened right when my Savta passed..

It's as if she is watching over me and threatening all of these buggers. I am

not the most spiritual person.. but I feel she is protecting me.

[Guest guest]

Jodi,This may sound odd, but I am SO EXCITED for you! All this stuff is coming out and maybe clear your system once and for all. It may not be pleasant now, but how cool to be cured in the end!!!!Way to GO!AmeliaTo: BTVC-SCD Sent: Fri, September 24, 2010 8:00:48 PMSubject: The Saga leading up to the worm!

So, as usual there is a bit of background. I will try and be brief <grin>

So last winter I was in Israel- that seems to be the jump start when I started to feel unwell.

There was a lot of family stress (there actually has been loads of family stress in this past year in general)

So that plays a huge part as I don't do well with pressure, overwhelm, stress yaddy yadda yadda and the list goes on and on.

I took quite a beating for a couple of days while in Israel (I think I was glutened a few times in my in-laws kitchen) I don't do well with gluten at all.

Rashes, extreme belly pain- the whole nine yards really.

I get home from Israel and in general I am ok- loads better than I had been in years but still not as great as I was before the trip.

So I started doing more mind/body work and IV's just to get some extra support. I also continued with acupuncture.

But after a few weeks I started getting really bad joint issues. I have had some bad joint stuff associated with the CD in the past to the point I could not move or walk-

This was different though also different that having Long term Lyme btw (I know my health saga is ridiculous) anyway.. even with needing to go do surgery for surgical hernia- that I keep putting off- I decided to start LDN. My reaction to LDN takes me a longer to properly respond to pain meds. Which was a challenge to say the least after colon surgery last year.

That next day all of my joint and body issues were gone! I have stayed on LDN since but recently had to stop as I feel that it was accumulating and stressing my liver. I have since learned some tell tail signs for -my- body and have done some research about it and have spoken to various docs.. I can go into that more as well but I will leave the deets for a different time as it is hard holding a thread. LOL.

One morning I wake up and have a BM and I see these weird off white-ish canellini bean looking things in my stool- and I am like "what is g-ds name is that?"

I am familiar with Liver/GB congestion and this was nothing of the sort. So, I was like "I wonder if I have Parasites?"

I go to my doc, I do a regular Quest stool test and that comes up as showing an extremely esoteric over-growth of "Aeronomas Hydrophila"

My medical team perplexed as this is one of those bacteria that most physicians read in a text book- anyway I was given a round of Cipro, that very next day in the BM I have those bean looking things again!

The toilet is full of them. Only recently I learned that these buggers are liver flukes and rumen flukes.

I did about 6 rounds of Cipro over the next few months. As I would feel great after the Cipro and then plummet- which was all too familiar of a story for me because I had gone through this for years w CDiff.

Truthfully, I slacked.. I should of gone to my other doc to have more extensive testing- but I have been busy with so many other things.. and it is wonderful to be doing art work again.

So like one day I am fine and the next week I am bad..

Anyway, I went to get a rectal swab as my situation deteriorated fast and I started to feel extremely unwell. I started to have very bloody stool which is Atypical and super rare for me. My blood counts got abysmal.. My blood work was terrible!like pre-diet terrible!

The only place I have severe active CD inflammation is in my rectum. This has gotten so much better on the diet- that it doesn't bother me too much- like stop my life so I don't really care what docs tell me.

I was starting to get worried and pondered going to the GI which I am not thrilled with plus I am due for a scope.. anyway in the meantime I went super basic on the diet AND nothing absolutely nothing helped. NOTHING!

The rectal swab came back showing I had rampant overgrowth of E Hystolitica and E Coli in cyst form. I was given a 10 day course of Tindamax (bursts parasitic cysts)

During those 10 days I felt awful! Herx hell. After those 10 days I felt wonderful! During those 10 days I had "scale looking things" or like "sesame seed hull" looking things like "empty sesame seeds" in my BM's.. I do not eat sesame seeds or nuts.

My acupuncturist told me during the whole Tindamax course that parasites are not the issue but worms. I guess in TCM they make a distinction between parasites and worms?

So he had me eat a handful of pumpkin seeds (made into butter) daily for 15 days- pumpkin seeds are a natural de-worm and my acu wants me to eat a handful made into butter 5 days out of every month going fwd. After the 15 days he gave me a chinese herbal prep.

Both the pumpkin seeds gave me terrible D and the herb totally knocked me out (like how I was in the begining days of the diet) just completely bed ridden and I could not eat at all.

When I could start eating I put everything in the blender. 3 days after the herb (I only took one capsule- the herb is illegal btw) I have a BM and I see this bizzare thing in the toilet..

So I get up and I look in the toilet and I cannot believe my eyes.. I get weak in the knees and utterly nauseous.. From what I can actually see- it's at least 10"-12"- this rope looking thing or like a vein on top of loose stool. It had a reddish hue. It had a tail. I was so out of sorts about this that I did not take it out of the toilet and put it in a jar in alcohol which was a -complete- lapse in judgment- it's just I was in such a state of shock and bewilderment.. anyway..

I still think maybe I am crazy? Maybe I am just seeing all this stuff?

Anyway, I read that even if the mature worm gets out of the body the eggs can still be present. Cloves help the body rid of the eggs so I have been drinking and using cloves and have been going through die off hell.

Now all of these flukes are coming out.

I am seeing a specialist on Monday. I need to go on de-worm prescription meds and then I am thinking of doing a Hulda like protocol perhaps with pre-medicating myself so I can withstand it.

I am also going to buy the zapper.

My docs think these worms have been in me long term and perhaps LDN brought it to the "surface".. My right Upper Quadrant has been acting up so much and then feels amazingly better which can be typical for this type of thing..

I am thinking of maybe doing a modified liver flush (I don't want to end up in the hospital) and then restarting LDN.

My acu is worried about liver stress right now.

LDN brought the Lyme and Co to the Surface, did some other nifty stuff and now possibly this.

This may be -the- thing to get me better!

I am in a state of shock the past week to be honest and it will be interesting to hear what the specialist says on Monday.

I find this all fascinating that it has happened right when my Savta passed.. It's as if she is watching over me and threatening all of these buggers. I am not the most spiritual person.. but I feel she is protecting me.

Jodi

[Guest guest]

Thanks you guys for all of the feedback!

It's all sorts of crazy, exhilarating and exciting at the same time!

I think everything I have been doing has led up to this in some way.

SCD, LDN, Mind/Body work, Saying no to my family, and the list goes on.

It's an oddity to ponder to be honest but I am just riding the wave.

I love sharing my Jodi weirdness with our community..

Many hugs-

Jodi

[Guest guest]

> Thanks you guys for all of the feedback!

> It's all sorts of crazy, exhilarating and exciting at the same time!

> I think everything I have been doing has led up to this in some way.

> SCD, LDN, Mind/Body work, Saying no to my family, and the list goes on.

> It's an oddity to ponder to be honest but I am just riding the wave.

> I love sharing my Jodi weirdness with our community..

LOL, Jodi.

Here's to more weirdness!

Mara

[Guest guest]

are any of us considered normal anymore???? just a bunch of scd freaks - LOL

keep sharing and healing!!!

eileen

>

> > Thanks you guys for all of the feedback!

> > It's all sorts of crazy, exhilarating and exciting at the same time!

> > I think everything I have been doing has led up to this in some way.

> > SCD, LDN, Mind/Body work, Saying no to my family, and the list goes on.

> > It's an oddity to ponder to be honest but I am just riding the wave.

> > I love sharing my Jodi weirdness with our community..

>

> LOL, Jodi.

>

> Here's to more weirdness!

>

> Mara

>

[Guest guest]

Jodi, you're such an strong person-you will make it through this! Sorry you have to deal with this but if this has been going on for a long time-how great it is to know and now work on being done with it!UC-C 12/09SCD 1/10Daily, CLO, Magnesium, bromelain, acidophilus Mom of 2 crazy monkeys :-)

So, as usual there is a bit of background. I will try and be brief <grin>

So last winter I was in Israel- that seems to be the jump start when I started to feel unwell.

There was a lot of family stress (there actually has been loads of family stress in this past year in general)

So that plays a huge part as I don't do well with pressure, overwhelm, stress yaddy yadda yadda and the list goes on and on.

I took quite a beating for a couple of days while in Israel (I think I was glutened a few times in my in-laws kitchen) I don't do well with gluten at all.

Rashes, extreme belly pain- the whole nine yards really.

I get home from Israel and in general I am ok- loads better than I had been in years but still not as great as I was before the trip.

So I started doing more mind/body work and IV's just to get some extra support. I also continued with acupuncture.

But after a few weeks I started getting really bad joint issues. I have had some bad joint stuff associated with the CD in the past to the point I could not move or walk-

This was different though also different that having Long term Lyme btw (I know my health saga is ridiculous) anyway.. even with needing to go do surgery for surgical hernia- that I keep putting off- I decided to start LDN. My reaction to LDN takes me a longer to properly respond to pain meds. Which was a challenge to say the least after colon surgery last year.

That next day all of my joint and body issues were gone! I have stayed on LDN since but recently had to stop as I feel that it was accumulating and stressing my liver. I have since learned some tell tail signs for -my- body and have done some research about it and have spoken to various docs.. I can go into that more as well but I will leave the deets for a different time as it is hard holding a thread. LOL.

One morning I wake up and have a BM and I see these weird off white-ish canellini bean looking things in my stool- and I am like "what is g-ds name is that?"

I am familiar with Liver/GB congestion and this was nothing of the sort. So, I was like "I wonder if I have Parasites?"

I go to my doc, I do a regular Quest stool test and that comes up as showing an extremely esoteric over-growth of "Aeronomas Hydrophila"

My medical team perplexed as this is one of those bacteria that most physicians read in a text book- anyway I was given a round of Cipro, that very next day in the BM I have those bean looking things again!

The toilet is full of them. Only recently I learned that these buggers are liver flukes and rumen flukes.

I did about 6 rounds of Cipro over the next few months. As I would feel great after the Cipro and then plummet- which was all too familiar of a story for me because I had gone through this for years w CDiff.

Truthfully, I slacked.. I should of gone to my other doc to have more extensive testing- but I have been busy with so many other things.. and it is wonderful to be doing art work again.

So like one day I am fine and the next week I am bad..

Anyway, I went to get a rectal swab as my situation deteriorated fast and I started to feel extremely unwell. I started to have very bloody stool which is Atypical and super rare for me. My blood counts got abysmal.. My blood work was terrible!like pre-diet terrible!

The only place I have severe active CD inflammation is in my rectum. This has gotten so much better on the diet- that it doesn't bother me too much- like stop my life so I don't really care what docs tell me.

I was starting to get worried and pondered going to the GI which I am not thrilled with plus I am due for a scope.. anyway in the meantime I went super basic on the diet AND nothing absolutely nothing helped. NOTHING!

The rectal swab came back showing I had rampant overgrowth of E Hystolitica and E Coli in cyst form. I was given a 10 day course of Tindamax (bursts parasitic cysts)

During those 10 days I felt awful! Herx hell. After those 10 days I felt wonderful! During those 10 days I had "scale looking things" or like "sesame seed hull" looking things like "empty sesame seeds" in my BM's.. I do not eat sesame seeds or nuts.

My acupuncturist told me during the whole Tindamax course that parasites are not the issue but worms. I guess in TCM they make a distinction between parasites and worms?

So he had me eat a handful of pumpkin seeds (made into butter) daily for 15 days- pumpkin seeds are a natural de-worm and my acu wants me to eat a handful made into butter 5 days out of every month going fwd. After the 15 days he gave me a chinese herbal prep.

Both the pumpkin seeds gave me terrible D and the herb totally knocked me out (like how I was in the begining days of the diet) just completely bed ridden and I could not eat at all.

When I could start eating I put everything in the blender. 3 days after the herb (I only took one capsule- the herb is illegal btw) I have a BM and I see this bizzare thing in the toilet..

So I get up and I look in the toilet and I cannot believe my eyes.. I get weak in the knees and utterly nauseous.. From what I can actually see- it's at least 10"-12"- this rope looking thing or like a vein on top of loose stool. It had a reddish hue. It had a tail. I was so out of sorts about this that I did not take it out of the toilet and put it in a jar in alcohol which was a -complete- lapse in judgment- it's just I was in such a state of shock and bewilderment.. anyway..

I still think maybe I am crazy? Maybe I am just seeing all this stuff?

Anyway, I read that even if the mature worm gets out of the body the eggs can still be present. Cloves help the body rid of the eggs so I have been drinking and using cloves and have been going through die off hell.

Now all of these flukes are coming out.

I am seeing a specialist on Monday. I need to go on de-worm prescription meds and then I am thinking of doing a Hulda like protocol perhaps with pre-medicating myself so I can withstand it.

I am also going to buy the zapper.

My docs think these worms have been in me long term and perhaps LDN brought it to the "surface".. My right Upper Quadrant has been acting up so much and then feels amazingly better which can be typical for this type of thing..

I am thinking of maybe doing a modified liver flush (I don't want to end up in the hospital) and then restarting LDN.

My acu is worried about liver stress right now.

LDN brought the Lyme and Co to the Surface, did some other nifty stuff and now possibly this.

This may be -the- thing to get me better!

I am in a state of shock the past week to be honest and it will be interesting to hear what the specialist says on Monday.

I find this all fascinating that it has happened right when my Savta passed.. It's as if she is watching over me and threatening all of these buggers. I am not the most spiritual person.. but I feel she is protecting me.

Jodi

Reply to sender |

Reply to group |

Reply via web post |

Start a New Topic

Messages in this topic

(1)

Recent Activity:

New Members

18

Visit Your Group

MARKETPLACE

Hobbies & Activities Zone: Find others who share your passions! Explore new interests.

Get great advice about dogs and cats. Visit the Dog & Cat Answers Center.

Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now.

Switch to: Text-Only, Daily Digest • Unsubscribe •

[Guest guest]

>> are any of us considered normal anymore???? just a bunch of scd freaks - > LOL> keep sharing and healing!!!> eileen> >>>> > Thanks you guys for all of the feedback!>> > It's all sorts of crazy, exhilarating and exciting at the same time!>> > I think everything I have been doing has led up to this in some way.>> > SCD, LDN, Mind/Body work, Saying no to my family, and the list goes >> on.>> > It's an oddity to ponder to be honest but I am just riding the wave.>> > I love sharing my Jodi weirdness with our community..Yeah, we love it too, Jodi. :-)You're better than a best-selling novel! ______________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of  a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com  

[Guest guest]

Wow, Jodi, I'm in shock with all you've had to go through. You sure are a

trooper! Like others said, I hope this is what you needed to start feeling

better. It's crazy to think about how long the worms have been affecting you.

Feel better soon!

Take care,

Amber

[Guest guest]

Eileen,

GI testing is useless for this sort of thing so is stool testing!

It would be nice one day if medical doctors with different specialties actually

communicated with one another. One example; GI's talking to endo docs to

realize that many patients need a more in depth taper schedule getting off of

steroids. Same thing with all docs in general learning from Tropical Disease

docs when it comes to testing. OR AT LEAST they immediately refer patients to

them.

You want a rectal swab if your situation is persistent and no resolution has

been attained.

Jodi

[Guest guest]

well i usually trust my gi but i came right out and asked fri if the tests he

did would show worms/parasites etc - and he said yes -obviously wrong

anyway i THINK i'm slowly starting to come out of the damage i caused

thanks

eileen

>

> Eileen,

>

> GI testing is useless for this sort of thing so is stool testing!

> It would be nice one day if medical doctors with different specialties

actually communicated with one another. One example; GI's talking to endo docs

to realize that many patients need a more in depth taper schedule getting off of

steroids. Same thing with all docs in general learning from Tropical Disease

docs when it comes to testing. OR AT LEAST they immediately refer patients to

them.

>

> You want a rectal swab if your situation is persistent and no resolution has

been attained.

>

> Jodi

>

[Guest guest]

Jodi,

GI testing is useless for this sort of thing so is stool testing!

Can you explain ?

I've been taught that the reason you do 3 days of stool testing is

to capture the parasite, say giardia, at the point when the cysts are

actually showing in the BM, which they do cyclically, but not daily.

Same for the different stages of roundworm.

I can see that you might better catch pinworms with a rectal swab

because they like to hang out there.

Any more info would be greatly appreciated.

Sue

enduring days of no Diflucan, no Enhansa, no Scdophilus in preparation

for a CDSA

[Guest guest]

At 08:15 AM 9/28/2010, you wrote:

GI testing is useless for this

sort of thing so is stool testing!

It would be nice one day if medical doctors with different specialties

actually communicated with one another. One example; GI's talking to endo

docs to realize that many patients need a more in depth taper schedule

getting off of steroids. Same thing with all docs in general learning

from Tropical Disease docs when it comes to testing. OR AT LEAST they

immediately refer patients to them.

Jodi,

I have been following your saga, but didn't quite know what to say. At

the very least, you will be getting the horrors out of your system, and

can, hopefully, begin to feel better.

I heartily agree with you about the need for specialists to communicate

with each other. In theory, that's what our ptimary care doctors do --

coordinate between specialists. In practice....

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Hi Sue,

From what I have learned in the past 3 years is that stool testing can be

notoriously finicky. Incubation techniques, the patient not doing a purge- so

that the pathogenic lining will be *inside* the stool. Many parasites will not

" present " themselves in the stool.

It is pretty safe to say that pathogens go hand n' hand with other

pathogens/microbes (besides Candida stuff) - so just because one critter shows

up it does not mean that only one critter is present.. to make things more

complicated and yet interesting it seems the body heals or reveals issues in

like layers. To me, LDN just kind of highlights this point (kinda cool

actually) So once someone gets rid of X often times Y will show up and then Z

will show up and so on.

Old school style of testing used the rectal swab- tropical disease docs and some

integrative or LLMD's will use the swab as it is about 75%-80% accurate where

stool testing (integrative lab) is just less than %50. That is also if the

patient knows to stop certain supplements/meds and foods before testing.

Using a urine dysbiosis test with any pathogenic testing can be super helpful-

although the tests themselves are super cryptic and it is important having a doc

to interpret it as labs are difficult providing the test legend to the patient.

Basically the urine test comes in and measures among other things the chemicals

that are released into the urine and according to that they can cross reference

which critter is doing what and we can hypothesize about the amounts and such

(like which one is the biggest culprit)- and that can be used to figure out the

puzzle for the course of treatment.

The 3 day stool collection is a nice idea but by no means accurate.

Crohn's (especially) but IBD in general has a much higher propensity to catch

critters because the bowel wall is not in tact and the immune system is already

weak. Interestingly, I wonder if Crohn's people suffer from this more in depth

due often times the appendix being involved in inflammation? Someone posted an

interesting article a while back about the theory that maybe the appendix is

responsible for naturally modulating the immune system.

All of these critters work in cycles. Interestingly, it's been noted that worms

work in conjunction to moon cycles- which makes me think of biodynamic farming

(ok, I won't dilute this thread with too many tangents)

As for what likes to " hang out " in that area- LOL.. sorry couldn't help but give

a chuckle. From what I just learned earlier in the week- many critters " show up

there " . I don't know exactly why- but I will ask the doc this.

I'm sure would know the answer to this.

Jodi

[Guest guest]

Jodi,

Thanks very much for the comprehensive answer!

I know about stopping all the antifungals, probiotics etc., but not

the purge. Do you have any more info on that ?

I'll try to research some more and find out what labs will do the

rectal swabs.

Maybe I'll try to scare up an infectious disease doc, but they are

hard to find, and if I go to one more " in-the-box " MD who tells me there

is nothing wrong with me, I will commit scream-a-cide (whereby the

doctor's eardrums are blown out by my yelling;-)

Absolutely agree about the layers. Since my joint pain has

increased with LDN and proportionally to the dose, I am hoping it is

stirring things up, whether it's parasites or Lyme etc. My IM doc did

say that bordella, one of the Lyme co-infections, would cause GI

symptoms while the other ones would not.

In fact, the IM doc is quite befuddled. He's very open to learning

but can't understand how I could still be yeasty after all this time and

all these treatments. His 1st idea is to do an antibiotic challenge,

via subcu injections for Lyme, but I'm going to try without it first and

if we don't get a positive, then maybe consider it.

Thanks again for the info !

Sue R

[Guest guest]

Hi Sue,

My reply in body of email;

> Thanks very much for the comprehensive answer!

Sure thang!

> I know about stopping all the antifungals, probiotics etc., but not

> the purge. Do you have any more info on that ?

Stop all herbals too. Along with activated charcoal and any probiotic rich

foods. If you have been taking S Boulardii stop that as well. S Boulardii

although non-colonizing can actually feed good yeasts (like good yeasts

sometimes that are added to supplements most of the time illegal) which can then

over-grow and that can cause issues.

A purge- you can use anything that gives you the runs.

Some people use an herbal type of laxative- I personally cannot handle the

intestinal spasms and increase in peristalsis as well as these things are way

illegal and make me feel like *crap*. Oxygenated Magnesium can also work well

as well as an increased dosage of any Mag that works for you. Himalayan sea

salt water solution is also good and you can put it in freshly squeezed

grapefruit juice. Or even bowel tolerance Vit C although this makes my D so bad

for quite a while.. So, I usually use coffee and salt water in a citrus based

juice.

> I'll try to research some more and find out what labs will do the

> rectal swabs.

It's hard finding a doc that does such a thing- they don't usually advertise it.

I am unsure where you live but you can call Dr Cahil's office and ask for

a referral for a doc that does that testing in your area maybe? #.

Google him.

I'm in NYC.

> Maybe I'll try to scare up an infectious disease doc, but they are

> hard to find, and if I go to one more " in-the-box " MD who tells me there

> is nothing wrong with me, I will commit scream-a-cide (whereby the

> doctor's eardrums are blown out by my yelling;-)

Yeah, they are A$$ & oles.

Doc's that don't acknowledge critters at play w IBD are just working with

antiquated medicine.

> Absolutely agree about the layers. Since my joint pain has

> increased with LDN and proportionally to the dose, I am hoping it is

> stirring things up, whether it's parasites or Lyme etc. My IM doc did

> say that bordella, one of the Lyme co-infections, would cause GI

> symptoms while the other ones would not.

What's an IM doc?

Which Lyme testing have you had?

> In fact, the IM doc is quite befuddled. He's very open to learning

> but can't understand how I could still be yeasty after all this time and

> all these treatments. His 1st idea is to do an antibiotic challenge,

> via subcu injections for Lyme, but I'm going to try without it first and

> if we don't get a positive, then maybe consider it.

What's teh schedule for the ABX challenge and which one? Doxy?

You should look into the Bradford Protocol (some of the components are not legal

anymore thanks to the all so wonderful FDA but they are using Hydrogen peroxide

or any Oxygen treatment like Ozone etc and still having good results) I got rid

of a ton of Lyme Co-infections.

Have you done the Cd57 test?

Positives are not the only sign for Lyme. It's very complicated figuring out

Lyme and Co and the testing for it especially if you have it long term.

You can still be yeasty due to High toxic heavy metals as well as dealing with

biofilms.

There are some interesting chelation schedules out there (I can't do them) but

using ALA is one plus it works really well with LDN.

Jodi

[Guest guest]

Hi Sue,

My reply in body of email;

> Thanks very much for the comprehensive answer!

Sure thang!

> I know about stopping all the antifungals, probiotics etc., but not

> the purge. Do you have any more info on that ?

Stop all herbals too. Along with activated charcoal and any probiotic rich

foods. If you have been taking S Boulardii stop that as well. S Boulardii

although non-colonizing can actually feed good yeasts (like good yeasts

sometimes that are added to supplements most of the time illegal) which can then

over-grow and that can cause issues.

A purge- you can use anything that gives you the runs.

Some people use an herbal type of laxative- I personally cannot handle the

intestinal spasms and increase in peristalsis as well as these things are way

illegal and make me feel like *crap*. Oxygenated Magnesium can also work well

as well as an increased dosage of any Mag that works for you. Himalayan sea

salt water solution is also good and you can put it in freshly squeezed

grapefruit juice. Or even bowel tolerance Vit C although this makes my D so bad

for quite a while.. So, I usually use coffee and salt water in a citrus based

juice.

> I'll try to research some more and find out what labs will do the

> rectal swabs.

It's hard finding a doc that does such a thing- they don't usually advertise it.

I am unsure where you live but you can call Dr Cahil's office and ask for

a referral for a doc that does that testing in your area maybe? #.

Google him.

I'm in NYC.

> Maybe I'll try to scare up an infectious disease doc, but they are

> hard to find, and if I go to one more " in-the-box " MD who tells me there

> is nothing wrong with me, I will commit scream-a-cide (whereby the

> doctor's eardrums are blown out by my yelling;-)

Yeah, they are A$$ & oles.

Doc's that don't acknowledge critters at play w IBD are just working with

antiquated medicine.

> Absolutely agree about the layers. Since my joint pain has

> increased with LDN and proportionally to the dose, I am hoping it is

> stirring things up, whether it's parasites or Lyme etc. My IM doc did

> say that bordella, one of the Lyme co-infections, would cause GI

> symptoms while the other ones would not.

What's an IM doc?

Which Lyme testing have you had?

> In fact, the IM doc is quite befuddled. He's very open to learning

> but can't understand how I could still be yeasty after all this time and

> all these treatments. His 1st idea is to do an antibiotic challenge,

> via subcu injections for Lyme, but I'm going to try without it first and

> if we don't get a positive, then maybe consider it.

What's teh schedule for the ABX challenge and which one? Doxy?

You should look into the Bradford Protocol (some of the components are not legal

anymore thanks to the all so wonderful FDA but they are using Hydrogen peroxide

or any Oxygen treatment like Ozone etc and still having good results) I got rid

of a ton of Lyme Co-infections.

Have you done the Cd57 test?

Positives are not the only sign for Lyme. It's very complicated figuring out

Lyme and Co and the testing for it especially if you have it long term.

You can still be yeasty due to High toxic heavy metals as well as dealing with

biofilms.

There are some interesting chelation schedules out there (I can't do them) but

using ALA is one plus it works really well with LDN.

Jodi

[Guest guest]

At 10:47 AM 9/29/2010, you wrote:

All I can say is that I get this

image of Lord Leto from my fav series of all time Dune.

ROTFLMAO!

Jodi,

Sand worms? <grin>

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

>

>

> At 10:47 AM 9/29/2010, you wrote:

>> All I can say is that I get this image of Lord Leto from my fav series of all

time Dune. ROTFLMAO!

>

> Jodi,

>

> Sand worms? <grin>

Eww, like you are turning into a sand worm?

Mara

[Guest guest]

At 08:55 PM 9/29/2010, you wrote:

Eww, like you are turning into a

sand worm?

Boy, I sure hope she isn't!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle