Re: One more time - Ferritin & Osteopenia

[Guest guest]

Re: Chromagen Forte...forgot to ask, dosage? , I know you've

had success with this. Please tell me exactly what scrip my PCP

needs to write.

Thanks again!

in NJ

**********************************

>

> So, back to PCP I go, and ask to try Chromagen Forte. Now, that

iron list that someone posted shows 3 different Chromagen products.

It is the Forte, right?

>

>

> in NJ

>

[Guest guest]

I just read the label on Chromgen Forte, and it is in soybean oil. Does

anyone know anything about this?

Thanks

Barbara Jean

Re: One more time - Ferritin & Osteopenia

> Re: Chromagen Forte...forgot to ask, dosage? , I know you've

> had success with this. Please tell me exactly what scrip my PCP

> needs to write.

>

> Thanks again!

>

> in NJ

> **********************************

>

>

> >

> > So, back to PCP I go, and ask to try Chromagen Forte. Now, that

> iron list that someone posted shows 3 different Chromagen products.

> It is the Forte, right?

> >

> >

> > in NJ

>

[Guest guest]

- I have severe osteoporosis. I could not take the Miacalcin but

have been taking Evista for maybe 6-8 months without problems. The

rheumatologist (who I absolutely HATE) has given me an rx for Forteo

which is a daily injectible parathyroid which studies show return you to

a normal bone density in 18-24 months. I have not filled the rx as yet

as I am uncomfortable with the black box warning and I am trying to work

through that in my mind.

Amber/FLRN

One more time - Ferritin & Osteopenia

OK, O wise ones! Latest labs & dexa: the last 3 years Ferritin was

31/18/14

(range 10-232). Yes, I see the writing on the wall. I've been taking

Niferex, and after doubling up this past year, it's still on that

slippery slope.

So, back to PCP I go, and ask to try Chromagen Forte. Now, that iron

list that

someone posted shows 3 different Chromagen products. It is the Forte,

right?

Also, I don't see that it has intrinsic factor, anyone know if it does?

(Posting site again as I'm sure some haven't seen it):

http://www.pdrhealth.com/drug_info/nmdrugprofiles/nutsupdrugs/tables/iro

n.shtm

l

Also, 2nd dexa still shows osteopenia. Just an FYI, my sister (always

thin,

not a WLS patient) is 1 year older than me, and has opsteporosis. So,

although I didn't have a baseline pre-WLS, it may be genetic and not

related to the

WLS...we'll never know. So, have to go see my gyno for meds. Now, I

know

Fosomax is a pouch burner, but what about the others? I think the

consensus was

Myacalcin, although I believe some have had a bad reaction. So, what

can we

try and what can't we?

Thank you!

in NJ

open RNY 8/99

staple line disruption

lap stomach transection 8/00

abdominoplasty 11/02

breast reduction 7/03

[Guest guest]

Okey dokey, then. )

in NJ

*****************************

In a message dated 1/24/2004 2:44:33 PM Eastern Standard Time, BethVBG

writes:

> >> and what's the little black box warning for the Forteo?

>>

> ---------------

> I did a quick search, out of curiosity -- it's a " doosey " ... here it is:

> WARNING In male and female rats, teriparatide caused an increase in the

> incidence of osteosarcoma (a malignant bone tumor) that was dependent on dose

and

> treatment duration. The effect was observed at systemic exposures to

> teriparatide ranging from 3 to 60 times the exposure in humans given a 20-mcg

dose.

> Because of the uncertain relevance of the rat osteosarcoma finding to humans,

> teriparatide should be prescribed only to patients for whom the potential

> benefits are considered to outweigh the potential risk. Teriparatide should

not

> be prescribed for patients who are at increased baseline risk for

> osteosarcoma (including those with Paget’s disease of bone or unexplained

elevations of

> alkaline phosphatase, open epiphyses, or prior radiation therapy involving

> the skeleton) (see WARNINGS and PRECAUTIONS, Carcinogenesis).

>

> Doesn't make you want to run right out there and take it, does it?

>

> Beth

> Houston, TX

>

[Guest guest]

Wow, tough call, Amber. My first question is how is the Evista working for

you? Are you showing any signs of improvement, or is it just supposed to

prevent further bone loss?

in NJ

************************

In a message dated 1/24/2004 5:09:05 PM Eastern Standard Time,

rehab2@... writes:

> I will be honest, I have had the rx for about 2 months now and have not had

> it filled. Of course the $600 a month cost is an issue because my 25% would

> still be $150 a month, but to be honest, I am rather afraid of taking it due

> to the warning below. I spoke with the pharmacist re this and she said with

> my T-Scores I have an 8x great chance of idiopathic fracture (non-trauma

> related) and the chance of osteosarcoma is very small. Next I spoke with one

of

> the ortho docs I consult with on patients and told him of the warning and his

> response to the pharmacist's comment was: was, easy for her to say, she would

> not have bone cancer!! So - I would appreciate some help here - opinions

> please. I am 56.

> Amber/FLRN

>

[Guest guest]

Very scary. Was this a warning in the pamphlet, as well?

in NJ

**********************************

In a message dated 1/24/2004 5:29:34 PM Eastern Standard Time,

rehab2@... writes:

> My reaction was very odd . I sprayed it in my right nostril in the

> morning, when I went to bed everything was fine and I thought, great!!

> Piece of cake!! My osteoporosis will improve. I awoke the next morning

> and the right side of my face was numb and tingly, and my right leg felt

> like rubber. IMMEDIATELY went to the doc (within an hour) and he did a

> neuro check and reported neurologically everything was fine. He

> attributed it to the Miacalcin and suggested I not eat salmon again for

> fear of an allergic reaction, (The drug is made from salmon eggs or

> ovaries or other anatomy - can't remember what). Scared the bejesus out

> of me though!!

> Amber/FLRN

[Guest guest]

I will be honest, I have had the rx for about 2 months now and have not

had it filled. Of course the $600 a month cost is an issue because my

25% would still be $150 a month, but to be honest, I am rather afraid of

taking it due to the warning below. I spoke with the pharmacist re this

and she said with my T-Scores I have an 8x great chance of idiopathic

fracture (non-trauma related) and the chance of osteosarcoma is very

small. Next I spoke with one of the ortho docs I consult with on

patients and told him of the warning and his response to the

pharmacist's comment was: was, easy for her to say, she would not have

bone cancer!! So - I would appreciate some help here - opinions please.

I am 56.

Amber/FLRN

Re: One more time - Ferritin & Osteopenia

Okey dokey, then. )

in NJ

*****************************

In a message dated 1/24/2004 2:44:33 PM Eastern Standard Time, BethVBG

writes:

and what's the little black box warning for the Forteo?

---------------

I did a quick search, out of curiosity -- it's a " doosey " ... here it is:

WARNING In male <javascript:defwindow('male')> and female

<javascript:defwindow('female')> rats, teriparatide caused an increase

in the incidence <javascript:defwindow('incidence')> of osteosarcoma

<javascript:defwindow('osteosarcoma')> (a malignant

<javascript:defwindow('malignant')> bone <javascript:defwindow('bone')>

tumor) that was dependent on dose <javascript:defwindow('dose')> and

treatment <javascript:defwindow('treatment')> duration. The effect

<javascript:defwindow('effect')> was observed at systemic

<javascript:defwindow('systemic')> exposures to teriparatide ranging

from 3 to 60 times the exposure <javascript:defwindow('exposure')> in

humans given a 20-mcg dose. Because of the uncertain relevance of the

rat <javascript:defwindow('rat')> osteosarcoma finding to humans,

teriparatide should be prescribed only to patients for whom the

potential <javascript:defwindow('potential')> benefits are considered

to outweigh the potential risk. Teriparatide should not be prescribed

for patients who are at increased baseline

<javascript:defwindow('baseline')> risk <javascript:defwindow('risk')>

for osteosarcoma <javascript:defwindow('osteosarcoma')> (including

those with Paget's disease <javascript:defwindow('disease')> of bone

<javascript:defwindow('bone')> or unexplained elevations of alkaline

<javascript:defwindow('alkaline')> phosphatase, open

<javascript:defwindow('open')> epiphyses, or prior radiation

<javascript:defwindow('radiation')> therapy

<javascript:defwindow('therapy')> involving the skeleton) (see WARNINGS

<http://216.239.39.104/forteo_wcp.htm#W> and PRECAUTIONS

<http://216.239.39.104/forteo_wcp.htm#P> , Carcinogenesis).

Doesn't make you want to run right out there and take it, does it?

Beth

Houston, TX

[Guest guest]

My reaction was very odd . I sprayed it in my right nostril in the

morning, when I went to bed everything was fine and I thought, great!!

Piece of cake!! My osteoporosis will improve. I awoke the next morning

and the right side of my face was numb and tingly, and my right leg felt

like rubber. IMMEDIATELY went to the doc (within an hour) and he did a

neuro check and reported neurologically everything was fine. He

attributed it to the Miacalcin and suggested I not eat salmon again for

fear of an allergic reaction, (The drug is made from salmon eggs or

ovaries or other anatomy - can't remember what). Scared the bejesus out

of me though!!

Amber/FLRN

Re: One more time - Ferritin & Osteopenia

Thanks, Amber. I remember you mentioning your reaction to the

Miacalcin.

I'm curious, though, what type of reaction did you have, and what's the

little

black box warning for the Forteo?

Thanks again,

in NJ

************************

In a message dated 1/24/2004 10:15:32 AM Eastern Standard Time,

rehab2@... writes:

> - I have severe osteoporosis. I could not take the Miacalcin

> but have been taking Evista for maybe 6-8 months without problems. The

> rheumatologist (who I absolutely HATE) has given me an rx for Forteo

> which is a daily injectible parathyroid which studies show return you

> to a normal bone density in 18-24 months. I have not filled the rx as

> yet as I am uncomfortable with the black box warning and I am trying

> to work through that in my mind. Amber/FLRN

>

[Guest guest]

I had Actonel samples sitting here for 2 yrs.

Finally, my endo said that it isn't the pouch that is in danger, but

the esophagus AND I'd know immediately, unlike some drugs which eat

you slowly.

Based on that, I started fresh ones (1/wk) 1/1/04. Actonel 35mg. So

far, it feels the same as nothing. I also use Miacalcin. I tried it

before but the head aches and stiff neck drove me away. This time I've

made it since about Nov 1. But the h/a and stiff neck are making me

crazy, along with unspecified vertigo which causes nausea. How on

earth could Miacalcin cause me to lose wt? But there you have the

progression, I think.

The impression I got is that if I can put some bone mass back on,

there is a chance I won't re-lose it, even going off the actonel.

That was what made me try it. Maybe I didn't get it right.

Thanks,

Vitalady, Inc. T

www.vitalady.com

If you are interested in PayPal, please click here:

https://www.paypal.com/affil/pal=orders%40vitalady.com

Re: One more time - Ferritin & Osteopenia

>

>

> Okey dokey, then. )

>

> in NJ

> *****************************

>

> In a message dated 1/24/2004 2:44:33 PM Eastern Standard Time,

BethVBG

> writes:

>

>

>

> and what's the little black box warning for the Forteo?

>

>

>

> ---------------

> I did a quick search, out of curiosity -- it's a " doosey " ... here

it is:

> WARNING In male <javascript:defwindow('male')> and female

> <javascript:defwindow('female')> rats, teriparatide caused an

increase

> in the incidence <javascript:defwindow('incidence')> of

osteosarcoma

> <javascript:defwindow('osteosarcoma')> (a malignant

> <javascript:defwindow('malignant')> bone

<javascript:defwindow('bone')>

> tumor) that was dependent on dose <javascript:defwindow('dose')>

and

> treatment <javascript:defwindow('treatment')> duration. The

effect

> <javascript:defwindow('effect')> was observed at systemic

> <javascript:defwindow('systemic')> exposures to teriparatide

ranging

> from 3 to 60 times the exposure <javascript:defwindow('exposure')>

in

> humans given a 20-mcg dose. Because of the uncertain relevance of

the

> rat <javascript:defwindow('rat')> osteosarcoma finding to humans,

> teriparatide should be prescribed only to patients for whom the

> potential <javascript:defwindow('potential')> benefits are

considered

> to outweigh the potential risk. Teriparatide should not be

prescribed

> for patients who are at increased baseline

> <javascript:defwindow('baseline')> risk

<javascript:defwindow('risk')>

> for osteosarcoma <javascript:defwindow('osteosarcoma')>

(including

> those with Paget's disease <javascript:defwindow('disease')> of

bone

> <javascript:defwindow('bone')> or unexplained elevations of

alkaline

> <javascript:defwindow('alkaline')> phosphatase, open

> <javascript:defwindow('open')> epiphyses, or prior radiation

> <javascript:defwindow('radiation')> therapy

> <javascript:defwindow('therapy')> involving the skeleton) (see

WARNINGS

> <http://216.239.39.104/forteo_wcp.htm#W> and PRECAUTIONS

> <http://216.239.39.104/forteo_wcp.htm#P> , Carcinogenesis).

>

> Doesn't make you want to run right out there and take it, does it?

>

> Beth

> Houston, TX

>

>

>

>

>

>

>

[Guest guest]

Maybe that's why they didn't work for us? But then, why would they

work for ANY of us? All I know is that 260 measly mg of carbonyl iron

is what put our ferritin thru the roof and we've been iron-free for 4

yrs. I am still ,with ferritin still at 317, serum iron at 117. Don is

now completely normal, so we kicked in the carbonyl again to HOLD him

there.

Thanks,

Vitalady, Inc. T

www.vitalady.com

If you are interested in PayPal, please click here:

https://www.paypal.com/affil/pal=orders%40vitalady.com

Re: One more time - Ferritin & Osteopenia

>

>

> > Re: Chromagen Forte...forgot to ask, dosage? , I know

you've

> > had success with this. Please tell me exactly what scrip my PCP

> > needs to write.

> >

> > Thanks again!

> >

> > in NJ

> > **********************************

> >

> >

> > >

> > > So, back to PCP I go, and ask to try Chromagen Forte. Now,

that

> > iron list that someone posted shows 3 different Chromagen

products.

> > It is the Forte, right?

> > >

> > >

> > > in NJ

> >

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

It only comes 1 way. 150mg elemental iron with some C, some IF, some

B12, some folic acid.

Thanks,

Vitalady, Inc. T

www.vitalady.com

If you are interested in PayPal, please click here:

https://www.paypal.com/affil/pal=orders%40vitalady.com

Re: One more time - Ferritin & Osteopenia

> Re: Chromagen Forte...forgot to ask, dosage? , I know you've

> had success with this. Please tell me exactly what scrip my PCP

> needs to write.

>

> Thanks again!

>

> in NJ

> **********************************

>

>

> >

> > So, back to PCP I go, and ask to try Chromagen Forte. Now, that

> iron list that someone posted shows 3 different Chromagen

products.

> It is the Forte, right?

> >

> >

> > in NJ

>

> >

>

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

As far as I know, only Amber and I had a reaction to the MIacalcin

and mine was certainly not as dramatic.

Thanks,

Vitalady, Inc. T

www.vitalady.com

If you are interested in PayPal, please click here:

https://www.paypal.com/affil/pal=orders%40vitalady.com

One more time - Ferritin & Osteopenia

> OK, O wise ones! Latest labs & dexa: the last 3 years Ferritin

was 31/18/14

> (range 10-232). Yes, I see the writing on the wall. I've been

taking

> Niferex, and after doubling up this past year, it's still on that

slippery slope.

> So, back to PCP I go, and ask to try Chromagen Forte. Now, that

iron list that

> someone posted shows 3 different Chromagen products. It is the

Forte, right?

> Also, I don't see that it has intrinsic factor, anyone know if it

does?

> (Posting site again as I'm sure some haven't seen it):

>

>

http://www.pdrhealth.com/drug_info/nmdrugprofiles/nutsupdrugs/tables/iron.shtm

> l

>

> Also, 2nd dexa still shows osteopenia. Just an FYI, my sister

(always thin,

> not a WLS patient) is 1 year older than me, and has opsteporosis.

So,

> although I didn't have a baseline pre-WLS, it may be genetic and

not related to the

> WLS...we'll never know. So, have to go see my gyno for meds.

Now, I know

> Fosomax is a pouch burner, but what about the others? I think the

consensus was

> Myacalcin, although I believe some have had a bad reaction. So,

what can we

> try and what can't we?

>

> Thank you!

>

> in NJ

> open RNY 8/99

> staple line disruption

> lap stomach transection 8/00

> abdominoplasty 11/02

> breast reduction 7/03

>

>

>

[Guest guest]

The Forte, that is

Thanks,

Vitalady, Inc. T

www.vitalady.com

If you are interested in PayPal, please click here:

https://www.paypal.com/affil/pal=orders%40vitalady.com

Re: One more time - Ferritin &

Osteopenia

>

>

> > Re: Chromagen Forte...forgot to ask, dosage? , I know

you've

> > had success with this. Please tell me exactly what scrip my

PCP

> > needs to write.

> >

> > Thanks again!

> >

> > in NJ

> > **********************************

> >

> >

> > >

> > > So, back to PCP I go, and ask to try Chromagen Forte. Now,

that

> > iron list that someone posted shows 3 different Chromagen

> products.

> > It is the Forte, right?

> > >

> > >

> > > in NJ

> >

> > >

> >

> >

> >

> >

> > Homepage: http://groups.yahoo.com/group/Graduate-OSSG

> >

> > Unsubscribe: mailto:Graduate-OSSG-unsubscribe

> >

> >

> >

> >

> >

[Guest guest]

The Forte, that is

Thanks,

Vitalady, Inc. T

www.vitalady.com

If you are interested in PayPal, please click here:

https://www.paypal.com/affil/pal=orders%40vitalady.com

Re: One more time - Ferritin &

Osteopenia

>

>

> > Re: Chromagen Forte...forgot to ask, dosage? , I know

you've

> > had success with this. Please tell me exactly what scrip my

PCP

> > needs to write.

> >

> > Thanks again!

> >

> > in NJ

> > **********************************

> >

> >

> > >

> > > So, back to PCP I go, and ask to try Chromagen Forte. Now,

that

> > iron list that someone posted shows 3 different Chromagen

> products.

> > It is the Forte, right?

> > >

> > >

> > > in NJ

> >

> > >

> >

> >

> >

> >

> > Homepage: http://groups.yahoo.com/group/Graduate-OSSG

> >

> > Unsubscribe: mailto:Graduate-OSSG-unsubscribe

> >

> >

> >

> >

> >

[Guest guest]

Well, the B-12 heald steady from last year at 580, and I take extra C

with it. So, I'm thinking to make sure it has IF, too?

Now, I'll have to talk my PCP into changing iron. He'll usually do

it on my 2nd request, and I mentioned the drop when I got my scrip

and found out he was missing the past lab pages with Ferritin on them

(very strange). So, I faxed them to him, and now I have to talk him

into testing the ferritin again at 3 or 6 months ( I do once a year

labs).

in NJ

*************************

>

> It only comes 1 way. 150mg elemental iron with some C, some IF,

some B12, some folic acid.

>

>

> Thanks,

>

>

> Vitalady, Inc. T

> www.vitalady.com

>

[Guest guest]

Well, the B-12 heald steady from last year at 580, and I take extra C

with it. So, I'm thinking to make sure it has IF, too?

Now, I'll have to talk my PCP into changing iron. He'll usually do

it on my 2nd request, and I mentioned the drop when I got my scrip

and found out he was missing the past lab pages with Ferritin on them

(very strange). So, I faxed them to him, and now I have to talk him

into testing the ferritin again at 3 or 6 months ( I do once a year

labs).

in NJ

*************************

>

> It only comes 1 way. 150mg elemental iron with some C, some IF,

some B12, some folic acid.

>

>

> Thanks,

>

>

> Vitalady, Inc. T

> www.vitalady.com

>

[Guest guest]

Ah, OK, thanks . Which do you think is better...Miacalcin or

Evista...and is either like Fosomax, where you can't eat or drink for

1/2 hour (or is it an hour), and have to stand (or something like

that)?

in NJ

******************************

>

> As far as I know, only Amber and I had a reaction to the MIacalcin

> and mine was certainly not as dramatic.

>

>

> Thanks,

>

>

> Vitalady, Inc. T

> www.vitalady.com

>

[Guest guest]

Ah, OK, thanks . Which do you think is better...Miacalcin or

Evista...and is either like Fosomax, where you can't eat or drink for

1/2 hour (or is it an hour), and have to stand (or something like

that)?

in NJ

******************************

>

> As far as I know, only Amber and I had a reaction to the MIacalcin

> and mine was certainly not as dramatic.

>

>

> Thanks,

>

>

> Vitalady, Inc. T

> www.vitalady.com

>

[Guest guest]

Miacalcin is the nasal spray. I'll ask about Evista vs Actonel.

Actonel is sposta be easier on the gut. I swallow it (very tiny) and

then take my shower, and usually I can remain fairly upright for that.

I can't glug 8 oz of water, but do 4 + 4 while the shower gets hot. So

far, so good. But I'm still scared.

Thanks,

Vitalady, Inc. T

www.vitalady.com

If you are interested in PayPal, please click here:

https://www.paypal.com/affil/pal=orders%40vitalady.com

Re: One more time - Ferritin & Osteopenia

> Ah, OK, thanks . Which do you think is better...Miacalcin

or

> Evista...and is either like Fosomax, where you can't eat or drink

for

> 1/2 hour (or is it an hour), and have to stand (or something like

> that)?

>

> in NJ

> ******************************

>

>

> >

> > As far as I know, only Amber and I had a reaction to the

MIacalcin

> > and mine was certainly not as dramatic.

> >

> >

> > Thanks,

> >

> >

> > Vitalady, Inc. T

> > www.vitalady.com

> >

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

I personally don't think we should EVER go more than 6 months w/o

labs. We're just fragile enough with iron and CA and potassium to need

to be tweaked. I just got labs after 6 months and they're ok, but

still need a lil tweaking.

What is nice is that all the calcium indicators are holding steady.

So apparently the muscles, organs and blood are now happy. Now, to

make happy BONES!

Thanks,

Vitalady, Inc. T

www.vitalady.com

If you are interested in PayPal, please click here:

https://www.paypal.com/affil/pal=orders%40vitalady.com

Re: One more time - Ferritin & Osteopenia

> Well, the B-12 heald steady from last year at 580, and I take

extra C

> with it. So, I'm thinking to make sure it has IF, too?

>

> Now, I'll have to talk my PCP into changing iron. He'll usually

do

> it on my 2nd request, and I mentioned the drop when I got my scrip

> and found out he was missing the past lab pages with Ferritin on

them

> (very strange). So, I faxed them to him, and now I have to talk

him

> into testing the ferritin again at 3 or 6 months ( I do once a

year

> labs).

>

> in NJ

> *************************

>

>

> >

> > It only comes 1 way. 150mg elemental iron with some C, some

IF,

> some B12, some folic acid.

> >

> >

> > Thanks,

> >

> >

> > Vitalady, Inc. T

> > www.vitalady.com

> >

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

I don't know as I am not due to have another dexascan until the spring

of this year. I am scared of the osteoporosis and scared of the

Forteo - seems they are both bad, just gotta determine which is the

least bad. Amber/FLRN

Re: One more time - Ferritin & Osteopenia

Wow, tough call, Amber. My first question is how is the Evista working

for

you? Are you showing any signs of improvement, or is it just supposed

to

prevent further bone loss?

in NJ

************************

In a message dated 1/24/2004 5:09:05 PM Eastern Standard Time,

rehab2@... writes:

> I will be honest, I have had the rx for about 2 months now and have

> not had

> it filled. Of course the $600 a month cost is an issue because my 25%

would

> still be $150 a month, but to be honest, I am rather afraid of taking

it due

> to the warning below. I spoke with the pharmacist re this and she said

with

> my T-Scores I have an 8x great chance of idiopathic fracture

(non-trauma

> related) and the chance of osteosarcoma is very small. Next I spoke

with one of

> the ortho docs I consult with on patients and told him of the warning

and his

> response to the pharmacist's comment was: was, easy for her to say,

she would

> not have bone cancer!! So - I would appreciate some help here -

opinions

> please. I am 56.

> Amber/FLRN

>

[Guest guest]

I do not believe it was but doc attributed it to that since it happened

within 24 hours of my first dose, there were no neurological

abnormalities, and it went away sometime during the half life of the

drug.

Amber/FLRN

Re: One more time - Ferritin & Osteopenia

Very scary. Was this a warning in the pamphlet, as well?

in NJ

**********************************

In a message dated 1/24/2004 5:29:34 PM Eastern Standard Time,

rehab2@... writes:

> My reaction was very odd . I sprayed it in my right nostril in

> the morning, when I went to bed everything was fine and I thought,

> great!! Piece of cake!! My osteoporosis will improve. I awoke the next

> morning and the right side of my face was numb and tingly, and my

> right leg felt like rubber. IMMEDIATELY went to the doc (within an

> hour) and he did a neuro check and reported neurologically everything

> was fine. He attributed it to the Miacalcin and suggested I not eat

> salmon again for fear of an allergic reaction, (The drug is made from

> salmon eggs or ovaries or other anatomy - can't remember what). Scared

> the bejesus out of me though!! Amber/FLRN

[Guest guest]

By the same token, although I don't know which one is worse, one

consideration is that the osteoporosis is a confirmed diagnosis, whereas the

side effects

of the Forteo are only a warning, although very serious.

Amber, is there any way of calling the manufacturer to find out what the true

stats are. IOW, instead of just stating that XXX drug has been know to cause

cancer in laboratory animals, ask what dosage they were receiving and what

percentage actually got cancer. Sometimes it's a very high dosgae and low

percentage, and the warning is more of a CYA for the manufacturer.

Just a thought,

in NJ

***************************

In a message dated 1/26/2004 2:06:35 PM Eastern Standard Time,

juliaz@... writes:

> I would bet that the osteoporosis is worse. You can stop taking a drug

> if it doesn't help or otherwise makes you ill, but osteoporosis seems to

> be permanent. But not fun either way.

>

> Z

> Open RNY 09/17/01

> http://www.ziobro.us

>