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Re: Re: now on prednisone

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ann,

Actually what inhibits the transfer of O2 from the lungs to our bloodstream is the scarring itself. The scarring occurs at the very areas where the transfer occurs. The alveoli thicken and become stiff which does not allow the O2 to pass from the lungs to the blood.

The idea that our lungs 'snap closed' has more to do with feeling short of breath than anything else in my opinion. When I go out in the cold I get a strong feeling that my lungs have snaped shut. It's really hard to get air in and I cough like a TB patient. It ain't pretty.

The phrase that Donna's doctor used to help explain the lung condition is just that, a way to help her (and us by extension) understand.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sun, January 10, 2010 5:45:36 PMSubject: Re: now on prednisone

One more input here. This is a link to a rather simplistic animation of the lungs in action. http://www.smm. org/heart/ lungs/breathing. htmAs you can see they don't open/close as in door or valve; but they do expand and contract. Add scar tissue to the expanding and contracting lung and you have lungs that spring back quickly, as has been suggested, to their original shape. In normal lungs possibly the slower deflation allows for more O2 uptake? When my pulmo explained "traction bronchiectisis" he said the scar tissue creates traction on the bronchi, therefore forcing it into shapes that are unable to expel mucous normally. This leads to congestion and infection. Good conversation here. Hope it continues for a bit longer.ann> >> >> >>From: Donna <dmkemper (AT) comcast (DOT) net>> >>Subject: now on prednisone> >>To: Breathe-Support@ yahoogroups. com> >>Date: Saturday,

January 9, 2010, 11:28 AM> >>> >>> >>Â > >>I went back to the doc this week due to worsening shortness of breath. They gave me the walk test and determined that I do not need 02 yet. That is good news. I have a nasty rash on my legs and upper arms also. They think something new is going on. The pulmonologist decided to go ahead and treat with prednisone. I started with 60 mg on Tuesday. The rash is some better. Does it take awhile to start working?> >>> >>I do not understand why I have shortness of breath yet still have oxygen in the 90% range. I thought shortness of breath meant low )2. Guess I do not know much about this yet. Can someone explain?> >>> >> > >> >>

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Hmmm, Very interesting site thank you, I noticed that they showed the diaphragm muscle. I had no clue how big this muscle was. I did a test and they said mine was hardly not working at all. Now I can see the trouble it causes. It was done with a sniff test. Link here Erna

1992 bird fanciers syndrome CAD & MI 2004 ILD 2008 NSIP 2009

Washington State

To: Breathe-Support Sent: Sun, January 10, 2010 2:45:36 PMSubject: Re: now on prednisone

One more input here. This is a link to a rather simplistic animation of the lungs in action. http://www.smm. org/heart/ lungs/breathing. htmAs you can see they don't open/close as in door or valve; but they do expand and contract. Add scar tissue to the expanding and contracting lung and you have lungs that spring back quickly, as has been suggested, to their original shape. In normal lungs possibly the slower deflation allows for more O2 uptake? When my pulmo explained "traction bronchiectisis" he said the scar tissue creates traction on the bronchi, therefore forcing it into shapes that are unable to expel mucous normally. This leads to congestion and infection. Good conversation here. Hope it continues for a bit longer.ann> >> >> >>From: Donna <dmkemper (AT) comcast (DOT) net>> >>Subject: now on prednisone> >>To: Breathe-Support@ yahoogroups. com> >>Date: Saturday,

January 9, 2010, 11:28 AM> >>> >>> >>Â > >>I went back to the doc this week due to worsening shortness of breath. They gave me the walk test and determined that I do not need 02 yet. That is good news. I have a nasty rash on my legs and upper arms also. They think something new is going on. The pulmonologist decided to go ahead and treat with prednisone. I started with 60 mg on Tuesday. The rash is some better. Does it take awhile to start working?> >>> >>I do not understand why I have shortness of breath yet still have oxygen in the 90% range. I thought shortness of breath meant low )2. Guess I do not know much about this yet. Can someone explain?> >>> >> > >> >>

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i visualize the alveoli like a mesh fabric, maybe stockings

new stockings the air flows easily

damaged stockings have places where the air can't pass

wish i could draw a picture of what i am visualizing

maybe a screen like in a window would be a better visualization

a new screen has lots of holes so the air is able to circulate

a damaged screen, one that is full of crud, loses lots of holes, so the air can't circulate

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: now on prednisoneTo: Breathe-Support Date: Sunday, January 10, 2010, 6:07 PM

ann,

Actually what inhibits the transfer of O2 from the lungs to our bloodstream is the scarring itself. The scarring occurs at the very areas where the transfer occurs. The alveoli thicken and become stiff which does not allow the O2 to pass from the lungs to the blood.

The idea that our lungs 'snap closed' has more to do with feeling short of breath than anything else in my opinion. When I go out in the cold I get a strong feeling that my lungs have snaped shut. It's really hard to get air in and I cough like a TB patient. It ain't pretty.

The phrase that Donna's doctor used to help explain the lung condition is just that, a way to help her (and us by extension) understand.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: smoo <mikefergg (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 10, 2010 5:45:36 PMSubject: Re: now on prednisone

One more input here. This is a link to a rather simplistic animation of the lungs in action. http://www.smm. org/heart/ lungs/breathing. htmAs you can see they don't open/close as in door or valve; but they do expand and contract. Add scar tissue to the expanding and contracting lung and you have lungs that spring back quickly, as has been suggested, to their original shape. In normal lungs possibly the slower deflation allows for more O2 uptake? When my pulmo explained "traction bronchiectisis" he said the scar tissue creates traction on the bronchi, therefore forcing it into shapes that are unable to expel mucous normally. This leads to congestion and infection. Good conversation here. Hope it continues for a bit longer.ann> >> >> >>From: Donna <dmkemper (AT) comcast (DOT)

net>> >>Subject: now on prednisone> >>To: Breathe-Support@ yahoogroups. com> >>Date: Saturday, January 9, 2010, 11:28 AM> >>> >>> >>Â > >>I went back to the doc this week due to worsening shortness of breath. They gave me the walk test and determined that I do not need 02 yet. That is good news. I have a nasty rash on my legs and upper arms also. They think something new is going on. The pulmonologist decided to go ahead and treat with prednisone. I started with 60 mg on Tuesday. The rash is some better. Does it take awhile to start working?> >>> >>I do not understand why I have shortness of breath yet still have oxygen in the 90% range. I thought shortness of breath meant low )2. Guess I do not know much about this yet. Can someone explain?> >>> >> > >>

>>

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I totally agree with that explanation. Thats a great one with the screen Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Mon, January 11, 2010 8:26:15 AMSubject: Re: Re: now on prednisone

i visualize the alveoli like a mesh fabric, maybe stockings

new stockings the air flows easily

damaged stockings have places where the air can't pass

wish i could draw a picture of what i am visualizing

maybe a screen like in a window would be a better visualization

a new screen has lots of holes so the air is able to circulate

a damaged screen, one that is full of crud, loses lots of holes, so the air can't circulate

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: now on prednisoneTo: Breathe-Support@ yahoogroups. comDate: Sunday, January 10, 2010, 6:07 PM

ann,

Actually what inhibits the transfer of O2 from the lungs to our bloodstream is the scarring itself. The scarring occurs at the very areas where the transfer occurs. The alveoli thicken and become stiff which does not allow the O2 to pass from the lungs to the blood.

The idea that our lungs 'snap closed' has more to do with feeling short of breath than anything else in my opinion. When I go out in the cold I get a strong feeling that my lungs have snaped shut. It's really hard to get air in and I cough like a TB patient. It ain't pretty.

The phrase that Donna's doctor used to help explain the lung condition is just that, a way to help her (and us by extension) understand.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: smoo <mikefergg (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 10, 2010 5:45:36 PMSubject: Re: now on prednisone

One more input here. This is a link to a rather simplistic animation of the lungs in action. http://www.smm. org/heart/ lungs/breathing. htmAs you can see they don't open/close as in door or valve; but they do expand and contract. Add scar tissue to the expanding and contracting lung and you have lungs that spring back quickly, as has been suggested, to their original shape. In normal lungs possibly the slower deflation allows for more O2 uptake? When my pulmo explained "traction bronchiectisis" he said the scar tissue creates traction on the bronchi, therefore forcing it into shapes that are unable to expel mucous normally. This leads to congestion and infection. Good conversation here. Hope it continues for a bit longer.ann> >> >> >>From: Donna <dmkemper (AT) comcast (DOT)

net>> >>Subject: now on prednisone> >>To: Breathe-Support@ yahoogroups. com> >>Date: Saturday, January 9, 2010, 11:28 AM> >>> >>> >>Â > >>I went back to the doc this week due to worsening shortness of breath. They gave me the walk test and determined that I do not need 02 yet. That is good news. I have a nasty rash on my legs and upper arms also. They think something new is going on. The pulmonologist decided to go ahead and treat with prednisone. I started with 60 mg on Tuesday. The rash is some better. Does it take awhile to start working?> >>> >>I do not understand why I have shortness of breath yet still have oxygen in the 90% range. I thought shortness of breath meant low )2. Guess I do not know much about this yet. Can someone explain?> >>> >> > >>

>>

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thank you

i just thought of it

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: now on prednisoneTo: Breathe-Support Date: Monday, January 11, 2010, 1:05 PM

I totally agree with that explanation. Thats a great one with the screen

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Mon, January 11, 2010 8:26:15 AMSubject: Re: Re: now on prednisone

i visualize the alveoli like a mesh fabric, maybe stockings

new stockings the air flows easily

damaged stockings have places where the air can't pass

wish i could draw a picture of what i am visualizing

maybe a screen like in a window would be a better visualization

a new screen has lots of holes so the air is able to circulate

a damaged screen, one that is full of crud, loses lots of holes, so the air can't circulate

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: now on prednisoneTo: Breathe-Support@ yahoogroups. comDate: Sunday, January 10, 2010, 6:07 PM

ann,

Actually what inhibits the transfer of O2 from the lungs to our bloodstream is the scarring itself. The scarring occurs at the very areas where the transfer occurs. The alveoli thicken and become stiff which does not allow the O2 to pass from the lungs to the blood.

The idea that our lungs 'snap closed' has more to do with feeling short of breath than anything else in my opinion. When I go out in the cold I get a strong feeling that my lungs have snaped shut. It's really hard to get air in and I cough like a TB patient. It ain't pretty.

The phrase that Donna's doctor used to help explain the lung condition is just that, a way to help her (and us by extension) understand.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: smoo <mikefergg (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 10, 2010 5:45:36 PMSubject: Re: now on prednisone

One more input here. This is a link to a rather simplistic animation of the lungs in action. http://www.smm. org/heart/ lungs/breathing. htmAs you can see they don't open/close as in door or valve; but they do expand and contract. Add scar tissue to the expanding and contracting lung and you have lungs that spring back quickly, as has been suggested, to their original shape. In normal lungs possibly the slower deflation allows for more O2 uptake? When my pulmo explained "traction bronchiectisis" he said the scar tissue creates traction on the bronchi, therefore forcing it into shapes that are unable to expel mucous normally. This leads to congestion and infection. Good conversation here. Hope it continues for a bit longer.ann> >> >> >>From: Donna <dmkemper (AT) comcast (DOT) net>> >>Subject: now on prednisone> >>To: Breathe-Support@

yahoogroups. com> >>Date: Saturday, January 9, 2010, 11:28 AM> >>> >>> >>Â > >>I went back to the doc this week due to worsening shortness of breath. They gave me the walk test and determined that I do not need 02 yet. That is good news. I have a nasty rash on my legs and upper arms also. They think something new is going on. The pulmonologist decided to go ahead and treat with prednisone. I started with 60 mg on Tuesday. The rash is some better. Does it take awhile to start working?> >>> >>I do not understand why I have shortness of breath yet still have oxygen in the 90% range. I thought shortness of breath meant low )2. Guess I do not know much about this yet. Can someone explain?> >>> >> > >>

>>

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michelle

are you the one i was talking to about the web cam

it worked great last nite

i saw my daughter, grandson and grand daughter

it was fun

i think we were on for about an hour

Samara, my granddaughter, brought in lots of toys to show me and books for her mom to read while on web cam

sorry i didn't get one sooner

since my webcam is separate from the computer, i had a lot more flexibility with it

i even showed them how they looked on my computer screen

really neat

gabriel brought in his birthday presents and i watched the 3 of them eat left over birthday cake

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: now on prednisoneTo: Breathe-Support Date: Monday, January 11, 2010, 1:05 PM

I totally agree with that explanation. Thats a great one with the screen

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Mon, January 11, 2010 8:26:15 AMSubject: Re: Re: now on prednisone

i visualize the alveoli like a mesh fabric, maybe stockings

new stockings the air flows easily

damaged stockings have places where the air can't pass

wish i could draw a picture of what i am visualizing

maybe a screen like in a window would be a better visualization

a new screen has lots of holes so the air is able to circulate

a damaged screen, one that is full of crud, loses lots of holes, so the air can't circulate

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: now on prednisoneTo: Breathe-Support@ yahoogroups. comDate: Sunday, January 10, 2010, 6:07 PM

ann,

Actually what inhibits the transfer of O2 from the lungs to our bloodstream is the scarring itself. The scarring occurs at the very areas where the transfer occurs. The alveoli thicken and become stiff which does not allow the O2 to pass from the lungs to the blood.

The idea that our lungs 'snap closed' has more to do with feeling short of breath than anything else in my opinion. When I go out in the cold I get a strong feeling that my lungs have snaped shut. It's really hard to get air in and I cough like a TB patient. It ain't pretty.

The phrase that Donna's doctor used to help explain the lung condition is just that, a way to help her (and us by extension) understand.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: smoo <mikefergg (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 10, 2010 5:45:36 PMSubject: Re: now on prednisone

One more input here. This is a link to a rather simplistic animation of the lungs in action. http://www.smm. org/heart/ lungs/breathing. htmAs you can see they don't open/close as in door or valve; but they do expand and contract. Add scar tissue to the expanding and contracting lung and you have lungs that spring back quickly, as has been suggested, to their original shape. In normal lungs possibly the slower deflation allows for more O2 uptake? When my pulmo explained "traction bronchiectisis" he said the scar tissue creates traction on the bronchi, therefore forcing it into shapes that are unable to expel mucous normally. This leads to congestion and infection. Good conversation here. Hope it continues for a bit longer.ann> >> >> >>From: Donna <dmkemper (AT) comcast (DOT) net>> >>Subject: now on prednisone> >>To: Breathe-Support@

yahoogroups. com> >>Date: Saturday, January 9, 2010, 11:28 AM> >>> >>> >>Â > >>I went back to the doc this week due to worsening shortness of breath. They gave me the walk test and determined that I do not need 02 yet. That is good news. I have a nasty rash on my legs and upper arms also. They think something new is going on. The pulmonologist decided to go ahead and treat with prednisone. I started with 60 mg on Tuesday. The rash is some better. Does it take awhile to start working?> >>> >>I do not understand why I have shortness of breath yet still have oxygen in the 90% range. I thought shortness of breath meant low )2. Guess I do not know much about this yet. Can someone explain?> >>> >> > >>

>>

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Yes Joyce I'm the one. And you will love it. I know I get to talk to my great nieces on it all the time they will be 4Yrs old Jan 22. Not going to beable to make it for their BDay but will talk to them on the TV as they say. iI know that while I'm in Denver I will use it alot talking to my husband and boys. ENJOY !!ENJOY!! ENJOY!! Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Mon, January 11, 2010 12:43:53 PMSubject: Re: Re: now on prednisone

michelle

are you the one i was talking to about the web cam

it worked great last nite

i saw my daughter, grandson and grand daughter

it was fun

i think we were on for about an hour

Samara, my granddaughter, brought in lots of toys to show me and books for her mom to read while on web cam

sorry i didn't get one sooner

since my webcam is separate from the computer, i had a lot more flexibility with it

i even showed them how they looked on my computer screen

really neat

gabriel brought in his birthday presents and i watched the 3 of them eat left over birthday cake

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: now on prednisoneTo: Breathe-Support@ yahoogroups. comDate: Sunday, January 10, 2010, 6:07 PM

ann,

Actually what inhibits the transfer of O2 from the lungs to our bloodstream is the scarring itself. The scarring occurs at the very areas where the transfer occurs. The alveoli thicken and become stiff which does not allow the O2 to pass from the lungs to the blood..

The idea that our lungs 'snap closed' has more to do with feeling short of breath than anything else in my opinion. When I go out in the cold I get a strong feeling that my lungs have snaped shut. It's really hard to get air in and I cough like a TB patient. It ain't pretty.

The phrase that Donna's doctor used to help explain the lung condition is just that, a way to help her (and us by extension) understand.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: smoo <mikefergg (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 10, 2010 5:45:36 PMSubject: Re: now on prednisone

One more input here. This is a link to a rather simplistic animation of the lungs in action. http://www.smm. org/heart/ lungs/breathing. htmAs you can see they don't open/close as in door or valve; but they do expand and contract. Add scar tissue to the expanding and contracting lung and you have lungs that spring back quickly, as has been suggested, to their original shape. In normal lungs possibly the slower deflation allows for more O2 uptake? When my pulmo explained "traction bronchiectisis" he said the scar tissue creates traction on the bronchi, therefore forcing it into shapes that are unable to expel mucous normally. This leads to congestion and infection. Good conversation here. Hope it continues for a bit longer.ann> >> >> >>From: Donna <dmkemper (AT) comcast (DOT) net>> >>Subject: now on prednisone> >>To: Breathe-Support@

yahoogroups. com> >>Date: Saturday, January 9, 2010, 11:28 AM> >>> >>> >>Â > >>I went back to the doc this week due to worsening shortness of breath. They gave me the walk test and determined that I do not need 02 yet. That is good news. I have a nasty rash on my legs and upper arms also. They think something new is going on. The pulmonologist decided to go ahead and treat with prednisone. I started with 60 mg on Tuesday. The rash is some better. Does it take awhile to start working?> >>> >>I do not understand why I have shortness of breath yet still have oxygen in the 90% range. I thought shortness of breath meant low )2. Guess I do not know much about this yet. Can someone explain?> >>> >> > >>

>>

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Joyce,I have skype and I love it. When I don't feel well I can skype my grandchildren who only live about an half hour from me but I can't see at the time.I also can see my sister who live in England. It's great!To: Breathe-Support Sent: Mon, January 11, 2010 1:43:53

PMSubject: Re: Re: now on prednisone

michelle

are you the one i was talking to about the web cam

it worked great last nite

i saw my daughter, grandson and grand daughter

it was fun

i think we were on for about an hour

Samara, my granddaughter, brought in lots of toys to show me and books for her mom to read while on web cam

sorry i didn't get one sooner

since my webcam is separate from the computer, i had a lot more flexibility with it

i even showed them how they looked on my computer screen

really neat

gabriel brought in his birthday presents and i watched the 3 of them eat left over birthday cake

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) . com>Subject: Re: Re: now on prednisoneTo: Breathe-Support@ yahoogroups. comDate: Sunday, January 10, 2010, 6:07 PM

ann,

Actually what inhibits the transfer of O2 from the lungs to our bloodstream is the scarring itself. The scarring occurs at the very areas where the transfer occurs. The alveoli thicken and become stiff which does not allow the O2 to pass from the lungs to the blood.

The idea that our lungs 'snap closed' has more to do with feeling short of breath than anything else in my opinion. When I go out in the cold I get a strong feeling that my lungs have snaped shut. It's really hard to get air in and I cough like a TB patient. It ain't pretty.

The phrase that Donna's doctor used to help explain the lung condition is just that, a way to help her (and us by extension) understand.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: smoo <mikefergg (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 10, 2010 5:45:36 PMSubject: Re: now on prednisone

One more input here. This is a link to a rather simplistic animation of the lungs in action. http://www.smm. org/heart/ lungs/breathing. htmAs you can see they don't open/close as in door or valve; but they do expand and contract. Add scar tissue to the expanding and contracting lung and you have lungs that spring back quickly, as has been suggested, to their original shape. In normal lungs possibly the slower deflation allows for more O2 uptake? When my pulmo explained "traction bronchiectisis" he said the scar tissue creates traction on the bronchi, therefore forcing it into shapes that are unable to expel mucous normally. This leads to congestion and infection. Good conversation here. Hope it continues for a bit longer.ann> >> >> >>From: Donna <dmkemper (AT) comcast (DOT) net>> >>Subject: now on prednisone> >>To: Breathe-Support@

yahoogroups. com> >>Date: Saturday, January 9, 2010, 11:28 AM> >>> >>> >>Â > >>I went back to the doc this week due to worsening shortness of breath. They gave me the walk test and determined that I do not need 02 yet. That is good news. I have a nasty rash on my legs and upper arms also. They think something new is going on. The pulmonologist decided to go ahead and treat with prednisone. I started with 60 mg on Tuesday. The rash is some better. Does it take awhile to start working?> >>> >>I do not understand why I have shortness of breath yet still have oxygen in the 90% range. I thought shortness of breath meant low )2. Guess I do not know much about this yet. Can someone explain?> >>> >> > >>

>>

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