Blue Cross Blue Shield of MA

[Guest guest]

Hi Guys,

Hope you are all doing OK. I have been away from the boards for a

while because of school issues which has been consuming me for

months. Just as I get that issue sorted out, I get informed that my

new insurance company (Blue Cross Blue Shield of MA) have denied

growth hormone coverage for Jillian. She has been on the drug for 22

months and has done so well since starting it. Anyone out there with

BCBS of MA and a child with RSS get approved for coverage. If so, how

did you get approval?

Jillie is doing great. She still needs a little oxygen and some GT

feeds overnight but is otherwise forging ahead. She is walking quite

well now and has started walking up the stairs. She is eating 700 to

1000 cals a day by mouth and her variety of food is up (feeding

therapy!!). Her favorite foods are spanakopita, hummus, tomatoes,

pizza and dora cookies. She is picking up sign language quite well so

is less stressed with communication. Errol and I are taking weekly

lessons and have just found a private tutor to come to the house who

should be starting soon.

Oops - gotta go and do some work. I didn't realize it had gotten so

late. Please write or call with any info re getting approval for the

growth hormone. It's not something I can afford to pay for out of

pocket.

Have an awesome Sunday.