Re: Every one should have at home

[Guest guest]

i guess by health diary you mean the composition book that i keep for recording what is happening at home, questions for the docs and notes i take while at the docs

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Every one should have at homeTo: Breathe-Support Date: Wednesday, January 13, 2010, 10:43 AM

Thermometer. I guess thats one we've always mostly had.

Oximeter. We all know the necessity of it.

Blood Pressure machine. The occasional check never hurt and at the first sign of an issue its so essential.

Liter Meter for checking your oxygen flow.

If diabetic or bordering on it, a testing meter. You say but I don't actually have diabetes. Then what better tool to keep it that way. To follow the effects of foods and to monitor.

Health DiaryThese are all such basic tools. They can provide information your doctor has no way to know. The doctor can only get a check for a single point in time and condition. Often he gets your temperature when you're already on tylenol so it doesn't report correctly that you had a fever. He gets your blood pressure when you came up stairs and got angry waiting 2 hours for him to see you and that was after someone nearly ran over you on the way over. Then the nurse says something that bothers you right before she checks it. He gets oximeter readings in very controlled environments. You don't live like that. And he gets diabetes readings at 8 am when you've had nothing to eat but not when you celebrated your daughter's birthday with three pieces of rich cake (they only know you ate two so we won't tell them about the third).Also, the doctor depends on you for how you feel and how it started and how you've been doing. Some

sort of notes with some chronology can often help. Things we forget that give clues.

[Guest guest]

Pink

Your book is exactly what came in mind. First question always...how long

have you felt this. What were you doing when it first came on. Was it

hot? cold? Had you been outdoors a lot in the ragweed? I mean I go in

and have some condition and it's how long and I have no idea. I say

since any symptoms or since this bad? Typical end up saying years but

only this bad last couple of weeks, but I know nothing else to help

them. And especially if one has anything measurable.

>

>

> From: Bruce brucemoreland@...

> Subject: Every one should have at home

> To: Breathe-Support

> Date: Wednesday, January 13, 2010, 10:43 AM

>

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> Â

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>

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>

>

> Thermometer. I guess thats one we've always mostly had.

> Oximeter. We all know the necessity of it.

>

> Blood Pressure machine. The occasional check never hurt and at the

first sign of an issue its so essential.

> Liter Meter for checking your oxygen flow.

>

> If diabetic or bordering on it, a testing meter. You say but I don't

actually have diabetes. Then what better tool to keep it that way. To

follow the effects of foods and to monitor.Â

> Health Diary

> These are all such basic tools. They can provide information your

doctor has no way to know. The doctor can only get a check for a single

point in time and condition. Often he gets your temperature when you're

already on tylenol so it doesn't report correctly that you had a fever.

He gets your blood pressure when you came up stairs and got angry

waiting 2 hours for him to see you and that was after someone nearly ran

over you on the way over. Then the nurse says something that bothers you

right before she checks it. He gets oximeter readings in very controlled

environments. You don't live like that. And he gets diabetes readings at

8 am when you've had nothing to eat but not when you celebrated your

daughter's birthday with three pieces of rich cake (they only know you

ate two so we won't tell them about the third).

>

> Also, the doctor depends on you for how you feel and how it started

and how you've been doing. Some sort of notes with some chronology can

often help. Things we forget that give clues.

>

[Guest guest]

bruce

if there is a fever, i document times taken and if i took something for the fever

if there are cold symptoms, i might right that i noticed runny nose or sore throat 3 days ago, today, it is xyz

then when i call the doc, i can tell them what is happening

When jerry was real sick, he would forget the sequence of events, that's why i started a book for him

sometimes we can fill up several pages in one day, most of the time, weeks & months go by without writing anything

one time when i saw a different dermatologist, she was asking me about the previous appointment, i was able to look up 3 months earlier and tell her what happened and what sample he gave me

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Every one should have at homeTo: Breathe-Support Date: Wednesday, January 13, 2010, 11:21 AM

PinkYour book is exactly what came in mind. First question always...how longhave you felt this. What were you doing when it first came on. Was ithot? cold? Had you been outdoors a lot in the ragweed? I mean I go inand have some condition and it's how long and I have no idea. I saysince any symptoms or since this bad? Typical end up saying years butonly this bad last couple of weeks, but I know nothing else to helpthem. And especially if one has anything measurable.>>> From: Bruce brucemoreland@ ...> Subject: Every one should have at home> To: Breathe-Support@ yahoogroups. com> Date: Wednesday, January 13, 2010, 10:43 AM>>> Â>>>>>> Thermometer. I guess thats one we've always mostly had.> Oximeter. We all know the necessity of it.>> Blood Pressure machine. The occasional check never hurt and at thefirst sign of an issue its so essential.> Liter Meter for checking your

oxygen flow.>> If diabetic or bordering on it, a testing meter. You say but I don'tactually have diabetes. Then what better tool to keep it that way. Tofollow the effects of foods and to monitor.Â> Health Diary> These are all such basic tools. They can provide information yourdoctor has no way to know. The doctor can only get a check for a singlepoint in time and condition. Often he gets your temperature when you'realready on tylenol so it doesn't report correctly that you had a fever.He gets your blood pressure when you came up stairs and got angrywaiting 2 hours for him to see you and that was after someone nearly ranover you on the way over. Then the nurse says something that bothers youright before she checks it. He gets oximeter readings in very controlledenvironments. You don't live like that. And he gets diabetes readings at8 am when you've had nothing to eat but not when

you celebrated yourdaughter's birthday with three pieces of rich cake (they only know youate two so we won't tell them about the third).>> Also, the doctor depends on you for how you feel and how it startedand how you've been doing. Some sort of notes with some chronology canoften help. Things we forget that give clues.>

[Guest guest]

Pink

What you're doing is a very smart idea for all of us. I know I lose

concept of time frames. There was something a day or two ago that we

were thinking back to and I thought it was only a couple of weeks ago,

but realized it really was November. I think often we might say we've

had something just a few days and it really much longer or it might be

annoying enough we think its been much longer than it really has.

> >

> >

> > From: Bruce brucemoreland@ ...

> > Subject: Every one should have at home

> > To: Breathe-Support@ yahoogroups. com

> > Date: Wednesday, January 13, 2010, 10:43 AM

> >

> >

> > Â

> >

> >

> >

> >

> >

> > Thermometer. I guess thats one we've always mostly had.

> > Oximeter. We all know the necessity of it.

> >

> > Blood Pressure machine. The occasional check never hurt and at the

> first sign of an issue its so essential.

> > Liter Meter for checking your oxygen flow.

> >

> > If diabetic or bordering on it, a testing meter. You say but I don't

> actually have diabetes. Then what better tool to keep it that way. To

> follow the effects of foods and to monitor.Â

> > Health Diary

> > These are all such basic tools. They can provide information your

> doctor has no way to know. The doctor can only get a check for a

single

> point in time and condition. Often he gets your temperature when

you're

> already on tylenol so it doesn't report correctly that you had a

fever.

> He gets your blood pressure when you came up stairs and got angry

> waiting 2 hours for him to see you and that was after someone nearly

ran

> over you on the way over. Then the nurse says something that bothers

you

> right before she checks it. He gets oximeter readings in very

controlled

> environments. You don't live like that. And he gets diabetes readings

at

> 8 am when you've had nothing to eat but not when you celebrated your

> daughter's birthday with three pieces of rich cake (they only know you

> ate two so we won't tell them about the third).

> >

> > Also, the doctor depends on you for how you feel and how it started

> and how you've been doing. Some sort of notes with some chronology can

> often help. Things we forget that give clues.

> >

>

[Guest guest]

Bruce- what is a liter meter? I am on liquid and have no idea that that is. Joyce R AZ birds

[Guest guest]

Joyce Rudy

There is one shown on this page.

http://www.tinashomecare.com/oxygen_therapy_accessories.htm

It's a device to measure the liter flow and make sure the equipment is

functioning as it should.

>

> Bruce- what is a liter meter? I am on liquid and have no idea that

that is.

> Joyce R AZ birds

>