Need help for Spanish support group - fundos & lactose intolerant HELP

[Guest guest]

Hi,

The parents of a very adorable 2 year old in Spain have an RSS

daughter with a gtube. However, her reflux is worse and now the drs

are thinking fundo (they thought she wouldn't need it, too extremem to

do when they did the gtube). Childs growth has still not taken off

since the tube and reflux meds don't seem to help.

How many kids have fundos and any suggestions?

Also, need food suggestions for a mom in Brazil of a lactose

intoleratn RSS child.

THANKS!

You can email directly at mbdonnell@ hotmail.com (no space)

[Guest guest]

Hi ,

My questions/ideas/suggestions for the child with the g-tube and increased

reflux.

1) What reflux meds are they using, and have they tried a combination of a

PPI (proton pump inhibitor - Prevacid, Prilosec, etc) and an H2A (Histamine

2 antagonist - Zantac, Pepcid, etc.)

Bran takes Zantac in the morning, and Prevacid at night. Most children

taking both types of meds, have a reversed schedule. (PPI in the morning,

and H2A at night) Unfortunately, Bran suffers from aspiration problems, and

is more likely to aspirate his reflux at night. Prevacid controls his reflux

better than the Zantac, so it's given with his nighttime meds.

2) What type of feeds is the child receiving?? Are they bolus or

continuous?? Bolus feeds are more likely to produce reflux. Continual feeds

at a lower overall rate can reduce reflux.

3) Has the child been tested for delayed gastric emptying? Are they trying

any of the meds that will aid this problem?? Delayed gastric emptying can

increase reflux.

's growth did not take off until they had addressed all of these

issues, as well as keeping him healthy for an extended period of time. He

did have the triple procedure (fundo, pyloroplasty, and g-tube placement)

all at the same time. Unfortunately, due to poor physical health at the time

of surgery, he blew his fundo early on, hence the continued problems with

reflux.

Sorry that I can't offer any suggestions for the lactose intolerance

problem. My son is allergic to milk and all milk-by-products (whey, sodium

casinate, etc...) and we had to cut ANYTHING with any form of milk from his

diet.

Hope this helps.

Pat (g-ma to , RSS, 4yrs 2m old, 28# 10oz, 35 " , G-tube, GHT)