Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 bruce, the transition is done and i plan on staying on an anti depressant for a long time especially with this !@#$%$ disease Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: __PaxilTo: Breathe-Support Date: Sunday, January 17, 2010, 11:56 AM PinkThe SSRI's are especially difficult to both built and wean. Thatincludes the original group of Prozac, Zoloft, and Paxil as where as theoffshoots such as Lexapro. Also some of the old tricyclides like Doxepinand Elavil can be difficult. Wellbutrin is less of a challenge but stillinadvisable for anyone to just stop.When you're coming off its very important to watch yourself, great ifyou have a family member who can also use their awareness and yourcounselor or psychiatrist with good communication.>>> From: JerryB jerryb888@.. .> Subject: __Paxil> To: Breathe-Support@ yahoogroups. com> Date: Saturday, January 16, 2010, 11:27 PM>>> Â>>>> ,> It is my experience that "slow" is the key to dropping down onantidepressants. Having 2 brothers whose doctors reduced their dosagesrather quickly, I recommend you be cautious. Just last year I went tostay with a brother in Huntsville whose doctor stopped his Lexipro andstarted another antidepressant without any tapering. He is fine now, butI was very worried about his mental state at the time. My oldest brotherstopped Paxil too suddenly with the result that he was not able to workfor several months. Doctors should have known, but use your ownjudgement in a case where the tapering seems too fast to you. If yourprescribing physician was a psychiatreist, then he/she will probably dowhat is best for you, but otherwise don't hesitate to question if youare in doubt. After all, this is pretty much your idea.>> Although imapramine is a tricyclic antidepressant and dissimilar toSSRIs in many ways, my experience with tapering was very easy. I tookclose to 6 months to taper from 100 Mg.. Since it was my idea to stop,he pretty much left the dosing up to me. In your case, your doctorwowuld probably ok a 5 Mg. drop over time, if you both decide this isinin your best interest. I hopes this helps.>> Jerry/Mississippi/ IPF/dx April 05> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Bruce, How much is a therapeutic dose? C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! To: Breathe-Support Sent: Sun, January 17, 2010 7:53:50 PMSubject: Re: __Paxil JoyceThe reason you don't have withdrawal is that you're not on a therapeuticdosage. If you don't know why you're on it, you need to find out.I see a lot of non psychiatrists prescribing dosages below therapeuticdosages of anti-depressants. Some of them are adamant it still helpswhile most psychiatrists I've talked to have been just as adamant thatbelow a certain dosage was no more helpful than nothing. The individualpatient has to decide if they believe they're being helped.>> I am on Paxil and have gone two weeks without taking it and nothinghappens> to me. I don't know that it is there whether I have it or not. Itdoesn't> seem to affect me. I went two weeks because I needed a newprescription and> that is how lon git took to get some more. I am on the lowest doseand> have been on it for several years but i hae no idea why I am on it. Iam not> clinically depressed or anxious. Joyce R AZ birds> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 I see my doc next month so will ask why I'm on it. I don't think it does anything for me. It's lik eit isnh't there. My Primary just gave me some Spirea to help with the bronchitis and the scaring of my bronchials. She thinks the scaring is just because of age. I am 65. But it wasn't there 6 months ago! Jewish took exrays and it wasn't there. She said it is minimal. Also, she said, no she would not give the ok for me to swim without oxygen. I got the ok to go back to Medically supervised exercise and will go back tomorrow. I don't understand how my endurance can go down but my scarring has stopped! I just don't understand it. I should be getting better! I am so confused as to how my endurance can go down but I am not scaring. Have you heard of anything lke that? She did not put me on blood pressure meds because my blood pressure was low when I went in today. Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 But, I saw my doctor today and she said it sounded like my endurance was getting worse and she's glad I will be going to Jewish in March because they will give me tests. But how can that be? My fibrosis is because of BIRDS and I got rid of all my birds and bird things.....I don't even encourage birds to com einto my yard to feed! My scarring has stopped though there shows that I can continue scaring again but it hasn't. How, how can my endurance be down????? When I told her it made me sad that I can no longer to Aquafit...she said to remember that my goal is to live 5 years....5 years???? I should be getting better! I don't have any bird things! I am so perplexed! Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Yes Pink, I think going back to exercising will help...I am just frustrated and ranting. It will be a year in March that I went to jewish and last time I went he said i was stable and he said that was success. Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Yes, Beverly Joy, I am stressed out because i had to give up swimming but truthfully nothing will change because i don't swim. I will go to the Pendleton Center 5 days a week instead of 3.My ranting will calm down I am surel.....I am sorry you have no endurnce....I know there are wso many people on this board who are in worse shape then I am and i shouldn't really become so frustrated and rant like this. Did you have birds? I see that you have a problem with birds. Parrots? Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Joyce,Just a fairly new newbie sticking her 2 cents in here. You can yell at me if I am wrong, but I am getting the idea that you think that you will get better. There is no getting better from this blasted disease. No, there is no expiration date on your butt, but you will not get better! If your doctor wants you on O2, even if you think it doesn't help, it does. It makes your breathing easier. Listen to your doctor. The scarring is there for life, just like a surgery scar.I'm sorry I'm being so harsh, but you're part of my Air Family, and I want you around for a while.Kathy ILD/Hypersensitivity pneumonitis 3/08 Type 2 diabetes forever agoSubject: Re: Re: __PaxilTo: Breathe-Support Date: Monday, January 18, 2010, 2:10 PM I see my doc next month so will ask why I'm on it. I don't think it does anything for me. It's lik eit isnh't there. My Primary just gave me some Spirea to help with the bronchitis and the scaring of my bronchials. She thinks the scaring is just because of age. I am 65. But it wasn't there 6 months ago! Jewish took exrays and it wasn't there. She said it is minimal. Also, she said, no she would not give the ok for me to swim without oxygen. I got the ok to go back to Medically supervised exercise and will go back tomorrow. I don't understand how my endurance can go down but my scarring has stopped! I just don't understand it. I should be getting better! I am so confused as to how my endurance can go down but I am not scaring. Have you heard of anything lke that? She did not put me on blood pressure meds because my blood pressure was low when I went in today. Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 kathy thanks for telling her i think her question is, since she rehomed the birds that caused the fibrosis, why does it or her endurance seem to be getting worse there may be other issues, like waiting for the thyroid medicine to kick in, or the brochitis the bronchitis that I had in December took a lot out of me, i worry that it affected my fibrosis plus sometimes when you don't go to rehab for awhile, you start to decompensate and you need to build yourself up again this has been my experience Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: __PaxilTo: Breathe-Support Date: Monday, January 18, 2010, 6:25 PM Joyce,Just a fairly new newbie sticking her 2 cents in here. You can yell at me if I am wrong, but I am getting the idea that you think that you will get better. There is no getting better from this blasted disease. No, there is no expiration date on your butt, but you will not get better! If your doctor wants you on O2, even if you think it doesn't help, it does. It makes your breathing easier. Listen to your doctor. The scarring is there for life, just like a surgery scar.I'm sorry I'm being so harsh, but you're part of my Air Family, and I want you around for a while.Kathy ILD/Hypersensitivit y pneumonitis 3/08 Type 2 diabetes forever ago From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: Re: Re: __PaxilTo: Breathe-Support@ yahoogroups. comDate: Monday, January 18, 2010, 2:10 PM I see my doc next month so will ask why I'm on it. I don't think it does anything for me. It's lik eit isnh't there. My Primary just gave me some Spirea to help with the bronchitis and the scaring of my bronchials. She thinks the scaring is just because of age. I am 65. But it wasn't there 6 months ago! Jewish took exrays and it wasn't there. She said it is minimal. Also, she said, no she would not give the ok for me to swim without oxygen. I got the ok to go back to Medically supervised exercise and will go back tomorrow. I don't understand how my endurance can go down but my scarring has stopped! I just don't understand it. I should be getting better! I am so confused as to how my endurance can go down but I am not scaring. Have you heard of anything lke that? She did not put me on blood pressure meds because my blood pressure was low when I went in today. Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Joyce R, Once the scarring is done it can't be undone. We have to stay away from the things that we are hypersensitive to and try to stay stable. Don't listen to the 5 years just stay stable. I don't know about the endurance because I don't have any. If I could get moved I would try to get into the Capri class that is doing again. Maybe I could build some up. I think that you are so stressed out that may be affecting your endurance.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren's,Fibromyalgia IdahoSubject: Re: Re: __PaxilTo: Breathe-Support Date: Monday, January 18, 2010, 6:13 PM But, I saw my doctor today and she said it sounded like my endurance was getting worse and she's glad I will be going to Jewish in March because they will give me tests. But how can that be? My fibrosis is because of BIRDS and I got rid of all my birds and bird things.....I don't even encourage birds to com einto my yard to feed! My scarring has stopped though there shows that I can continue scaring again but it hasn't. How, how can my endurance be down????? When I told her it made me sad that I can no longer to Aquafit...she said to remember that my goal is to live 5 years....5 years???? I should be getting better! I don't have any bird things! I am so perplexed! Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 I don't have birds and I didn't. I got this from having my roof and ceiling replaced. When they removed it a lot of stuff came down into the house and my center beam (I have an older mobile) was filled with bird nestings. I hope they cleaned it out but I don't know for sure. The roof is fixed but I'm sure that some of that stuff is still in the house. I have a housekeeper but I have been wearing a mask and trying to dust and vacuum in some of the places that I know she never gets to. Someone is supposed to be trying to get financing to buy my house but I haven't heard anything. I don't know how long that takes but I'm sure that my agent won't let me know if she doesn't get it.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren's,Fibromyalgia IdahoSubject: Re: Re: __PaxilTo: Breathe-Support Date: Monday, January 18, 2010, 8:14 PM Yes, Beverly Joy, I am stressed out because i had to give up swimming but truthfully nothing will change because i don't swim. I will go to the Pendleton Center 5 days a week instead of 3.My ranting will calm down I am surel.....I am sorry you have no endurnce.... I know there are wso many people on this board who are in worse shape then I am and i shouldn't really become so frustrated and rant like this. Did you have birds? I see that you have a problem with birds. Parrots? Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Beverly you need your house professional cleaned, I know it is a lot of money..... Is there away you could ask a community action service or someone... I needed to have this done and did not know the consequences as they really did not tell me how serious it was. It was not untill I found some of my records that they talked if I could have just gotten my home proffesional cleaned.... I also finally figured out when my Mom had a fire what professional cleaning a home really means. All she had was some smoke demage. Please try and get some finacial help to get this accomplished. 1992 bird fanciers syndrome, CAD & MI 2004 ,ILD 2008 NSIP 2009 Washington State From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: Re: Re: __PaxilTo: Breathe-Support@ yahoogroups. comDate: Monday, January 18, 2010, 8:14 PM Yes, Beverly Joy, I am stressed out because i had to give up swimming but truthfully nothing will change because i don't swim. I will go to the Pendleton Center 5 days a week instead of 3.My ranting will calm down I am surel.....I am sorry you have no endurnce.... I know there are wso many people on this board who are in worse shape then I am and i shouldn't really become so frustrated and rant like this. Did you have birds? I see that you have a problem with birds. Parrots? Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Beverly Joy- how did they DX you for birds? And who did that? joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 It was Dr. Raghu at the University of Washington ILD center. He Dx it from all of my tests. My PC and 2 pulmo's records of all of the tests I have had. It is a Center of Excellence.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren's,Fibromyalgia IdahoSubject: Re: Re: __PaxilTo: Breathe-Support Date: Tuesday, January 19, 2010, 10:24 AM Beverly Joy- how did they DX you for birds? And who did that? joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 I forgot. It wasn't just birds. It was mold, too. My roof and ceiling were completely rotten. One of the beams was about to fall on my head. Then there was all of the bird stuff in my main beam. I would have been alright if my roof hadn't needed replaced. Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren's,Fibromyalgia IdahoSubject: Re: Re: __PaxilTo: Breathe-Support Date: Tuesday, January 19, 2010, 10:24 AM Beverly Joy- how did they DX you for birds? And who did that? joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 BJ- how do you know it was birds and mold. Specifically birds. Who DX you? What did they do? Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 Joyce R. I answered this yesterday. Maybe you missed it. To make it short I was Dx by Dr. Raghu at the University of Washington ILD clinic. It is a Center of Excellence.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren's,Fibromyalgia IdahoSubject: Re: Re: __PaxilTo: Breathe-Support Date: Wednesday, January 20, 2010, 6:41 PM BJ- how do you know it was birds and mold. Specifically birds. Who DX you? What did they do? Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
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