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From Boston-SGA-Growth Hormone Test

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Hi everyone,

I'm new here and I'm so glad I found you. I have a 5

year old who was born at 28 weeks and SGA (1lb. 14

oz.). He now weighs 28 lbs at age 5. We have just

started to add things up and then at the same time I

found Magic Foundation. It's a bit overwhelming as we

now have apts with gastro doctor, IEPs (fine motor and

processing issues), developmental pediatrician, sleep

clinic (issues waking up several times a night and we

are all exhausted) and Endo in Boston, MA. My son is

scheduled for a GH test on April 5. I didn't get a

lot of info from the Endo and want to know exactly

what to expect. Can someone help me with some

details?

I also want to know about the antihistamine

(Periactin?) for increasing appetite. My concern is

that my son is already exhausted since he's not

sleeping well at night. I don't want him walking

around in a daze from the meds and having this affect

school. The pediatrician says it's short-lived and

works for a bit but not long-term. Is this true and

has this worked for others? Are kids who take this in

a fog all day?

I know Magic has some info on this and I've asked for

them, but I'm really interested in personal

experiences.

Is there anyone in Boston who I could connect with?

If so, please call me on my cell at . I

could use some support right now. We are going

through a tough time and our family all lives out of

town.

Thank you so much.

Jill

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