Re: achy from head to toe different body parts on/off

[Guest guest]

RA does not move around like that. It is serious joint inflammation, so it would

not come and go quickly. It can affect different joints, usually symmetrical.

They would be enlarged and painful. What you have could be viral- flu like since

you just had a lot of D.

Fibro is treated with antidepressants, and then emotional work helps too along

with diet, acupuncture, massage and so forth.

RA is treated first with anti inflammatories but beware the NSAIDS that will

tear up your gut. Sulfasalazine treats both arthritis and IBD. After that comes

the immunosuppressors.

The rheumatologist will check you out, but note that SCD also helps many with

these conditions as well, since they are all autoimmune. So does LDN if you have

not already tried it.

Hope you feel better,

PJ

>

> have an appt with rhuematologist for fear of fibro RA etc but could this just

be me recovering from that 5 week flare i gave myself?? feels flu-like but

doesn't stay and switches to different parts -weird - and annoying!!

> eileen

> 2 years 9 months scd

>

[Guest guest]

Hey Eileen,

You eat dairy?

Jodi

>

> have an appt with rhuematologist for fear of fibro RA etc but could this just

be me recovering from that 5 week flare i gave myself?? feels flu-like but

doesn't stay and switches to different parts -weird - and annoying!!

> eileen

> 2 years 9 months scd

>

[Guest guest]

Hi PJ,

Can you please expand on what you mean by " symmetrical " ?

Just curious

Jodi

[Guest guest]

i was thinking LDN too but thought it didn't work if you have yeast?? i'll let

you all know what happens

thanks

eileen

> >

> > have an appt with rhuematologist for fear of fibro RA etc but could this

just be me recovering from that 5 week flare i gave myself?? feels flu-like but

doesn't stay and switches to different parts -weird - and annoying!!

> > eileen

> > 2 years 9 months scd

> >

>

[Guest guest]

used to - haven't tolerated in well in amost a year I think - i was having

dccc daily (tons) but cut back a few weeks back but that was pre any of these

aches/pains

eileen

> >

> > have an appt with rhuematologist for fear of fibro RA etc but could this

just be me recovering from that 5 week flare i gave myself?? feels flu-like but

doesn't stay and switches to different parts -weird - and annoying!!

> > eileen

> > 2 years 9 months scd

> >

>

[Guest guest]

I think it could be some kind of internal warning signs that some level of

symptoms

may be ongoing from your episode - I know these things always go together for

me. Take epsom salt baths until they resolve.

Mara

> used to - haven't tolerated in well in amost a year I think - i was having

dccc daily (tons) but cut back a few weeks back but that was pre any of these

aches/pains

> eileen

>

>

>>>

>>> have an appt with rhuematologist for fear of fibro RA etc but could this

just be me recovering from that 5 week flare i gave myself?? feels flu-like but

doesn't stay and switches to different parts -weird - and annoying!!

>>> eileen

>>> 2 years 9 months scd

[Guest guest]

thanks i needed to hear that -was starting to think no not another chronic

problem!!

will the bath affect a 24 urine test for mag potassium sodium that i'm doing in

2 days??

eileen

> >>>

> >>> have an appt with rhuematologist for fear of fibro RA etc but could this

just be me recovering from that 5 week flare i gave myself?? feels flu-like but

doesn't stay and switches to different parts -weird - and annoying!!

> >>> eileen

> >>> 2 years 9 months scd

>

[Guest guest]

Just wanted to add that if you've had lots of D, you may be dehydrated (which

can cause achyness) and possible anemic? Do you know if your blood levels are

ok? It'd be worth checking. Anemia can make you achy anywhere.

FEEL BETTER!!!!

-Joanna

SCD 9/2009, Crohn's 1992, 20mg Prednisone

>

> thanks i needed to hear that -was starting to think no not another chronic

problem!!

> will the bath affect a 24 urine test for mag potassium sodium that i'm doing

in 2 days??

> eileen

[Guest guest]

>> i was thinking LDN too but thought it didn't work if you have yeast?? > i'll let you all know what happens> thanks> eileen> >>>> RA does not move around like that. It is serious joint inflammation, so >> it would not come and go quickly. It can affect different joints, >> usually symmetrical. They would be enlarged and painful. What you have >> could be viral- flu like since you just had a lot of D.>>>> Fibro is treated with antidepressants, and then emotional work helps >> too along with diet, acupuncture, massage and so forth.>>>> RA is treated first with anti inflammatories but beware the NSAIDS that >> will tear up your gut. Sulfasalazine treats both arthritis and IBD. >> After that comes the immunosuppressors.>>>> The rheumatologist will check you out, but note that SCD also helps >> many with these conditions as well, since they are all autoimmune. So >> does LDN if you have not already tried it.>>>> Hope you feel better,>> PJThat kind of muscle achiness and joint pain can be part of Crohn's (I don't know about UC). There's a type of arthritis that's directly related. And it does "move around."  But as I said, it often includes muscle aches as well as joint pain. It can also be allergy related (and perhaps arthritis in general is allergy related.) And yes, LDN helps a great deal because it helps regulate the immune system. I've had an interesting thing happen. I'm at the point on the diet at which I've been able to re-introduce some non-diet foods. One of those is the occasional piece of sourdough bread (real sourdough made without yeast; so some extent the sourdough breaks down the starches in the flour). BUT, if I eat it too often I have a reaction -- the reaction, however, is not first of all in my gut (I've had Crohn's for 30+ years). It's in my muscles and joints. I get achy and sore. I interpret that as some kind of allergic/immune system response. Incidentally, my husband is on the diet also, though he doesn't need to be. He's been on it to lose weight, which he has. He had some chicken and biscuits the other night, in addition to having eaten some rye bread before and he got a similar response: achiness/joint pain. (he has post-polio syndrome, incidentally, and is on LDN, as am I for Crohn's.) n_____________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of  a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com  

[Guest guest]

That's what they say about LDN, that if you have yeast or it's latent and

after your immune system perks up on LDN which can bring out a yeast

problem to fight, that you should give up LDN and get rid of the yeast.

However, I didn't do that. Almost immediately on LDN, and even on a

very very low dose, I got immune improvement and wasn't willing to give

that up. So I just kept on with it while taking Diflucan for a few months

earlier in the year, and by gosh, it still helped me. So my

suspicion is, you just won't make progress quite as fast. I'm glad

I didn't stop it.

i was thinking LDN too but thought it didn't work if you have yeast??

i'll let you all know what happens

thanks

eileen

[Guest guest]

you mean it will stop yeast progress right? who cares at this point - lol BUT I

have an irregular heartbeat that has kept my doc from wanting to give me LDN

thus far

eileen

>

> That's what they say about LDN, that if you have yeast or it's latent

> and after your immune system perks up on LDN which can bring out a

> yeast problem to fight, that you should give up LDN and get rid of

> the yeast. However, I didn't do that. Almost immediately on LDN, and

> even on a very very low dose, I got immune improvement and wasn't

> willing to give that up. So I just kept on with it while taking

> Diflucan for a few months earlier in the year, and by gosh, it still

> helped me. So my suspicion is, you just won't make progress quite as

> fast. I'm glad I didn't stop it.

>

>

> i was thinking LDN too but thought it didn't work if you have yeast??

> i'll let you all know what happens

> thanks

> eileen

>

[Guest guest]

thanks - will get rechecked - i give myself b-12 shots here every 2 weeks but

haven't been tested since D - also i'm drinking 10-14 cups a day since to

re-hydrate -most of those scd e-lyte - and taking pot and mag - as

charlie-horses were so bad - that stopped but now this!!

thanks

eileen

> >

> > thanks i needed to hear that -was starting to think no not another chronic

problem!!

> > will the bath affect a 24 urine test for mag potassium sodium that i'm doing

in 2 days??

> > eileen

>

[Guest guest]

> you mean it will stop yeast progress right? who cares at this point - > lol BUT I have an irregular heartbeat that has kept my doc from wanting > to give me LDN thus far> eileen>I've never heard of anyone staying away from LDN because of an irregular heartbeat. I'm curious as to why he thinks he thinks that might be bad, and what effect it would have. It has no side effects that a lot of the potent gastrointestinal-disease drugs have. In fact, it could possibly help for the irregular heartbeat. You might want to ask about this on the LDN Yahoo list. n

[Guest guest]

BUT I have an irregular heartbeat that has kept my doc from wanting to give me

LDN thus far

> eileen>>

How is your magnesium level?

Artful Carol

Former me: From babyhood - CFS, some depression, Candida, Chemical, Inhalant,

and Food Allergies. Current me: Global Carb and Fungal Problems well-controlled

past 30 yr. by extremely low-carb, no dairy, no grains allergy/anti-yeast diet,

SCD 01/05. After 35 yrs. no need for allergy shots since SCD! Magnesium/Vits

A, B, D, E/Evening Primrose, Fish, Olive, and Other Oils, Lecithin. 2 grown kids

recovered from serious developmental problems which I believe were

fungally-caused.

[Guest guest]

No, more the other way around, they say that if you have yeast it will

render the LDN ineffective. That was not my experience though it might

have slowed it down a bit. I would keep LDN again if I had to treat

yeast at the same time. The general way LDN works is to step up

endorphin production. This makes you feel better, more cheerful, well

worthwhile right there! The extra endorphins apparently improve

your immune system, much needed by most of us with gut or immune/auto

immune problems. Then (and I admit, I'm a little shaky on

understanding HOW it works, but I believe them) this improvement in the

immune system allows various problems that have been latent or sort of

suppressed to come back to the fore so the immune system can fight them.

These problems include yeast. It does not mean that LDN causes

yeast problems. In a way I sort of see it like die-off: you may

have some worse periods on the road to getting better.

you mean it will stop yeast progress right? who cares at this point -

lol BUT I have an irregular heartbeat that has kept my doc from wanting

to give me LDN thus far

eileen

[Guest guest]

Yahoo has an LDN group with many people that can answer a

lot of questions about how it works for them. I used LDN for 6 months and didn’t

gain any benefits from using it. Some people have huge positive changes from

using it and some seem to not be helped at all. On the LDN group, many mix

their own LDN with a naltrexone tablet and distilled water so that they can

change the dose. Sometimes starting lower than 4.5 mg is the key to doing well

with it. Some start at 1 mg and then go up from there.

Kim B

[Guest guest]

Heh.. I meant we need to be our own doctors LOL.

>

> ,

>

> I think *one* of the concerns physicians have with the heartbeat thing and LDN

is due to if someone has an underlying thyroid or even like an adrenal issue-

giving LDN may cause the thyroid to go wonky ergo the heartbeat is affected..

like swinging from HYPO to HYPER etc..

>

> To me, in general it's a bit unfounded since thyroid meds can be adjusted. I

am not saying this is the easiest thing in the world- in the sense that it is

not annoying but the alternative of suffering with bowel disease..ehh.. I know

in the LDN community they say thyroid is only affected by LDN if one has

auto-immune Thyroid disease like Hashi's.. But, I personally have seen it on

myself where my thyroid went beyond wonky on LDN and I do not have auto-immune

thyroid disease. Now, I have my issues with modern testing and antibodies etc..

but that is totally like fringe LOL.

>

> LDN is one of those things where we need to be our patient.

> Personally, I dig the docs I have today but I constantly question them because

today I understand that some of their reasoning can be somewhat unreasonable!

>

> Jodi

>

[Guest guest]

Like if one knee hurts, often the other one hurts as well- same joints on both

sides of the body.

PJ

>

> Hi PJ,

>

> Can you please expand on what you mean by " symmetrical " ?

> Just curious

>

> Jodi

>

[Guest guest]

Hi PJ,

Wow.. that so has not been my experience with joint issues.

They usually jump from one place to the next.. Like one knee and then the

other.. like not at the same time.

I've had a ton of dx's thrown at me..

SCD really helped.. LDN really shifted it too- when I am on it I don't have

those bouts of getting stiff with pulsating pain, having trouble walking.. It's

gotten so much better over time being on the diet. It used to be quite the

nightmare.

Jodi

> >

> > Hi PJ,

> >

> > Can you please expand on what you mean by " symmetrical " ?

> > Just curious

> >

> > Jodi

> >

>

[Guest guest]

Yes, I was thinking specifically about RA- rheumatoid arthritis, but there are

many kinds- since Eileen was wondering about RA. I think there are many reasons

for joint pain though.

PJ

> > >

> > > Hi PJ,

> > >

> > > Can you please expand on what you mean by " symmetrical " ?

> > > Just curious

> > >

> > > Jodi

> > >

> >

>

[Guest guest]

PJ,

Interesting..

I totally agree with you..

I've had RA thrown at me too.

I didn't know it works that way with RA.

I'm continually fascinated by how the human body works.

Thanks for the explaination

Jodi

> > > >

> > > > Hi PJ,

> > > >

> > > > Can you please expand on what you mean by " symmetrical " ?

> > > > Just curious

> > > >

> > > > Jodi

> > > >

> > >

> >

>

[Guest guest]

Jodi--

Your joint pain jumping around could possibly have been from your Lyme or co-infections ( if you had it at the time) as well.

Terry

[Guest guest]

Yes! Which reminds me. I haven't seen my acupuncturist for awhile

but she's always very interested in other protocols and asks about them.

So I was telling her about the diet and figuring out what works and

doesn't. She listened and then, with a twinkle in her eye, said, " It

sounds like you are your own science experiment. " Which, we

are!

Heh.. I meant we need to be our own doctors LOL.

[Guest guest]

,

AJ actually made his own make-shift lab in his basement with used equipment from

EBAY and close University labs. In order to do his own research and understand

the mechanism with SCD and other protocols and IBD.

Way cool!!

Talk about taking matters into our own hands, aye?

Jodi

>

> Yes! Which reminds me. I haven't seen my acupuncturist for awhile

> but she's always very interested in other protocols and asks about

> them. So I was telling her about the diet and figuring out what works

> and doesn't. She listened and then, with a twinkle in her eye, said,

> " It sounds like you are your own science experiment. " Which, we are!

>

>

> Heh.. I meant we need to be our own doctors LOL.

>

[Guest guest]

Terry,

Very good point indeed.

I have mild flares from time to time in my sacral area (nothing at all the way

it used to be- needing VIOXX and shot after shot of toradol.. narcotics don't

touch it)

I did have a massive joint flare when I discovered the E. Hystolitica this past

year.. I went back on LDN and LDN took care of it with-in that very night..

which was miraculous to say the least!! It was not a good flare, I was

considering Plaquenil at some point. Since too much Toradol ain't a good thing.

Thank you though for pointing it out for me and connecting it to the Lyme

co-infections.. I forget about that ohh so not very small detail in all of those

years of the hunt of what was wrong.

Jodi

>

> Jodi--

>

> Your joint pain jumping around could possibly have been from your Lyme or

co-infections ( if you had it at the time) as well.

>

> Terry

>