Re: new Positional Plagiocephaly diagnosis

[Guest guest]

Thank you so much for the wonderful support! You are all so fabulous and

validating!

After I sent the initial question to the forum I was able to pull some strings

(yay connections) and have my son looked at by a neurosurgeon on lunch and it's

looking like the CT scan is a good idea. I was also able to get him in first

thing tomorrow morning for the scan and while I'm hangin in there for the most

part, I'm anxious to learn the results. I'm a bit fearful of it all but know it

has to be done and probably my son will fare better than I am!!!

I will let you all know what the results are and will cross my fingers the

doctors who have looked at my sons head were just visualy impaired due to sleep

deprivation...or something:)

Thanks again,

Ally

> > >

> > > Hello,

> > > I am new to this forum and was hoping I might be able to get some

> helpful information about treatment for Plagiocephaly. Perhaps the

> information I am seeking can already be found in this forum, so I

> apologize if I'm posting my question prematurely.

> > >

> > > My son is 9 months old and has a VERY flat head. The doctor told me

> today that he wants a CT scan to see if my son's plates have fused

> together and if they have, wants to do a surgery of some kind to break

> them. He acted like it wasn't a big deal and said the babies he's

> worked with on this have recovered successfully, but I am hesitant to

> feel too happy about anyone breaking my son's skull unless it is

> absolutely necessary for healthy brain development.

> > >

> > > I've read a little about treatments for this condition and it sounds

> like this surgical procedure recommended by my doctor isn't necessarily

> encouraged anymore. Is my doctor outdated (although, he's probably only

> 40 years old himself)? What are the main concerns involved in the

> medical procedure to break apart skull plates? What are the outcomes and

> risks?

> > >

> > > If anyone has any medical resources they can direct me to about this

> procedure or research that discourages it, I'd be so very appreciative.

> I truly just want my son to be ok and don't want to jump into a medical

> procedure that might not be good for him. Obviously a second opinion

> will be in order after the CT scan, and a referral to a specialist. But

> I'd like to go into these appointments relatively informed so I can

> advocate for my son to receive appropriate treatments for his condition.

> > >

> > > Thank you for any time you have to help me out!

> > >

> > > Ally

> > >

> >

>