Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Hi and everyone,I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something. He encourages me everyday not to give up (sometimes I feel like it). He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he sent me Phil because he knew that I would need him. Thanks for listening.To: Breathe-Support Sent: Sat, January 16, 2010 10:31:57 PMSubject: lucky spouse I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me.I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy)Love Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Hi and , I just wanted to say that I just had my 42nd wedding anniversary, and I feel as lucky as the both of you do about your husbands. My husband is a great caregiver. He does and will do everything and anything that needs to be done. I never thought that I would have to be taken care of. I've taken care of everyone all of my life. I'm not helpless, but I can't take the smell of cleaning supplies, and he likes his clorox, so I have to step out. We went to bed, bath and beyond and I couldn't take the smell in their store. I walked around the store with my hand over my mouth, and had to breathe in my hand. He gets very bossy sometimes, LOL. I don't eat when I should, don't walk when I should, etc. He says he doesn't get any sleep with the way I breathe. He says I'm either making these gurgling sounds or if he can't hear me breathing he reaches over to make sure I'm still alive. > > Hi and everyone, > I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something. He encourages me everyday not to give up (sometimes I feel like it).. He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he sent me > Phil because he knew that I would need him. > Thanks for listening. > > > > > > ________________________________ > > To: Breathe-Support > Sent: Sat, January 16, 2010 10:31:57 PM > Subject: lucky spouse > > > I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. > > Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. > > The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me. > > I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy) > > Love > > Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 you may beed a cpap with him having to wake you up Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Sun, January 17, 2010 10:25:51 AMSubject: Re: lucky spouse Hi and , I just wanted to say that I just had my 42nd wedding anniversary, and I feel as lucky as the both of you do about your husbands. My husband is a great caregiver. He does and will do everything and anything that needs to be done. I never thought that I would have to be taken care of. I've taken care of everyone all of my life. I'm not helpless, but I can't take the smell of cleaning supplies, and he likes his clorox, so I have to step out. We went to bed, bath and beyond and I couldn't take the smell in their store. I walked around the store with my hand over my mouth, and had to breathe in my hand. He gets very bossy sometimes, LOL. I don't eat when I should, don't walk when I should, etc. He says he doesn't get any sleep with the way I breathe. He says I'm either making these gurgling sounds or if he can't hear me breathing he reaches over to make sure I'm still alive. > > Hi and everyone, > I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something. He encourages me everyday not to give up (sometimes I feel like it).. He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go.. So I look back on 35 years ago and thank God that he sent me > Phil because he knew that I would need him. > Thanks for listening. > > > > > > ____________ _________ _________ __ > > To: Breathe-Support@ yahoogroups. com > Sent: Sat, January 16, 2010 10:31:57 PM > Subject: lucky spouse > > > I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. > > Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. > > The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me. > > I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy) > > Love > > Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 That is so great and . Cuz it's hard when you live alone to stay motivated, I haven't gotten depressed because I've been so busy since my diagnosis making changes to my life, but some days its just too damn quiet in this house. I find myself talking to the dog! It doesn't help that I live out in the country. I bought my house before my diagnosis. So, it is now up for sale, I'm not staying out here. I'm going to move back into town and my youngest daughter and I are going to live together. I am so looking forward to it! I will be closer to friends and family, activities I can do, and all my medical facilities. C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! To: Breathe-Support Sent: Sun, January 17, 2010 6:35:00 AMSubject: Re: lucky spouse Hi and everyone,I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something. He encourages me everyday not to give up (sometimes I feel like it). He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he sent me Phil because he knew that I would need him. Thanks for listening. From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Sat, January 16, 2010 10:31:57 PMSubject: lucky spouse I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me.I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy)Love Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 one of the worst stores for me to enter is AC i go in the out door because the smelly stuff is by the in door Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: lucky spouseTo: Breathe-Support Date: Sunday, January 17, 2010, 11:25 AM Hi and ,I just wanted to say that I just had my 42nd wedding anniversary, and I feel as lucky as the both of you do about your husbands. My husband is a great caregiver. He does and will do everything and anything that needs to be done. I never thought that I would have to be taken care of. I've taken care of everyone all of my life. I'm not helpless, but I can't take the smell of cleaning supplies, and he likes his clorox, so I have to step out. We went to bed, bath and beyond and I couldn't take the smell in their store. I walked around the store with my hand over my mouth, and had to breathe in my hand. He gets very bossy sometimes, LOL. I don't eat when I should, don't walk when I should, etc. He says he doesn't get any sleep with the way I breathe. He says I'm either making these gurgling sounds or if he can't hear me breathing he reaches over to make sure I'm still alive. >> Hi and everyone,> I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something. He encourages me everyday not to give up (sometimes I feel like it).. He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he sent me> Phil because he knew that I would need him. > Thanks for listening.> > > > > > ____________ _________ _________ __> > To: Breathe-Support@ yahoogroups. com> Sent: Sat, January 16, 2010 10:31:57 PM> Subject: lucky spouse> > > I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. > > Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. > > The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me.> > I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy)> > Love> > Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 we will help with the motivation, if you need us. Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Sun, January 17, 2010 3:00:44 PMSubject: Re: lucky spouse That is so great and . Cuz it's hard when you live alone to stay motivated, I haven't gotten depressed because I've been so busy since my diagnosis making changes to my life, but some days its just too damn quiet in this house. I find myself talking to the dog! It doesn't help that I live out in the country. I bought my house before my diagnosis. So, it is now up for sale, I'm not staying out here. I'm going to move back into town and my youngest daughter and I are going to live together. I am so looking forward to it! I will be closer to friends and family, activities I can do, and all my medical facilities. C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: Terry Oettinger <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 6:35:00 AMSubject: Re: lucky spouse Hi and everyone,I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something. He encourages me everyday not to give up (sometimes I feel like it). He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he sent me Phil because he knew that I would need him. Thanks for listening. From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Sat, January 16, 2010 10:31:57 PMSubject: lucky spouse I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it.. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming.. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me.I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy)Love Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 motivation is tough for me being home alone most of the day Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: lucky spouseTo: Breathe-Support Date: Sunday, January 17, 2010, 6:08 PM we will help with the motivation, if you need us. Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 3:00:44 PMSubject: Re: lucky spouse That is so great and . Cuz it's hard when you live alone to stay motivated, I haven't gotten depressed because I've been so busy since my diagnosis making changes to my life, but some days its just too damn quiet in this house. I find myself talking to the dog! It doesn't help that I live out in the country. I bought my house before my diagnosis. So, it is now up for sale, I'm not staying out here. I'm going to move back into town and my youngest daughter and I are going to live together. I am so looking forward to it! I will be closer to friends and family, activities I can do, and all my medical facilities. C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: Terry Oettinger <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 6:35:00 AMSubject: Re: lucky spouse Hi and everyone,I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something. He encourages me everyday not to give up (sometimes I feel like it). He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he sent me Phil because he knew that I would need him. Thanks for listening. From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Sat, January 16, 2010 10:31:57 PMSubject: lucky spouse I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it.. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming.. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me.I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy)Love Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 , when I first came on I remember reading about your home in the country. We used to live in the country and I don't think I would want to be out there now even with Phil around. Too quiet! Especially when it snows!To: Breathe-Support Sent: Sun, January 17, 2010 4:00:44 PMSubject: Re: lucky spouse That is so great and . Cuz it's hard when you live alone to stay motivated, I haven't gotten depressed because I've been so busy since my diagnosis making changes to my life, but some days its just too damn quiet in this house. I find myself talking to the dog! It doesn't help that I live out in the country. I bought my house before my diagnosis.. So, it is now up for sale, I'm not staying out here. I'm going to move back into town and my youngest daughter and I are going to live together. I am so looking forward to it! I will be closer to friends and family, activities I can do, and all my medical facilities. C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: Terry Oettinger <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 6:35:00 AMSubject: Re: lucky spouse Hi and everyone,I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something.. He encourages me everyday not to give up (sometimes I feel like it). He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he sent me Phil because he knew that I would need him.. Thanks for listening. From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Sat, January 16, 2010 10:31:57 PMSubject: lucky spouse I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me.I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy)Love Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 , Yes, if it snows I'm really stuck! Luckily, this year we haven't had any snowfall here, just rain. The decision to move was one I made a few months after my diagnosis. I do love it out here at times and I'll miss my house; but it no longer suits my new lifestyle. More importantly, I had to make the decision to sell now that I'm on disability and can't afford my mortgage. C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! To: Breathe-Support Sent: Sun, January 17, 2010 4:55:43 PMSubject: Re: lucky spouse , when I first came on I remember reading about your home in the country. We used to live in the country and I don't think I would want to be out there now even with Phil around. Too quiet! Especially when it snows! From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 4:00:44 PMSubject: Re: lucky spouse That is so great and . Cuz it's hard when you live alone to stay motivated, I haven't gotten depressed because I've been so busy since my diagnosis making changes to my life, but some days its just too damn quiet in this house. I find myself talking to the dog! It doesn't help that I live out in the country. I bought my house before my diagnosis... So, it is now up for sale, I'm not staying out here. I'm going to move back into town and my youngest daughter and I are going to live together. I am so looking forward to it! I will be closer to friends and family, activities I can do, and all my medical facilities. C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: Terry Oettinger <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 6:35:00 AMSubject: Re: lucky spouse Hi and everyone,I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something.. He encourages me everyday not to give up (sometimes I feel like it). He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he sent me Phil because he knew that I would need him.. Thanks for listening. From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Sat, January 16, 2010 10:31:57 PMSubject: lucky spouse I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me.I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy)Love Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 While its tough " downsizing " for these reasons, one thing I've been reminded of more than once in my life is how much simpler life can be. In this country especially, we've so gotten use to more space and house than we needed. I remember as a single man always renting 3 bedroom apartments and in restrospect, all I can ask myself is why. Now, when I moved to NYC for a year, I had the smallest apartment of my life and paid the most rent of my life. But ultimately my life wasn't adversely impacted by less space. I looked at living in beautiful settings a couple of years ago and ultimately realized they didn't make sense for me at this point versus the convenience and access of where I am. I miss lakes and mountains and beauty and quiet but if I moved I sure would miss services and convenience to everything. I looked in Eastern Texas at a beautiful lake community but when I realized that the nearest doctors of any sort were 45 minutes and hospital was an hour and that the only ambulance service was a helicopter transport because it would take too long by car (and thats not mentioning how far to a supermarket or stores), I knew that just couldn't work now. I'm not minimizing yours or anyone's loss but I am saying that I do believe you'll be amazed how little you miss some aspects and how nice some of the changes are. > > , > Yes, if it snows I'm really stuck! Luckily, this year we haven't had any snowfall here, just rain. The decision to move was one I made a few months after my diagnosis. I do love it out here at times and I'll miss my house; but it no longer suits my new lifestyle. More importantly, I had to make the decision to sell now that I'm on disability and can't afford my mortgage. >  > C_53_Familial IPF_5/09, Washington > HOPE doesn't disappoint! > > > > > > ________________________________ > From: Terry Oettinger iltopaint@... > To: Breathe-Support > Sent: Sun, January 17, 2010 4:55:43 PM > Subject: Re: lucky spouse > >  > , when I first came on I remember reading about your home in the country. We used to live in the country and I don't think I would want to be out there now even with Phil around. Too quiet! Especially when it snows! > > > > > > ________________________________ > From: worth hope2thend (AT) yahoo (DOT) com> > To: Breathe-Support@ yahoogroups. com > Sent: Sun, January 17, 2010 4:00:44 PM > Subject: Re: lucky spouse > >  > That is so great and . Cuz it's hard when you live alone to stay motivated, I haven't gotten depressed because I've been so busy since my diagnosis making changes to my life, but some days its just too damn quiet in this house. I find myself talking to the dog!  > It doesn't help that I live out in the country. I bought my house before my diagnosis.. So, it is now up for sale, I'm not staying out here. I'm going to move back into town and my youngest daughter and I are going to live together. I am so looking forward to it! I will be closer to friends and family, activities I can do, and all my medical facilities. >  > C_53_Familial IPF_5/09, Washington > HOPE doesn't disappoint! > > > > > > ________________________________ > From: Terry Oettinger iltopaint (AT) yahoo (DOT) com> > To: Breathe-Support@ yahoogroups. com > Sent: Sun, January 17, 2010 6:35:00 AM > Subject: Re: lucky spouse > >  > Hi and everyone, > I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something.. He encourages me everyday not to give up (sometimes I feel like it). He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he > sent me Phil because he knew that I would need him.. > Thanks for listening. > > > > > > ________________________________ > From: Gascoigne <michelle.gascoigne@ yahoo.com> > To: Breathe-Support@ yahoogroups. com > Sent: Sat, January 16, 2010 10:31:57 PM > Subject: lucky spouse > >  > I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. > > Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. > > The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me. > > I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy) > > Love > > Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Oh, I talk to my dog ALL the time!! Because of him, I really don't feel like I live alone at all!! He is my bestest friend!! CaroMissippi, COPD 2005, UIP January 2007, Sjogren syndrome July 2008, polymyositis/dermatomyositis November 2008, Fatty liver disease June 2009, Lupus (SLE)July 2009, mixed connective tissue disease August 2009 To: Breathe-Support Sent: Sun, January 17, 2010 3:00:44 PMSubject: Re: lucky spouse That is so great and . Cuz it's hard when you live alone to stay motivated, I haven't gotten depressed because I've been so busy since my diagnosis making changes to my life, but some days its just too damn quiet in this house. I find myself talking to the dog! It doesn't help that I live out in the country. I bought my house before my diagnosis. So, it is now up for sale, I'm not staying out here. I'm going to move back into town and my youngest daughter and I are going to live together. I am so looking forward to it! I will be closer to friends and family, activities I can do, and all my medical facilities. C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: Terry Oettinger <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 6:35:00 AMSubject: Re: lucky spouse Hi and everyone,I just want to say how truly lucky I am to have my husband as well. I am so thankful to Phil, my husband of 35 years.. When we found out that I have this terrible disease we were both in shock and cried. When we were first married he had a hard time showing his love for his children in the hugging, kissing department and I was always telling our children that he(their dad) loved them and to force themselves on him. Kiss him, hug him and they did just that. Now, I have 2 children who love their dad and their dad loves them physically and I know that when I am no longer with them that they will have each other. Phil takes care of my every need too. He won't make be over do anything but gets mad if I don't do something. He encourages me everyday not to give up (sometimes I feel like it). He cooks our meals will clean when he has too (doesn't like too) and will take me anywhere I want to go. So I look back on 35 years ago and thank God that he sent me Phil because he knew that I would need him. Thanks for listening. From: Gascoigne <michelle.gascoigne@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Sat, January 16, 2010 10:31:57 PMSubject: lucky spouse I will tell you I have a wonderful husband. We have been married for 28 years and have to grown boys in their 20's they are great too!!! But I don't know what to say. What a support he has been, He actually has did the laundry probably for the past 10 years. Yes he does, doesn't iron though (got to teach him that one LOL) We both have always taken turns cooking He is a really good cook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with the resting. But he is now doing all the floors, washing and vacuuming. The dusting a do a little at a time (never liked to clean any how) Had a great gal who cleaned every two weeks for me for about 2 years and they moved back to Peru, haven't been able to replace her, I miss her was a great friend.. Mental support is a little lacking though which is ok, You see if you don't talk about it there is nothing wrong. (OK?). But he is dealing with all this crap the best he can, and that's ok. He tells me that all he wants is for me to do, and go where ever I think they will help me stay the same or get better. What ever I think is best for me and he will agree. The other thing is that I have always been the caregiver and organizer of both families to make sure everyone is ok, and if not I usually make sure they are and its hard for him and really hard for myself to stop being that person which I probably won't, I will be making sure that everyone is ok when the time comes for me to go and you know what that's alright with me.I thank God everynight that I found this air family, because truthfully I don't know what I would do otherwise. (Probably go crazy)Love Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Bruce, Thanks for your note of enocuragement. It's true the decision to move from a house I really love and the wide-open space of my property, the huge evergreens, and quiet serenity is something I will miss.... I also feel certain I'll find a place that will be just as comfortable, maybe more so! Plus it will mean more than just a place to live. I'll have more of a social life with family and friends near, security, convenience, medical facilities nearby, and activities I am still capable of doing and don't have to drive 45min to get to them! I have grieved through some of these changes I've had to make, but the grieving only last a short-time and then I try to look on the better side of things. C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! To: Breathe-Support Sent: Sun, January 17, 2010 9:36:01 PMSubject: Re: lucky spouse While its tough "downsizing" for these reasons, one thing I've beenreminded of more than once in my life is how much simpler life can be.In this country especially, we've so gotten use to more space and housethan we needed. I remember as a single man always renting 3 bedroomapartments and in restrospect, all I can ask myself is why. Now, when Imoved to NYC for a year, I had the smallest apartment of my life andpaid the most rent of my life. But ultimately my life wasn't adverselyimpacted by less space.I looked at living in beautiful settings a couple of years ago andultimately realized they didn't make sense for me at this point versusthe convenience and access of where I am. I miss lakes and mountains andbeauty and quiet but if I moved I sure would miss services andconvenience to everything. I looked in Eastern Texas at a beautiful lakecommunity but when I realized that the nearest doctors of any sort were45 minutes and hospital was an hour and that the only ambulance servicewas a helicopter transport because it would take too long by car (andthats not mentioning how far to a supermarket or stores), I knew thatjust couldn't work now. I'm not minimizing yours or anyone's loss but Iam saying that I do believe you'll be amazed how little you miss someaspects and how nice some of the changes are.>> ,> Yes, if it snows I'm really stuck! Luckily, this year we haven't hadany snowfall here, just rain. The decision to move was one I made afew months after my diagnosis.. I do love it out here at timesÂand I'll miss my house; but it no longer suits my new lifestyle. More importantly, I had to make the decision to sell now that I'm ondisability and can't afford my mortgage.> Â> C_53_Familial IPF_5/09, Washington> HOPE doesn't disappoint!>>>>>> ____________ _________ _________ __> From: Terry Oettinger iltopaint@.. .> To: Breathe-Support@ yahoogroups. com> Sent: Sun, January 17, 2010 4:55:43 PM> Subject: Re: lucky spouse>> Â> , when I first came on I remember reading about your home in thecountry. We used to live in the country and I don't think I wouldwant to be out there now even with Phil around. Too quiet! Especially when it snows!> >>>>> ____________ _________ _________ __> From: worth hope2thend (AT) yahoo (DOT) com>> To: Breathe-Support@ yahoogroups. com> Sent: Sun, January 17, 2010 4:00:44 PM> Subject: Re: lucky spouse>> Â> That is so great and . Cuz it's hard when you livealone to stay motivated, I haven't gotten depressed because I've been sobusy since my diagnosis making changes to my life, but some days itsjust too damn quiet in this house.. I find myself talking to the dog!ÂÂ> It doesn't help that I live out in the country. I bought my housebefore my diagnosis.. So, it is now up for sale, I'm not staying outhere. I'm going to move back into town and my youngest daughter andI are going to live together. I am so looking forward to it! I willbe closer to friends and family, activities I can do, and all my medicalfacilities.> Â> C_53_Familial IPF_5/09, Washington> HOPE doesn't disappoint!>>>>>> ____________ _________ _________ __> From: Terry Oettinger iltopaint (AT) yahoo (DOT) com>> To: Breathe-Support@ yahoogroups. com> Sent: Sun, January 17, 2010 6:35:00 AM> Subject: Re: lucky spouse>> Â> Hi and everyone,> I just want to say how truly lucky I am to have my husband aswell. I am so thankful to Phil, my husband of 35 years. Whenwe found out that I have this terrible disease we were both in shock andcried. When we were first married he had a hard time showing hislove for his children in the hugging, kissing department and I wasalways telling our children that he(their dad) loved them and to forcethemselves on him. Kiss him, hug him and they did just that. Now, I have2 children who love their dad and their dad loves them physically and Iknow that when I am no longer with them that they will have each other.Phil takes care of my every need too. He won't make be over doanything but gets mad if I don't do something.. He encourages meeveryday not to give up (sometimes I feel like it). He cooks ourmeals will clean when he has too (doesn't like too) and will take meanywhere I want to go. So I look back on 35 years ago and thankGod that he> sent me Phil because he knew that I would need him..> Thanks for listening.> >>>>> ____________ _________ _________ __> From: Gascoigne <michelle.gascoigne @ yahoo.com>> To: Breathe-Support@ yahoogroups. com> Sent: Sat, January 16, 2010 10:31:57 PM> Subject: lucky spouse>> Â> I will tell you I have a wonderful husband. We have been marriedfor 28 years and have to grown boys in their 20's they are greattoo!!! But I don't know what to say. What a support hehas been, He actually has did the laundry probably for the past 10years. Yes he does, doesn't iron though (got to teach him that oneLOL) We both have always taken turns cooking He is a really goodcook, I used to do all the cleaning, I try to still do some of it. Cleaned my bathroom today and it took probably an hour or so with theresting. But he is now doing all the floors, washing andvacuuming. The dusting a do a little at a time (never liked toclean any how) Had a great gal who cleaned every two weeks for mefor about 2 years and they moved back to Peru, haven't been able toreplace her, I miss her was a great friend..Â>> Mental support is a little lacking though which is ok, You see if youdon't talk about it there is nothing wrong. (OK?). But he isdealing with all this crap the best he can, and that's ok. He tellsme that all he wants is for me to do, and go where ever I think theywill help me stay the same or get better. What ever I think is bestfor me and he will agree.Â>> The other thing is that I have always been the caregiver and organizerof both families to make sure everyone is ok, and if not I usually makesure they are and its hard for him and really hard for myself to stopbeing that person which I probably won't, I will be making sure thateveryone is ok when the time comes for me to go and you know what that'salright with me.>> I thank God everynight that I found this air family, becausetruthfully I don't know what I would do otherwise. (Probably go crazy)>> Love>> Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009> Quote Link to comment Share on other sites More sharing options...
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