Re: Not quite Sophie's Choice...

[Guest guest]

Steve, Woa...what a decision to

have to make under those conditions.

Your perfect match is out there. Patience obviously is needed now.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

s_knip51 wrote:

....but, the toughest choice I've ever had to make!

As some of you that are friends of mine on Facebook may already know,

last night I got..."the call"! But, it wasn't quite what I had pictured

in my mind all this time.

The bottom line is that after three months of being active on the list,

I got my call - just as we were finishing dinner out (Friday night is

our "date" night!. So, there I was, sitting in a booth at our favorite

restaurant, talking with one of the doctors from the transplant team

about the possibility of accepting a less than optimum lung. Since the

team itself, had concerns and were kind enough to discuss it with me,

we decided to wait for a "better" match. Details for those interested

on my Caring Bridge website...

www.caringbridge.org/visit/stephenknipstein/journal

[Guest guest]

Steve,

You're right. Not quite 'Sophies choice' but a dilemma nonetheless. I'm glad the transplant folks were able to talk it through with you and you are comfortable with the decision. I think I probably would have ended up deciding the same way especially since you don't get penalized in any way for turning down this particular opportunity.

I'm sure getting that call brought the reality of the whole thing home in a new way. Please know that you are in my thoughts and prayers every day and I'm following your adventure on Caring Bridge also!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sat, January 16, 2010 7:00:02 PMSubject: Not quite "Sophie's Choice"...

....but, the toughest choice I've ever had to make!As some of you that are friends of mine on Facebook may already know, last night I got..."the call"! But, it wasn't quite what I had pictured in my mind all this time.The bottom line is that after three months of being active on the list, I got my call - just as we were finishing dinner out (Friday night is our "date" night!. So, there I was, sitting in a booth at our favorite restaurant, talking with one of the doctors from the transplant team about the possibility of accepting a less than optimum lung. Since the team itself, had concerns and were kind enough to discuss it with me, we decided to wait for a "better" match. Details for those interested on my Caring Bridge website...www.caringbridge. org/visit/ stephenknipstein /journal

[Guest guest]

Steve/ Beth

I'm glad to see those choices being offered. I know its a difficult

decision but I do believe it's one the patient should be offered and

should have the right to make. In the past there have been lungs not

used, which while not perfect, might have saved a life. I have one

friend who got a lung that probably wouldn't have been given to her at

another location. She's alive and well and she didn't have time to wait

longer. As healthy as Steve still is, I do fully understand waiting.

It's just some of the changes working well. Just don't second guess your

choice Steve. Be happy that you were able to fully discuss it with

experts who recognized all sides and you would appear to be in good

position for one before too long.

>

> Steve,

> You're right. Not quite 'Sophies choice' but a dilemma

nonetheless. I'm glad the transplant folks were able to talk it through

with you and you are comfortable with the decision. I think I probably

would have ended up deciding the same way especially since you don't get

penalized in any way for turning down this particular opportunity.

>

> I'm sure getting that call brought the reality of the whole

thing home in a new way. Please know that you are in my thoughts and

prayers every day and I'm following your adventure on Caring Bridge

also!

> Â

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> Â

> Â

>

>

>

>

> ________________________________

> From: s_knip51 sknipstein@...

> To: Breathe-Support

> Sent: Sat, January 16, 2010 7:00:02 PM

> Subject: Not quite " Sophie's Choice " ...

>

> Â

> ...but, the toughest choice I've ever had to make!

>

> As some of you that are friends of mine on Facebook may already know,

last night I got... " the call " ! But, it wasn't quite what I had pictured

in my mind all this time.

>

> The bottom line is that after three months of being active on the

list, I got my call - just as we were finishing dinner out (Friday night

is our " date " night!. So, there I was, sitting in a booth at our

favorite restaurant, talking with one of the doctors from the transplant

team about the possibility of accepting a less than optimum lung. Since

the team itself, had concerns and were kind enough to discuss it with

me, we decided to wait for a " better " match. Details for those

interested on my Caring Bridge website...

>

> www.caringbridge. org/visit/ stephenknipstein /journal

>

[Guest guest]

steve

glad you got the call, sorry it was the wrong call

I have heard about people who actually go to the transplant center, get prepped and then the docs tell them that the organ is not appropriate

the next one will be a better match

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Not quite "Sophie's Choice"...To: Breathe-Support Date: Saturday, January 16, 2010, 7:00 PM

....but, the toughest choice I've ever had to make!As some of you that are friends of mine on Facebook may already know, last night I got..."the call"! But, it wasn't quite what I had pictured in my mind all this time.The bottom line is that after three months of being active on the list, I got my call - just as we were finishing dinner out (Friday night is our "date" night!. So, there I was, sitting in a booth at our favorite restaurant, talking with one of the doctors from the transplant team about the possibility of accepting a less than optimum lung. Since the team itself, had concerns and were kind enough to discuss it with me, we decided to wait for a "better" match. Details for those interested on my Caring Bridge website...www.caringbridge. org/visit/ stephenknipstein /journal

[Guest guest]

My sister sent me this website too. I will check it out. Would like to be friends with you too on facebook. Next call will be it!!!To: Breathe-Support Sent: Sat, January 16, 2010 7:00:02 PMSubject: Not

quite "Sophie's Choice"...

....but, the toughest choice I've ever had to make!

As some of you that are friends of mine on Facebook may already know, last night I got..."the call"! But, it wasn't quite what I had pictured in my mind all this time.

The bottom line is that after three months of being active on the list, I got my call - just as we were finishing dinner out (Friday night is our "date" night!. So, there I was, sitting in a booth at our favorite restaurant, talking with one of the doctors from the transplant team about the possibility of accepting a less than optimum lung. Since the team itself, had concerns and were kind enough to discuss it with me, we decided to wait for a "better" match. Details for those interested on my Caring Bridge website...

www.caringbridge. org/visit/ stephenknipstein /journal

[Guest guest]

tried to open website but wouldn't open. Can you send it again? To: Breathe-Support Sent: Sat, January 16, 2010 7:00:02 PMSubject: Not quite "Sophie's Choice"...

....but, the toughest choice I've ever had to make!

As some of you that are friends of mine on Facebook may already know, last night I got..."the call"! But, it wasn't quite what I had pictured in my mind all this time.

The bottom line is that after three months of being active on the list, I got my call - just as we were finishing dinner out (Friday night is our "date" night!. So, there I was, sitting in a booth at our favorite restaurant, talking with one of the doctors from the transplant team about the possibility of accepting a less than optimum lung. Since the team itself, had concerns and were kind enough to discuss it with me, we decided to wait for a "better" match. Details for those interested on my Caring Bridge website...

www.caringbridge. org/visit/ stephenknipstein /journal

[Guest guest]

I'm on Facebook.

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #28 - Good doctors

Consider what a great forest is set ablaze by a small spark. ( 3:5)

To: Breathe-Support Sent: Sun, January 17, 2010 10:19:16 AMSubject: Not quite "Sophie's Choice"...

Just wondering how many people here are also on Facebook?

Patti Indianapolis PF 2007

[Guest guest]

I'm on facebook tooTo: Breathe-Support Sent: Sun, January 17, 2010 10:26:07 AMSubject: Re: Not quite "Sophie's Choice"...

I'm on Facebook.

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #28 - Good doctors

Consider what a great forest is set ablaze by a small spark. ( 3:5)

From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 10:19:16 AMSubject: Not quite "Sophie's Choice"...

Just wondering how many people here are also on Facebook?

Patti Indianapolis PF 2007

[Guest guest]

I'm on Facebook.

The only Bill Crafton with an 8th grade black and white picture. That was the last time I was cute so I use that one.

[Guest guest]

Steve.... I'll pop in here and tell you I would have made the same choice too. Why go lateral?

Keep on keepin' on friend.

MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.Don't fret about tomorrow, God is already there!

From: Beth

Sent: Saturday, January 16, 2010 6:23 PM

To: Breathe-Support

Subject: Re: Not quite "Sophie's Choice"...

Steve,

You're right. Not quite 'Sophies choice' but a dilemma nonetheless. I'm glad the transplant folks were able to talk it through with you and you are comfortable with the decision. I think I probably would have ended up deciding the same way especially since you don't get penalized in any way for turning down this particular opportunity.

I'm sure getting that call brought the reality of the whole thing home in a new way. Please know that you are in my thoughts and prayers every day and I'm following your adventure on Caring Bridge also!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: s_knip51 <sknipstein (AT) hotmail (DOT) com>To: Breathe-Support Sent: Sat, January 16, 2010 7:00:02 PMSubject: Not quite "Sophie's Choice"...

....but, the toughest choice I've ever had to make!As some of you that are friends of mine on Facebook may already know, last night I got..."the call"! But, it wasn't quite what I had pictured in my mind all this time.The bottom line is that after three months of being active on the list, I got my call - just as we were finishing dinner out (Friday night is our "date" night!. So, there I was, sitting in a booth at our favorite restaurant, talking with one of the doctors from the transplant team about the possibility of accepting a less than optimum lung. Since the team itself, had concerns and were kind enough to discuss it with me, we decided to wait for a "better" match. Details for those interested on my Caring Bridge website...www.caringbridge. org/visit/ stephenknipstein /journal

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.725 / Virus Database: 270.14.146/2627 - Release Date: 01/16/10 11:35:00

[Guest guest]

.....I tried to add you on Facebook but there is more than one Oettinger so you add me.

Patti Indianapolis PF 2007

[Guest guest]

I also have a face book page its just Gascoigne Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Sun, January 17, 2010 9:19:16

AMSubject: Not quite "Sophie's Choice"...

Just wondering how many people here are also on Facebook?

Patti Indianapolis PF 2007

[Guest guest]

,

There are several Gascoignes on Facebook.....I tried to add you but am not sure which one you are......add me if you want..... Corten Bruckman.

[Guest guest]

Patti will do that but also try south dakota Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Sun, January 17, 2010 12:19:52 PMSubject: Re: Not quite "Sophie's Choice"...

,

There are several Gascoignes on Facebook.... .I tried to add you but am not sure which one you are......add me if you want..... Corten Bruckman.

[Guest guest]

added you Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Sun, January 17, 2010 12:19:52 PMSubject: Re: Not quite "Sophie's Choice"...

,

There are several Gascoignes on Facebook.... .I tried to add you but am not sure which one you are.......add me if you want..... Corten Bruckman.

[Guest guest]

I am on it but I don't have high speed internet so I can't do anything on it. I'm not sorry about that because I know some addicts that are on it all of the time. Without high speed it is too slow and it ties up my phone. I also live in an area where I can't get cell phone service. I really must get out of here.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren's,Fibromyalgia IdahoSubject: Not quite "Sophie's Choice"...To: Breathe-Support Date: Sunday, January 17, 2010, 7:19 AM

Just wondering how many people here are also on Facebook?

Patti Indianapolis PF 2007

[Guest guest]

I have a Facebook, it's psychnursekathy@...Kathy ILD/Hypersensitivity pneumonitis 3/08 Type 2 diabetes forever agoSubject: Re: Not quite "Sophie's Choice"...To: Breathe-Support Date: Sunday, January 17, 2010, 10:14 AM

I also have a face book page its just Gascoigne Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 9:19:16

AMSubject: Not quite "Sophie's Choice"...

Just wondering how many people here are also on Facebook?

Patti Indianapolis PF 2007

[Guest guest]

will do...To: Breathe-Support Sent: Sun, January 17, 2010 1:07:18 PMSubject: Re: Not quite "Sophie's Choice"...

.....I tried to add you on Facebook but there is more than one Oettinger so you add me.

Patti Indianapolis PF 2007

[Guest guest]

a lot, can't give you a number, but there are alot

plus

you get to see their faces next to their names - that's the best part

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Not quite "Sophie's Choice"...To: Breathe-Support Date: Sunday, January 17, 2010, 10:19 AM

Just wondering how many people here are also on Facebook?

Patti Indianapolis PF 2007

[Guest guest]

i try to be more careful about what i write on facebook

anybody can see it

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Not quite "Sophie's Choice"...To: Breathe-Support Date: Sunday, January 17, 2010, 10:19 AM

Just wondering how many people here are also on Facebook?

Patti Indianapolis PF 2007

[Guest guest]

on facebook, look for , i forget my facebook name

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Not quite "Sophie's Choice"...To: Breathe-Support Date: Sunday, January 17, 2010, 1:33 PM

added you

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 12:19:52 PMSubject: Re: Not quite "Sophie's Choice"...

,

There are several Gascoignes on Facebook.... .I tried to add you but am not sure which one you are.......add me if you want..... Corten Bruckman.

[Guest guest]

i just checked

Joyce T Vogin Rosenberg

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Not quite "Sophie's Choice"...To: Breathe-Support Date: Sunday, January 17, 2010, 1:33 PM

added you

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 12:19:52 PMSubject: Re: Not quite "Sophie's Choice"...

,

There are several Gascoignes on Facebook.... .I tried to add you but am not sure which one you are.......add me if you want..... Corten Bruckman.

[Guest guest]

lol, lol Joyce now how are we suppose to find you. I'll look for you under your email address Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Sun, January 17, 2010 3:46:31 PMSubject: Re: Not quite "Sophie's Choice"...

on facebook, look for , i forget my facebook name

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Gascoigne <michelle.gascoigne@ yahoo.com>Subject: Re: Not quite "Sophie's Choice"...To: Breathe-Support@ yahoogroups. comDate: Sunday, January 17, 2010, 1:33 PM

added you

Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: Patti <napa73 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sun, January 17, 2010 12:19:52 PMSubject: Re: Not quite "Sophie's Choice"...

,

There are several Gascoignes on Facebook.... .I tried to add you but am not sure which one you are.......add me if you want..... Corten Bruckman.

[Guest guest]

Steve...you showed great 'presence of mind' in making such a touch call! When rejection is the main problem facing transplant recipients you'd have to feel secure that the lung was right for you!

Here's hoping another call will come soon with a great match up that causes you to say..Hey lets GO!

love,

in Oz>> ...but, the toughest choice I've ever had to make!> > As some of you that are friends of mine on Facebook may already know, last night I got..."the call"! But, it wasn't quite what I had pictured in my mind all this time.> > The bottom line is that after three months of being active on the list, I got my call - just as we were finishing dinner out (Friday night is our "date" night!. So, there I was, sitting in a booth at our favorite restaurant, talking with one of the doctors from the transplant team about the possibility of accepting a less than optimum lung. Since the team itself, had concerns and were kind enough to discuss it with me, we decided to wait for a "better" match. Details for those interested on my Caring Bridge website...> > www.caringbridge.org/visit/stephenknipstein/journal>

[Guest guest]

Kathy,

I found you on Facebook under Kathy Linquist.

Patti Indianapolis PF 2007