Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Bill There are so many things like that we're learning every day. Each generation introduces new things. With my grandparents, they cured meats in what they called " smokehouses. " Now we know some of the things they used in that process were bad to be inhaled. Today, its microwaving popcorn. Makes perfect sense that the chemical in a cold state would be safe but then when heated would be bad. The complication is that we're still in the very early stages of figuring out what in our environment hurts us and why it hurts one of us and not all of us. We were talking about fragrances and the plug in room fragrances or deodorizers are quite toxic to many of us. They didn't exist previous generations. Now, go back a generation and everyone had moth balls. The toxicity of moth balls has only recently come to light. You give me a home with a lot of room deodorizers or moth balls throughout and I can take one step in the front door and have immediate breathing difficulties. > > As if we didn't have enough to think about already... studies have been > released and lawyers are already jumping on " Popcorn Lung " , lung problems, up > to and including transplants, resulting from exposure to Diacetyl vapor > released from microwaved buttered popcorn. And apparently the stuff is still > being used. The diacetyl itself may not be harmful, but when mixed with > heat gives off harmful fumes. At least that's the way I understand it. > Bruce probably can explain it better. Several lawsuits have already been > filed from workers in popcorn packaging plants to a guy who ate two bags of > microwave popcorn a day whose lungs have failed. Broncheolitis Obliterans is > the official diagnosis. > > Bill IPF 10/08 > N.E. PA (known right now as the frozen tundra) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 my mother always used moth balls i used to use them too Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Popcorn LungTo: Breathe-Support Date: Friday, December 11, 2009, 10:07 AM BillThere are so many things like that we're learning every day. Eachgeneration introduces new things. With my grandparents, they cured meatsin what they called "smokehouses. " Now we know some of the things theyused in that process were bad to be inhaled. Today, its microwavingpopcorn.Makes perfect sense that the chemical in a cold state would be safe butthen when heated would be bad. The complication is that we're still inthe very early stages of figuring out what in our environment hurts usand why it hurts one of us and not all of us. We were talking aboutfragrances and the plug in room fragrances or deodorizers are quitetoxic to many of us. They didn't exist previous generations. Now, goback a generation and everyone had moth balls. The toxicity of mothballs has only recently come to light. You give me a home with a lot ofroom deodorizers or moth balls throughout and I can take one step in thefront door and have immediate breathing difficulties.>> As if we didn't have enough to think about already... studies havebeen> released and lawyers are already jumping on "Popcorn Lung", lungproblems, up> to and including transplants, resulting from exposure to Diacetylvapor> released from microwaved buttered popcorn. And apparently the stuffis still> being used. The diacetyl itself may not be harmful, but when mixedwith> heat gives off harmful fumes. At least that's the way I understandit.> Bruce probably can explain it better. Several lawsuits have alreadybeen> filed from workers in popcorn packaging plants to a guy who ate twobags of> microwave popcorn a day whose lungs have failed. BroncheolitisObliterans is> the official diagnosis.>> Bill IPF 10/08> N.E. PA (known right now as the frozen tundra)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Bill/Bruce, When diagnosed with PF,I had been using a commercial popcorn machine for a little more than 3 years. I was exposed over this time top at least 4 hoppers of popcorn per day, and the aroma was present throughout my 10-12 hour days. I began a terrible cough and wasw very tired. Prior to that I had lived in Vicksburg MS and was very fit, able to bicycle those very steep long hills in the Vicksburg Military Park. Following my biopsy, I needed supplementary O2 for 0 months. From March 05 to June O5, I had gone from a very vital and fit man to one fighting for his life. Last year I went to Kansas City to a law firm.While in Kansas City I underwent a medical evaluation by a prominent Industrial environmental specialist. By that timne, I had lost 50 pounds and had begun riding my bicycle again that year. I had actually been able to ride 80 miles twice last year. I was later informed by the law firm that my case could not be comfirmed as being caused by diacetyl, primarily because I had improved so much, and that was not at all typical. I pointe3d out that it was neither typical of an IP patient. I copuld also not rely on my memory 3 years out to recall such things as night sweats and sinus problems that could be definitely be contributed to that timne only. I think they did not feel comfortable with my case. And I don't think the doctor wanted to steak his reputation on something that did not appear to fit what was expected. As to why more persons who use these commercial popcorn machines aren't diagnosed, I think we have to consider how we view an epidemic. Where proximity is apparent, it is relatively easy to see a group of workers, such as in the popcorn factories in Missouri and elsewhere, but much more difficult when these instances are spread out, such as in movie theaters and snack bar locations. A doctor may only see one case in a lifetime, and it may not be attributed to diacetyl. It is also possible, as with PF, that health problems may go undetected until the heart problems are most prominent. I wrote this down for my Tulane pulmonologist, and he said it made very good sense. Although my diacetyl exposure was not officially recognized as being at the root of my PF, I nevertheless will tell anyone who I find working near diacetyl about my lung problem. Is very dangerous. Why only factory workers would be affected and not workers and consumers outside the factory setting is a mystery to me. As with most all IPF caes, a specific cause is almost never arrived at. So many environmental and genetic issues could be at fault. However, I do that my own health suffered during the time I was exposed to diacetyl, and I feel strongly that it is also very much a risk outside manufacturing as well. Jerry/Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Jerry I've been down that list of things that might have caused my lung disease. I can come up with dozens of things I've been exposed to over the years. Thats the problem that we believe these things cause it but we really don't have a way to pin down better. We still know so very little about the diseases. My body has reacted in so many different ways to who knows what. I sometimes think maybe I'm allergic to myself. Don't laugh. We may find ultimately some chemical our body produces during these reactions. For some reason our lungs have scarred. The best news in many ways would be to know it was something specific because then by avoiding that exposure the progression might well stop or at least slow. The fact that your condition is as good today as it is would give strong credence to the possibility of it being environmental and the popcorn. But unfortunately no way to know for sure. But if you maintain as you are, the evidence is pretty strong. We keep learning of exposures in our environment that are bad for us. But as we remove one, we add another. Who knows what new item hitting the shelves this month is bad for us? > > Bill/Bruce, > When diagnosed with PF,I had been using a commercial popcorn machine for a little more than 3 years. I was exposed over this time top at least 4 hoppers of popcorn per day, and the aroma was present throughout my 10-12 hour days. I began a terrible cough and wasw very tired. Prior to that I had lived in Vicksburg MS and was very fit, able to bicycle those very steep long hills in the Vicksburg Military Park. Following my biopsy, I needed supplementary O2 for 0 months. From March 05 to June O5, I had gone from a very vital and fit man to one fighting for his life. > > Last year I went to Kansas City to a law firm.While in Kansas City I underwent a medical evaluation by a prominent Industrial environmental specialist. By that timne, I had lost 50 pounds and had begun riding my bicycle again that year. I had actually been able to ride 80 miles twice last year. I was later informed by the law firm that my case could not be comfirmed as being caused by diacetyl, primarily because I had improved so much, and that was not at all typical. I pointe3d out that it was neither typical of an IP patient. I copuld also not rely on my memory 3 years out to recall such things as night sweats and sinus problems that could be definitely be contributed to that timne only. I think they did not feel comfortable with my case. And I don't think the doctor wanted to steak his reputation on something that did not appear to fit what was expected. > > As to why more persons who use these commercial popcorn machines aren't diagnosed, I think we have to consider how we view an epidemic. Where proximity is apparent, it is relatively easy to see a group of workers, such as in the popcorn factories in Missouri and elsewhere, but much more difficult when these instances are spread out, such as in movie theaters and snack bar locations. A doctor may only see one case in a lifetime, and it may not be attributed to diacetyl. It is also possible, as with PF, that health problems may go undetected until the heart problems are most prominent. I wrote this down for my Tulane pulmonologist, and he said it made very good sense. > > Although my diacetyl exposure was not officially recognized as being at the root of my PF, I nevertheless will tell anyone who I find working near diacetyl about my lung problem. Is very dangerous. Why only factory workers would be affected and not workers and consumers outside the factory setting is a mystery to me. > > As with most all IPF caes, a specific cause is almost never arrived at. So many environmental and genetic issues could be at fault. However, I do that my own health suffered during the time I was exposed to diacetyl, and I feel strongly that it is also very much a risk outside manufacturing as well. > > Jerry/Mississippi/54/IPF/dx April 05 > > Who believes that hard times help us appreciate the good times even more. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Jerry, when I was dx with pf I knew exactly what caused it....40 years of sitting next to a pot of hot wax.......what I used in my art work....I thought the wax would just preserve me not give me this. <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Fri, December 11, 2009 3:10:35 PMSubject: Re: Popcorn Lung Bill/Bruce, When diagnosed with PF,I had been using a commercial popcorn machine for a little more than 3 years. I was exposed over this time top at least 4 hoppers of popcorn per day, and the aroma was present throughout my 10-12 hour days. I began a terrible cough and wasw very tired. Prior to that I had lived in Vicksburg MS and was very fit, able to bicycle those very steep long hills in the Vicksburg Military Park. Following my biopsy, I needed supplementary O2 for 0 months. From March 05 to June O5, I had gone from a very vital and fit man to one fighting for his life. Last year I went to Kansas City to a law firm.While in Kansas City I underwent a medical evaluation by a prominent Industrial environmental specialist. By that timne, I had lost 50 pounds and had begun riding my bicycle again that year. I had actually been able to ride 80 miles twice last year. I was later informed by the law firm that my case could not be comfirmed as being caused by diacetyl, primarily because I had improved so much, and that was not at all typical. I pointe3d out that it was neither typical of an IP patient. I copuld also not rely on my memory 3 years out to recall such things as night sweats and sinus problems that could be definitely be contributed to that timne only. I think they did not feel comfortable with my case. And I don't think the doctor wanted to steak his reputation on something that did not appear to fit what was expected. As to why more persons who use these commercial popcorn machines aren't diagnosed, I think we have to consider how we view an epidemic. Where proximity is apparent, it is relatively easy to see a group of workers, such as in the popcorn factories in Missouri and elsewhere, but much more difficult when these instances are spread out, such as in movie theaters and snack bar locations. A doctor may only see one case in a lifetime, and it may not be attributed to diacetyl. It is also possible, as with PF, that health problems may go undetected until the heart problems are most prominent. I wrote this down for my Tulane pulmonologist, and he said it made very good sense. Although my diacetyl exposure was not officially recognized as being at the root of my PF, I nevertheless will tell anyone who I find working near diacetyl about my lung problem. Is very dangerous. Why only factory workers would be affected and not workers and consumers outside the factory setting is a mystery to me. As with most all IPF caes, a specific cause is almost never arrived at. So many environmental and genetic issues could be at fault. However, I do that my own health suffered during the time I was exposed to diacetyl, and I feel strongly that it is also very much a risk outside manufacturing as well. Jerry/Mississippi/ 54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 If we could only live our lives with hindsight. When I think of all the things I used to do that may have caused me harm, I get scared. We used to chase mosquito trucks in the Mississippi delta and run through the cloud of DDT (I suppose), and Dad's hobby of fixing old AM tube radios meant that we had mercury to play with. And we did. And who would have thought that hot wax would have harmed you. You know, I have actually thought of candle-making as something to do after my PF diagnosis. Doesn't sound like a good idea, from your experience. Hope you don't give up painting. Jerry/Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 I did the same thing Jerry.........DDT was fun to play in <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Fri, December 11, 2009 6:40:33 PMSubject: Re: Re: Popcorn Lung If we could only live our lives with hindsight. When I think of all the things I used to do that may have caused me harm, I get scared. We used to chase mosquito trucks in the Mississippi delta and run through the cloud of DDT (I suppose), and Dad's hobby of fixing old AM tube radios meant that we had mercury to play with. And we did. And who would have thought that hot wax would have harmed you. You know, I have actually thought of candle-making as something to do after my PF diagnosis. Doesn't sound like a good idea, from your experience. Hope you don't give up painting. Jerry/Mississippi/ 54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 , What type of Art were you working on? I'm a potter and have been given a clean bill to continue working on the clay as it had no relation to my NSIP. Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara     “I’m gonna be iron like a lion in Zionâ€Â Bob Marley Vinca Minor-periwinkle is my flower   Soulliere wrote:  Jerry, when I was dx with pf I knew exactly what caused it....40 years of sitting next to a pot of hot wax.......what I used in my art work....I thought the wax would just preserve me not give me this.  <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com> To: Breathe-Support Sent: Fri, December 11, 2009 3:10:35 PM Subject: Re: Popcorn Lung  Bill/Bruce, When diagnosed with PF,I had been using a commercial popcorn machine for a little more than 3 years. I was exposed over this time top at least 4 hoppers of popcorn per day, and the aroma was present throughout my 10-12 hour days. I began a terrible cough and wasw very tired. Prior to that I had lived in Vicksburg MS and was very fit, able to bicycle those very steep long hills in the Vicksburg Military Park. Following my biopsy, I needed supplementary O2 for 0 months. From March 05 to June O5, I had gone from a very vital and fit man to one fighting for his life.  Last year I went to Kansas City to a law firm.While in Kansas City I underwent a medical evaluation by a prominent Industrial environmental specialist. By that timne, I had lost 50 pounds and had begun riding my bicycle again that year. I had actually been able to ride 80 miles twice last year. I was later informed by the law firm that my case could not be comfirmed as being caused by diacetyl, primarily because I had improved so much, and that was not at all typical. I pointe3d out that it was neither typical of an IP patient. I copuld also not rely on my memory 3 years out to recall such things as night sweats and sinus problems that could be definitely be contributed to that timne only. I think they did not feel comfortable with my case. And I don't think the doctor wanted to steak his reputation on something that did not appear to fit what was expected.  As to why more persons who use these commercial popcorn machines aren't diagnosed, I think we have to consider how we view an epidemic. Where proximity is apparent, it is relatively easy to see a group of workers, such as in the popcorn factories in Missouri and elsewhere, but much more difficult when these instances are spread out, such as in movie theaters and snack bar locations. A doctor may only see one case in a lifetime, and it may not be attributed to diacetyl. It is also possible, as with PF, that health problems may go undetected until the heart problems are most prominent. I wrote this down for my Tulane pulmonologist, and he said it made very good sense.  Although my diacetyl exposure was not officially recognized as being at the root of my PF, I nevertheless will tell anyone who I find working near diacetyl about my lung problem. Is very dangerous. Why only factory workers would be affected and not workers and consumers outside the factory setting is a mystery to me.  As with most all IPF caes, a specific cause is almost never arrived at. So many environmental and genetic issues could be at fault. However, I do that my own health suffered during the time I was exposed to diacetyl, and I feel strongly that it is also very much a risk outside manufacturing as well.  Jerry/Mississippi/ 54/IPF/dx April 05 Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 I also played in the bug spray when they drove around Columbus AFB in Mississippi in the 50s! I listed this for the DNA study being done by UT Southwestern. The survey asked about down comforters and down coats. I've used both. I hope this study sheds light on all the common risk factors for PF!Elisa Cole Sjogren's, Raynaud's, NSIP Apr. '08Age 53 Mansfield, TXSent from my iPhone I did the same thing Jerry.........DDT was fun to play in <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support Sent: Fri, December 11, 2009 6:40:33 PMSubject: Re: Re: Popcorn Lung If we could only live our lives with hindsight. When I think of all the things I used to do that may have caused me harm, I get scared. We used to chase mosquito trucks in the Mississippi delta and run through the cloud of DDT (I suppose), and Dad's hobby of fixing old AM tube radios meant that we had mercury to play with. And we did. And who would have thought that hot wax would have harmed you. You know, I have actually thought of candle-making as something to do after my PF diagnosis. Doesn't sound like a good idea, from your experience. Hope you don't give up painting. Jerry/Mississippi/ 54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 recently i was thinking about the bird issue and pf then i thought about the down coats that i have been wearing great question that you posed i would think that the down would be cleaned, maybe washed, before using it in coats and comfortors Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: Popcorn LungTo: "Breathe-Support " <Breathe-Support >Date: Saturday, December 12, 2009, 12:25 AM I also played in the bug spray when they drove around Columbus AFB in Mississippi in the 50s! I listed this for the DNA study being done by UT Southwestern. The survey asked about down comforters and down coats. I've used both. I hope this study sheds light on all the common risk factors for PF!Elisa Cole Sjogren's, Raynaud's, NSIP Apr. '08 Age 53 Mansfield, TXSent from my iPhone On Dec 11, 2009, at 5:47 PM, Soulliere <johnsbatik (AT) yahoo (DOT) com> wrote: I did the same thing Jerry....... ..DDT was fun to play in <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT> From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Fri, December 11, 2009 6:40:33 PMSubject: Re: Re: Popcorn Lung If we could only live our lives with hindsight. When I think of all the things I used to do that may have caused me harm, I get scared. We used to chase mosquito trucks in the Mississippi delta and run through the cloud of DDT (I suppose), and Dad's hobby of fixing old AM tube radios meant that we had mercury to play with. And we did. And who would have thought that hot wax would have harmed you. You know, I have actually thought of candle-making as something to do after my PF diagnosis. Doesn't sound like a good idea, from your experience. Hope you don't give up painting. Jerry/Mississippi/ 54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 Pink It is interesting. I'm allergic to down and have never been able to use down pillows. That was discovered when I was young with many of my other allergies. My mother, like most, loved them and tried to only use them. But for me it became and has remained foam. Same thing with comforters, etc. > > > > >  > > > > > I did the same thing Jerry....... ..DDT was fun to play in >  > > > > > <FONT face= " comic sans ms " color=#40007f size=3> Soulliere & nbsp; <IMG src= " http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif " ></FONT> > > > > > > > From: Jerry Brown jerryb888 (AT) yahoo (DOT) com> > To: Breathe-Support@ yahoogroups. com > Sent: Fri, December 11, 2009 6:40:33 PM > Subject: Re: Re: Popcorn Lung > >  > > > > > > > If we could only live our lives with hindsight. When I think of all the things I used to do that may have caused me harm, I get scared. We used to chase mosquito trucks in the Mississippi delta and run through the cloud of DDT (I suppose), and Dad's hobby of fixing old AM tube radios meant that we had mercury to play with. And we did. And who would have thought that hot wax would have harmed you. You know, I have actually thought of candle-making as something to do after my PF diagnosis. Doesn't sound like a good idea, from your experience. Hope you don't give up painting. >  > Jerry/Mississippi/ 54/IPF/dx April 05 > > Who believes that hard times help us appreciate the good times even more. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 I've been a Batik artist for 40 years///I had no idea that the parafin in a hot liquid would be dangerous.......I really worried anout the dye.....It was no problem <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Fri, December 11, 2009 8:03:35 PMSubject: Re: Re: Popcorn Lung , What type of Art were you working on?I'm a potter and have been given a clean bill to continueworking on the clay as it had no relation to my NSIP. Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Soulliere wrote: Jerry, when I was dx with pf I knew exactly what caused it....40 years of sitting next to a pot of hot wax.......what I used in my art work....I thought the wax would just preserve me not give me this. <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT> From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Fri, December 11, 2009 3:10:35 PMSubject: Re: Popcorn Lung Bill/Bruce, When diagnosed with PF,I had been using a commercial popcorn machine for a little more than 3 years. I was exposed over this time top at least 4 hoppers of popcorn per day, and the aroma was present throughout my 10-12 hour days. I began a terrible cough and wasw very tired. Prior to that I had lived in Vicksburg MS and was very fit, able to bicycle those very steep long hills in the Vicksburg Military Park. Following my biopsy, I needed supplementary O2 for 0 months. From March 05 to June O5, I had gone from a very vital and fit man to one fighting for his life. Last year I went to Kansas City to a law firm.While in Kansas City I underwent a medical evaluation by a prominent Industrial environmental specialist. By that timne, I had lost 50 pounds and had begun riding my bicycle again that year. I had actually been able to ride 80 miles twice last year. I was later informed by the law firm that my case could not be comfirmed as being caused by diacetyl, primarily because I had improved so much, and that was not at all typical. I pointe3d out that it was neither typical of an IP patient. I copuld also not rely on my memory 3 years out to recall such things as night sweats and sinus problems that could be definitely be contributed to that timne only. I think they did not feel comfortable with my case. And I don't think the doctor wanted to steak his reputation on something that did not appear to fit what was expected. As to why more persons who use these commercial popcorn machines aren't diagnosed, I think we have to consider how we view an epidemic. Where proximity is apparent, it is relatively easy to see a group of workers, such as in the popcorn factories in Missouri and elsewhere, but much more difficult when these instances are spread out, such as in movie theaters and snack bar locations. A doctor may only see one case in a lifetime, and it may not be attributed to diacetyl. It is also possible, as with PF, that health problems may go undetected until the heart problems are most prominent. I wrote this down for my Tulane pulmonologist, and he said it made very good sense. Although my diacetyl exposure was not officially recognized as being at the root of my PF, I nevertheless will tell anyone who I find working near diacetyl about my lung problem. Is very dangerous. Why only factory workers would be affected and not workers and consumers outside the factory setting is a mystery to me. As with most all IPF caes, a specific cause is almost never arrived at. So many environmental and genetic issues could be at fault. However, I do that my own health suffered during the time I was exposed to diacetyl, and I feel strongly that it is also very much a risk outside manufacturing as well. Jerry/Mississippi/ 54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
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