Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Kathy... what a bad time of the year to have to go through a move and so soon! I'm truly sorry to hear this news. Seems like good things are so much better at Christmas time and bad things are so much worse... Hopefully you will be back in a place of your own sooner than later. I'm praying God will bless you and yours, now matter what! Hugs from Mama Sher. I'M STILL TRYING TO GET MY SIGNATURE IN MY MAIL. From: Kathy Lindquist Sent: Friday, December 11, 2009 10:57 AM To: Breathe-Support Subject: Good thoughts needed Hi all,Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.Anyone know of a good pulmo in Council Bluffs/Omaha area?Sorry for ranting on so long-just needed an outlet to vent.KathyIPF 10/09 Type 2 diabetes forever ago No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.709 / Virus Database: 270.14.102/2556 - Release Date: 12/09/09 23:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Thanks for the good thoughts. It may actually be a blessing in disguise b/c there was mold in the house and water damage also from when we had our addition put on. so...Kathy IPF 10/09 Type 2 diabetes forever agoSubject: Re: Good thoughts neededTo: Breathe-Support Date: Friday, December 11, 2009, 12:31 PM Kathy... what a bad time of the year to have to go through a move and so soon! I'm truly sorry to hear this news. Seems like good things are so much better at Christmas time and bad things are so much worse... Hopefully you will be back in a place of your own sooner than later. I'm praying God will bless you and yours, now matter what! Hugs from Mama Sher. I'M STILL TRYING TO GET MY SIGNATURE IN MY MAIL. From: Kathy Lindquist Sent: Friday, December 11, 2009 10:57 AM To: Breathe-Support@ yahoogroups. com Subject: Good thoughts needed Hi all,Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.Anyone know of a good pulmo in Council Bluffs/Omaha area?Sorry for ranting on so long-just needed an outlet to vent.KathyIPF 10/09 Type 2 diabetes forever ago No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.709 / Virus Database: 270.14.102/2556 - Release Date: 12/09/09 23:36:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Kathy, That is the way to think about it. My youngest had a breakin two days ago-tvs, christmas presents, camera, camcorder, just awful, but it was only things she keeps saying....Maybe this is Gods way of getting you out of that house. We have to try to look for the positive, I know sweet Lord how hard that can be. When you lose your house, or your job or someone or something that is sooo close to you sometime the only way you can keep going is one hour at a time but I firmly belive the dear Lord watches over us and while we may not get what we are praying for, we do get what we need. I always say the dear Lord is trying to teach me patience with all this health crap and its my fault for not listening LOL After my divorce I headed home to Wisconsin with everything I owned in a Toyota Tercel (put that image in your mind, it was smaller than a Prius) my 16 year old daughter and $800. No job and only an offer from my sister to stay in her basement. Did I want too? No but I just did it and even though it took a couple years, things ended up for the better and I met my wonderful second husband and I spent a lot more time with my mom who passed away from IPF 4 years after I moved home. I hope you get my intent from all this rambling. Keep us informed and know we all love you. Dyane Phoenix > > From: Verizon Email bofus6@... > Subject: Re: Good thoughts needed > To: Breathe-Support > Date: Friday, December 11, 2009, 12:31 PM > > > > > > > >  > > > > > > > > > > > > > Kathy... what a > bad time of the year to have to go through a move and so soon! I'm truly > sorry to hear this news. > Seems like good > things are so much better at Christmas time and bad things are so much > worse... > Hopefully you will be > back in a place of your own sooner than later. > I'm praying God will > bless you and yours, now matter what! > Hugs from Mama > Sher. >  > I'M STILL TRYING TO > GET MY SIGNATURE IN MY MAIL. > > > > > From: Kathy Lindquist > Sent: Friday, December 11, 2009 10:57 AM > To: Breathe-Support@ yahoogroups. com > > Subject: Good thoughts needed > >  > > > > > > Hi all, > Stress levels in the house are at an all-time > high right now, and I just need some good thoughts. We lost out > house due to unforeseen circumstances (damn disease!) and have to be out > by the 30th of Dec. Merry Christmas/Happy New Year! We ae > hoping to extend it till Jan. 4th-but who knows. Eventually, we will > all be in Harlan, Iowa, but for the near future, my SIL and I will be > staying with my son in Persia, Ia, my daughter and her 2 kids and my > husband will be getting an apartment here-damn the daughters' > ex-husband. Can you tell I'm not a happy camper right now. > > Amazingly, through all this,the prednisone seems to be working and I'm > not coughing as much. Do have a pulmodude appt on Monday with PFT's > so, I'll at least know about that. > Anyone know of a good pulmo in > Council Bluffs/Omaha area? > Sorry for ranting on so long-just needed an > outlet to vent. > Kathy > IPF 10/09 Type 2 diabetes forever > ago > > > > > > > > No virus found in this incoming message. > Checked by AVG - > www.avg.com > Version: 9.0.709 / Virus Database: 270.14.102/2556 - Release > Date: 12/09/09 23:36:00 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Kathy, I'm so sorry you are going through such a difficult time right now. Good thoughts and prayers coming your way! Hugs, Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Fri, December 11, 2009 1:57:16 PMSubject: Good thoughts needed Hi all,Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.Anyone know of a good pulmo in Council Bluffs/Omaha area?Sorry for ranting on so long-just needed an outlet to vent.KathyIPF 10/09 Type 2 diabetes forever ago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Dyane,Your youngest is in my thoughts-how scary. At least it was just possessions and not anything more important. Things can be replaced, people can't.I totally got your ramblings and thank you. It helps to have an Air Family that gets what's going on.Kathy IPF 10/09 Type 2 diabetes forever agoSubject: Re: Good thoughts neededTo: Breathe-Support Date: Friday, December 11, 2009, 1:24 PM Kathy, That is the way to think about it. My youngest had a breakin two days ago-tvs, christmas presents, camera, camcorder, just awful, but it was only things she keeps saying....Maybe this is Gods way of getting you out of that house. We have to try to look for the positive, I know sweet Lord how hard that can be. When you lose your house, or your job or someone or something that is sooo close to you sometime the only way you can keep going is one hour at a time but I firmly belive the dear Lord watches over us and while we may not get what we are praying for, we do get what we need. I always say the dear Lord is trying to teach me patience with all this health crap and its my fault for not listening LOL After my divorce I headed home to Wisconsin with everything I owned in a Toyota Tercel (put that image in your mind, it was smaller than a Prius) my 16 year old daughter and $800. No job and only an offer from my sister to stay in her basement. Did I want too? No but I just did it and even though it took a couple years, things ended up for the better and I met my wonderful second husband and I spent a lot more time with my mom who passed away from IPF 4 years after I moved home. I hope you get my intent from all this rambling. Keep us informed and know we all love you. Dyane Phoenix > > From: Verizon Email bofus6@... > Subject: Re: Good thoughts needed > To: Breathe-Support@ yahoogroups. com > Date: Friday, December 11, 2009, 12:31 PM > > > > > > > >  > > > > > > > > > > > > > Kathy... what a > bad time of the year to have to go through a move and so soon! I'm truly > sorry to hear this news. > Seems like good > things are so much better at Christmas time and bad things are so much > worse... > Hopefully you will be > back in a place of your own sooner than later. > I'm praying God will > bless you and yours, now matter what! > Hugs from Mama > Sher. >  > I'M STILL TRYING TO > GET MY SIGNATURE IN MY MAIL. > > > > > From: Kathy Lindquist > Sent: Friday, December 11, 2009 10:57 AM > To: Breathe-Support@ yahoogroups. com > > Subject: Good thoughts needed > >  > > > > > > Hi all, > Stress levels in the house are at an all-time > high right now, and I just need some good thoughts. We lost out > house due to unforeseen circumstances (damn disease!) and have to be out > by the 30th of Dec. Merry Christmas/Happy New Year! We ae > hoping to extend it till Jan. 4th-but who knows. Eventually, we will > all be in Harlan, Iowa, but for the near future, my SIL and I will be > staying with my son in Persia, Ia, my daughter and her 2 kids and my > husband will be getting an apartment here-damn the daughters' > ex-husband. Can you tell I'm not a happy camper right now. > > Amazingly, through all this,the prednisone seems to be working and I'm > not coughing as much. Do have a pulmodude appt on Monday with PFT's > so, I'll at least know about that. > Anyone know of a good pulmo in > Council Bluffs/Omaha area? > Sorry for ranting on so long-just needed an > outlet to vent. > Kathy > IPF 10/09 Type 2 diabetes forever > ago > > > > > > > > No virus found in this incoming message. > Checked by AVG - > www.avg.com > Version: 9.0.709 / Virus Database: 270.14.102/2556 - Release > Date: 12/09/09 23:36:00 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Yes it does Kathy <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Fri, December 11, 2009 6:44:19 PMSubject: Re: Re: Good thoughts needed Dyane,Your youngest is in my thoughts-how scary. At least it was just possessions and not anything more important. Things can be replaced, people can't.I totally got your ramblings and thank you. It helps to have an Air Family that gets what's going on.Kathy IPF 10/09 Type 2 diabetes forever ago From: DyaneB <dyanebillings@ yahoo.com>Subject: Re: Good thoughts neededTo: Breathe-Support@ yahoogroups. comDate: Friday, December 11, 2009, 1:24 PM Kathy,That is the way to think about it. My youngest had a breakin two daysago-tvs, christmas presents, camera, camcorder, just awful, but it wasonly things she keeps saying....Maybe this is Gods way of getting youout of that house. We have to try to look for the positive, I knowsweet Lord how hard that can be. When you lose your house, or your jobor someone or something that is sooo close to you sometime the only wayyou can keep going is one hour at a time but I firmly belive the dearLord watches over us and while we may not get what we are praying for,we do get what we need. I always say the dear Lord is trying to teachme patience with all this health crap and its my fault for not listeningLOL After my divorce I headed home to Wisconsin with everything I ownedin a Toyota Tercel (put that image in your mind, it was smaller than aPrius) my 16 year old daughter and $800. No job and only an offer frommy sister to stay in her basement. Did I want too? No but I just didit and even though it took a couple years, things ended up for thebetter and I met my wonderful second husband and I spent a lot more timewith my mom who passed away from IPF 4 years after I moved home. I hopeyou get my intent from all this rambling. Keep us informed and know weall love you.Dyane Phoenix>> Subject: Re: Good thoughts needed> To: Breathe-Support@ yahoogroups. com> Date: Friday, December 11, 2009, 12:31 PM>>>>>>>> Â>>>>>>>>>>>>> Kathy... what a> bad time of the year to have to go through a move and so soon! I'm truly> sorry to hear this news.> Seems like good> things are so much better at Christmas time and bad things are so much> worse...> Hopefully you will be> back in a place of your own sooner than later.> I'm praying God will> bless you and yours, now matter what!> Hugs from Mama> Sher.> Â> I'M STILL TRYING TO> GET MY SIGNATURE IN MY MAIL.>>>>> From: Kathy Lindquist> Sent: Friday, December 11, 2009 10:57 AM> To: Breathe-Support@ yahoogroups. com>> Subject: Good thoughts needed>> Â>>>>>> Hi all,> Stress levels in the house are at an all-time> high right now, and I just need some good thoughts. We lostout> house due to unforeseen circumstances (damn disease!) and haveto be out> by the 30th of Dec. Merry Christmas/Happy New Year! Weae> hoping to extend it till Jan. 4th-but who knows. Eventually, we will> all be in Harlan, Iowa, but for the near future, my SIL and Iwill be> staying with my son in Persia, Ia, my daughter and her 2 kidsand my> husband will be getting an apartment here-damn the daughters'> ex-husband. Can you tell I'm not a happy camper rightnow.Â>> Amazingly, through all this,the prednisone seems to be working and I'm> not coughing as much. Do have a pulmodude appt on Mondaywith PFT's> so, I'll at least know about that.> Anyone know of a good pulmo in> Council Bluffs/Omaha area?> Sorry for ranting on so long-just needed an> outlet to vent.> Kathy> IPF 10/09 Type 2 diabetes forever> ago>>>>>>>> No virus found in this incoming message.> Checked by AVG -> www.avg.com> Version: 9.0.709 / Virus Database: 270.14.102/2556 - Release> Date: 12/09/09 23:36:00> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 So sorry you lost your house. Boy that is horrible and especially at the Holidays. Prayers and positive thoughts coming your way from AZ....Joyce Rudy AZ birds Hi Kathy,So sorry to hear you lost your house, I will say a prayer for you.nne>> Hi all,> Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. > Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.> Anyone know of a good pulmo in Council Bluffs/Omaha area?> Sorry for ranting on so long-just needed an outlet to vent.> Kathy> IPF 10/09 Type 2 diabetes forever ago> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 Hi Kathy, So sorry to hear you lost your house, I will say a prayer for you. nne > > Hi all, > Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. > Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that. > Anyone know of a good pulmo in Council Bluffs/Omaha area? > Sorry for ranting on so long-just needed an outlet to vent. > Kathy > IPF 10/09 Type 2 diabetes forever ago > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 Thank you alll for the good thoughts and prayers,and the fact that you all "get it".Kathy Ipf 10'09 Type 2 diabetes forever agoSubject: Re: Re: Good thoughts neededTo: Breathe-Support Date: Saturday, December 12, 2009, 7:09 PM So sorry you lost your house. Boy that is horrible and especially at the Holidays. Prayers and positive thoughts coming your way from AZ....Joyce Rudy AZ birds In a message dated 12/12/2009 4:04:03 P.M. US Mountain Standard Time, teddyspenguins@ yahoo.com writes: Hi Kathy,So sorry to hear you lost your house, I will say a prayer for you.nne>> Hi all,> Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. > Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.> Anyone know of a good pulmo in Council Bluffs/Omaha area?> Sorry for ranting on so long-just needed an outlet to vent.> Kathy> IPF 10/09 Type 2 diabetes forever ago> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2009 Report Share Posted December 16, 2009 Kathy I also live in Omaha and as I write this I am out at UCLA ILD clinic and they are getting me a few names of good pulmo docs in the area I also have agreat family friend who is a respiratory therapist (13yrs) and he loves Dr. Mezzacappa (?sp) with alegent health bergan mercy pulmonary medicine Hope this all helps good luck with the house hunt. Tammy 35y.o. Omaha, NE UIP 11/09 To: Breathe-Support Sent: Fri, December 11, 2009 12:57:16 PMSubject: Good thoughts needed Hi all,Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.Anyone know of a good pulmo in Council Bluffs/Omaha area?Sorry for ranting on so long-just needed an outlet to vent.KathyIPF 10/09 Type 2 diabetes forever ago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2009 Report Share Posted December 16, 2009 Tammy, Thank you very much for the dr. name. I needed that. How do you like the docs at UCLA?I saw Dr. Zisman for 2 yrs., and when he left, I sort of felt like I was just a disease and not a person. Just my opinion.KathySubject: Re: Good thoughts neededTo: Breathe-Support Date: Wednesday, December 16, 2009, 7:55 PM Kathy I also live in Omaha and as I write this I am out at UCLA ILD clinic and they are getting me a few names of good pulmo docs in the area I also have agreat family friend who is a respiratory therapist (13yrs) and he loves Dr. Mezzacappa (?sp) with alegent health bergan mercy pulmonary medicine Hope this all helps good luck with the house hunt. Tammy 35y.o. Omaha, NE UIP 11/09 From: Kathy Lindquist <psychnursekathy@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Fri, December 11, 2009 12:57:16 PMSubject: Good thoughts needed Hi all,Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.Anyone know of a good pulmo in Council Bluffs/Omaha area?Sorry for ranting on so long-just needed an outlet to vent.KathyIPF 10/09 Type 2 diabetes forever ago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2009 Report Share Posted December 16, 2009 Kathy, Actually I loved it there. However my aunt nancy was the heart lung transplant coordinator there for over 15years (worked at UCLA 35) so everyone was so nice and accomedating to me I have nothing but nice things to say about them so far. I am sorry that you did not get the same feeling when you were here. I saw doctor bowers and he was a jackass he got my biopsy results back which showed UIP as well as significant inflammation and the pathologist said right in the report that this could be a connective tissue problem and without any further testing or anything Dr. Bowers called it idiopathic IPF/UIP told me I had 2-5years and wanted to start me on 6different meds i said no thanks and came out here and I am glad i did. The doctors out here said forget everything he said and explained why did lots of testing and have come to the conclusion that i have scleroderma and that is what is causing my lung disease which I feel is much better. Maybe I am fooling myself but I feel like I can fight this and I am obsessive so I like to have a label for everything LOL. Are you a nurse? I am for 10years now I work neonatal intensive care and labor and delivery and I LOVE IT. Tammy 35y.o. Omaha, NE UIP 11/09 To: Breathe-Support Sent: Wed, December 16, 2009 10:17:03 PMSubject: Re: Good thoughts needed Tammy, Thank you very much for the dr. name. I needed that. How do you like the docs at UCLA?I saw Dr. Zisman for 2 yrs., and when he left, I sort of felt like I was just a disease and not a person. Just my opinion.Kathy From: tammy stewart <nicunrs01 (AT) yahoo (DOT) com>Subject: Re: Good thoughts neededTo: Breathe-Support@ yahoogroups. comDate: Wednesday, December 16, 2009, 7:55 PM Kathy I also live in Omaha and as I write this I am out at UCLA ILD clinic and they are getting me a few names of good pulmo docs in the area I also have agreat family friend who is a respiratory therapist (13yrs) and he loves Dr. Mezzacappa (?sp) with alegent health bergan mercy pulmonary medicine Hope this all helps good luck with the house hunt. Tammy 35y.o. Omaha, NE UIP 11/09 From: Kathy Lindquist <psychnursekathy@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Fri, December 11, 2009 12:57:16 PMSubject: Good thoughts needed Hi all,Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.Anyone know of a good pulmo in Council Bluffs/Omaha area?Sorry for ranting on so long-just needed an outlet to vent.KathyIPF 10/09 Type 2 diabetes forever ago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 Tammy, You are absolutely right to feel much better about your new diagnosis. Now you've got something to treat...something specific to control that will in turn slow down the progress of your lung disease. This is exactly how I felt when my dermatomyositis was finally diagnosed a year or so ago. It was a tremendous relief to be able to understand where my lung disease came from and the diagnosis gave me new weapons in my arsenal. Good luck to you...keep fighting!! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Wed, December 16, 2009 11:52:44 PMSubject: Re: Good thoughts needed Kathy, Actually I loved it there. However my aunt nancy was the heart lung transplant coordinator there for over 15years (worked at UCLA 35) so everyone was so nice and accomedating to me I have nothing but nice things to say about them so far. I am sorry that you did not get the same feeling when you were here. I saw doctor bowers and he was a jackass he got my biopsy results back which showed UIP as well as significant inflammation and the pathologist said right in the report that this could be a connective tissue problem and without any further testing or anything Dr. Bowers called it idiopathic IPF/UIP told me I had 2-5years and wanted to start me on 6different meds i said no thanks and came out here and I am glad i did. The doctors out here said forget everything he said and explained why did lots of testing and have come to the conclusion that i have scleroderma and that is what is causing my lung disease which I feel is much better. Maybe I am fooling myself but I feel like I can fight this and I am obsessive so I like to have a label for everything LOL. Are you a nurse? I am for 10years now I work neonatal intensive care and labor and delivery and I LOVE IT. Tammy 35y.o. Omaha, NE UIP 11/09 From: Kathy Lindquist <psychnursekathy@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wed, December 16, 2009 10:17:03 PMSubject: Re: Good thoughts needed Tammy, Thank you very much for the dr. name. I needed that. How do you like the docs at UCLA?I saw Dr. Zisman for 2 yrs., and when he left, I sort of felt like I was just a disease and not a person. Just my opinion.Kathy From: tammy stewart <nicunrs01 (AT) yahoo (DOT) com>Subject: Re: Good thoughts neededTo: Breathe-Support@ yahoogroups. comDate: Wednesday, December 16, 2009, 7:55 PM Kathy I also live in Omaha and as I write this I am out at UCLA ILD clinic and they are getting me a few names of good pulmo docs in the area I also have agreat family friend who is a respiratory therapist (13yrs) and he loves Dr. Mezzacappa (?sp) with alegent health bergan mercy pulmonary medicine Hope this all helps good luck with the house hunt. Tammy 35y.o. Omaha, NE UIP 11/09 From: Kathy Lindquist <psychnursekathy@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Fri, December 11, 2009 12:57:16 PMSubject: Good thoughts needed Hi all,Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.Anyone know of a good pulmo in Council Bluffs/Omaha area?Sorry for ranting on so long-just needed an outlet to vent.KathyIPF 10/09 Type 2 diabetes forever ago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 interesting, the first pulmonary at Penn left after a few months, to go into private practice, some of his patients were going to follow him i was upset, since i did not want to start over with a new pulmonary i even thought about following him to the new location he suggested that it would be better for me to stay at penn, the new pulmonary there has access to all of my records and works with the transplant team too so it all worked out for me Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Good thoughts neededTo: Breathe-Support Date: Wednesday, December 16, 2009, 11:17 PM Tammy, Thank you very much for the dr. name. I needed that. How do you like the docs at UCLA?I saw Dr. Zisman for 2 yrs., and when he left, I sort of felt like I was just a disease and not a person. Just my opinion.Kathy From: tammy stewart <nicunrs01 (AT) yahoo (DOT) com>Subject: Re: Good thoughts neededTo: Breathe-Support@ yahoogroups. comDate: Wednesday, December 16, 2009, 7:55 PM Kathy I also live in Omaha and as I write this I am out at UCLA ILD clinic and they are getting me a few names of good pulmo docs in the area I also have agreat family friend who is a respiratory therapist (13yrs) and he loves Dr. Mezzacappa (?sp) with alegent health bergan mercy pulmonary medicine Hope this all helps good luck with the house hunt. Tammy 35y.o. Omaha, NE UIP 11/09 From: Kathy Lindquist <psychnursekathy@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Fri, December 11, 2009 12:57:16 PMSubject: Good thoughts needed Hi all,Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.Anyone know of a good pulmo in Council Bluffs/Omaha area?Sorry for ranting on so long-just needed an outlet to vent.KathyIPF 10/09 Type 2 diabetes forever ago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 Tammy,I loved it when Dr. Zisman was there. He is the one that gave me the diagnosis of ILD/hyersensitivity pneumonitis, and started me on Cellcept and thalidomide. After he left, I saw Dr. Lynch, who took me off thalidomide b/c he said there was no data that thalidomide worked for ILD. He was a data guy, not a people guy. He also knew I was a nurse, and didn't give that any credence. We are looking to rent a house somewhere between Persia Ia, and Omaha until we figure out where we actually want to live. Fun times. That's my story and I'm sticking to it.Kathy From: tammy stewart <nicunrs01 (AT) yahoo (DOT) com>Subject: Re: Good thoughts neededTo: Breathe-Support@ yahoogroups. comDate: Wednesday, December 16, 2009, 7:55 PM Kathy I also live in Omaha and as I write this I am out at UCLA ILD clinic and they are getting me a few names of good pulmo docs in the area I also have agreat family friend who is a respiratory therapist (13yrs) and he loves Dr. Mezzacappa (?sp) with alegent health bergan mercy pulmonary medicine Hope this all helps good luck with the house hunt. Tammy 35y.o. Omaha, NE UIP 11/09 From: Kathy Lindquist <psychnursekathy@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Fri, December 11, 2009 12:57:16 PMSubject: Good thoughts needed Hi all,Stress levels in the house are at an all-time high right now, and I just need some good thoughts. We lost out house due to unforeseen circumstances (damn disease!) and have to be out by the 30th of Dec. Merry Christmas/Happy New Year! We ae hoping to extend it till Jan. 4th-but who knows. Eventually, we will all be in Harlan, Iowa, but for the near future, my SIL and I will be staying with my son in Persia, Ia, my daughter and her 2 kids and my husband will be getting an apartment here-damn the daughters' ex-husband. Can you tell I'm not a happy camper right now. Amazingly, through all this,the prednisone seems to be working and I'm not coughing as much. Do have a pulmodude appt on Monday with PFT's so, I'll at least know about that.Anyone know of a good pulmo in Council Bluffs/Omaha area?Sorry for ranting on so long-just needed an outlet to vent.KathyIPF 10/09 Type 2 diabetes forever ago Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.