Hi again

[Guest guest]

Hi guys...i have posted a few pics of so you can all see how

lovely he is. He has been doing Jujitzu (not sure how to spell it)

for over a year and loves it. He is now a red belt working towards

his yellow and is a real toughie. Football, rugby, he loves all

contact sports.

Having read your posts, i realise that we are very lucky with

in as much as his RSS is quite mild (if that is how you describe

it). We have never had the sort of input that alot of you talk

about.

s RSS was only noticed at 6-9 months ish and only because he

had one leg slightly longer than the other. His low weight gain was

put down to my poor breast milk and i was encouraged to bottle feed,

which was obviously not the best idea. He had an undesended testicle

which was removed when he was 14 months old. We had input from Prof

Fleming of the Bristol childrens hosp, who originally diagnosed

, but he discharged us a couple of years ago as was

doing so well. is on the 9th centile for height, but lower

for weight. He has never had growth hormone, Speech therapy, or

occupational therapy. But has had many useless dietician

appointments and some input from Orthotics who built up the sole of

his shoe when he was younger (no longer needed). The only regular

input we have now is with the hearing dept with regards to his glue

ear.

s school is great, they have always been really supportive and

do not treat any differently to any of the other boys or

girls. s friends just see him as a boy who really likes

bananas. He is fit, healthy and happy.

I am starting to realize that our overall knowledge of RSS is quite

poor. Really we just see as a fussy eater. I am finding this

site a real eye opener, so keep up the good work. I will let you

know if i have any joy in the food dept. Thanks. Liz. xxx