ok - still D and upset by everything but broth

[Guest guest]

i'm pretty sure i need professional help now - after taking enzymes that caused

D -i had d 4 times a day soup/meat got it down to once and started firming when

along came my period which loosens my bm's anyway - so i calmly waited it out

-but it's not like i can even do intro now - the only things not upsetting my

insides now are broth and homemade e-lyte drink -what to do???? what to do???

eileen 2 years 8 months scd

[Guest guest]

> i'm pretty sure i need professional help now - after taking enzymes that

caused D -i had d 4 times a day soup/meat got it down to once and started

firming when along came my period which loosens my bm's anyway - so i calmly

waited it out -but it's not like i can even do intro now - the only things not

upsetting my insides now are broth and homemade e-lyte drink -what to do????

what to do???

Eileen,

I'm wondering whether there was some kind of mold/fungus issue in the vacation

house you were staying in?

Or was it a hotel? (Besides the enzymes).

Just seems like your hormones upset your system which is extra sensitive this

month - so things should

settle back down again now that your hormones have spiked - even if more slowly

than normal.

Anyway, you certainly cannot survive very well on homemade broth and nothing

else for days,

unless you want to have major weight loss and feeling weak on top of this,

so I would add in some of your safest foods like steak and/or whatever else.

Also, did you ever find out about pepto bismal from your doc? Not that it is a

panacea - but it does

help me feel better in moments like those.

Mara

[Guest guest]

Hey Eileen,

You’ve had a rash ‘o trouble lately – I feel

for you!

Try to relax – getting all freaked out (and I am speaking

of myself as well) will not help you. I’m sure you already know

that! Soak your feet, yourself in Epsom salt bath to relieve stress. (in

your spare time – ha!)

If all your body is tolerating right now is broth then stick

with that. Can you tolerate any pureed zucchini or meat pureed back into the

broth for a more full feeling?

If it’s any solace, I eventually stopped having flares,

and I had them like every week, sometimes for weeks on end. And yeah, my period

always made symptoms worse.

Hang in there Eileen!

Carol

CD 23 yrs SCD 6 yrs

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of blackguitarmaker

i'm pretty sure i need professional help now -

after taking enzymes that caused D -i had d 4 times a day soup/meat got it down

to once and started firming when along came my period which loosens my bm's

anyway - so i calmly waited it out -but it's not like i can even do intro now -

the only things not upsetting my insides now are broth and homemade e-lyte

drink -what to do???? what to do???

eileen 2 years 8 months scd

[Guest guest]

she wrote back no immodium - but didn't specify pepto - the strict intro got the

D down so i don't know that pepto is what i need now?? -it's when i tried to

have anything off the broth and meat that this added stuff happened and even my

precious porterhouses aren't my friend :-(

pain high actually in the stomach today - ???waiting on call from gi - my cell

was dead - good timing!!! but i already feel the more stable lower gi from scd

eltye and broth - did manage roast chicken twice today -but just want yog, egg

,dccc something!!! geez!

sorry just venting - it was bad before i left def don't think it was hotel

related at all - but i am having extra mold testing done on the house we just

bought!!

eileen

>

> > i'm pretty sure i need professional help now - after taking enzymes that

caused D -i had d 4 times a day soup/meat got it down to once and started

firming when along came my period which loosens my bm's anyway - so i calmly

waited it out -but it's not like i can even do intro now - the only things not

upsetting my insides now are broth and homemade e-lyte drink -what to do????

what to do???

>

> Eileen,

>

> I'm wondering whether there was some kind of mold/fungus issue in the vacation

house you were staying in?

> Or was it a hotel? (Besides the enzymes).

>

> Just seems like your hormones upset your system which is extra sensitive this

month - so things should

> settle back down again now that your hormones have spiked - even if more

slowly than normal.

>

> Anyway, you certainly cannot survive very well on homemade broth and nothing

else for days,

> unless you want to have major weight loss and feeling weak on top of this,

> so I would add in some of your safest foods like steak and/or whatever else.

>

> Also, did you ever find out about pepto bismal from your doc? Not that it is

a panacea - but it does

> help me feel better in moments like those.

>

> Mara

>

[Guest guest]

hhmm forgot about pureeing - good call

thanks

eileen

>

> Hey Eileen,

>

> You've had a rash 'o trouble lately - I feel for you!

>

> Try to relax - getting all freaked out (and I am speaking of myself as well)

> will not help you. I'm sure you already know that! Soak your feet, yourself

> in Epsom salt bath to relieve stress. (in your spare time - ha!)

>

> If all your body is tolerating right now is broth then stick with that. Can

> you tolerate any pureed zucchini or meat pureed back into the broth for a

> more full feeling?

>

> If it's any solace, I eventually stopped having flares, and I had them like

> every week, sometimes for weeks on end. And yeah, my period always made

> symptoms worse.

>

> Hang in there Eileen!

>

> Carol

>

> CD 23 yrs SCD 6 yrs

>

>

>

> From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf

> Of blackguitarmaker

>

>

>

> i'm pretty sure i need professional help now - after taking enzymes that

> caused D -i had d 4 times a day soup/meat got it down to once and started

> firming when along came my period which loosens my bm's anyway - so i calmly

> waited it out -but it's not like i can even do intro now - the only things

> not upsetting my insides now are broth and homemade e-lyte drink -what to

> do???? what to do???

> eileen 2 years 8 months scd

>

[Guest guest]

Eileen

I

have lived on broth and applesauce for months (about 8 months) when I was going

through test after test, seeing one specialist after another, searching for a

diagnosis. I had no energy to do much of anything, though – and it

took me several years to get back to reasonably-good health.

I

would probably check in with your doctor, to start the testing process.

You might have an upper GI malfunction (or something else) that needs

intervention.

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>>>>>>>>>

i'm

pretty sure i need professional help now - after taking enzymes that caused D

-i had d 4 times a day soup/meat got it down to once and started firming when

along came my period which loosens my bm's anyway - so i calmly waited it out

-but it's not like i can even do intro now - the only things not upsetting my

insides now are broth and homemade e-lyte drink -what to do???? what to do???

eileen 2 years 8 months scd

[Guest guest]

thanks kim - it's taking it's toll - can't be this weak and be mom :-(

i had an increase in D after just the soup and scd eltye yesterday so I went the

other extreme 1 hour ago - put in egg yolk and dccc - yum - even felt hungry

after but i feel D coming already but sometimes when there's nothing in me i

can't form a bm - so i'm adding stuff while waiting on doc - sure i'll regret

this, but who knows - if one way does't work - try another

thanks eileen

>

> Eileen

>

>

>

> I have lived on broth and applesauce for months (about 8 months) when I was

> going through test after test, seeing one specialist after another,

> searching for a diagnosis. I had no energy to do much of anything, though -

> and it took me several years to get back to reasonably-good health.

>

>

>

> I would probably check in with your doctor, to start the testing process.

> You might have an upper GI malfunction (or something else) that needs

> intervention.

>

>

>

> Kim M.

>

> SCD 6 years

>

> Sphincter of Oddi dysfunction 6+ years

>

> neurological & spinal deterioration 3+ years

>

> >>>>>>>>>>>>>>>>>>>>>>

>

>

>

> i'm pretty sure i need professional help now - after taking enzymes that

> caused D -i had d 4 times a day soup/meat got it down to once and started

> firming when along came my period which loosens my bm's anyway - so i calmly

> waited it out -but it's not like i can even do intro now - the only things

> not upsetting my insides now are broth and homemade e-lyte drink -what to

> do???? what to do???

> eileen 2 years 8 months scd

>

[Guest guest]

Have you been tested for c. diff?

Holly

Crohn's

SCD 12/01/08

>

> thanks kim - it's taking it's toll - can't be this weak and be mom :-(

> i had an increase in D after just the soup and scd eltye yesterday so I went

the other extreme 1 hour ago - put in egg yolk and dccc - yum - even felt hungry

after but i feel D coming already but sometimes when there's nothing in me i

can't form a bm - so i'm adding stuff while waiting on doc - sure i'll regret

this, but who knows - if one way does't work - try another

> thanks eileen

>

[Guest guest]

next stool is being brought to lab for a bunch of testing including that -but it

would be too weird if it happened to be something else right at the time i " over

enzymed " myself

ironicaly my opposite approach seems to be helping - i just said i'm going to

eat - mostly all intro stuff but forget this broth /liquid diet as it's

increasing my d - so i went the eating route and think i feel improvement - i am

such a freak of nature!!! seriously!

thanks

eileen

> >

> > thanks kim - it's taking it's toll - can't be this weak and be mom :-(

> > i had an increase in D after just the soup and scd eltye yesterday so I went

the other extreme 1 hour ago - put in egg yolk and dccc - yum - even felt hungry

after but i feel D coming already but sometimes when there's nothing in me i

can't form a bm - so i'm adding stuff while waiting on doc - sure i'll regret

this, but who knows - if one way does't work - try another

> > thanks eileen

> >

>