Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Pattie - what an encouraging message. Thank you for posting that. Not that it's my place to thank you - but, it's so nice to hear the positive once in awhile. <grin> Hope you are doing well. - H > > Hi Jenn, > > I am so sorry to hear about 's problem. I'm not sure what to > call it at this point. Jon has had one seizure in his life but it was > associated with a fever which runs in our family. Madison (not RSS) > has a seizure disorder and has had two seizures. I have always > believed them to be hormone related, which can cause seizures. Her > EEG is abnormal and they can tell exactly on the EEG where in the > brain the activity is happening and which side the seizure will be on. > Our neurologist says that many people have abnormal EEGs and yet > never have seizures. There are also many different kinds of seizures, > some that cause damage and many that don't. In Madison's case she > takes Carbatrol twice a day because we really don't want the seizures > to occur. It was explained to us that her seizures can become more > frequent because once the signal goes through the brain, it learns the > path and travels more frequently. > > I would think that if a doctor was concerned about that they would > have wanted to see you right away. I have a friend whose son has > seizures and the doctor says that they don't do him any harm because > of their type. It is important to note whether they are occurring > more frequently when she is tired or stressed. I also know that > Madison can not have antihistamines because it lowers her threshold > for seizures. > > Lastly, I would not be surprised to find out that the movements she > is experiencing are drug related. Ticks are a side effect to many > medications. I know that my husbands leg jerks several times a night > in bed because of his meds. > > I hope that you find a good Peds neuro and get some answers. It > really may be nothing to worry about and if she does need to have > medication it may not mean that she has to take it all her life. We > really have not seen any side effect to Madison's medicine except that > it is also a mood stabilizer which has made the teenage years a breeze > so far! Who says meds don't have good side effect! > > Call me if you need anything. > > Pattie > > P.S. I would also expect that a Neuro would do an MRI to check for > any problems. We had a thin slice MRI which is apparently better to > look for abnormalities. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Jen, I am hoping that you will soon have some answers on 's recent medical development. You are doing a great job, and thank God that you are connected with some top medical professionals! Charissa hasn't had seizures or the same head-bobbing as , but she has had episodes of passing out. It hasn't happened for a couple of years, but they started about 5 years ago and happened off & on for about 3 years. It only happened when she was stressed, sleep deprived, ill or off her routine. It happened when we were on vacation (yeah, *that* was fun), when she had a stomach/intestinal virus, when she had cramps from her menstrual cycle, and when she was over-tired a couple of times. She seemed to know when it was going to happen - I learned that if she said " I feel dizzy " I had better be ready to catch her in the next 2 seconds! She had a sleep-deprived EEG done and it was somewhat " abnormal " , but of course not the same " abnormal " that would indicate a specific problem - so they told us to just keep documenting the incidents & hopefully they would go away. They originally did think that it could be some type of seizure activity because when it would happen, she would be out for up to a couple of minutes, but they decided it wasn't seizures. We were told that these episodes were Vasovagal Syncope, and may or may not have something to do with the abnormalities that show up on Charissa's MRI. Charissa was also given an EKG, as sometimes these episodes are an indicator of a heart condition. The EKG was totally normal. in Alaska (Where our high temp today MIGHT reach 5 degrees F! But at least it is sunny!) RSS-Support wrote: Date: Tue, 24 Jan 2006 21:35:15 -0000 From: " pswmjp " Subject: Abnormal EEGS Hi Jenn, I am so sorry to hear about 's problem. I'm not sure what to call it at this point. Jon has had one seizure in his life but it was associated with a fever which runs in our family. Madison (not RSS) has a seizure disorder and has had two seizures. I have always believed them to be hormone related, which can cause seizures. Her EEG is abnormal and they can tell exactly on the EEG where in the brain the activity is happening and which side the seizure will be on. Our neurologist says that many people have abnormal EEGs and yet never have seizures. There are also many different kinds of seizures, some that cause damage and many that don't. In Madison's case she takes Carbatrol twice a day because we really don't want the seizures to occur. It was explained to us that her seizures can become more frequent because once the signal goes through the brain, it learns the path and travels more frequently. I would think that if a doctor was concerned about that they would have wanted to see you right away. I have a friend whose son has seizures and the doctor says that they don't do him any harm because of their type. It is important to note whether they are occurring more frequently when she is tired or stressed. I also know that Madison can not have antihistamines because it lowers her threshold for seizures. Lastly, I would not be surprised to find out that the movements she is experiencing are drug related. Ticks are a side effect to many medications. I know that my husbands leg jerks several times a night in bed because of his meds. I hope that you find a good Peds neuro and get some answers. It really may be nothing to worry about and if she does need to have medication it may not mean that she has to take it all her life. We really have not seen any side effect to Madison's medicine except that it is also a mood stabilizer which has made the teenage years a breeze so far! Who says meds don't have good side effect! Call me if you need anything. Pattie P.S. I would also expect that a Neuro would do an MRI to check for any problems. We had a thin slice MRI which is apparently better to look for abnormalities. --------------------------------- Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
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