Re: Where am I going wrong?

[Guest guest]

Hi Steve,

Sorry to hear that you are feeling nauseous all the time. I didn't have nausea,

but have only felt more normal in the last few weeks with fogginess in my head

dissapating. I can't really give you too much info except from what I have

experienced in my short 2 weeks on the diet. I have been focussing on making

soups/broths for most meals. I really feel like it is enabling my body to

regenerate and giving me such vital nutrients that my body is able to absorbs

along with the great fats that is helping my skin rejuvenate. They say that

what is going on with your skin is a reflection of the inside, so I'm pretty

excited bout that. Check out this link:

http://pecanbread.com/new/elaine2/soup.html

The other thing I can say about what you have listed, is how quickly did you add

them in? perhaps you needed to stay on broths/soups longer for more healing to

take place? I am going to keep incorporating soups/broths for the rest of my

life I think as they are so nutritious.

Hope that is of some help and you start feeling better soon.

Davina

> >

> > Hi all,

> > I have been on SCD since December 2009 but have not had any change in my

condition, either negative or positive. My symptoms are admittedly different

from anyone else I have encountered on these boards and consist of constant

nausea and/or stomach pain/ache/discomfort as well as some discomfort in my

colon. I open my bowels 2-3 times per day and whilst my stools are generally

formed things are not quite right in this area as I don't produce long golden

banana shapes that we all strive for. My symptoms are constantly changing in

severity and change seemingly for no reason. The worst symptom by far is the

nausea. I never feel normal or well, not even for 5 minutes and I have felt like

this for over 2 years now.

> >

> > I think I have been strict on the diet but I thought I would list my

complete food list and ask you guys if you can see where I am going worng. The

foods I consume are as follows:- grilled plain salmon, grilled plain chicken and

turkey, home made '24hr' yoghurt, mild cheddar cheese, broccoli, carrots,

cauliflower, greens, sprouts, leeks, cabbage, beets, cashew nuts, almonds,

brazil nuts, walnuts, apples, bananas and nectarines. I only drink bottled

water. I don't eat anything else.

> > The only medication I take is Mirtazapine which I believe is legal. I don't

take any supplements.

> >

> > I would welcome any thoughts please.

> >

>

[Guest guest]

Steve,

Sorry to hear you have been having such a rough time. But don't give up yet.

Let's do the analysis step by step, ok?

Someone just mentioned you may have rushed into adding new foods. This is quite

a possibility. In such a case some foods are constantly aggravating your system

and creating 'background noise' which you someitmes just get used to having

hanging around or it gets to the annoyance stage.

Your nausea could be due to the 'gassy' foods like the cruciferous family of

vegetables. Cut them all out ASAP. What are the sprouts you are eating - brussel

sprouts? (legal) or bean/lentil sprouts? (illegal).

Then do the intro for 2-3 days. If you feel a tad better that is a good sign.

Start adding ONE food at a time every 2-3 days to see how you eact,. DO NOT rush

adding foods into your diet at this stage. You will NOT starve!

Eat smaller portions every 2-3 hours. This makes it easier for our weakened

digestive systems to handle and you will not be hungry all the time.

Are you consuming honey? Stop that for now - it can be a problem every now and

then for some of us even though it is SCD legal.

Acheiving those 'trophy' stools, as Ealine liked to call them, are no easy feat.

You have not yet completed a year on the diet, it can take longer than a year

for some of us to heal completely. We will go through ups and downs during this

process.

Have you had any scopes done recently? Prior to my second bowel surgery for

complete obstruction of the small bowel (a result of my previous surgery

leading to scarring of the tissue), I used to feel nauseous every now and then,

and also had a physical symtpom of feeling my abdominal area go up and down

(like a snake was running around in my abdomen!) - this was the difficult

peristaltic movement of the intestines, trying to push through the narrowing

that had begun. I finally was completely obstructed and had to have my stomach

pumped in the ER. Not to scare you - just giving symptoms to watch out for.

Any reason you are not taking SCD legal probiotics?

Most of your foods are fibrous. I think you need to drastically reduce those

from your diet for now, go back to the easy (maybe boring) foods for at least

two weeks - I am being kind here!

Cut out the nut baked goodies.

You may want to keep a food diary/journal/log to track what foods you are eating

(from now on) and how you feel during the day.

The fact that you are not on any supplements other than the one you mentioned

(sorry can't help you with that one) may make it easier to track down what could

be bothering you food wise.

And last but not least, stay positive!

Suneeti (Crohns, SCD 2000)

[Guest guest]

One

of my chronic digestive symptoms is nausea, triggered by my upper GI functional

disorders. I also get nausea in connection with several types of neurological

issues that I deal with. So nausea is something I deal with 24/7. I’ve

just learned how to keep it minimal as much as possible. And since being

on SCD, I’ve managed to find one or two hours free of nausea (and

abdominal pain) per day, which is a wonderful treat. In fact, during this

past year I haven’t needed to use Phenergan (for nausea) more than once

every few months, a huge difference to where I was seven years ago.

What

foods I eat, how I prepare them, when I eat them, are all factors that impact

my level of nausea (and other digestive symptoms).

Of

the foods you list, I can’t eat: cauliflower, sprouts, leeks, cabbage,

whole nuts, bananas. I can’t eat yogurt or cheese either, but that

is due to having a casein sensitivity. I do eat a lot of wild-caught

salmon, pan-fried or broiled, but can’t touch farm-raised because my

digestion and my immune system reacts. Chicken and turkey can be

problematic, partly because I need white-meat only (fat content), and it can be

challenging to find poultry that hasn’t been “enhanced” with

flavoring solutions. I rarely find turkey that is clear of any flavoring

solutions. I do eat a lot of white-meat chicken, baked or

stir-fried. I do use nut flours, but can’t use cashew or brazil

nut, and I have to limit my muffins and breads made with nut flours to one

serving a day.

Seasonings,

fats and fiber all increase my nausea, along with triggering abdominal pain and

slowing down my digestive motility. So I cook everything, even fruit. Or

I juice fruit and dilute significantly. I make my daily cup of tea very

weak. I drink water at room-temperature or slightly warm since cold

drinks trigger nausea as well. I use spices very sparingly, and some are

off-limits now.

I

also eat certain foods at certain times of day. I can’t eat much

beyond protein before 11 am; can’t eat anything heavy after 5 pm. So

I eat the more challenging foods between 11:30 am and 5 pm.

You

aren’t doing anything wrong, exactly, but you may need to experiment a

bit more with your foods. Check that you aren’t getting anything

illegal in the poultry; check that any seasonings you are using when grilling

don’t contain illegals. Perhaps try eating less of one food for a week or

two and see if that helps. One or two of your current foods might be

tolerated better if you eat less of it.

I’m

assuming you’ve been through the tests that can identify issues that

trigger nausea. It does help knowing the causes, although in the end we

still have to experiment to figure out what works best for each of us since the

doctors and research can only suggest things that might work.

Kim M.

SCD 6+ years

Sphincter of Oddi dysfunction 7 years

neurological & spinal deterioration 4 years

>>>>>>>>>>>>>>>>>>>>>>>

I

think I have been strict on the diet but I thought I would list my complete

food list and ask you guys if you can see where I am going worng. The foods I

consume are as follows:- grilled plain salmon, grilled plain chicken and

turkey, home made '24hr' yoghurt, mild cheddar cheese, broccoli, carrots,

cauliflower, greens, sprouts, leeks, cabbage, beets, cashew nuts, almonds,

brazil nuts, walnuts, apples, bananas and nectarines. I only drink bottled

water. I don't eat anything else.

The only medication I take is Mirtazapine which I believe is legal. I don't

take any supplements.

I would welcome any thoughts please.

[Guest guest]

Hi Steve,

I had *constant* nausea- like everything gave me the dry heaves.

Now that I have been so so health wise again the nausea is a nuisance.

I'd suggest you look into various testing like a rectal swab (parasites do not

shed or live in stool- it's in the actual tissue)

and maybe do a urine dysbiosis test- Metametrix has a good one.

Also, perhaps look into stomach acid issues (most likely too little although on

occasion someone can have too much)

Have you had your complete Thyroid panel checked?

Jodi

[Guest guest]

Hi Steve:

I had nausea for five years and started doing some "therapies" that i will list here and hope you will find the same relief. Also, as a researcher I have a tendency to write as "just the facts please" (the worse part is i speak in that manner as well ) In other words I do not mean to have "abrupt writing". That said:

Mirtazapine - part of the side effects are nausea, headaches and dizziness. These particular side effects happen when you stop the medication abruptly or when you miss doses - even one. If your nausea has been with you since you started taking the medication and have not missed doses it could be the prescription is too high - check with your doctor.

When I saw your list of foods I realized you are eating all of the foods that are triggers. Garlic, onions, leeks, broccoli, cauliflower, cabbage, asparagus, and brussels sprouts - aside from being sulfur containing foods they have high amounts of insoluble fiber and also produce significant gas in the GI tract and can cause attacks. Whether or not a person has a "gut problem" - these foods should be eaten sparingly (once a month at best) - never raw - and should be cooked (for at least 45 mins or longer on a low simmer) and pureed.

Never eat insoluble fiber on an empty stomach it may cause an attack - at every meal soluble fiber should always be eaten first. However, being on the SCD diet, this makes it hard since most soluble fibers are illegal (rice, potatoes, pasta etc.) So 15 mins before your meal cook and puree an SCD legal banana and eat it or eat applesauce (about 1/2 cup), winter squash (same amount) or pureed carrots. Then eat your meal - but for right now you will need to remove some of those foods on your list and add others.

Potatoes are an excellent source of soluble fiber but since we cannot have it here is another alternative - lima beans are both insoluble (skin) and soluble (inside) fiber. Take frozen baby lima beans (do not defrost) and put them into a container with water (bottled). Soak them for 20 hours (change the water every few hours). Drain, rinse and place into a pot with fresh bottled water - make sure it covers 2 or 3 inches above the beans. Cook on low flame for 4 hours. When done - put through a food mill - DO NOT attempt to eat the skins as they will be like leather. Once you have removed all of the skins mash and add butter - you will have the most buttery mashed potatoes you have ever had! If you do not have a food mill you can use a sieve but it will take longer to do.

As far as the chicken goes - you really do not want to know what they do to chicken. Out of all the meats chicken is the most processed food. Unless you are picking up the chicken at an organic farm - I suggest taking it out of your diet for a few days and see how that goes. What about other meats? steak, pork chop etc.

Bottled water - if you are buying store brand - switch. Store brand bottled waters contain large amounts of sodium (even though not listed on the label). The two that i have found that do not are Poland and Great Bear.

Cheese - Calbot cheeses, including the extra sharp, contains 0g of lactose. (Make sure to read the package though as things change) maybe switching to this brand might help.

Nuts (an insoluble fiber) - out of all the nuts you are eating - remove brazil nuts. They are known to cause allergies/reactions.

Nausea Remedy:

When using teas, sit down, relax and drink - do not gulp down and run. No milk and no honey.

Fennel Tea - in the old days - fennel tea was drunk after every meal. Fennel tea calms the gut down and helps it to digest food and reduces inflammation. You can get it at whole foods or a health food store. Alvita is a good brand - natural and nothing else in it. When you feel nausea coming on sit and drink a cup of fennel tea for about 15 mins. I have found that one or two cups a week helps.

Ginger - get some ginger and make ginger tea. Cut a piece of ginger and put it into a cup of very hot water. Let it sit for 5 mins - remove the ginger. Warning here - if you are not use to eating raw ginger it can burn the back of your throat.

Parsley - this not only works for nausea but is fantastic for flu and the cold. Parsley acts like aspirin. Put fresh parsely (washed and dried) into a cup of hot water and let it steep for 5 mins. Remove parsley and drink - if you made a strong enough tea the effects will last for 4 hours.

Cinnanmon - (no not tea) - start putting this "spice" on your meals. Cinnamon is not only good for you it helps to reduce nausea.

And lastly - make sure you are not leaving too much time inbetween meals. Try to eat at the same times each day.

Hope this helps!

Take Care

Jean

To: BTVC-SCD Sent: Mon, September 27, 2010 5:44:46 PMSubject: Where am I going wrong?

Hi all,I have been on SCD since December 2009 but have not had any change in my condition, either negative or positive. My symptoms are admittedly different from anyone else I have encountered on these boards and consist of constant nausea and/or stomach pain/ache/discomfort as well as some discomfort in my colon. I open my bowels 2-3 times per day and whilst my stools are generally formed things are not quite right in this area as I don't produce long golden banana shapes that we all strive for. My symptoms are constantly changing in severity and change seemingly for no reason. The worst symptom by far is the nausea. I never feel normal or well, not even for 5 minutes and I have felt like this for over 2 years now.I think I have been strict on the diet but I thought I would list my complete food list and ask you guys if you can see where I am going worng. The foods I consume are as follows:- grilled plain salmon, grilled plain chicken and

turkey, home made '24hr' yoghurt, mild cheddar cheese, broccoli, carrots, cauliflower, greens, sprouts, leeks, cabbage, beets, cashew nuts, almonds, brazil nuts, walnuts, apples, bananas and nectarines. I only drink bottled water. I don't eat anything else.The only medication I take is Mirtazapine which I believe is legal. I don't take any supplements.I would welcome any thoughts please.

[Guest guest]

Mara

Thanks for the suggestions but I have had 6 stool tests done

at different labs and all were negative for parasites, pathogens and yeast etc.

Steve

Chronic Nausea and Digestive System Discomfort - August 2008

SCD - 18/12/09

Mirtazapine - 30mgs

[Guest guest]

Hi Sandy

Thanks for the thought. Grilled in the UK means what I think

you call broiled. I eat plain meat with nothing added at all but thanks for the

idea.

Steve

Chronic Nausea and Digestive System Discomfort - August 2008

SCD - 18/12/09

Mirtazapine - 30mgs

[Guest guest]

Steve,

Whe we talk about 'nothing added to it' in the context of SCD meats, we mean the

raw meat should not have anything added to it at source (not any spices etc that

YOU may want to add to the recipe). There have been number of instances of raw

chicken for example being injected with sugar water to help keep the flesh

tender, unknown to the customer. And then of course there is the antibiotics

saga. I have bought raw chicken from a butcher who swears no antibiotics or

hormones have been used in raising the chickens (he does not sell certified

organic meats, just claims they are free of blah-blah) - but ever since my hands

started to itch while washing the chicken, I stopped buying from him and

switched back to organic - no more itching.

Suneeti (Crohns, SCD 2000)

[Guest guest]

Steve,

Look at Jodi's posting #53440.

Keep in mind that not only is stool testing notoriously finicking, but if your

pathogens are wrapped up in biofilm, they might not be leaving the biofilm

community.

Have you thought of doing an organic acid test? This, too, can be tricky with

the biofilm thing, because the pathogens respirate at a lower rate in biofilm,

sort of like hibernation (I'm not entirely sure if hiberation is the exact

word....)

I think the only real way of testing is to try an anti-bacterial and/or

anti-fungal and see what your reaction is. You might want to combine it with

enzymes, particularly those that target biofilm.

Ellen

>

> Mara

>

>

>

> Thanks for the suggestions but I have had 6 stool tests done at different

> labs and all were negative for parasites, pathogens and yeast etc.

>

>

>

> Steve

>

> Chronic Nausea and Digestive System Discomfort - August 2008

>

> SCD - 18/12/09

>

> Mirtazapine - 30mgs

>

[Guest guest]

Ellen,

" I think the only real way of testing is to try an anti-bacterial

and/or anti-fungal and see what your reaction is. You might want to

combine it with enzymes, particularly those that target biofilm "

This is the first reference I've seen to parasites hiding in the

biofilm , though it makes sense that they would. Were you thinking of

the enzymes such as Nattokinase and Lumbrokinase for targeting the

biofilm, or the more common digestive enzymes ?

Thanks,

Sue

[Guest guest]

Sue,

Actually, this isn't your first reference to parasites in biofilm because I have

no idea if they colonize there with the other baddies. It would be worth

researching. No, I was referring only to pathogenic bacteria and yeast.

I've used biofilm enzymes pretty extensively and in conjunction with natural

anti-fungals and anti-bacterials with big gains. This includes Interfase from

Klaire Labs, and SPS-30 and PRX (also an anti-viral) from Theramedix. I sort of

adopted the autism biofilm protocol for my own uses.

I couldn't find any legal Lumbrokinase, and the Nattokinase I could find all

stated that it contained soy. PRX does contain Nattokinase and I assume it is

soy-derived, but I tried it anyway and didn't have a reaction.

Ellen

>

> Ellen,

>

> " I think the only real way of testing is to try an anti-bacterial

> and/or anti-fungal and see what your reaction is. You might want to

> combine it with enzymes, particularly those that target biofilm "

>

> This is the first reference I've seen to parasites hiding in the

> biofilm , though it makes sense that they would. Were you thinking of

> the enzymes such as Nattokinase and Lumbrokinase for targeting the

> biofilm, or the more common digestive enzymes ?

>

> Thanks,

>

> Sue

>

[Guest guest]

> Sue,

>

> Actually, this isn't your first reference to parasites in biofilm because I

have no idea if they colonize there with the other baddies.

Yes, they do. They take up mixed condominium residence. And they can sort of

evolve and mutate,

apparently.

> It would be worth researching. No, I was referring only to pathogenic

bacteria and yeast.

>

> I've used biofilm enzymes pretty extensively and in conjunction with natural

anti-fungals and anti-bacterials with big gains. This includes Interfase from

Klaire Labs, and SPS-30 and PRX (also an anti-viral) from Theramedix. I sort of

adopted the autism biofilm protocol for my own uses.

>

How did those work for you? I looked into them at one point, and then I didn't

follow up for some

reason or another. But it would be a useful thing to do.

Mara

[Guest guest]

Hi Ellen,

> Actually, this isn't your first reference to parasites in biofilm because I

have no idea if they colonize there with the other baddies. It would be worth

researching. No, I was referring only to pathogenic bacteria and yeast.

Yeah, they do all sorts of whack stuff like gene swap and mutate and then like

take on other characteristics lovely aye?

> I've used biofilm enzymes pretty extensively and in conjunction with natural

anti-fungals and anti-bacterials with big gains. This includes Interfase from

Klaire Labs, and SPS-30 and PRX (also an anti-viral) from Theramedix. I sort of

adopted the autism biofilm protocol for my own uses.

I was thinking of using one of Klaire's Interfase products. How do you feel

that works for you? Also, have you tried the one with the EDTA? Do you know

the mechanism of how the EDTA works the biofilm?

> I couldn't find any legal Lumbrokinase, and the Nattokinase I could find all

stated that it contained soy. PRX does contain Nattokinase and I assume it is

soy-derived, but I tried it anyway and didn't have a reaction.

I know Boluoke is a good one the bummer is it contains cornstarch!

Have you looked into Oreganocillian (sp?) at all?

Also, some people have found help using tweaks from the Biofilm Carbohydrate

Guy..

Jodi

[Guest guest]

Mara,

I started very slow, taking one in the morning when I first woke up (with lots

of water). I then added a second two hours after breakfast, and then a third

two hours after lunch, and then one before my Nystatin at night. It took me

about a month to get up to four. I did this with all three that I tried

(SPS-30, PRX and Interfase). There were some appreciable differences in how

they made me feel. Sometimes the SPS would make me feel good, and I've read it

can act on histamines and I've got bad allergies.

I then transitioned into doing the anti-viral protocol that DeFelice talks

about on Enzymestuff with the PRX (PRX is the same as Enzymedica Virastop but

twice as strong). It made me a little jumpy, and I could never get up to the

really high dosing mentioned on Enzymestuff, but I did see gains from this

protocol, too. I also has some really funky rashes. Or I should say one really

funky rash that appeared a few places on my body. It was like patch of purple

mottling in my skin. I'd get one, it would be around for a bit, then go, and

then I'd get another on a different part of my body. It was one of few signs

that my viruses were jumping ship.

Ellen

>>

> How did those work for you? I looked into them at one point, and then I

didn't follow up for some

> reason or another. But it would be a useful thing to do.

>

> Mara

>

[Guest guest]

Jodi,

Congratulations, in a perverse way, on your worm saga. Figuring things out

seems to be half the battle with us and at least you know what you've got to

fight. Interesting observation on the LDN. My immune system is pretty messed

up (Hashimoto's, allergies, chronic fatigue, some sort of IBD) and I've thought

about using it but haven't gotten around to really researching it.

I've got both the regular and EDTA versions of Interfase sitting in my fridge.

I haven't yet tried the Interfase Plus with the EDTA because I am totally

chicken. From what I've read, the biofilm is sort of woven together with

whatever goo produced by the pathogens along with positively charged cations.

So things like Ca+, Mn+ are building blocks, the EDTA removes them, and the

biofilm falls apart.

I was really opposed to using the EDTA as I'm not sure what it would do

systemically as it is chelator, but the more I've read is that it has poor

absorption through the digestive track, so the risks are low that it would

mobilize a bunch of stuff.

Thanks for the tips on the oreganocillan and the Biofilm Carbo guy...haven't

heard of them, but I'm off to google them soon.

Ellen

>

>

> I was thinking of using one of Klaire's Interfase products. How do you feel

that works for you? Also, have you tried the one with the EDTA? Do you know

the mechanism of how the EDTA works the biofilm?

>

> I know Boluoke is a good one the bummer is it contains cornstarch!

> Have you looked into Oreganocillian (sp?) at all?

>

> Also, some people have found help using tweaks from the Biofilm Carbohydrate

Guy..

>

> Jodi

>

[Guest guest]

Ellen, how long did your funky rash stick around? I've had the same funky

rash in the past (sometimes purple, sometimes more red), and it always went away

within a week or so. But my current funky rash (which I think started out

purple/red, but has since turned more of an orange) has hung around for at least

a couple of months. It's on the backs of my hands, behind my knees, and on my

thighs.

Holly

Crohn's

SCD 12/01/08

> >>

> > How did those work for you? I looked into them at one point, and then I

didn't follow up for some

> > reason or another. But it would be a useful thing to do.

> >

> > Mara

> >

>